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    • 1 hour, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 hour, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 hour, 24 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 3 hours, 37 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 3 hours, 38 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 4 hours, 20 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 43 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 7 hours, 41 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 23 hours, 4 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 23 hours, 6 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 23 hours, 7 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 23 hours, 7 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 23 hours, 16 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 1 hour ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 7 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 7 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 8 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
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    When you’re experiencing low blood glucose, what symptoms do you typically experience? Select all that apply!

    Home > LC Polls > When you're experiencing low blood glucose, what symptoms do you typically experience? Select all that apply!
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    When you’re experiencing high blood glucose, what symptoms do you typically experience? Select all that apply!

    Next

    How often do you need to ration your insulin supplies because you’re concerned you could not afford to use it as prescribed? If you're comfortable share more about your experience in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    47 Comments

    1. Michael Hassan

      Heart palpitations

      0
      2 years ago Log in to Reply
    2. ConnieT1D62

      I start to feel what I call “that sinking feeling” when my BG is 75 and dropping. If at 70 > and dropping rapidly I experience progressive confusion, irritability, and profuse dampness from perspiration. It is worse if BG is less than 70 and trending downwards … once I treat a trending downwards low of <50 and BG is stabilizing ^^^ I get cold sweat chills and shivers as my body recovers. Sometimes I get a headache afterwards. When I get the sweaty cold shivers, I just want to take a warm hot shower (which I often do if I am at home) and dive into warm bedding under the covers and take a nap.

      4
      2 years ago Log in to Reply
    3. Molly Jones

      The symptom that I almost always experience is hunger.
      I experience some of the other symptoms, but not regularly.

      1
      2 years ago Log in to Reply
    4. Teri Morris

      Feeling I can’t trust my legs to walk – knees buckle.

      2
      2 years ago Log in to Reply
      1. Ahh Life

        Teri Morris — This happened to me when I was 6, 7, or 8 years old walking home for lunch from early elementary school about 3 blocks. It is riveted in my mind so well I can remember it 70 years later. Sigh! 〽️🐹

        4
        2 years ago Log in to Reply
    5. Ahh Life

      Experiencing low blood glucose is like Noah experiencing plumbing problems on a grand scale. \(°Ω°)/

      2 years ago Log in to Reply
    6. Patrick Burner

      After 40 years, I suffer from hypoglycemic unawareness which is the main factor I began using Dexcom.

      4
      2 years ago Log in to Reply
    7. Susan Watkins

      low blood sugar symptoms are not the same every time. the 780 has really helped me with that, as the alarm system and auto shut off of delivery are key features for me

      2 years ago Log in to Reply
    8. TEH

      Before I started CGM I didn’t feel any hypo sensations until I dropped to about 50-55. So now with CGM I get alarms at 75 and catch and react to most lows before I drop to 60. So the short answer is none of the above most of the time. I would feel hungry a bit jittery and tired (or any of the other symptoms) on the off chance I do get low.

      2 years ago Log in to Reply
    9. Patricia Dalrymple

      Only occasionally do I feel bad on a low. I feel the low but sometimes get shaky and do not sweat but I get hot to the point where I will wake up if asleep. I feel fortunate after reading what happens to some people. Not proud of it but I have gone as low as 19 and stayed on my feet. Once, never again, did I ignore the feeling. I’m a LADA and not young diabetic. I wonder if that is the difference. I always feel that being a LADA is not as serious.

      1
      2 years ago Log in to Reply
      1. Kristi Warmecke

        @Patricia I can relate to not feeling anything under 20. There have been times while working, that a co-worker will pull me aside and ask if I’m okay due to my behavior (that I don’t notice) or my eyes. Then it was either check your sugar or show my your CGM. I would of course ‘be low’ and have to treat it. Thankfully all my co-workers were understanding and cover my patients while I treated the low.
        I haven’t felt a low sugar in close to 20 years.

        1
        2 years ago Log in to Reply
    10. kcatalino

      1st symptom for me is numbness of my lips and tongue

      5
      2 years ago Log in to Reply
    11. Nevin Bowman

      Fatigue would be my #1 symptom.

      1
      2 years ago Log in to Reply
    12. Lawrence S.

      All of the above, sometimes. What I feels differs upon what I am doing, how fast my blood glucose is dropping. Most often I feel a sense of weakness, and exhaustion. Often confused thoughts. Shakiness and sweating usually come with fast drops in blood glucose. Dizziness and heart palpitations sometimes. Almost always hunger following the onset or the event. I have to force myself to stop eating.

      4
      2 years ago Log in to Reply
    13. Amy Dickerson

      Weakness in chest

      1
      2 years ago Log in to Reply
    14. Edward Geary

      Typically asymptomatic, however, if I do, it’s tachycardia and confusion.

