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    • 1 hour, 46 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 1 hour, 46 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 2 hours, 1 minute ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 2 hours, 3 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 4 hours, 23 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 11 hours, 32 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 11 hours, 32 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 13 hours, 29 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 13 hours, 45 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 5 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 6 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    Many people experience diabetes-related stigma, ranging from one-off negative and misinformed comments to more pervasive experiences that can lead people to feel they need to hide their T1D. How much has stigma impacted you or your loved ones with T1D?

    Home > LC Polls > Many people experience diabetes-related stigma, ranging from one-off negative and misinformed comments to more pervasive experiences that can lead people to feel they need to hide their T1D. How much has stigma impacted you or your loved ones with T1D?
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    33 Comments

    1. Steven Gill

      It’s a problem if you let it. Unlike obesity, substance abuse, or illiteracy it’s something can’t be helped. But I missed my first day of work in 11 years (unscheduled day off with a bad stomach bug and no restroom nearby, otherwise I’d showed up) last weekend. Middle of a 14 day week.

      I kind of challenge others to keep up. If something’s said I welcome the chance to teach but again the most common comment I hear is “You don’t look like a DIA…”

      (My comment is how would I wrestle against Kevin O’Reilly? Type 1_pro wrestler. Or play backyard football against Jay Cutler, or get the nerve to get Halley Barry’s husband mad at me? All TYPE1 diabetics and my example of real success.)

      10 months ago Log in to Reply
      1. Kathleen Amper

        I wouldn’t include Halle berry in that comment. There have been questions for years on her type 1 vs type 2 status. In 2018 she said she’s not on insulin. That her type 1 turned to type 2. More than likely she was misdiagnosed.

        1
        10 months ago Log in to Reply
    2. Kim Rehtus

      I am quite discreet about my T1D because over the years I have gotten tired of hearing unhelpful comments from others. My medical situation is my business and no one else’s. For those who are close to me or genuinely care, it’s a different matter entirely. I feel that my diabetes is not the most important or interesting thing about me, and so there are plenty of other things I would rather talk about. : )

      2
      10 months ago Log in to Reply
    3. Sherolyn Newell

      I tend to be oblivious to stuff like that, so I said not at all. I do get a bit angry when people think there are ways to control T1D that don’t involve insulin. It’s because they don’t know the difference between T1 and T2. They are trying to be helpful, so I usually just let them talk and then explain.

      2
      10 months ago Log in to Reply
    4. Teri Morris

      Sadly the perception at least in my small town view people with diabetes as somehow faulty and not prime employees or even people. The negativr connotation is misplaced and misinformed. Fighting the consequences of a chronic illness makes us harder-working and more diligent than people who have the freedom to not have to worry about keeping everything running correctly.

      10 months ago Log in to Reply
    5. Joan Fray

      I don’t advertise it, but if it comes up I’ll talk about it. Mostly at meals out, hosts want to know what to serve. I say anything except liver ( bleah, yuck, gag). Then just pick and choose. I don’t even mention my celiac issue, as that throws people into a tizzy. I just avoid anything with gluten. I must say, we haven’t had many dinner invitations in a couple of years! Pandemic? I hope so……. but maybe just us getting old.

      1
      10 months ago Log in to Reply
    6. Lawrence S.

      I don’t think of my diabetes as stigmatizing. Generally, I get the word out to people around me, in case I might need assistance. However, there were times in the past where people made inappropriate comments. Back in 1976, I worked for a food company as a traveling salesman. When I told my boss of my Juvenile Diabetes diagnosis, he advised me to look for a new job. Once at work, an employee saw my insulin pump, and asked if I was recording our conversation. I’ve also, on rare occasions, had people tell me that I shouldn’t be eating a certain food. Generally speaking, I don’t feel stigmatized by my diabetes. It’s there, a part of my life. I don’t hear a lot of negative or misinformed comments.

      10 months ago Log in to Reply
    7. Ernie Richmann

      I have never felt a need to hide my Type 1 Diabetes. When asked, I am glad to provide information. I try to stay away from off the cuff comments about others conditions like obesity, physical and mental handicaps, heart disease. I am not an expert on many conditions others may be experiencing.

