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    • 4 hours, 11 minutes ago
      Sandy Norman likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 11 hours, 37 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 11 hours, 37 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 11 hours, 38 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 11 hours, 38 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 50 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 16 hours, 23 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 18 hours, 17 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 19 hours, 42 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 20 hours, 25 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 20 hours, 26 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 20 hours, 59 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 8 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 8 hours ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 10 hours ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 17 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 17 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 17 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 17 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 17 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 17 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 17 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 18 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
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    Have you had any issues obtaining life insurance because of T1D?

    Home > LC Polls > Have you had any issues obtaining life insurance because of T1D?
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    Has a stranger ever approached you to talk about your visible diabetes device(s)?

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    If you have gone swimming while using an insulin pump that has to be disconnected while you are in the water, how do you manage your insulin while swimming? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    39 Comments

    1. Lawrence S.

      I answered “no, I have not tried to by life insurance.” But, after thinking more about it, many years ago, maybe in the 1980’s I applied for life insurance with a private company and was denied because I have T1D. No great loss. I was able to buy life insurance through my employer.

      2 years ago Log in to Reply
    2. Nevin Bowman

      Privately, there is not a chance, but fortunately, I work for a company where I could get 2 policies through group plans.

      2 years ago Log in to Reply
    3. Ginger Vieira

      I could’ve gotten it, but it was going to be at least $600/month and thus not worth it. They don’t care what your A1c is, the diagnosis is just marked immediately as high-risk. Not fair!

      1
      2 years ago Log in to Reply
    4. Keith LeMar

      Yes Ive been denied many times even though I have A1C’s below 6.3 for many years and no other health issues except T1D. I have been accepted but the premiums are exorbitant, no way I could afford them. Very frustrating

      2 years ago Log in to Reply
    5. Cristina Jorge Schwarz

      Luckily, I got life insurance in my early 20s. My T1D came along in my early 40s. I haven’t tried increasing it because I fear the repercussions of telling them!

      2 years ago Log in to Reply
    6. GLORIA MILLER

      When I was working I could get it as a group policy but there was no way of getting it privately without an exorbitantly high premium. Not that I am retired, that is out of the question. Sure wish I had been able to get it but I developed T1 at age 7.

      2 years ago Log in to Reply
    7. Kristine Warmecke

      My brother and I (both T1D) were very fortunate that our parents bought life insurance for us before we were each diagnosed. Grateful for the Church member who convinced them it would be a smart idea to do so before we were 6 months old.

      2 years ago Log in to Reply
    8. KIMBERELY SMITH

      No I haven’t

      2 years ago Log in to Reply
    9. Julie Blehm

      I was refused by most companies. The company who finally insured me charges me a great deal more than average because of my diabetes

      2 years ago Log in to Reply
    10. mojoseje

      As an adult, I was denied several times but my dad got one when I was 11—diabetic from age 7. I shake my head because I have a great A1c and have outlived several friends and family who were considered to have had good health.

      1
      2 years ago Log in to Reply
    11. Glenda Schuessler

      I am grateful that I had life insurance prior to my diagnosis (age 40). Different issue, but I was also able to get long term care insurance. Perhaps T1D would like to ask a question regarding long term care insurance.

      1
      2 years ago Log in to Reply
    12. Brian Vodehnal

      They do increase your monthly rate over folks that don’t have T1D which is b.s. in my opinion because we see doctors more often.

      2 years ago Log in to Reply
    13. Eva

      No never asked for it. I don’t care to deal with businesses whose sole business model is to calculate the rate of return based on interest rates relative to presumed life expectancy, morbidity and severity of claims. Thank you, but I’d rather invest the money my myself.

      0
      2 years ago Log in to Reply
    14. Mary Halverson

      I had life insurance in place before my LADA diagnosis.

      2 years ago Log in to Reply
    15. Jian

      I already had insurance before I got T1D but my daughter was refused till she was 16 then we got it for her (it was because she had diabetes and if you reach age of 16 they figure you are a good bet. I think we had to pay slightly more but not much).

      2 years ago Log in to Reply
    16. Bob Durstenfeld

      The only way I was able to obtain life insurance was through my employment. At one employer I was able to roll over the life insurance into a personal whole life policy , without medical questions.

      1
      2 years ago Log in to Reply
    17. Janis Senungetuk

      Yes. At 23, after the birth of our daughter, I was told I was uninsurable because of T1D dx at the age of 8.

      2 years ago Log in to Reply
    18. AnitaS

      No, I was always insured under my employer’s offerings for insurance

      1
      2 years ago Log in to Reply
    19. TEH

      I had life insurance through my employer and independently before I was Dx’ed with T1D. Still have the independent insurance.

      2 years ago Log in to Reply
    20. Britni

      Said no because I’ve only ever had life insurance through my employer. I’ve never tried to obtain it independently before.

      1
      2 years ago Log in to Reply
    21. Michelle Saunders

      My mom tried when I was a teen was told my attempt at suicide and my diabetes made it a no go. When in my late 20s I tried when I was eligible through work and was told I couldn’t get the extra beyond the basic because of my diabetes.

