Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 3 hours, 56 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 5 hours, 58 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 6 hours, 40 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 6 hours, 44 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 7 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 7 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 7 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 7 hours, 9 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 7 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 7 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 7 hours, 14 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 7 hours, 17 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 7 hours, 17 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 7 hours, 30 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 7 hours, 43 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 7 hours, 59 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 19 hours, 55 minutes ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 22 hours, 14 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 22 hours, 15 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 22 hours, 16 minutes ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      No one has said (in seriousness) you can't eat that, but I have gotten the question "Can you eat that?"
    • 23 hours, 19 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I get the 'you can't eat that, can you?' comments when friends see me eat a lot of carbs or have a nice dessert. I remind them that as long as I have insulin, I can eat whatever I want.
    • 23 hours, 21 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 2 hours ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Like most of the above comments, it's more of a question. The statements have come in situations where I'm not actually eating something...like someone saying, "Oh, it must be hard to not be able to eat desserts!"
    • 1 day, 2 hours ago
      Lenora Ventura likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Would you check your blood or urine for ketones in any of the following situations? Please select all that apply.

    Home > LC Polls > Would you check your blood or urine for ketones in any of the following situations? Please select all that apply.
    Previous

    Do you listen to any podcasts related to diabetes? Share your recommendations in the comments!

    Next

    For adults with T1D, how many 8-ounce cups of water would you estimate you drink per day?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 2 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 4 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 2 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    20 Comments

    1. Amanda Barras

      None. Because I don’t have strips. But, if I had a high I couldn’t get down or had a high with nausea I would go to ER if needed and have them check. But in 35 years I’ve never been in DKA, exception might have been at dx but no clue due to being age 4.

      1
      2 years ago Log in to Reply
      1. GLORIA MILLER

        I am with you and do not keep strips around. But in 66 years I have never been in DKA either.

        2
        2 years ago Log in to Reply
      2. TEH

        I agree. The only time I had high keytones is when I was first Dx.

        2 years ago Log in to Reply
    2. Jane Cerullo

      My BS has never been as high as 250. I would have corrected well before it got that high.

      0
      2 years ago Log in to Reply
    3. KIMBERELY SMITH

      What is ketones

      2 years ago Log in to Reply
      1. William Bennett

        Assuming that’s not snark, it’s what your body starts to generate when it starts burning cellular fat deposits rather than glucose for energy. Sometimes people do this on purpose by severely restricting carb intake (ketogenic diets, e.g. Atkins) in order to lose weight. But it’s also why sudden unexplained weight loss is one of the classic symptoms of T1. And ketones are also toxic if you have too high and sustained a level of them in your blood, because it changes the ph of your entire circulatory system, essentially hammering every cell in your body, leading to unconsciousness and ultimately death. Also known as Diabetic Ketoacidosis (DKA) or “diabetic coma,” which is an ambiguous term and probably shouldn’t be used because non-D people sometimes seem to confuse it with the effects of hypoglycemia, which is actually the opposite of DKA.

        2
        2 years ago Log in to Reply
      2. Steven Gill

        William, good answer! I tested trying to maintain “moderate ketosis” with the ATKINS diet 25 years ago but otherwise never tested in any scenerio. Every diabetic who is active and alive risks highs and lows, A “250” and a “50” will come up but with a CGM neither are what they were 25 years ago. But from what I’ve read children are predominantly concerned with DKA after diagnosis, even if many were diagnosed diabetic in DKA.

        2 years ago Log in to Reply
    4. Eve Rabbiner

      I guess I would if I had strips. I used to buy them but found they all expired and I never needed them.

      0
      2 years ago Log in to Reply
    5. William Bennett

      If I get over 250 for any amount of time I check to make sure there isn’t something blocking insulin delivery or absorption and probably just change out my whole reservoir and set just in case. B/c I never get that high under normal circumstances. Or at all, really.

      2
      2 years ago Log in to Reply
    6. Marty

      I just bought a blood ketone test meter to have on hand. Even though I rarely have out of control BGs, I’m about to have major surgery and things might get pretty wild. I like the idea of having access to ketone data for problem solving (and I’ve always had a weakness for gadgets.)

      1
      2 years ago Log in to Reply
    7. Joan Benedetto

      This question is a bit ambiguous. Stubborn BG over 250 could be “sticky “ from high fat/protein meal with possible carb count incorrect. Also, trend arrow and rate of change, as well as whether illness is present.

      1
      2 years ago Log in to Reply
    8. Edward Geary

      I was taught early on to employ “sick day” rules: BS greater than 240 over a four hour period absent food considerations, check for ketones; if ketones present take a bonus of regular insulin equal to 20 percent of daily doses. Repeat until ketones are negative. Served me well during flus, stomach virus and hangovers. Pumps have changed things but I still follow this guidance with some tweaks.

      2
      2 years ago Log in to Reply
    9. Carol Meares

      I have never checked for ketones in over 30 years of diabetes. A doctor has never instructed me to. I have LADA. If my blood sugar goes high above 180, I work very hard to get it down below 180 very quickly with insulin and sometimes exercise. I bring it down fast and catch it at the bottom with juice or something else if I have overdone the insulin. With the faster acting insulin it works better not only because it brings my BS down faster but because the insulin is used up faster. I have wanted to try inhalable insulin but my Endo is not ready for that yet.

      2 years ago Log in to Reply
    10. sdimond

      I simply don’t spend any significant amount of time above 125. Again, why is the question asked from the point of view that hyperglycemia is unavoidable for diabetics? Any time spent above 125 is damaging to long term health.

      2 years ago Log in to Reply
      1. AnitaS

        Even non-diabetic people go above 125. Also, there are people who get sick and their sugar jumps even if they are normally under 125. Infusion sites also get knocked out without a person knowing. Just because a person is normally under good control doesn’t mean their sugars can’t go high for some reason.

        4
        2 years ago Log in to Reply
    11. Velika Peterson

      I would add “during sickness”, especially when high and sick.

      2 years ago Log in to Reply
    12. Jneticdiabetic

      I haven’t tested for ketones in many years. I use my internal nausea meter. Have been able to catch it in time that way.

      2 years ago Log in to Reply
    13. Wanacure

      I very seldom go over 220, but I ever did for more than 6 hours I would probably check for ketones, using outdated ketone strips.

      2 years ago Log in to Reply
    14. Laura G

      I don’t keep strips on hand as I’ve never personally experienced ketones in the absence of high blood sugars, and I’m vigilant about high blood sugars. My protocol for site-failure highs is aggressive and treats for both high BG and ketones: at the first sign of site failure change the site, inject an insulin bolus into a muscle, drink lots of water, watch the BG descent, eat carbs when dropping. With the few overnight site failures I’ve failed to catch early, I find that ketones cause obvious nausea and discomfort when building up and respond quickly to the above treatment.

      2 years ago Log in to Reply
    15. PamK

      I do not check for keytones unless I have been running high for a couple of days, or I am sick.

      2 years ago Log in to Reply

    Would you check your blood or urine for ketones in any of the following situations? Please select all that apply. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]