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    • 2 hours, 54 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 4 hours, 47 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 4 hours, 51 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 6 hours, 27 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 28 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 29 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 30 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 6 hours, 31 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 40 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 41 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 42 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 6 hours, 43 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 43 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 6 hours, 48 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 6 hours, 52 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 7 hours, 8 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 31 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 8 hours, 25 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 11 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 14 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 9 hours, 39 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours, 20 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours, 52 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 10 hours, 52 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 11 hours, 14 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    When you’re in a group setting, like having lunch with coworkers or at a gathering with friends/family, how often do you feel you are judged or criticized for your food choices because of your T1D? Please feel free to share more details of your experiences in the comments.

    Home > LC Polls > When you’re in a group setting, like having lunch with coworkers or at a gathering with friends/family, how often do you feel you are judged or criticized for your food choices because of your T1D? Please feel free to share more details of your experiences in the comments.
    Previous

    Sometimes people stumble with what they say or do to a person with T1D. Even if the other person is trying to be helpful, it may not be interpreted that way by the person with T1D. This can be more complicated, as the same person can sometimes be supportive and other times be critical or judgmental. Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your BG, etc.)?

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    What was your most recent A1c?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    34 Comments

    1. Lawrence S.

      Friends and family go out of their ways to provide food and drink appropriate for my celiac disease and T1 diabetes. More so for the celiea disease. Lunch at work was less social because we worked through our lunches. No judgement there.

      11 months ago Log in to Reply
      1. Lawrence S.

        Darn, that’s celiac, not celia. Sorry.

        1
        11 months ago Log in to Reply
      2. Joan Fray

        I have T1d and celiac too. Most people don’t know about the celiac, but all my friends know about the diabetes. Yeah, sometimes I get a “you’re eating THAT??!!” Doesn’t bother me, I just say ‘yeah, I shot for it.’ That usually leads to questions, and a long conversation about how to manage it. If they ask. I don’t bring it up. The most common comment I get is, ‘wow, you’re in good shape for someone who’s had it so long.’ And then the story of their diabetic relative who died…..

        11 months ago Log in to Reply
    2. Ahh Life

      They mean well. They annoy, however. Seems as if the portion of ignorance is the most heaping helping on their plate, not food. ¯\_( ͠~ ͜ʖ ͡°)_/¯

      7
      11 months ago Log in to Reply
    3. Sue Martin

      I used to be more often. Especially several years ago when people remembered how restrictive their family member’s diet had to be. They would scold me for eating certain food items, or the time that I would eat.
      This is one reason I didn’t tell that many people I had T1D. I didn’t hide it, just didn’t blast it in their face.

      1
      11 months ago Log in to Reply
    4. Larry Martin

      These questions!!!! STOP IT! You are shaming people. And for all the GOD people, judging is a sin. So go burn in hell! If you ban me for this, so be it. This is worse that social media.

      11 months ago Log in to Reply
      1. Ahh Life

        Oy vey. Yahweh — whose name cannot be spoken — might be a teeny, teeny bit more forgiving. Or, as a sign on a Congregational Church said it better than I: “God loves a kind atheist. He hates a cruel Christian.”

        4
        11 months ago Log in to Reply
    5. Abigail Elias

      I eat what I eat without hesitation so no eyebrows raised. It’s like walking down a street as if you own it so you don’t present yourself as a potential victim.

      1
      11 months ago Log in to Reply
    6. AnitaS

      I don’t really feel judged, but sometimes people will say something like “Oh, can you have this dessert?” . It is usually people have I have just met and they have just found out I am diabetic.

      3
      11 months ago Log in to Reply
    7. Mick Martin

      I selected ‘Never’ as I no longer work, having been retired on grounds of ill-health in 1990.

      Prior to that time, I rarely, if ever, was criticised [criticized] by my work colleagues as they were fully aware that I had a good understanding of my diabetes and how to control it.

      11 months ago Log in to Reply
    8. TEH

      I chose rarely. With my family, never. With close friends, never. With new acquaintances, rarely, when they realize I’m T1D.

      11 months ago Log in to Reply
    9. Sherolyn Newell

      Sometimes people ask a question, but it doesn’t feel judgemental or critical when they do. More concern or plain old curiosity.

      2
      11 months ago Log in to Reply
    10. Jane Cerullo

      Friends never even notice. My daughter may make a face if I order something out of my norm. That’s it’s. People are used to me.

      11 months ago Log in to Reply
    11. dave hedeen

      should hav added “I am retired or don’t work, yet still T1D doesn’t change

      11 months ago Log in to Reply
    12. Nevin Bowman

      If I get judged, it would only be because I deserved to be judged.

      11 months ago Log in to Reply
      1. cynthia jaworski

        Really?

        1
        11 months ago Log in to Reply
    13. Sherrie Johnson

      I never thought about that to you brought it up what is this?

      11 months ago Log in to Reply
    14. Michelle Saunders

      I’m usually judged once people know I have diabetes and then I proceed to educate them. Once that is done I find my friends judge me less.

      11 months ago Log in to Reply
    15. Bob Durstenfeld

      I live in California, we all eat what we want. I live and work with people from multiple cultures, some vegetarian, some not.

