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    • 3 hours, 10 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 4 hours, 37 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 4 hours, 37 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 4 hours, 37 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 6 hours, 50 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 6 hours, 50 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 6 hours, 51 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 7 hours, 33 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 8 hours, 56 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 10 hours, 53 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 10 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    When you have unexpected high blood glucose levels, what are the most common reasons why?

    Home > LC Polls > When you have unexpected high blood glucose levels, what are the most common reasons why?
    Previous

    Many people experience diabetes-related stigma, ranging from one-off negative and misinformed comments to more pervasive experiences that can lead people to feel they need to hide their T1D. How much has stigma impacted you or your loved ones with T1D?

    Next

    Approximately how many areas of your body do you use for pump sites and/or insulin injections?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    48 Comments

    1. AnitaS

      I get rebound highs after lows even if I really didn’t go low. Example, I might get a rebound high (go up to 160 or more) after eating 4 grams of carbs to raise my sugar which never got lower than 75.

      4
      4 years ago Log in to Reply
    2. Randy Mees

      I’m on MDI and once in a while I’ll forget a shot before a meal. It happened just today. I maxed out at 330 before it started down.

      4 years ago Log in to Reply
    3. LizB

      I put “other” because most of the time, I have no idea why I went high. I can eat the same thing for lunch 3 days in a row, with my starting BG in the same range, and one day I’ll be fine after eating, one day I’ll go high, one day I might go low.

      9
      4 years ago Log in to Reply
    4. John McHenery

      Most annoying cause are bubbles in the tubing.

      4 years ago Log in to Reply
    5. Ahh Life

      Fascinating and somewhat expected the way answers are grouping up trying to determine “most common.” (灬º 艸º灬)

      I’d have added another answer, though, under “other,” such as “Damned if I know?”

      11
      4 years ago Log in to Reply
      1. KarenM6

        LOL… I was just thinking that!… except my expletive was “hell” instead of “damn”! ;p

        4 years ago Log in to Reply
    6. Marcie Dutton

      Almost always high bgs are related to my gastroparesis issues.

      3
      4 years ago Log in to Reply
    7. Kathleen Juzenas

      I usually run higher towards the end of the 3rd day, before I change my pump infusion site. What’s unexpected is when I don’t run higher.

      1
      4 years ago Log in to Reply
      1. Amanda Barras

        Yes! I choose other and mentioned absorption issues from a flooded or over used site. This is a big one it should have definitely been on this list!

        4 years ago Log in to Reply
    8. dave hedeen

      Did not enough led time prior to eating

      4
      4 years ago Log in to Reply
    9. Trish Seidle

      I checked almost all of them because I am usually unsure of the cause.

      1
      4 years ago Log in to Reply
    10. Lawrence S.

      Seems that I forget to take my insulin a lot lately. Usually busy doing other things and forget. Also, miscalculations. My wife likes to try new recipes, and I sometimes just guess wrong. I also get sooo hungry when I have a low bg’s that I just won’t stop eating.

      3
      4 years ago Log in to Reply
    11. KCR

      Other reasons include occasional dawn phenomenon and also a meal higher in fat/protein than I usually eat. And as mentioned above, sometimes the third day of a pod isn’t always as effective.

      1
      4 years ago Log in to Reply
    12. kflying1@yahoo.com

      I;ve looking at my life as a T1 – keep detailed records on food, exercise, sleep. etc. Last August started using a CGM. Result – damn if I can figure out a pattern, though I have seen that exercise related hypoglycemia is followed by a spike that often exceeds the level read before exercise by up to 90 points.

      2
      4 years ago Log in to Reply
    13. Derek West

      The ‘why’ in the question is superfluous.

      5
      4 years ago Log in to Reply
    14. Amanda Barras

      Insulin absorption issues from an overused and or flooded site from too much insulin flooding an area to correct high.

      4 years ago Log in to Reply
    15. Franklin Rios

      happens with high-intensity physical activity

      4 years ago Log in to Reply
    16. Tb-well

      For me it can be a multitude of reasons. From a secondary spike from eating pizza to forgetting to bolus to hit insulin to miscalculation all of those have effected me at one time or another. Most commonly it is probably miscalculation due to not reading every single food label.

      4 years ago Log in to Reply
    17. Sparklee

      Occasionally my glucose will rise unexpectedly high when the site is less than 24 hours old. If I bolus, a time or two, above what my Tandem T-Connect pump gives me, I can eventually get the glucose down and stay within a normal range until the next site change.
      I’ve been diabetic 53 years, & using this pump about 1.5 years. In connection with the Dexcom G6 sensor, it normally works great. My time in range is 97-98% looking back 90 days.
      I wonder if this happens because I didn’t get all of the air out of the system, but really don’t know.

