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    • 2 hours, 47 minutes ago
      KCR likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 3 hours, 27 minutes ago
      TEH likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 18 hours, 10 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 18 hours, 10 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 18 hours, 11 minutes ago
      Ahh Life likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 23 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 23 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 23 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 1 hour ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 1 day, 2 hours ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 3 hours ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 3 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 23 hours ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 2 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 3 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 3 days, 4 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 3 days, 4 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 3 days, 15 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 3 days, 15 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 3 days, 23 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 4 days, 3 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 4 days, 4 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
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    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?

    Home > LC Polls > With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day?
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    How often do you change what you eat based on your blood glucose levels?

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    Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Lawrence S.

      I can’t think of a time when I have not eaten on schedule. Meal times may vary by and hour or two every once in a while, but I have not noticed variations in my blood glucose levels.

      3 years ago Log in to Reply
    2. Robin Melen

      Meals are generally at the same time each day, but when my levels drop, I know it’s time to eat!

      3 years ago Log in to Reply
    3. Jane Cerullo

      When I eat dictates the insulin I need not the other way around. I have never scheduled meals for certain times

      3 years ago Log in to Reply
    4. Katrina Mundinger

      I’m a musician and music teacher. My schedule does not stay the same every day. That said, on my two longer teaching days (until 7:30 or 8 in the evening), when I don’t have time for a meal break, I have been having more lows.

      3 years ago Log in to Reply
    5. eherban1

      I’ll preface this with I am a T1D and have been for 42 years. About a decade ago, I began showing signs of insulin resistance and gained about 100lbs. Last year, I started on insulin sensitizers and have lost abt 58. I find that on Victoza, I don’t feel the need to eat- sometimes for days (I do eat for nutrition) BUT THE POINT- both while on the pump, and when I switched to Tresiba, I can fast for 24 hours or more and my BG will not vary more than 20 mg/dL the whole time. Applying this to when I do eat, so long as I bolus correctly, the timing of my meals has no effect on my control.

      1
      3 years ago Log in to Reply
    6. Mick Martin

      Only very occasionally.

      I’ve setup my pump to deliver 8 or 9 different basal rates within any 24 hour period and it does a good job of keeping my blood glucose level ‘on an even keel’ whether I eat or not. This, however, doesn’t work so well for me during warmer Summer months as the heat potentiates the effects of insulin action and I sometimes lose consciousness if I don’t repeatedly check my blood glucose levels. (The main ‘problem’ here is that I also have a sleep disorder, called narcolepsy, where the sufferer falls asleep ‘at the drop of a hat’ so I don’t hear my pump alarming to inform me when my blood glucose level is falling.)

      1
      3 years ago Log in to Reply
    7. Ms Cris

      Yes, especially when I eat a later-than-normal dinner, or when I eat a later lunch with normal dinnertime.

      3 years ago Log in to Reply
    8. cynthia jaworski

      Generally, timing is something I can work around without travel. The glaring exception is when I travel to a time zone 5 hours different. The first few days I find consistent and dramatic lows right after breakfast when I visit England. My body seems to be running its own independent rhythm.

      3 years ago Log in to Reply
    9. Ahh Life

      My first reaction to “with . . . management tools” is to proffer the question, “Is T1D manageable?”

      And before the overabundance of CDE’s, MD’s, scientists, medical professionals, and the think-they-are medical professionals come crashing down with savage denials; I would gently suggest that man, machines, and algorithms all age and deteriorate. Even education materials age and deteriorate.

      I eat what I want, when I want, and in the quantity, texture, and temperature that I want. The 75-year old digestive nerve, however is not the same as the 65-year old digestive nerve, nor the 55-year old digestive nerve, nor the 45-year old digestive nerve. Therefore, I keep plugging along with the best scientific guesswork available.

      5
      3 years ago Log in to Reply
      1. Carol Meares

        Ha! Spot on

        1
        3 years ago Log in to Reply
    10. Jneticdiabetic

      I answered “other”. I have never eaten on a certain schedule everyday. Especially now with work and parenting, my meals are whenever I can squeeze them in. Haven’t tested it specifically but I assume like all variables this makes my BG harder to predict and manage.

      1
      3 years ago Log in to Reply
    11. Lauren Carey

      I’ve never really eaten on a schedule as I eat when I am hungry. I will sometimes notice an impact and I also know when these changes typically happen and can be prepared.