      1
      2 years ago Log in to Reply
    15. Kristi Warmecke

      I haven’t felt a low sugar in 20 some years. It’s why a CGM and D.A.D. service dog. My dog alerts me when I have a rapid fall or climb much faster than my G7.

      2 years ago Log in to Reply
    16. Kristin Sykes-David

      I get lights in my eyes, if I go low enough the light obstructs my vision for a bit.

      4
      2 years ago Log in to Reply
    17. Pete Murphy

      I used to feel the low coming on maybe 30 years ago…but…it’s pretty much gone now
      My issue has always been I drop like a rock fairly quickly, I kept my low reading at 90 with Medtronic because that was the highest, I could set it.
      It’s gotten better since leaving Medtronic and now with the Tandem X2 and Dexcom….it’s much more controlled. I was on a business trip in Florida I remember the emt’s woke me up on the floor of my room….said I was 11. What’s really weird is I proceeded to get angry at them for breaking into my room!
      That’s probably the worst part, it’s like I’m a bad drunk….but with my insulin, I’m a bad low…my personality completely changes and I get very rude, obstinate and combative.
      Probably primary reason I’m no longer married, she never was educated on diabetes, really didn’t understand it, and I’ve been classified as a brittle diabetic by some; so was probably a lot of fun to live with….such is life…..

      2
      2 years ago Log in to Reply
    18. eherban1

      In addition to these, I experience severe chills once my bg starts to rise. It’s incredibly stressing and debilitating.

      1
      2 years ago Log in to Reply
    19. Jennifer Wilson

      Weak, shaky, I get very quiet, slow responsiveness, hot body temp if very low.

      2 years ago Log in to Reply
    20. Ernie Richmann

      Also seeing spots of light, loss of coordination.

      2
      2 years ago Log in to Reply
    21. kerry reagle

      I find it hard to focus

      2 years ago Log in to Reply
    22. Mick Martin

      I haven’t felt any symptoms when having a hypoglycaemic [hypoglycemic, for my American cousins] event for about the last 20 years now.

      Luckily, for me, I’ve been using a pump since 1999, and I now use a CGM that ‘talks’ to my pump and alerts me to when my blood glucose level is falling … or rising, giving me opportunity to take remedial action.

      2 years ago Log in to Reply
    23. Sue Martin

      I’ve experienced those except uncontrolled hunger but the list didn’t include nausia. My systems weren’t consistent and I couldn’t always tell when I had aa low. So my doctor prescribes a CGM for me. I’ve been using DexCom since the G3. I find it hard to be with out one now.

      2 years ago Log in to Reply
    24. Amanda Barras

      Also, hard to focus.

      2 years ago Log in to Reply
    25. george lovelace

      Most of the Symptoms mentioned but since going on TSlim X2 w/Dexcom Control I have eliminated almost ALL Hypos, only 4 this past year and an A1c around 6 and low as 5.4 THIS is the Cure Promised me 60 years ago!

      2 years ago Log in to Reply
    26. cynthia jaworski

      Mos of the above symptoms happen to me. Another problem I have found is that before the other symptoms appear, I lose the ability to work with numbers. Years ago, I was taking the GRE exam, and realized that I had been on the same, initial, question of the math section the entire time. This was way before glucose monitors existed, so my only confirmation was the ensuing shakiness as well ass the effectiveness of eating.

      4
      2 years ago Log in to Reply
      1. Janis Senungetuk

        In 1974, while taking the GRE, I became aware that I quickly needed glucose. I raised my hand to get the attention of the monitor. She came over, I explained the situation and she told me that I ‘d have to turn in the exam if I reached for my purse with the glucose tabs. She refused to get them for me. “Sorry, can’t fo that.” So, I had to leave and apply again to retake the exam.

        2
        2 years ago Log in to Reply
      2. Lawrence S.

        It happened to me during my GRE exam in 1975. I bombed the exam after spacing out half-way through the exam. I took the Miller Analogy Exam afterward to get into graduate school.

        2 years ago Log in to Reply
    27. Janis Senungetuk

      Now I rarely experience, or am aware of, any symptoms. Depending on how fast my bg is dropping , I might suddenly have vision issues with dark floating spots (laser scars from retinopathy treatments) and a blinding central light that obscures my vision. I can also get confused with difficulty putting thoughts together. The majority of the time I’m very surprised when my CGM alarms.

