Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 14 hours, 52 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 14 hours, 52 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 19 hours, 29 minutes ago
      KSannie likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      I understand enough to decide not to participate in the study ... sometimes.
    • 20 hours, 6 minutes ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 1 day, 20 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 7 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 7 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 14 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 14 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 14 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 14 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 2 days, 19 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 2 days, 19 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 days, 20 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 20 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 20 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 2 days, 20 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 2 days, 20 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 20 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 2 days, 21 hours ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 11 hours ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 3 days, 13 hours ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 3 days, 15 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 3 days, 16 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 3 days, 16 hours ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    What is the symptom you most often notice first when you’re starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)

    Home > LC Polls > What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!)
    Previous

    Which of these symptoms of hypoglycemia do you frequently experience? Please select all that apply. (This is part 3 of a 3-day understanding hypoglycemia series)

    Next

    When you are beginning to experience hypoglycemia, do you consistently have a particular symptom or set of symptoms that signal the start of a low to you? (This is part 1 of a 3-day understanding hypoglycemia series – check back tomorrow and Monday for days 2 and 3!)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Our team

    Spotlight on T1DX-QI: Clinical Leadership Committee 

    Jewels Doskicz, 7 days ago 6 min read  
    2026 Publications

    Persistent Burden of Severe Hypoglycemia and Impaired Awareness of Hypoglycemia Among People With Type 1 Diabetes Despite Technology Use: A Follow-up Survey 

    T1D Exchange, 2 weeks ago 1 min read  
    Advocacy

    Meet the Expert: Advancing Equity, Technology Access, and Connection in Diabetes Care 

    Jewels Doskicz, 2 weeks ago 11 min read  
    News

    A Nutritionist in Your Pocket: How One Family’s T1D Journey Inspired the Creation of SNAQ 

    Michael Howerton, 4 weeks ago 4 min read  
    Lifestyle

    Finding Strength in the Journey: The Unexpected Upside of Living with Type 1 Diabetes 

    Jewels Doskicz, 1 month ago 5 min read  
    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 1 month ago 6 min read  

    33 Comments

    1. Becky Hertz

      I have some hypoglycemic unawareness so don’t always have any symptoms and if I do it’s more of a “hmmm…I feel weird” but nothing specific

      2
      4 years ago Log in to Reply
    2. Janice B

      I experience more than one symptom at a time.

      4 years ago Log in to Reply
    3. Leon Ullrich

      I have had “diabetes unawareness” for many years in my 75 years with Type One.

      2
      4 years ago Log in to Reply
      1. Joan Fray

        Amazing! 75 years! Do you know anyone who’s had it longer than you? My puny 60 years is nothing in comparison! congratulations and stay well .

        1
        4 years ago Log in to Reply
    4. Leon Ullrich

      My wife is the best monitor that I have.

      1
      4 years ago Log in to Reply
    5. Mick Martin

      Further to the response I offered yesterday, the first symptom that I USUALLY experience is when I’m ‘coming round’ after being given a Glucagen injection. I can usually feel where I’ve been injected.

      4 years ago Log in to Reply
    6. james zellerhoff

      Feeling the “low”
      Hard to explain

      4
      4 years ago Log in to Reply
    7. Chrisanda

      By the time I feel the clamminess, I’m pretty low-low 50s. Until then I don’t have any symptoms. I had good symptoms (shakiness, irritability) for the first 15 years, now, Nada. My pump /CGM alarm is my first alert.

      4 years ago Log in to Reply
    8. RegMunro

      I’m very slow to notice hypos and before CGM would quite often almost pass out, eg watching TV. My wife would get me going. I’ve been T1D since 1965 so am insensitive to symptoms

      4 years ago Log in to Reply
    9. Kevin McCue

      I put confusion but it’s more of an uneasiness like somethings wrong but I’m not able to put my finger on it. Usually it happens 10 minutes before my Dexcom reflects it. Finger stick is usually close to CGM so it doesn’t show there either. If I don’t pay attention to the uneasy then it transitions into inability to maintain focus.

      4
      4 years ago Log in to Reply
    10. Lawrence S.

      Sometimes it’s fatigue and weakness, Sometimes lightheadedness. Occasionally, when it’s a fast drop in BG, I get no warning. But, most of the time, I catch it by recognizing the symptoms. On a similar note, I went for a very long period, maybe 20-30 years without early symptoms. Then for no apparent reason, several years ago, I started getting warning as noted above. I think that for many years I was so busy at work and home, that I did not focus on my warning signs. Now that I am retired, I seem to pick up the warning signs, most of the time.

      4 years ago Log in to Reply
    11. ConnieT1D62

      Other symptom not listed above. As I noted in yesterday’s QoD answer I get a “sinking feeling” that is hard to precisely describe. I supposed it can include bits & pieces of many of the signs and symptoms listed above. However, the first symptom I tend to notice is a sinking sensation – as if my inner awareness is descending down an elevator shaft. I have hypoglycemia unawareness so the BG may be at 72 or 64 or 50 before I actually manifest any of the more overt physical symptoms.