      3 years ago Log in to Reply
    12. Janice Bohn

      The beauty of the pump is no longer eating on a schedule. I can even fast without difficulty.

      4
      3 years ago Log in to Reply
    13. kflying1@yahoo.com

      What schedule? This disease has it’s own schedule, and after 15 years I can’t figure it out, The endo practice at OHSU is no help – they still refuse to accept the reality that protein affects BG.

      4
      3 years ago Log in to Reply
    14. Ernie Richmann

      One thing I have learned is that there are multiple variables that effect blood glucose levels. Sometimes I just can’t determine the reason for a high or low reading.

      9
      3 years ago Log in to Reply
    15. Joan McGinnis

      ON a pump and don’t eat on a schedule ever since. all good

      2
      3 years ago Log in to Reply
    16. Jillmarie61

      My glucose levels are pretty much perfect on the days I don’t eat for any reason, as they should be, because I’m just receiving basal insulin on those days. Those days usually for reasons like a colonoscopy or pre/post surgery.

      1
      3 years ago Log in to Reply
    17. Patricia Maddix

      I use a tandem pump with control IQ and find that I can pretty much eat meals at any time except close to bedtime and even skip meals without any negative affect on blood sugars. I was also able to do this to a bit of a lesser degree with my old Medtronic pump which had no automated delivery system. Alterations in sleep schedule however make a huge difference in my blood sugars.

      3 years ago Log in to Reply
    18. Carol Meares

      I never eat on a certain schedule. I always bolus for food when I will be eating hopefully prior about 20 minutes. Prebolusing is my most difficult task but I try.

      3 years ago Log in to Reply
    19. KarenM6

      I had to say “yes, always” because I haven’t “fixed” my basal rates yet… both of my 4s (4pm and 4am) run low. So, if I don’t eat dinner or pay attention to 4pm, then I will go low. Also, if I don’t have my blood sugars at a certain level when I go to bed, I will get those lovely alarms in the middle of the night.
      I thought I had my 4am fixed earlier this year, but for whatever reason, it’s back to going low. *sigh (Possibly _what_ I’m eating at dinner is the culprit, now.)

      3 years ago Log in to Reply
    20. Patricia Dalrymple

      I said sometimes. Mostly I notice if I eat breakfast later than normal. During the week I eat at 6am. On Saturdays, sometimes I have to work and I do it early, and by the time I check prior to bolus, I’m high. Reading others, not eating doesn’t seem to affect them. If I eat lightly the night before, then I will definitely go low on basal alone. I notice when I fast for blood work, I will usually go low unless I turn my pump off, and then when I don’t eat breakfast, I will be high by the time my blood work is done. So now I bolus slightly before I go. I guess because I’m LADA , I still produce some insulin? And I don’t use CGM.

      3 years ago Log in to Reply
    21. AnitaS

      My activity is so different every day that I many times need to tweak my insulin by giving a correction bolus or by eating something small to raise the blood sugar. CGMs are very helpful to help keep sugars from going too low or high throughout the day.

      1
      3 years ago Log in to Reply
    22. Wanacure

      I can’t afford a pump, so I try to keep the same meal times, same bedtimes, to eliminate at least some variables. The CGM is very helpful. If the CGM says I’m trending high, and if it’s at least 2 hours (preferably 4 hours) after my last lispro (Humalog) bolus, then I inject at least 0.5 units lispro via syringe. Stress definitely raises my blood glucose levels, but how to quantity stress? I try to minimize stress by journaling, exercise, meditation, yoga, avoiding “shoulda, woulda, coulda” self-talk, finding something for which to be grateful every day, and permitting my self to just goof off or to procrastinate. Delaying a meal results in a low bg. After eating a delayed meal my bg will go high. Skipping meals is a no-no for me.

      3 years ago Log in to Reply
    23. Keira Thurheimer

      If I dont eat breakfast and bolus within 40 minutes of getting up in the morning, my blood glucose level starts to climb and will continue until a correction bolus is needed.

      3 years ago Log in to Reply
    24. ellencherry

      I said sometimes. Dinner is the big one for me. I don’t have to eat at a specific time, but if it’s going to be 8:00 I’ll have to have a snack of a few carbs (a handful of nuts, a small cookie) to stay above 70 until dinner.

      3 years ago Log in to Reply

    With your current T1D management tools, do you notice that your blood glucose levels are impacted if you do not eat on a certain schedule every day? Cancel reply

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