      2
      2 years ago Log in to Reply
    28. Chrisanda

      I checked “don’t have symptoms” and “jitters.” I don’t experience symptoms anymore until I’m below 50, and even then it’s mild unless I drop lower. Then I have the jitters and feel like I’m walking through water. With G-7 and Tandem, the lows are rare now 🙂

      2
      2 years ago Log in to Reply
    29. Anthony Harder

      My strongest symptom is insatiable hunger. This has led to the corollary problem of overtreating overeating reactions. The other powerful symptom is lack of focus, inability to concentrate. If I’m reading something I can spend 1/2 hour on the same paragraph or sentence.

      4
      2 years ago Log in to Reply
    30. Lozzy E

      I’m not very hypo sensitive, and it needs me to be <3 mmol to get any symptoms. If I get confusion or dizziness I know I'm REALLY low.

      One symptom not mentioned is a visual artefact like a big partial bright circle in front of my vision.

      2
      2 years ago Log in to Reply
      1. William Bennett

        The “flashbulb effect.” It’s funny, lots of people report that (me too) but it isn’t on the list here. Unless that’s what they mean by “blurred vision,” but that’s not what it’s like. It’s not blurred, it’s BLANK.

        2
        2 years ago Log in to Reply
    31. Angela Naccari

      I also sometimes experience a white shape in my vision like a blob. Oocurs at 55 or lower BS.

      4
      2 years ago Log in to Reply
    32. William Ervin

      My wife says I begin to turn gray when my BG is dropping.

      2 years ago Log in to Reply
    33. Tracy Jean

      My stomach drops.

      2 years ago Log in to Reply
    34. Phyllis Biederman

      Fatigue, hunger, difficulty focusing OR hyper focusing on one task, decreased responsiveness to others and irritability. Often it’s just a subtle change in cognition – I can’t explain but can sense my bg is low. On rare occasions I may get sweaty or shaky. There’ve been only a couple of times when my vision changes to a yellow hue or with spots – I’ve been extremely low when this occurred. So 58 years of T1D with excellent bg control- this is why I wear a cgm/Tandem pump.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I appreciate you mentioning the hyperfocus aspect … I get that way too. It’s as if I get on a narrow task loop and can’t get off. This symptom isn’t listed above and it isn’t commonly addressed in health care diabetes literature, yet it is commonly reported by PWDs who experience those wicked lows caused by too much insulin.

        2 years ago Log in to Reply
    35. Stephen Woodward

      Many things impact my hypo symptoms, but one thing is consistent and has been for 53 yrs. At about 75 my cognitive functions change and I get over focused. Changes are settle and I’ve had to lean to ID them. Recall memory lapses, struggle with calculations or focus, emotional, and verbal skills are off. It’s shuttle but if you learn to watch for it you can see it every time.

      1
      2 years ago Log in to Reply
    36. Becky Hertz

      I rarely feel symptoms. When I do it’s more of just feeling “off” or very tired.

      2 years ago Log in to Reply
    37. Bekki Weston

      When I get below 60, my tongue starts to feel weird….like it’s larger than normal.

      1
      2 years ago Log in to Reply
    38. Anita Stokar

      I just feel very uncomfortable, like I can’t wait till the sensation goes away. I’ve probably have had all of the mentioned symptoms and more before getting a CGM, but now I very rarely get any symptom beside feeling very uncomfortable.

      2 years ago Log in to Reply
    39. Rafaela

      My extreme lows are absolutely terrifying. I feel like I’m teetering on the edge of somewhere, about to fall. The best thing I can do is chug liquid glucose sitting on the floor behind an open door, in as small a place as I can make. I’ve literally lay in the floor, feeling like my house is collapsing. There’s nothing I can do to make these situations stop until my blood sugar starts to go back up. My mind knows it’s not really happening, but my body is sure that it is, and the feeling is able to take control of my brain. It feel like my heart is beating out of my chest. And that part’s very real.

      1
      2 years ago Log in to Reply
    40. William Bennett

      “Blurred vision” isn’t correct. Like many others have said, it’s a white spot, like a flashbulb after-image, and if untreated it grows and blots out the center of my vision. For me it’s a sure sign of being <60 and precedes other symptoms when I'm having a really bad one. Pretty rare now that CGM is a thing, maybe 3-5 times a year. Much more common back in the old R/NPH days. I learned to recognize it as a signal to get carbs in me stat or I was about to be incapacitated.

      2
      2 years ago Log in to Reply
    41. T1D4LongTime

      If BG falls slowly, I do not experience symptoms until I am below 50. T1D for 57 years now, so I have some hypoglycemic unawareness. If it drops fast though, I do have symptoms. I tend to talk faster, phrases instead of sentences, get jittery as I try to continue with my tasks. Manual dexterity usually slows first, then eventually sweating.

      2 years ago Log in to Reply

    When you're experiencing low blood glucose, what symptoms do you typically experience? Select all that apply! Cancel reply

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