      I am forever grateful and thank goodness for Dexcom!!! It has been a saving grace for several years!

      8
      4 years ago Log in to Reply
      1. Ahh Life

        I hate to over-exaggerate what you so carefully say, but I too experience the walls caving in. Sort of like that old Edgar Alan Poe movie where the walls move in. Only, as the walls get closer, they’re more like the marshmallow man softly enveloping me as I sink in. ( ͡> ⍨ ͡<)

        4 years ago Log in to Reply
      2. Tracy Jean

        I get this feeling too. Thanks for explaining it.

        4 years ago Log in to Reply
      3. Jneticdiabetic

        Yes, me too. This description stood out to me yesterday too. Good description of an imprecise symptom that it seems a number of us can relate to. Thanks for articulating it! 👍

        4 years ago Log in to Reply
      4. n6jax@scinternet.net

        Sweet Charlie says Me also…

        4 years ago Log in to Reply
    12. Tod Herman

      Almost all of those symptoms on the list I have experienced. But, like many others, after having T1D for over 40 years the lows have become less noticable. But after I recover, I usually just need a nap.

      3
      4 years ago Log in to Reply
    13. Amanda Barras

      Hunger and/or sleepiness. Those are my top 2.

      4 years ago Log in to Reply
    14. Mark Schweim

      Most common first symptom I used to notice was numbness and tingling around and in my mouth, but for the past decade, I only very rarely notice any symptoms and feel nearly identical whether my BG is in the 40s, 140s, or 300s.

      1
      4 years ago Log in to Reply
    15. Sue Martin

      I stopped having consistent symptoms years ago and was very glad to get a DGM. It has saved me many times when I can’t feel what is going on with my blood sugar levels. I love my DexCom.

      4 years ago Log in to Reply
    16. Patricia Dalrymple

      I just feel “off”, not how I usually feel. None of those symptoms. Just not right.

      1
      4 years ago Log in to Reply
      1. AnitaS

        That is probably how I feel, which I described as “uncomfortable”.

        4 years ago Log in to Reply
    17. Pauline M Reynolds

      Sometimes I feel a “sensation” come over my body; sometimes I suddenly feel “nervous”. Sometimes I start to feel sweaty, which means it went too far at that point and will be under 60.

      4 years ago Log in to Reply
    18. Marie Cardinell-Daldry

      I SAID COORDINATION OR CLUMSINESS BUT THIS CAN CHANGE EACH TIME. SOME TIMES I WON’T HAVE SYMPTOMS BUT MY DEXCOM WILL START BEEPING UNCONTROLLABLY AND I FIND THAT I’M DOWN TO 50 OR LOWER OR MY HUSBAND WILL BE MORE AWARE I NEED HELP

      4 years ago Log in to Reply
    19. Stephen Woodward

      Not sure why there not listed, but before any of these listed symptoms appear there are a few warning sings I mwartch out for. #1 is dexterity, I.e., fumble fingers, #2 I memory recall becomes obstructed. Both of these symptoms are talked o out when talking to others and subside quite rapidly as bg rises. These symptoms start before any of the hypo symptom listed as choices.

      4 years ago Log in to Reply
    20. Mig Vascos

      Light flashes but this is only if my sugar is dropping fast and below 45.

      4 years ago Log in to Reply
    21. Mary Ann Sayers

      I usually don’t have symptoms, but I’ve noticed a feeling of “ease” or lessening of bg if that makes sense to anyone? when having a reaction. Only a T1D can possibly understand what I’m saying!

      1
      4 years ago Log in to Reply
    22. Karen Maffucci

      My symptoms change quite frequently. It’s not a consistent one symptom or another.

      4 years ago Log in to Reply
    23. Jneticdiabetic

      It varies on the nature of low & rate of drop. I put fatigue/weakness because I think this (or a “sinking feeling” as someone aptly described it yesterday), is the symptom I most commonly detect. Often don’t notice until this point. However, sometimes it’s rapid heart rate. Sometimes hunger and irritability. Sometimes all of the above, others none at all.

      4 years ago Log in to Reply
    24. n6jax@scinternet.net

      confusion

      4 years ago Log in to Reply
    25. AnitaS

      I feel uncomfortable. Not shaky, but uncomfortable. I want to get rid of the feeling a.s.a.p.

      4 years ago Log in to Reply
    26. Cheryl Seibert

      First, I get that strange numb/tingling/slight pressure feeling below my eyes.

      4 years ago Log in to Reply
    27. Jen Smith

      I checked numerous symptoms but they aren’t all present every time. I don’t know what causes them to be different although some are obviously (to me) a result of more severe lows. The very subtle symptoms I get early on in the drop in BG is a major blessing to still have after almost 50 years of T1D and it’s very difficult to describe. But if I have to categorize it, it’s a mix of very subtle shakiness deep in my upper body.

      4 years ago Log in to Reply

    What is the symptom you most often notice first when you're starting to experience hypoglycemia? (This is part 2 of a 3-day understanding hypoglycemia series – check back tomorrow for day 3!) Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]