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    • 9 hours, 37 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 9 hours, 38 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 9 hours, 38 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 10 hours, 52 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 14 hours, 25 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 14 hours, 27 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 50 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 17 hours, 51 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 17 hours, 51 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 17 hours, 51 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 17 hours, 52 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 18 hours, 16 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 18 hours, 16 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 19 hours, 5 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 22 hours, 2 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 22 hours, 2 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 22 hours, 9 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 22 hours, 9 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 22 hours, 12 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 22 hours, 14 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 22 hours, 15 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 17 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 17 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 19 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 19 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
    Previous

    Do you find that staying on top of your T1D routine becomes more difficult when there are fewer hours of daylight? Select all of the statements that apply to you.

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Russell Buckbee

      I can’t know because the glycoslated hemoglobin A1c was not developed yet. N=My BS was high and I had other symptoms, so they put me on insulin.

      1
      2 years ago Log in to Reply
    2. Ahh Life

      When you are diagnosed at the time of the Roman legions, the Visigoths, and the Huns, it’s a bit dicey not having A1c’s invented yet, much less carb to insulin correlations.

      The world has spun a few times and progressed a tad since then.

      8
      2 years ago Log in to Reply
      1. Donna Williams

        Thank you for making me laugh with your comments!!

        2 years ago Log in to Reply
      2. ConnieT1D62

        It’s amazing that some of us T1D dinosaurs have survived for so many years since the ancient days before A1Cs, BG meters, insulin pumps, CGMs, or even disposable injection devices were even thought of. Congratulations to us all for beating the odds! The best is yet to come!!!

        1
        2 years ago Log in to Reply
    3. Lozzy E

      Misdiagnosed as type 2 for 2 years, so by the time they realised I was type 1 my a1c was well under control. Was between 7 and 8 when misdiagnosed though

      1
      2 years ago Log in to Reply
    4. Katherine Kiger

      They didn’t do an A1C, just a simple glucose test (which had to be done in a lab, because this was 1980). The result was over 650. (The nurse dropped the clipboard when they handed her the result.)

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      LADA diagnosed early as type 2. Took two years for correct diagnosis. A1c never above 7. When properly diagnosed A1c always below 6

      2 years ago Log in to Reply
    6. Conniekaycox

      I was in the icu with dka for 4 days. When released from hospital with pump blood sugar still at 500.

      2 years ago Log in to Reply
    7. Richard Vaughn

      I was diagnosed in 1945. My first A1C was 11 in 1980.

      2 years ago Log in to Reply
    8. Patrick Burner

      Forty years ago today I was diagnosed at UVa with a blood sugar of 1173.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Happy Diaversary to you, Patrick!

        2 years ago Log in to Reply
    9. Jennifer Bounds

      My bg was 383 at the clinic before going to the hospital. My first A1c after being diagnosed was 7.3% and I remember my doctor telling me I was doing well.

      2 years ago Log in to Reply
    10. Marthaeg

      16.1 A1C with bg over 500 Oct. ‘20
      Dr asked me how I was feeling. I said ok. Never had the excessive thirst or urination symptoms. She said she would have sent me to the hospital if I had answered anything else. Got sent home with insulin. 😊 Amazing stuff!

      1
      2 years ago Log in to Reply
    11. fletchina

      A1C was not used when I was diagnosed in 1976

      1
      2 years ago Log in to Reply
    12. Amanda Barras

      I was barely 4, I don’t know.

      2 years ago Log in to Reply
    13. Dennis Dacey

      In 1974, almost two decades after my diagnosis, I participated in the study of glycosylated hemoglobin which has become known as HgA1c and currently HbA1c.
      So, at my diagnosis A1c reading was not available.

      2 years ago Log in to Reply
    14. Brenda Lipscomb

      Jan ’68 A1c was not known about. But I do know that my bg was 1040. I was 11 months old.
      I was 16 when I got my first A1c and it was in the “6” range. My Endo said that was excellent, considering it was my first.

      1
      2 years ago Log in to Reply
    15. Kate Kuhn

      A1c was not invented available in 1964, but I was in full fledged acidosis, near coma.

      1
      2 years ago Log in to Reply
    16. Joan Johnson

      It was 1972, and I was not given that information. I wish now that I had it.

      2 years ago Log in to Reply
    17. Pauline M Reynolds

      I don’t remember, but my glucose was 229.

      2 years ago Log in to Reply
    18. Mark Schweim

      They never checked my A1c until a month or two after my T1D diagnosis, but the first time my A1c was tested, it was 3.1, which the doctor said was almost too low even for a non-diabetic.

      2 years ago Log in to Reply
    19. Janis Senungetuk

      In 1955, when I was dx. the A1c lab was still a dream. I didn’t receive an A1c result until the early 1980’s.

      2 years ago Log in to Reply
    20. Bob Durstenfeld

      I was diagnosed in 1956.
      Management of T1D was crude at best. Pork insulin with 20 guage needle
      S, glass syringes and boiling Benedictine solution to check urine for sugar.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I remember my mom having to boil the needle tip and syringe every morning and before each use to sterilize it. Then I got a plastic travel kit that had stainless steel tubes that kept the various parts sterile in isopropyl alcohol.

        1
        2 years ago Log in to Reply
    21. ConnieT1D62

      On December 26 1962 is the day I was officially diagnosed with “Juvenile Diabetes” when i was 8 years old. The A1C measurement wasn’t available but it was probably off the charts. Happy Diavesary to me!

      1
      2 years ago Log in to Reply
    22. Steven Gill

      I’m guessing…my single test I know was a week previous at 399. Started on shots because of ketones, otherwise was naive

      2 years ago Log in to Reply
    23. Joan Benedetto

      My son’s was 10.4. He was diagnosed at 18 months

      2 years ago Log in to Reply
    24. Jennifer Farley

      It was 42 years ago. I have no memory of anything except the instructions given by my family doctor- go home, pack a bag, you will be in the hospital for sometime, WHATEVER YOU DO, EAT NOTHING, that is most important.- I was so confused. I was 13 and weighed about 70 pounds. Skin and bone. So if an A1C was done no one told me.

      2 years ago Log in to Reply
    25. Misi Ballard

      I don’t know my A1c at time of diagnosis (5/04/2014), but my Bg at the time was 585.

      2 years ago Log in to Reply
    26. Jeff Balbirnie

      To my knowledge the test had not been invented/in common usage, quite yet. Soon after, but not then

      2 years ago Log in to Reply
    27. Anita Stokar

      Oops, I put I don’t know, but I believe the test wasn’t available when I was diagnosed.

      2 years ago Log in to Reply

    What was your A1c at the time of your T1D diagnosis? Cancel reply

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