      11 months ago Log in to Reply
    16. lis be

      My friends/ family don’t judge my choices unless I judge theirs it seems!

      11 months ago Log in to Reply
    17. Janis Senungetuk

      It’s been a very long time since I’ve been at any kind of social gathering. In the past, before pump and CGM use, if an acquaintance noticed me testing my glucose level and injecting insulin before eating, I might get asked if I should eat what I had put on my plate/ordered at a restaurant. It was both a question and a judgement. It was a long time ago.

      3
      11 months ago Log in to Reply
    18. Trisha Oldenkamp

      I can feel self conscious because I know the others have a simplistic understanding of what I can eat so I don’t want them to judge me. I rarely get actual comments, my feelings are self imposed.

      2
      11 months ago Log in to Reply
    19. Patricia Dalrymple

      My friends and family are more apt to show concern rather than judgement. My husband admires my discipline, even though I think he is more disciplined than me with his high blood sugar and food with high salt content. We all have our crosses to bear.

      11 months ago Log in to Reply
    20. ConnieT1D62

      Very rarely. I have lived with T1D in my body for 60 years. I eat what I choose to eat and it’s nobody’s business to judge or criticize it. Most of my friends and family know me well enough to recognize & understand that I am sensible about the food choices I feed my body and they leave me alone.

      However, every now and then some judgmentally unaware, insensitive & nosey person (it’s often been a co-worker) will comment, “Oh you really shouldn’t be eating that” or “Can you eat that?”. I usually just ignore their ignorance – or ask them, “And why shouldn’t I?”

      If they respond with an answer like “Because you’re a diabetic” I ask them, “Oh? And what does that mean?” I may or may not take a few moments to educate them so they gain some understanding about carb intake and how the body metabolizes carbs for energy, and the role of insulin to do the job. I then tell them that everyone one is insulin dependent whether they have diabetes or not, because every human being needs insulin to process & transform food intake into glucose for fuel energy to maintain healthy body functioning. It’s usually more than they want to hear, but in the end they have received a modicum of “diabetes” education.

      11 months ago Log in to Reply
    21. TomH

      I don’t think so much about being judged as being able to participate. I don’t hide my T1, but I don’t like to take huge boluses in order to eat, so that means I have to be selective about what I eat or portion size. It’s something that I think will get easier with time. I’m fortunate my daughter, her mother/father-in-law, and a few others are sensitive and almost always ensure there’s something I can have…though I really wish it weren’t necessary.

      11 months ago Log in to Reply
    22. Molly Jones

      I rarely FEEL judged, but I think everyone is apt to their own perspective. The few times I have felt this way in a minor way is when people with only type 2 education asked if I should eat these things and I explain the difference between the two conditions then bring out my food scale.

      11 months ago Log in to Reply
    23. Tina Roberts

      Often, but no one is my “food police”. Lol

      11 months ago Log in to Reply
    24. Juha Kankaanpaa

      It is very rarely that anyone would criticise my food choices, but I often get asked why I eat what I do.

      11 months ago Log in to Reply
    25. Jan Masty

      Sometimes friends will ask questions about what has or doesn’t have a lot of carbs for their own information. I don’t mind any questions about any part of diabetes!!

      11 months ago Log in to Reply
    26. kilupx

      I wouldn’t say “judged or criticized” as much as “observed and noted.” No matter how many meals we share, there are some people (3 in particular) who feel they have to comment on my food choices. They are always wrong in their assumptions about what I can eat and how I manage my diabetes.

      11 months ago Log in to Reply
    27. PamK

      Most often it is my mother. She took care of me when I was diagnosed at age 2 1/2 and still follows the old rules – – diabetics can’t eat cake, etc. So, when she sees me eating a slice of cake at a party/celebration she makes a face and tells me I “shouldn’t be eating that.” She, herself, has LADA and even thinks her doctors don’t know what they are talking about when they tell her it’s okay to have a piece of candy! Still, for someone in her 90’s she is doing very well, so I can’t really argue with her!

      11 months ago Log in to Reply
    28. Sue Herflicker

      I have had several people question my food choices. My reply, “that is what insulin is for!” I can eat anything and everything as long as I take the correct amount of insulin. Usually this ends up in a lesson on diabetes, and I am totally fine with that. I really don’t mind educating people about the disease. There are a lot of misconceptions out there!

      2
      11 months ago Log in to Reply
    29. mbulzomi@optonline.net

      Most non-Diabetic people I know and mingle with very rarely ask me about food. However, most T2D persons are so ignorant that they ask the most stupid Diabetes questions. Shame on their Medical Personnel.

      11 months ago Log in to Reply
    30. Leona Hanson

      I rarely have that problem but if I eat somewhere other than my house which is not that often. I say I didn’t cook it so I can eat it joking around I and explain that I can do this once in awhile it’s ok

      11 months ago Log in to Reply

    When you’re in a group setting, like having lunch with coworkers or at a gathering with friends/family, how often do you feel you are judged or criticized for your food choices because of your T1D? Please feel free to share more details of your experiences in the comments. Cancel reply

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