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    • 1 hour, 10 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool?

    Home > LC Polls > When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    30 Comments

    1. Larry Martin

      Insulin is safe at room temperature for 1 month. Mine is used up in 3 weeks so never needs to be cool, just not sitting in the sun.

      3
      5 years ago Log in to Reply
    2. Retired and glad

      I was told years ago by my pharmacist that the insulin shipped to his store was not refrigerated in transit. I also know that when I put my insulin in my pump it sits there for up to four days with no cooling provided. Now that I’m retired, if we plan to go on a multiweek vacation, I’ll probably ensure my hotel or cruise cabin has a refrigerator. For shorter periods, I’m not worried.

      4
      5 years ago Log in to Reply
      1. GLORIA MILLER

        I have traveled for up to three weeks at a time which meant many insulin changes in my pump. I have never refrigerated the insulin while traveling and never had any problem with it working properly.

        2
        5 years ago Log in to Reply
    3. Marthaeg

      I put it in a lunchbox with an icepack when I go on day- long bike rides.

      5 years ago Log in to Reply
    4. Janice B

      Some times frio and some times insulin case with cooling pack

      1
      5 years ago Log in to Reply
    5. Steve Gold

      for a long period of time I will carry two sets, one set that I leave where it can be refrigerated and another that I take with me. That way I always have an emergency backup in case I need to have it replaced. With the way the patient/insurance company interactions work these days it can take F-O-R-E-V-E-R (a week or two) and the support people that need to approve the replacement are not trained well enough to understand that type 1 diabetics need insulin to survive. Otherwise….

      1
      5 years ago Log in to Reply
    6. Amanda Barras

      Insulin is fine at room temperature for up to 30 days. So I don’t worry about it when it’s with me.

      2
      5 years ago Log in to Reply
    7. Eve Rabbiner

      Always try to find lodging with a fridge. Cooler with icepack, stored between suitcases for insulation for summer. Traveling in Iceland was really easy. Always cool, so I didn’t have to worry about the insulin heating up in the car.

      5 years ago Log in to Reply
    8. Keira Thurheimer

      I use a Frio pack when traveling.

      1
      5 years ago Log in to Reply
    9. Sahran Holiday

      Vial currently using doesn’t need refigeration. Backup does if gone for extended time or as a backup. Carry that in a cooler with a cold pack from freezer.

      2
      5 years ago Log in to Reply
    10. Henry Renn

      No, but I do not let my supply bag in hot environments nor sitting in sun even if ambient temp is cool.

      5 years ago Log in to Reply
    11. Nicholas Argento

      Room temperature is good enough for insulin on any trip under 1 month, and I don’t take those.

      2
      5 years ago Log in to Reply
    12. Trisha Oldenkamp

      I put my extra insulin in a Frio gel bag. It stays cool with just water. I’ve had hotel refrigerators that freeze the contents so I stay away from them. I’ve traveled to Africa where My lodging didn’t have full time electricity let alone a refrigerator. My insulin has always been fine.

      1
      5 years ago Log in to Reply
    13. Chrisanda

      I have always used a Frio to carry my insulin on trips (Novolog), as I was told it needed to stay cool. But as other people noted, I have been recently told by a pharmacist it doesn’t need to be refrigerated for up to 20 days. Then the logical idea that it’s attached to my warm body in a pump for days. I may get brave and not worry about it staying cool. However, the Frio does protect the glass bottles :). It is shipped to me in a cooled container. I do always request a fridge in hotels.

      5 years ago Log in to Reply
    14. ConnieT1D62

      I use a Frio when I travel on extended trips away from home. That hasn’t been happening lately for me due to the pandemic.

      5 years ago Log in to Reply
    15. Meerkat

      If a small ice chest is a unique case then I would answer yes.

      5 years ago Log in to Reply
    16. Bob Durstenfeld

      I use a FRIO evaporative cooler pouch.

      5 years ago Log in to Reply
    17. Mary Dexter

      Frio

      5 years ago Log in to Reply
    18. Janis Senungetuk

      I put an extra vial in a FRIO for backup.

      5 years ago Log in to Reply
    19. Beverly Crosby

      When traveling for a few days I always carry my insulin in my purse. It’s going to be with me and I’m going to be in a cool place.

      5 years ago Log in to Reply
    20. Kevin McCue

      Unique like a cooler maybe

      1
      5 years ago Log in to Reply
    21. Thomas Cline

      Everything goes into a Frio when the temperature goes above 86 F on a trip. I try to avoid trips to particularly hot climates.

      5 years ago Log in to Reply
    22. rick phillips

      I use a Frio. Works perfectly.

      1
      5 years ago Log in to Reply
    23. Vickie Baumgartner

      I have a Frio case. It works GREAT!!!

      1
      5 years ago Log in to Reply
    24. Sjoymex

      I rarely go where there won’t be an easily accessible refrigerator. Until I get there, my insulin is usually kept in my purse (never in the trunk of the car). The rare times I go somewhere without a fridge, I’ve kept it in a lunch bag with some ice packs seperated by a washcloth so it doesn’t freeze.

      5 years ago Log in to Reply
    25. Carol Meares

      Frio for over night. I have a small electric cooler for longer. Goes in car and hotel. I have had insulin freeze in hotel refrigerators. I have also used a small yeti. The costs of being diabetic that isn’t counted.

      1
      5 years ago Log in to Reply
    26. Chris Deutsch

      I use a Frio bag until we reach out destination. Then I put it in a refrigerator if possible.

      1
      5 years ago Log in to Reply
    27. Arlie Peck

      I keep it in a waterproof case and try to keep it in a cooler or refrigerator when possible on the road or traveling.

      5 years ago Log in to Reply
    28. Molly Jones

      I wasn’t sure what cool meant, so I chose other.
      I do not keep it with an ice pack where it would last more than 28 days, but it is kept in an insulated container that keeps it safe not to rise above room temperature or freeze.
      We often travel internationally and I find it easier to pack prefilled cartridges along with bringing my vial of insulin.

      5 years ago Log in to Reply
    29. Brianna Lyons

      If I don’t have access to a fridge (road trip, in between hotels, during flights) I love using a Frio bag, it provides a ton of peace of mind

      4 years ago Log in to Reply

    When you travel for an extended period of time away from your house, do you keep your spare insulin in a unique case to keep it cool? Cancel reply

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