Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 3 hours, 53 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 5 hours, 27 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 5 hours, 28 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 5 hours, 30 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 5 hours, 30 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 8 hours, 12 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 8 hours, 13 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 11 hours, 3 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 11 hours, 51 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 14 hours, 58 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 14 hours, 59 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 18 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 18 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 31 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 12 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 12 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    Which of the following is important to you when considering whether you would be interested in participating in a research study involving a new medication or device? Select up to three reasons for participating or share more about what would impact your decision to participate in the comments.

    Home > LC Polls > Which of the following is important to you when considering whether you would be interested in participating in a research study involving a new medication or device? Select up to three reasons for participating or share more about what would impact your decision to participate in the comments.
    Previous

    On average, how many glucose strips would you estimate you currently use per week?

    Next

    When did you last make changes to your insulin delivery method(s)? (e.g., changed insulin pumps, added inhaled insulin, began using a different brand of insulin, etc.)

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Conditions

    Protected: What to Know About Thyroid Conditions with T1D 

    Michael Howerton, 17 hours ago 7 min read  
    2025 ADA

    T1D Exchange Announces 13 Real-World Data Presentations and Posters at the American Diabetes Association (ADA) 85th Scientific Sessions 

    T1D Exchange, 1 week ago 4 min read  
    Mental Health

    What is the Emotional Impact of Screening for T1D? 

    Hannah Doskicz, 2 weeks ago 5 min read  
    Meet the Expert

    Meet the Expert: Advancing Research To Treat, Delay, and Prevent the Development of T1D 

    Jewels Doskicz, 4 weeks ago 7 min read  
    Advocacy

    Sam Scott, PhD: The Science of Exercise with T1D 

    Jewels Doskicz, 1 month ago 9 min read  
    Research

    The T1D Exchange Fear of Hypoglycemia Screening Project 

    Sarah Howard, 1 month ago 6 min read  

    17 Comments

    1. GLORIA MILLER

      I am in the Joslin Center 50 Year Medalist Program. At the time I lived on Cape Cod so convenient for me to drive for the testing. Once I left MA Joslin paid for the air flight to return for more testing. Once I die they will get parts of my body for further research.

      13
      3 years ago Log in to Reply
      1. Becky Cain

        That’s so great!

        1
        3 years ago Log in to Reply
      2. sweet charlie

        About 20 years ago when I hit about 50 yrs T1d, I applied to Joslin and they wanted proof…. my Doctors were all dead…. Now I am 90 years OLD and they all say I am too old…. ?????

        3 years ago Log in to Reply
      3. GLORIA MILLER

        Sweet Charlie, the proof Joslin needed at the time I was accepted into the program was any doctor’s notes saying I was diabetic for ever how many years. My doctors were also dead ( T1 65 years) but I got some medical records from when my son was born in 1971 where the doctor had commented when I developed diabetes. That was all Joslin needed.

        3 years ago Log in to Reply
    2. Nevin Bowman

      As long as it doesn’t require immune suppression drugs and I don’t need to travel for hours, I’m willing to consider most research opportunities.

      3
      3 years ago Log in to Reply
    3. rick phillips

      I will signup for almost anything that I do not have to travel more than 100 miles to participate in.

      2
      3 years ago Log in to Reply
    4. Lawrence S.

      I find that I am closed out of a vast majority of research studies because I am over 65 years old. Location is important. No immune suppression drugs (Covid 19). I would not participate in a study that would risk my health or life.

      Gloria, your participation in the 50 year Medalist Program with Joslin is admirable! I went to the Syracuse, NY Joslin for many years, and don’t remember hearing of the study. I would have been interested if I knew about it.

      3 years ago Log in to Reply
    5. kflying1@yahoo.com

      So many reasons to want to contribute as a lab rat in diabetes research – so little trust remaining after the medical industry treatment of the COVID hoax. For me, I suspect I will never again trust the medical industry again after their dismal failure to currently or past choices to follow any even pretense of a medical scientific path with COVID. How low has our medical industry fallen?

      3 years ago Log in to Reply
    6. Pauline M Reynolds

      Even though I put the reasons I would be in a study, at 82 I am never the right age anymore.

      3 years ago Log in to Reply
      1. sweet charlie

        Me also at 90 years old and 69 years T1D..

        3 years ago Log in to Reply
    7. Chris Albright

      Would be most interested in trials thT involve in beta cell trials using Crisper technology

      1
      3 years ago Log in to Reply
    8. Marty

      Transparency. I need clear information about the scientific foundation of the proposed research and the experimental design. I also need assurances that my privacy will be protected and that I will be informed about the results.

      3 years ago Log in to Reply
    9. ChrisW

      I need to see a significant level of transparency from the team doing the research including but not limited to study design, Phase 1 and 2 results, *all* FDA communications regarding the drug or device and finally providing access to the full report and data after the study is complete or stopped.

      The literature is awash in the sewage of studies done on too few people to be significant and meaningless endpoints.

      1
      3 years ago Log in to Reply
    10. Molly Jones

      I have been participating in clinical trials for thirty years, starting with epilepsy as science is built on observation and needs participants in order to learn. I chose more than three reasons, but if I were to rank them:
      1 Trust in the researchers or company handling the trial
      2 Something else – please share in the comments (Being able to prevent or cure diabetes completely)
      3 Contributing to research and helping other people with T1D
      4 Potential for better diabetes management plan or individualized treatment
      5 Potential for education/learning something new by being in the trial

      1
      3 years ago Log in to Reply
    11. Mary Dexter

      Trust is the most important issue. Do they truly understand diabetes or are they stuck in thinking T1 is little kids and T2 is lifestyle? If their basic assumption is so ignorant, will they be interested in learning truths that may contradict their suppositions? This is why compensation is important. If you aren’t going to pay, be upfront about it. Otherwise, I expect the check to arrive in the mail. Don’t ask me to “donate ” it back. If you are lying to me about this, what other lies are you telling?

      3 years ago Log in to Reply
    12. PamK

      Unfortunately, not many studies will include me due to either my location or my age. 🙁

      3 years ago Log in to Reply
    13. Michael Rimar

      I am always interested in the future of diabetes equipment. The company’s that are developing iLet, Tidepool Loop, Tandem Control-IQ future offering. iLet looks like it could be a dramatic change to managing Diabetes. We’ll see.

      Michael Rimar

      3 years ago Log in to Reply

    Which of the following is important to you when considering whether you would be interested in participating in a research study involving a new medication or device? Select up to three reasons for participating or share more about what would impact your decision to participate in the comments. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]