      1
      4 years ago Log in to Reply
      1. Steve Hornig

        If your time in range is 97%,that is an amazing fea

        4 years ago Log in to Reply
      2. Steve Hornig

        Achieving being in range 97% of the time is amazing. For me it is unbelievable, as I achieve being within range about 60% resulting in an A1c of 6.9%. I’d be curious to know what the parameters of your range are and what A1c level you have.

        4 years ago Log in to Reply
    18. Joan Fray

      Just about all of the above except problems with pump or line. Gastroparesis, miscalculating carbs, rebounding. I went along great for a month and now can’t seem to stay on target. Maybe that bottle of insulin I had stored at my son’s house and finally opened. Exp date was 10/22…….who knows? 111111

      4 years ago Log in to Reply
    19. Hieromonk Alexis

      Most of these would apply at various times, but quite often I have no idea why an unexpected high occurs. My regime does not change from day to day.

      3
      4 years ago Log in to Reply
    20. Christine Gran

      Strenuous exercise.

      4 years ago Log in to Reply
    21. Kris Sykes-David

      I answered”other” since I can do all the things I usually do and still get some unexpected high numbers. Stress and not having a good absorption site may be the cause. (MDI)

      2
      4 years ago Log in to Reply
    22. Janis Senungetuk

      Dx 67 yrs ago this week. I could have checked most of the boxes. Too much is still a wild guess.

      5
      4 years ago Log in to Reply
    23. TEH

      First cause is missing a bolis. Second is mis calculating carbs. Third is morning phenomena. And third is end of resivor rise.

      4 years ago Log in to Reply
    24. Mark Schweim

      Sometimes inaccurate carb guessing, sometimes delayed rise, sometimes completely unknown…

      Most of the time though, it’s because my Dexcom G6 sensor indicates my glucose dropping farther or completely falsely causing the tSlim X2 with Control IQ to suspend my Insulin delivery and keep the Basal cut off too long so by the time the pump resumes Insulin delivery, my BG is already getting too high so my pump then gets stuck in a glucose chasing rollercoaster!!!

      4 years ago Log in to Reply
      1. StPetie

        I have the same issue fairly reularly using the same products. Usually in the first or last 2 days of sensor life. Recently my reading was “Low” (below 40) when in fact my bg was 162 and climbing with insulin delivery halted.

        4 years ago Log in to Reply
    25. Andrew Aronoff

      My diabetes is “brittle”. My insulin requirement changes frequently and for no apparent reason. (Oh, there’s almost always an apparent reason, you say, but no, not for me.) Yesterday, for instance, I needed double the insulin for a midday snack as I did for the preceding breakfast. (Yes, I know how to adjust for the content of the meal or snack.) I needed elevated doses the rest of the day yesterday and again today. All I can do is adjust. (I’m _always_ adjusting.) When my insulin requirement remains stable, I’m on “vacation” as the diabetes becomes easy to manage. I’m rarely on vacation. Interestingly, my Levemir requirement did _not_ change last night – my blood sugar was stable. Why should the correction factor vary by a factor of two (or more) with no change to the basal requirement? I have no idea.

      4 years ago Log in to Reply
      1. AnitaS

        I find that because my physical activity is not steady as I never know how physically active I will be on a particular day, I can never have two days in a row with the same basal amounts. I just adjust by eating small increments of carbs to raise my sugar or give micro-boluses to bring down my sugars. I think diabetes is just a tough disease to keep under control as you certainly can attest.

        4 years ago Log in to Reply
    26. Drina Nicole Jewell

      Other is not nailing the pre bolus. You’d think after 20+ yrs I’d be able to do this by now buuuuut nope.

      1
      4 years ago Log in to Reply
    27. Kathy Morison

      I Hey put down all the usuals for high glucose levels but the one I face daily is insulin that won’t absorb. I have to sit there with a hot water bottle on the injection site to try to force the insulin to absorb. Some days it doesn’t matter what I do the sugars just keep going higher to the point of having to take more insulin

      4 years ago Log in to Reply
    28. Donald Cragun

      The most common reason for me going high is being too still after a meal. I usually go for a walk after a meal and that prevents unexpected highs most of the time.

      1
      4 years ago Log in to Reply
    29. KarenM6

      My answer is very similar to others…
      I rarely get the timing of insulin “right”… so, my BSes can go high after a meal, but I wouldn’t really call that “unexpected” more than just “annoying.”

      But, yes, also agree with the “hell if I know” responders! When the high is _unexpected_, because that means I had no idea it was coming. Which means I couldn’t take steps to prevent it. And, if there is more than 1 of the “35-ish Reasons Blood Sugar Goes High” happening, it’s nearly impossible to pinpoint precisely. I might be able to narrow it down to 2 or 3 reasons, but not one single factor. And, then, thinking of the 35-ish reasons and just going, “Crikey… how am I supposed to figure this out? Oh, just take insulin and move on….”