      10 months ago Log in to Reply
    8. Marcia Pulleyblank

      Most of the problems happened in the past when people assumed that I was T2D and assumed that it was self inflicted. They would tell me about their grandparents and what they did to releave it, e.g. cinnamon, using honey or simply losing weight.

      2
      10 months ago Log in to Reply
      1. Kate Kuhn

        A yoga teacher once told me I would be cured if I ate more asparagus! : )

        2
        10 months ago Log in to Reply
    9. Tina Roberts

      I don’t like to tell before being hired. They don’t like for me to have to stop and care for myself in a fast paced office.

      4
      10 months ago Log in to Reply
    10. kflying1@yahoo.com

      I was fired from the Home Depot because, prior to my CGM, I kept going low and management kept smelling the breath odor they assumed, despite all the research I presented and the negative drug/alcohol tests they assumed I was a drunk on the job. So yeah – I have experienced the negative effects from the ignorant and uncaring general population.

      4
      10 months ago Log in to Reply
    11. Pauline M Reynolds

      I put “only a little” and, unfortunately, the misinformation has come from health providers, especially hospital personnel.

      2
      10 months ago Log in to Reply
    12. mbulzomi@optonline.net

      None of the above items. Why, because I look and feel better them most of the people I deal with. Even at the American Airpower Museum, Farmingdale, NY where I have been a Docent for quite some time. One thing that works for those to not tell your age is to have a shaved head. No gray hair!!! The most telling is not being very heavy or out of shape.

      1
      10 months ago Log in to Reply
    13. Kandy Gonzalez

      My mother thinks the doctors made a mistake, I can’t have diabetes, no one else in our family has it!! My brother thinks it’s all to do with weight…

      2
      10 months ago Log in to Reply
      1. Mick Martin

        That ‘rings a bell’ with me, Kandy Gonzalez. Up until the day that he died, my dad insisted that they’d made a mistake with my diagnosis, and swore that it was down to the vaccinations/innoculations that I received during my Army service.

        With your brother thinking that “it’s all to do with weight”, this is due to the fact that most diagnoses of diabetes are for Type 2 diabetes, which does have weight as being ONE of the components that can ‘bring it on’, especially if the sufferer has a larger percentage of abdominal fat.

        10 months ago Log in to Reply
    14. Kate Kuhn

      With all the Type 2 diabetics out there, being “diabetic” does not seem strange to most people. I do get tired of explaining my pump and CGM.

      10 months ago Log in to Reply
    15. TomH

      I haven’t hidden the fact I’m T1 and have attempted to use it as an education tool, for people I’m close to, for people that make flat out un-true statements, and to my poltical representatives. I think most people appreciate being informed/corrected on their “understanding” of diabetes, T1, T2, differences and needs. Those that don’t…well, perhaps they won’t make the same un-informed comments again and have a little more consideration.

      4
      10 months ago Log in to Reply
    16. Nancy Burgess

      Having had T1D for 62 years I listened to lots of coments that were not true about T1D. Since I’ve had it so long, when I hear comments now I take the opportunity to educate people about the chronic illness.

      4
      10 months ago Log in to Reply
    17. Mick Martin

      I selected “Only a little” as I KNOW, for a FACT, that I’ve managed to ‘talk myself out of specific jobs’ due to my insistance of ‘putting FACTS’ before people who THINK that they know better when, in fact, their understanding of diabetes is sadly lacking. (SOME people in positions of ‘power’ THINK they are always right, and my mouth is big enough to inform them that they are sadly misguided. šŸ˜‰ )

      3
      10 months ago Log in to Reply
    18. ConnieT1D62

      No stigma here – I am a fierce warrior & defender of diabetes knowledge and awareness. People’s ignorance about diabetes used to irritate me, especially assumptions made without knowing the difference between T1 and T2, pre-diabetes, and other forms of blood glucose dysfunction.

      One of the motivating reasons I became a nurse and eventually a CDE/CDCES is to educate people about diabetes in it’s many forms and facets. Starting with PWDs, and all the people who supposedly are concerned about their welfare – loved ones and family members, employers and HR people, the general public, and most of all health care providers who care for people with diabetes. It is unbelievable how ignorant many in health care professions are, including doctors and nurses, who do not keep up with diabetes research, latest care trends, appropriate use of medications, use of technology, and current best practice guidelines, initiatives and recommendations.

