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  • Activity
    • 8 hours, 32 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 13 hours, 33 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 13 hours, 34 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 13 hours, 35 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 13 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 8 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 10 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 11 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 12 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 13 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 3 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 3 days, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 4 days, 6 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    Have you had any issues obtaining life insurance because of T1D?

    Home > LC Polls > Have you had any issues obtaining life insurance because of T1D?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    39 Comments

    1. Lawrence S.

      I answered “no, I have not tried to by life insurance.” But, after thinking more about it, many years ago, maybe in the 1980’s I applied for life insurance with a private company and was denied because I have T1D. No great loss. I was able to buy life insurance through my employer.

      2 weeks ago Log in to Reply
    2. Nevin Bowman

      Privately, there is not a chance, but fortunately, I work for a company where I could get 2 policies through group plans.

      2 weeks ago Log in to Reply
    3. Ginger Vieira

      I could’ve gotten it, but it was going to be at least $600/month and thus not worth it. They don’t care what your A1c is, the diagnosis is just marked immediately as high-risk. Not fair!

      1
      2 weeks ago Log in to Reply
    4. Keith LeMar

      Yes Ive been denied many times even though I have A1C’s below 6.3 for many years and no other health issues except T1D. I have been accepted but the premiums are exorbitant, no way I could afford them. Very frustrating

      2 weeks ago Log in to Reply
    5. Cristina Jorge Schwarz

      Luckily, I got life insurance in my early 20s. My T1D came along in my early 40s. I haven’t tried increasing it because I fear the repercussions of telling them!

      2 weeks ago Log in to Reply
    6. GLORIA MILLER

      When I was working I could get it as a group policy but there was no way of getting it privately without an exorbitantly high premium. Not that I am retired, that is out of the question. Sure wish I had been able to get it but I developed T1 at age 7.

      2 weeks ago Log in to Reply
    7. Kristine Warmecke

      My brother and I (both T1D) were very fortunate that our parents bought life insurance for us before we were each diagnosed. Grateful for the Church member who convinced them it would be a smart idea to do so before we were 6 months old.

      2 weeks ago Log in to Reply
    8. KIMBERELY SMITH

      No I haven’t

      2 weeks ago Log in to Reply
    9. Julie Blehm

      I was refused by most companies. The company who finally insured me charges me a great deal more than average because of my diabetes

      2 weeks ago Log in to Reply
    10. mojoseje

      As an adult, I was denied several times but my dad got one when I was 11—diabetic from age 7. I shake my head because I have a great A1c and have outlived several friends and family who were considered to have had good health.

      1
      2 weeks ago Log in to Reply
    11. Glenda Schuessler

      I am grateful that I had life insurance prior to my diagnosis (age 40). Different issue, but I was also able to get long term care insurance. Perhaps T1D would like to ask a question regarding long term care insurance.

      1
      2 weeks ago Log in to Reply
    12. Brian Vodehnal

      They do increase your monthly rate over folks that don’t have T1D which is b.s. in my opinion because we see doctors more often.

      2 weeks ago Log in to Reply
    13. Eva

      No never asked for it. I don’t care to deal with businesses whose sole business model is to calculate the rate of return based on interest rates relative to presumed life expectancy, morbidity and severity of claims. Thank you, but I’d rather invest the money my myself.

      0
      2 weeks ago Log in to Reply
    14. Mary Halverson

      I had life insurance in place before my LADA diagnosis.

      2 weeks ago Log in to Reply
    15. Jian

      I already had insurance before I got T1D but my daughter was refused till she was 16 then we got it for her (it was because she had diabetes and if you reach age of 16 they figure you are a good bet. I think we had to pay slightly more but not much).

      2 weeks ago Log in to Reply
    16. Bob Durstenfeld

      The only way I was able to obtain life insurance was through my employment. At one employer I was able to roll over the life insurance into a personal whole life policy , without medical questions.

      1
      2 weeks ago Log in to Reply
    17. Janis Senungetuk

      Yes. At 23, after the birth of our daughter, I was told I was uninsurable because of T1D dx at the age of 8.

      2 weeks ago Log in to Reply
    18. AnitaS

      No, I was always insured under my employer’s offerings for insurance

      1
      2 weeks ago Log in to Reply
    19. TEH

      I had life insurance through my employer and independently before I was Dx’ed with T1D. Still have the independent insurance.

      2 weeks ago Log in to Reply
    20. Britni

      Said no because I’ve only ever had life insurance through my employer. I’ve never tried to obtain it independently before.

      1
      2 weeks ago Log in to Reply
    21. Michelle Saunders

      My mom tried when I was a teen was told my attempt at suicide and my diabetes made it a no go. When in my late 20s I tried when I was eligible through work and was told I couldn’t get the extra beyond the basic because of my diabetes.