      2 years ago Log in to Reply
    22. terrih57@msn.com

      The real answer is Yes but I have only thought about and then decided against because I knew I either would be denied or it would cost more. Fortunately I got extra life insurance when I was first diagnosed. Hopefully enough. It’s crazy to think only healthy people can get reasonably priced insurance.

      2 years ago Log in to Reply
    23. Lisa Sierra

      I can’t carry life insurance because I get my health insurance through medicaire because of a disability.

      2 years ago Log in to Reply
    24. Mark Schweim

      I haven’t tried getting life insurance since my T1D diagnosis, but I have had life insurance through my job everywhere I have worked since my T1D diagnosis since employer offered insurance says they can’t exclude any employees from any of the insurance benefits offered by the company.

      2 years ago Log in to Reply
    25. Ken Raiche

      I answered no but I applied way back when the only yet major issue is the cost.

      2 years ago Log in to Reply
    26. Wanacure

      I don’t need it ‘cause I don’t have kids & never been married. But years ago I had it free courtesy of my credit union. It was free to any member who wanted it. You also got reimbursed if you lost a hand, more if you lost both hands or a hand and a foot, and so on. No medical exams required. I signed up for it, since it was free. But this is not offered anymore. For many others this is a very important social equity issue that clearly needs attention.

      2 years ago Log in to Reply
    27. Lynn Smith

      I wouldn’t say I have had issues. I just had to pay a higher premium. But, that was over 25 years ago. I haven’t had life insurance since then.

      2 years ago Log in to Reply
    28. Jan Masty

      Yes. I had a smaller life insurance policy through work but wanted more due to some family circumstances. I got it but had to pass a physical and pay quite a bit for it.. thingsa have changed and I lowered the amount and pay less now. I get it though about it being hard for insurance companies.. they have no idea who of us type 1’s are going to have longevity.

      2 years ago Log in to Reply
    29. ConnieT1D62

      Always had it through employers. Now that I am retired, got a cheap reasonable plan with no questions asked from Colonial Penn to cover final expenses. I don’t have kids or family members to worry about who will rely on financial support from me after I am gone to the Hereafter. Anything leftover will go to select .org charitable funds.

      1
      2 years ago Log in to Reply
    30. Tb-well

      I have two policies which will cover me without the need for a medical exam. I purposefully avoid the ones that require a medical exam.

      2 years ago Log in to Reply
    31. Ahh Life

      Ancient history, but in the late 1990’s while touring Buckingham Palace in an area with multiple “NO PHOTOGRAPHY” signs, I whipped out my Medtronic to bolus a bit.

      Female guard came unglued. She was ready to banish me from the kingdom for taking pictures. And even when provided an explanation, her eldritch manner did not allow for a smile. Must be a requirement of the job. 💂‍♀️

      2 years ago Log in to Reply
      1. Ahh Life

        Oops. Answer posted to the wrong question. Sorry.

        2 years ago Log in to Reply
    32. KarenM6

      When I’ve had employers who offered insurance, I could get it. But, I’ve tried a couple of times privately and was denied without a “by your leave.”
      My current employer doesn’t offer any insurance benefits, so I don’t have it. But, as a few others have mentioned, I don’t have kids to worry about! I will likely get the Colonial Penn insurance in a few years because they have the “no questions asked” plan!

      2 years ago Log in to Reply
    33. Donna Condi

      I purchased my life insurance before I was diagnosed with diabetes at age 42.

      2 years ago Log in to Reply
    34. PamK

      Basic life insurance through work I can get, but if I try to upgrade or purchase a policy outside of work I get denied because of my diabetes. Note, this is even though I have been well controlled for over 50 years with this disease!

      2 years ago Log in to Reply
    35. T1D4LongTime

      Always refused for individual life insurance and Long-Term Care Insurance. T1D since 6 years old for 56 years. The only way to get insurance is to work at a company that offers a group plan that is convertible to a private policy if you resign. Insurance companies are very biased against diabetics. Many of us are much healthier than the average person.

      1
      2 years ago Log in to Reply
    36. Becky Lamont

      Yes. I was diagnosed in 1996 & my father demanded that a life insurance policy be obtained for me because he was not going to pay for my burial. I was 17. He was not a nice person. I’ve always had trouble getting life insurance, but still have the burial policy, modified & adjusted by me to provide benefits to my heirs 57 years later. ;> )

      2 years ago Log in to Reply
    37. Jeff Balbirnie

      Yup, vitriolic hostile experience, several times. Once upon a time had an incompetent MD (an internist) who made a series of hostile assumptions (no basis in fact-medical science) who black balled me to a life insurance company. So hostile, the insurance agent got me a copy of the doctors cover letter and worked zealously to eventually find me life insurance and more importantly a NEW physician!!!

      2 years ago Log in to Reply
    38. Elizabeth Jones

      I am disabled due to a brain tumor, so my husband has life insurance since he works full time. My brother who is type 1 as well has term life insurance. He never had a problem getting it.

      2 years ago Log in to Reply

    Have you had any issues obtaining life insurance because of T1D? Cancel reply

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