      4
      10 months ago Log in to Reply
    19. Ahh Life

      When false perception s become false idols, there is little dangerous when they enter that hall of mirrors.

      What’s really dangerous is when they insist on us following along with them.šŸ¤•

      10 months ago Log in to Reply
    20. Andrew Stewart

      ā€œOnly a littleā€ because I for the most part don’t tell everyone that I’m T1D. When I was diagnosed 32 years ago I was working for a Medical Group and had on several occasions nurses or other staff tell me ā€œoh I heard you’re diabetic you shouldn’t eat thatā€ as I reached for a donut or cookie at a meeting. It was at that point that I decided I would only tell those I was close too and would never wear it on my sleeve. I have since matured and am confident in my management of my T1D and really don’t care what people think or their ill informed comments.
      #BeYouAndBeWell

      2
      10 months ago Log in to Reply
      1. ELYSSE HELLER

        Those type of people I call the diabetic police. I am a RN who works in a hospital. I had a doctor tell me that the hummus that I was eating for breakfast had carbs in it (like I didn’t realize that). I responded “it’s a lot healthier than the pizza that you’re eating”.

        1
        10 months ago Log in to Reply
    21. ELYSSE HELLER

      At one of my earlier jobs many years ago, they made me walk to Human Resources to check my BG. The job was on a beautiful campus and, as I was a lot younger, I hiked very well. So, I said, OKAY, BG testing time, I’ll be back in a bit. (It was a 20 minute walk each way). I never hide the fact that I am T1D. None of us asked for this disease. I had one hair stylist that wouldn’t let me check my BG in his shop. No problem; it took me 2 seconds to find another hair place.

      10 months ago Log in to Reply
    22. Janis Senungetuk

      Had lots of problems while a grade school student (dx. in 3rd grade) in the late 50’s because there was so little known. I was kept apart from other students whenever food was involved. Any school extracurricular activities required my mother to accompany me or I couldn’t attend. I wasn’t permitted to participate in any physical education classes or recess activities. Once I got to middle school I stopped telling anyone.

      10 months ago Log in to Reply
      1. AnitaS

        Wow, thankfully times have changed since then.

        10 months ago Log in to Reply
    23. Molly Jones

      I have received many “helpful” uneducated comments from others that know little between the difference between the difference of type 1 and 2 diabetes or their causes. It doesn’t bother me. I explain to them the difference as I know I am uneducated in infinite medical problems.
      I am grateful for the knowledge science has of endocrinology compared to epilepsy. The stigma is far worse.

      10 months ago Log in to Reply
    24. Cheryl Seibert

      I answered ‘somewhat’. 15 years ago, I would have answered “Not at All”. But in the past 15 years, I’ve had one co-worker who refused to walk to meetings with me or go anywhere alone with me because “I don’t want to have to save your life if you collapse”. Other reactions were ‘misinformation’,…… eat (whatever the latest fad is) and you will be cured. Other reactions over the past years were ‘look she must be on drugs’, but they were few and far between. Overall, I’ve had very little negative reactions until the past 15 years.

      10 months ago Log in to Reply
    25. AnitaS

      I really get no offensive comments. I do however get misinformed ones. I usually just explain some of their misinformation and they are usually quite surprised or glad I gave them some information that they didn’t know before.

      10 months ago Log in to Reply
    26. Jeanne McMillan-Olson

      I have had T1D for almost 67 years. When I was hired in 1968 at John Sealy Hospital in Galveston, Texas they would not give me Workers Compensation insurance due to have T1D. Someone asked me once if they could catch T1D.

      10 months ago Log in to Reply
    27. maryeradams

      I am so proud of my diabetes. It’s taken me a while to get here, but I am grateful for it. It has offered me a great life perspective. I am thankful for a shift in thinking – I have come to fully embrace and own my diabetes, rather than becoming victim to it.

      10 months ago Log in to Reply
    28. Alissa Ellenwood

      Recently I find that most Americans are familiar with type 2 diabetes and don’t know there is a difference. I have received many comments suggesting i excercise more or asking me if I would change my lifestyle so that I don’t need medication. Very frustrating.

      10 months ago Log in to Reply

    Many people experience diabetes-related stigma, ranging from one-off negative and misinformed comments to more pervasive experiences that can lead people to feel they need to hide their T1D. How much has stigma impacted you or your loved ones with T1D? Cancel reply

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