      2 weeks ago Log in to Reply
    22. terrih57@msn.com

      The real answer is Yes but I have only thought about and then decided against because I knew I either would be denied or it would cost more. Fortunately I got extra life insurance when I was first diagnosed. Hopefully enough. It’s crazy to think only healthy people can get reasonably priced insurance.

      2 weeks ago Log in to Reply
    23. Lisa Sierra

      I can’t carry life insurance because I get my health insurance through medicaire because of a disability.

      2 weeks ago Log in to Reply
    24. Mark Schweim

      I haven’t tried getting life insurance since my T1D diagnosis, but I have had life insurance through my job everywhere I have worked since my T1D diagnosis since employer offered insurance says they can’t exclude any employees from any of the insurance benefits offered by the company.

      2 weeks ago Log in to Reply
    25. Ken Raiche

      I answered no but I applied way back when the only yet major issue is the cost.

      2 weeks ago Log in to Reply
    26. Wanacure

      I don’t need it ‘cause I don’t have kids & never been married. But years ago I had it free courtesy of my credit union. It was free to any member who wanted it. You also got reimbursed if you lost a hand, more if you lost both hands or a hand and a foot, and so on. No medical exams required. I signed up for it, since it was free. But this is not offered anymore. For many others this is a very important social equity issue that clearly needs attention.

      2 weeks ago Log in to Reply
    27. Lynn Smith

      I wouldn’t say I have had issues. I just had to pay a higher premium. But, that was over 25 years ago. I haven’t had life insurance since then.

      2 weeks ago Log in to Reply
    28. Jan Masty

      Yes. I had a smaller life insurance policy through work but wanted more due to some family circumstances. I got it but had to pass a physical and pay quite a bit for it.. thingsa have changed and I lowered the amount and pay less now. I get it though about it being hard for insurance companies.. they have no idea who of us type 1’s are going to have longevity.

      2 weeks ago Log in to Reply
    29. ConnieT1D62

      Always had it through employers. Now that I am retired, got a cheap reasonable plan with no questions asked from Colonial Penn to cover final expenses. I don’t have kids or family members to worry about who will rely on financial support from me after I am gone to the Hereafter. Anything leftover will go to select .org charitable funds.

      1
      2 weeks ago Log in to Reply
    30. Tb-well

      I have two policies which will cover me without the need for a medical exam. I purposefully avoid the ones that require a medical exam.

      2 weeks ago Log in to Reply
    31. Ahh Life

      Ancient history, but in the late 1990’s while touring Buckingham Palace in an area with multiple “NO PHOTOGRAPHY” signs, I whipped out my Medtronic to bolus a bit.

      Female guard came unglued. She was ready to banish me from the kingdom for taking pictures. And even when provided an explanation, her eldritch manner did not allow for a smile. Must be a requirement of the job. 💂‍♀️

      2 weeks ago Log in to Reply
      1. Ahh Life

        Oops. Answer posted to the wrong question. Sorry.

        2 weeks ago Log in to Reply
    32. KarenM6

      When I’ve had employers who offered insurance, I could get it. But, I’ve tried a couple of times privately and was denied without a “by your leave.”
      My current employer doesn’t offer any insurance benefits, so I don’t have it. But, as a few others have mentioned, I don’t have kids to worry about! I will likely get the Colonial Penn insurance in a few years because they have the “no questions asked” plan!

      2 weeks ago Log in to Reply
    33. Donna Condi

      I purchased my life insurance before I was diagnosed with diabetes at age 42.

      2 weeks ago Log in to Reply
    34. PamK

      Basic life insurance through work I can get, but if I try to upgrade or purchase a policy outside of work I get denied because of my diabetes. Note, this is even though I have been well controlled for over 50 years with this disease!

      1 week ago Log in to Reply
    35. T1D4LongTime

      Always refused for individual life insurance and Long-Term Care Insurance. T1D since 6 years old for 56 years. The only way to get insurance is to work at a company that offers a group plan that is convertible to a private policy if you resign. Insurance companies are very biased against diabetics. Many of us are much healthier than the average person.

      6 days ago Log in to Reply
    36. Becky Lamont

      Yes. I was diagnosed in 1996 & my father demanded that a life insurance policy be obtained for me because he was not going to pay for my burial. I was 17. He was not a nice person. I’ve always had trouble getting life insurance, but still have the burial policy, modified & adjusted by me to provide benefits to my heirs 57 years later. ;> )

      5 days ago Log in to Reply
    37. Jeff Balbirnie

      Yup, vitriolic hostile experience, several times. Once upon a time had an incompetent MD (an internist) who made a series of hostile assumptions (no basis in fact-medical science) who black balled me to a life insurance company. So hostile, the insurance agent got me a copy of the doctors cover letter and worked zealously to eventually find me life insurance and more importantly a NEW physician!!!

      4 days ago Log in to Reply
    38. Elizabeth Jones

      I am disabled due to a brain tumor, so my husband has life insurance since he works full time. My brother who is type 1 as well has term life insurance. He never had a problem getting it.

      3 days ago Log in to Reply

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