      4 years ago Log in to Reply
    30. Patricia Dalrymple

      When I go out to eat should be an option. I always over eat when I go out or to someone’s home. And, I can only enter 90 carbs because if I enter the true amount, I find I go low before I go high. Not on a sensor so afraid to just ride it out. But, like others, if I ate the same thing everyday at the same time, there still will be issues because there are just too many variables. I can go out and bolus every 2 hours and keep it in range. But when I go to bed and wake up, I will be high. If I over eat, I will go high no matter what. Except if I had a CGM perhaps, but who knows.

      4 years ago Log in to Reply
    31. Ken Raiche

      All of the above doesn’t happen often yet at some point I’ve encountered all of what’s been indicated on the list.

      4 years ago Log in to Reply
    32. Kate Kuhn

      It has to have something to do with either the insertion site and/or the pump. Often, my BG won’t come down even with a correction bolus. My next step is to go to an old fashioned direct injection. Comes down within the hour.

      4 years ago Log in to Reply
    33. Christina Trudo

      checked several and then there is the unlisted but probably popular one one “I have no idea”.

      4 years ago Log in to Reply
    34. Ben Galindo

      I have a recurring problem with lag time of insulin after delivery by pump! I am using Tandem I’t:slim X2 insulin pump Control OQ with Lyumjev (In pharmacodynamic euglycemic clamp studies following a 15-unit dose, healthy subjects receiving Lyumjev and Humalog experienced an onset of action of ~17 minutes and ~22 minutes, respectively. Lyumjev subjects had a duration of action of about 6 hours.) Lag is up to 2 Hours & results in Blood Sugars of over 200. ? Any suggestions Y’all

      4 years ago Log in to Reply
      1. Steve Hornig

        Plan ahead. Unfortunately, that’s easier said than done. When you want to eat, you want to eat. You don’t want to wait for 20-30 minutes. I think this is where major improvements to A1c level can be made. All it takes is discipline! Does anyone have some extra they could lend me?

        4 years ago Log in to Reply
    35. Mig Vascos

      By tracking, tracking, tracking, I have come to the conclusion that the majority of the times my sugar goes high is because of absorption problems at the infusion site. So now if the site starts itching, feels uncomfortable in any way or if BG doesn’t respond, I immediately change the site.
      As a general practice, I do not use the control IQ during the day, unless I’m doing some exercise that will bring me down. The problem with IQ is that it cuts off the basal as soon as I’m under 110 and then later on I run short of insulin and go high.
      Another tactic I used is to give 1/2 of before the dinner bolus 15 or 20 minutes before and the other half plus adjustments for eating more than I was planning, about 1.1/2 hours after dinner. In this way I avoid going low right after dinner and high later on.
      So… the pump and the control IQ still leaves me doing a lot of work, but it’s worthy. Out of my last 90 days, I’ve been able to achieve 85 days over 80%. And.. that my friends, for me its a great success. Thanks the Lord, I have to say.

      4 years ago Log in to Reply
    36. mbulzomi@optonline.net

      Trying to stretch my Insulin to cover the 4th day in the DEX 10-day cycle and all the other issues that I marked.

      4 years ago Log in to Reply
    37. Sherolyn Newell

      Pretty much any level of fat and I get a big delay in BG rise. So if I’m under 90 when I eat, I wait until it starts to go up to take insulin. If it takes too long for that to happen, I sometimes forget until Dexcom beeps at me.

      4 years ago Log in to Reply
    38. T1D5/1971

      My most common cause of bgs that won’t come down is the Tandem reservoir just can’t be counted on with less than 25-30 units left. But I’m not willing to waste 30 units in addition to the 12 unit tube fill waste. Just override the CGM based calculations with double or triple the suggested correction.
      But – anything can be the cause at any given time.

      4 years ago Log in to Reply
    39. Cheryl Seibert

      I did NOT check “Miscalculated carbs” because many times the “Total Carb” counts on the packaged food nutrition labels is inaccurate. When you enter the correct carbs, but your BG goes up over 200 and does not fall back suddenly after eating the same serving 3 times, I conclude the nutrition label is inaccurate. There should be a study conducted on how accurate nutrition labels are….. the current focus on “Net Carbs” (I joke in my opinion) and low-carb foods makes it profitable for companies to understate their carb counts. Oh, “Sugar Free” labels are legal, but false the majority of the time.

      4 years ago Log in to Reply
    40. Jneticdiabetic

      Most common source of highs for me is forgetting to bolus pre-meal. Sometimes I program but realize hours later that I didn’t hit the last check button to deliver. Sometimes I hold off on bolusing because I’m heading low and then forget to follow-up. Sometimes I just straight forget. It is biggest ding to my time in range.

      4 years ago Log in to Reply
      1. Steve Hornig

        I share your situation as I often forget to hit the last button, thinking I had done everything I needed to do. You must have a Medtronic pump. Right?

        4 years ago Log in to Reply

    When you have unexpected high blood glucose levels, what are the most common reasons why? Cancel reply

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