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    • 5 hours, 40 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 5 hours, 46 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 5 hours, 52 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 2 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 8 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 9 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 9 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 9 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 3 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 3 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 6 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 6 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Would you check your blood or urine for ketones in any of the following situations? Please select all that apply.

    Home > LC Polls > Would you check your blood or urine for ketones in any of the following situations? Please select all that apply.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Amanda Barras

      None. Because I don’t have strips. But, if I had a high I couldn’t get down or had a high with nausea I would go to ER if needed and have them check. But in 35 years I’ve never been in DKA, exception might have been at dx but no clue due to being age 4.

      1
      3 years ago Log in to Reply
      1. GLORIA MILLER

        I am with you and do not keep strips around. But in 66 years I have never been in DKA either.

        2
        3 years ago Log in to Reply
      2. TEH

        I agree. The only time I had high keytones is when I was first Dx.

        3 years ago Log in to Reply
    2. Jane Cerullo

      My BS has never been as high as 250. I would have corrected well before it got that high.

      0
      3 years ago Log in to Reply
    3. KIMBERELY SMITH

      What is ketones

      3 years ago Log in to Reply
      1. William Bennett

        Assuming that’s not snark, it’s what your body starts to generate when it starts burning cellular fat deposits rather than glucose for energy. Sometimes people do this on purpose by severely restricting carb intake (ketogenic diets, e.g. Atkins) in order to lose weight. But it’s also why sudden unexplained weight loss is one of the classic symptoms of T1. And ketones are also toxic if you have too high and sustained a level of them in your blood, because it changes the ph of your entire circulatory system, essentially hammering every cell in your body, leading to unconsciousness and ultimately death. Also known as Diabetic Ketoacidosis (DKA) or “diabetic coma,” which is an ambiguous term and probably shouldn’t be used because non-D people sometimes seem to confuse it with the effects of hypoglycemia, which is actually the opposite of DKA.

        2
        3 years ago Log in to Reply
      2. Steven Gill

        William, good answer! I tested trying to maintain “moderate ketosis” with the ATKINS diet 25 years ago but otherwise never tested in any scenerio. Every diabetic who is active and alive risks highs and lows, A “250” and a “50” will come up but with a CGM neither are what they were 25 years ago. But from what I’ve read children are predominantly concerned with DKA after diagnosis, even if many were diagnosed diabetic in DKA.

        3 years ago Log in to Reply
    4. Eve Rabbiner

      I guess I would if I had strips. I used to buy them but found they all expired and I never needed them.

      0
      3 years ago Log in to Reply
    5. William Bennett

      If I get over 250 for any amount of time I check to make sure there isn’t something blocking insulin delivery or absorption and probably just change out my whole reservoir and set just in case. B/c I never get that high under normal circumstances. Or at all, really.

      2
      3 years ago Log in to Reply
    6. Marty

      I just bought a blood ketone test meter to have on hand. Even though I rarely have out of control BGs, I’m about to have major surgery and things might get pretty wild. I like the idea of having access to ketone data for problem solving (and I’ve always had a weakness for gadgets.)

      1
      3 years ago Log in to Reply
    7. Joan Benedetto

      This question is a bit ambiguous. Stubborn BG over 250 could be “sticky “ from high fat/protein meal with possible carb count incorrect. Also, trend arrow and rate of change, as well as whether illness is present.

      1
      3 years ago Log in to Reply
    8. Edward Geary

      I was taught early on to employ “sick day” rules: BS greater than 240 over a four hour period absent food considerations, check for ketones; if ketones present take a bonus of regular insulin equal to 20 percent of daily doses. Repeat until ketones are negative. Served me well during flus, stomach virus and hangovers. Pumps have changed things but I still follow this guidance with some tweaks.

      2
      3 years ago Log in to Reply
    9. Carol Meares

      I have never checked for ketones in over 30 years of diabetes. A doctor has never instructed me to. I have LADA. If my blood sugar goes high above 180, I work very hard to get it down below 180 very quickly with insulin and sometimes exercise. I bring it down fast and catch it at the bottom with juice or something else if I have overdone the insulin. With the faster acting insulin it works better not only because it brings my BS down faster but because the insulin is used up faster. I have wanted to try inhalable insulin but my Endo is not ready for that yet.

      3 years ago Log in to Reply
    10. sdimond

      I simply don’t spend any significant amount of time above 125. Again, why is the question asked from the point of view that hyperglycemia is unavoidable for diabetics? Any time spent above 125 is damaging to long term health.

      3 years ago Log in to Reply
      1. AnitaS

        Even non-diabetic people go above 125. Also, there are people who get sick and their sugar jumps even if they are normally under 125. Infusion sites also get knocked out without a person knowing. Just because a person is normally under good control doesn’t mean their sugars can’t go high for some reason.

        4
        3 years ago Log in to Reply
    11. Velika Peterson

      I would add “during sickness”, especially when high and sick.

      3 years ago Log in to Reply
    12. Jneticdiabetic

      I haven’t tested for ketones in many years. I use my internal nausea meter. Have been able to catch it in time that way.

      3 years ago Log in to Reply
    13. Wanacure

      I very seldom go over 220, but I ever did for more than 6 hours I would probably check for ketones, using outdated ketone strips.

      3 years ago Log in to Reply
    14. Laura G

      I don’t keep strips on hand as I’ve never personally experienced ketones in the absence of high blood sugars, and I’m vigilant about high blood sugars. My protocol for site-failure highs is aggressive and treats for both high BG and ketones: at the first sign of site failure change the site, inject an insulin bolus into a muscle, drink lots of water, watch the BG descent, eat carbs when dropping. With the few overnight site failures I’ve failed to catch early, I find that ketones cause obvious nausea and discomfort when building up and respond quickly to the above treatment.

      3 years ago Log in to Reply
    15. PamK

      I do not check for keytones unless I have been running high for a couple of days, or I am sick.

      3 years ago Log in to Reply

    Would you check your blood or urine for ketones in any of the following situations? Please select all that apply. Cancel reply

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