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    • 1 hour, 42 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 21 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 22 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?

    Home > LC Polls > If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      I keep an Excel spreadsheet of blood work going back to 1974.

      LDL data averages 80.7. Sometimes, it’s so low it cannot be calculated. HDL, LDL, triglycerides, and cholesterol are all in double digits. Well, no. Cholesterol is three digits averaging 150. (〜^∇^)〜

      4 years ago Log in to Reply
    2. Britni

      I know the value was really good, but don’t remember what the actual value was.

      4 years ago Log in to Reply
    3. Larry Martin

      I answered then I looked. It is 30 because I am prescribed a statin.

      4 years ago Log in to Reply
    4. Annie Wall

      It is now always below 100. I take 40 mg of simvastatin and have done so for about the last 25 years.

      4 years ago Log in to Reply
    5. Sherolyn Newell

      I only remember that it wasn’t too high.

      4 years ago Log in to Reply
    6. KCR

      My LDL is just slightly above 100 but my HCP and I are not concerned because my HDL is , too.

      1
      4 years ago Log in to Reply
    7. Patricia Dalrymple

      Yes because for the first time mine was high. I switched from eating Tuna without mayo for lunch to Turkey breast with sometimes a teaspoon or less of mayo, so I will convince my doctor that I can control it with diet. I don’t want to be on a statin. Digging down and making sure I eat healthier. All other numbers are OK except thyroid and I was checked for cancer, so nothing there. And I hated the thyroid medicine so doc said I could go off.

      4 years ago Log in to Reply
      1. Jneticdiabetic

        Interestingly the only time my LDL levels were elevated above normal was when I was hypothyroid. After figuring out my Synthroid dose and getting my thyroid levels back in normal limits, my cholesterol returned to normal too.

        4 years ago Log in to Reply
    8. gary rind

      knew mine was under 70 but looked it up and it was 60. my endo told me that diabetics have the risk factor for a heart attack like someone who has already had one and that my target was 70. take 10 mg of simvastatin

      4 years ago Log in to Reply
    9. Nevin Bowman

      So why shouldn’t we eat more high cholesterol foods and take a higher dose of statins? After all, that’s how we’re told to treat diabetes 😑

      4 years ago Log in to Reply
      1. Jane Cerullo

        Bahaha. Exactly why i don’t take statins. As a cardiac RN I notice low LDL with no lifestyle changes equals cardiac stents. How does that happen when LDL is 40. Mmm 🤔

        4 years ago Log in to Reply
    10. Kathy Morison

      I don’t know the exact number without looking but do know that all values relating to cholesterol is well within normal range. No cholesterol meds.

      4 years ago Log in to Reply
    11. Mick Martin

      Although I selected “Yes – My LDL was above 100 mg/dl” I had to do a quick calculation as I live in the UK, where our cholesterol measurements are delivered in mmol/l (millimols per litre … that’s liter for my American cousins).

      To change mmol/l to mg/dl you simply multiply by 18. Likewise, if you wish to convert from mg/dl to mmol/l you divide by 18.

      4 years ago Log in to Reply
      1. Anneyun

        I’m Canadian so had to do the calculation as well. I googled it and was told to multiply by 38.67.

        4 years ago Log in to Reply
      2. Gustavo Avitabile

        The multiplier 18 applies to blood glucose, rather than LDL.

        4 years ago Log in to Reply
    12. Jane Cerullo

      My LDL is 106 without a statin. I refuse to take
      Statins. Last month my cardiologist suggested Cholestoff, garlic and ginger. Will be o retested to see if this works to get under 100.

      4 years ago Log in to Reply
    13. Patty Harris

      For the first time ever, mine was 142. I was in the 60’s and 70’s before. I had decided to experiment for six months and not take my Pravastatin. Well, I got a big surprise and now I’m back on the statin. I eat a lot of Keto, so maybe that played a part in the rise???

      4 years ago Log in to Reply
    14. sdimond

      Read this paper in the British Medical Journal: https://bmjopen.bmj.com/content/5/9/e007118
      You will see how little effect that taking a statin has on your survival. Reducing your average A1C by 0.5 will extend your life and your quality of life by more than taking a statin. Statins also increase your insulin resistance and make it harder to control your blood sugar.

      1
      4 years ago Log in to Reply
      1. Wanacure

        Wow! Thanks for this info!

        4 years ago Log in to Reply
    15. Chris Albright

      My weakness in lowering my LDL is morning breakfast…… (2 strips of bacon and a sausage patty). I need to change to a ‘bacon want to be’ product…

      4 years ago Log in to Reply
    16. Tina Roberts

      Equal to.

      4 years ago Log in to Reply
    17. TomH

      I’ve had great cholesterol readings for years, partly due to the atorvastatin I’m on. I get tested at least every 6 months and doctors, both PCP and Endo, comment on it, so I don’t worry about it.

      4 years ago Log in to Reply
    18. Mary Ann Sayers

      My last LDL was 79—yes, I do know.

      4 years ago Log in to Reply
    19. Amanda Barras

      Below, but I’m also on a statin. Without that I’m above.

      1
      4 years ago Log in to Reply
      1. AnitaS

        Same here.

        4 years ago Log in to Reply
    20. Jillmarie61

      My LDL was 101.

      4 years ago Log in to Reply
    21. Tb-well

      Mine was over 100, but my tsh was also .0005. Normally it is at about 80.

      4 years ago Log in to Reply
    22. Wanacure

      Never had a cholesterol problem, but I’m on 10 mg simvastatin daily…”as a precaution/preventative.” sdimond’s comment is making me wonder. Do I REALLY need this?

      4 years ago Log in to Reply

    If you are an adult with type 1 diabetes, without looking at your medical records, do you know whether your most recent LDL cholesterol level was above, below, or equal to 100 mg/dl? Cancel reply

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