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    • 3 hours, 14 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 3 hours, 19 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 3 hours, 26 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 22 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 4 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 6 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 1 hour ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 2 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    What was your A1c at the time of your T1D diagnosis?

    Home > LC Polls > What was your A1c at the time of your T1D diagnosis?
    Previous

    Do you find that staying on top of your T1D routine becomes more difficult when there are fewer hours of daylight? Select all of the statements that apply to you.

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    Have you participated in a diabetes-related clinical trial this year?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    31 Comments

    1. Russell Buckbee

      I can’t know because the glycoslated hemoglobin A1c was not developed yet. N=My BS was high and I had other symptoms, so they put me on insulin.

      1
      2 years ago Log in to Reply
    2. Ahh Life

      When you are diagnosed at the time of the Roman legions, the Visigoths, and the Huns, it’s a bit dicey not having A1c’s invented yet, much less carb to insulin correlations.

      The world has spun a few times and progressed a tad since then.

      8
      2 years ago Log in to Reply
      1. Donna Williams

        Thank you for making me laugh with your comments!!

        2 years ago Log in to Reply
      2. ConnieT1D62

        It’s amazing that some of us T1D dinosaurs have survived for so many years since the ancient days before A1Cs, BG meters, insulin pumps, CGMs, or even disposable injection devices were even thought of. Congratulations to us all for beating the odds! The best is yet to come!!!

        1
        2 years ago Log in to Reply
    3. Lozzy E

      Misdiagnosed as type 2 for 2 years, so by the time they realised I was type 1 my a1c was well under control. Was between 7 and 8 when misdiagnosed though

      1
      2 years ago Log in to Reply
    4. Katherine Kiger

      They didn’t do an A1C, just a simple glucose test (which had to be done in a lab, because this was 1980). The result was over 650. (The nurse dropped the clipboard when they handed her the result.)

      1
      2 years ago Log in to Reply
    5. Jane Cerullo

      LADA diagnosed early as type 2. Took two years for correct diagnosis. A1c never above 7. When properly diagnosed A1c always below 6

      2 years ago Log in to Reply
    6. Conniekaycox

      I was in the icu with dka for 4 days. When released from hospital with pump blood sugar still at 500.

      2 years ago Log in to Reply
    7. Richard Vaughn

      I was diagnosed in 1945. My first A1C was 11 in 1980.

      2 years ago Log in to Reply
    8. Patrick Burner

      Forty years ago today I was diagnosed at UVa with a blood sugar of 1173.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        Happy Diaversary to you, Patrick!

        2 years ago Log in to Reply
    9. Jennifer Bounds

      My bg was 383 at the clinic before going to the hospital. My first A1c after being diagnosed was 7.3% and I remember my doctor telling me I was doing well.

      2 years ago Log in to Reply
    10. Marthaeg

      16.1 A1C with bg over 500 Oct. ‘20
      Dr asked me how I was feeling. I said ok. Never had the excessive thirst or urination symptoms. She said she would have sent me to the hospital if I had answered anything else. Got sent home with insulin. 😊 Amazing stuff!

      1
      2 years ago Log in to Reply
    11. fletchina

      A1C was not used when I was diagnosed in 1976

      1
      2 years ago Log in to Reply
    12. Amanda Barras

      I was barely 4, I don’t know.

      2 years ago Log in to Reply
    13. Dennis Dacey

      In 1974, almost two decades after my diagnosis, I participated in the study of glycosylated hemoglobin which has become known as HgA1c and currently HbA1c.
      So, at my diagnosis A1c reading was not available.

      2 years ago Log in to Reply
    14. Brenda Lipscomb

      Jan ’68 A1c was not known about. But I do know that my bg was 1040. I was 11 months old.
      I was 16 when I got my first A1c and it was in the “6” range. My Endo said that was excellent, considering it was my first.

      1
      2 years ago Log in to Reply
    15. Kate Kuhn

      A1c was not invented available in 1964, but I was in full fledged acidosis, near coma.

      1
      2 years ago Log in to Reply
    16. Joan Johnson

      It was 1972, and I was not given that information. I wish now that I had it.

      2 years ago Log in to Reply
    17. Pauline M Reynolds

      I don’t remember, but my glucose was 229.

      2 years ago Log in to Reply
    18. Mark Schweim

      They never checked my A1c until a month or two after my T1D diagnosis, but the first time my A1c was tested, it was 3.1, which the doctor said was almost too low even for a non-diabetic.

      2 years ago Log in to Reply
    19. Janis Senungetuk

      In 1955, when I was dx. the A1c lab was still a dream. I didn’t receive an A1c result until the early 1980’s.

      2 years ago Log in to Reply
    20. Bob Durstenfeld

      I was diagnosed in 1956.
      Management of T1D was crude at best. Pork insulin with 20 guage needle
      S, glass syringes and boiling Benedictine solution to check urine for sugar.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        I remember my mom having to boil the needle tip and syringe every morning and before each use to sterilize it. Then I got a plastic travel kit that had stainless steel tubes that kept the various parts sterile in isopropyl alcohol.

        1
        2 years ago Log in to Reply
    21. ConnieT1D62

      On December 26 1962 is the day I was officially diagnosed with “Juvenile Diabetes” when i was 8 years old. The A1C measurement wasn’t available but it was probably off the charts. Happy Diavesary to me!

      1
      2 years ago Log in to Reply
    22. Steven Gill

      I’m guessing…my single test I know was a week previous at 399. Started on shots because of ketones, otherwise was naive

      2 years ago Log in to Reply
    23. Joan Benedetto

      My son’s was 10.4. He was diagnosed at 18 months

      2 years ago Log in to Reply
    24. Jennifer Farley

      It was 42 years ago. I have no memory of anything except the instructions given by my family doctor- go home, pack a bag, you will be in the hospital for sometime, WHATEVER YOU DO, EAT NOTHING, that is most important.- I was so confused. I was 13 and weighed about 70 pounds. Skin and bone. So if an A1C was done no one told me.

      2 years ago Log in to Reply
    25. Misi Ballard

      I don’t know my A1c at time of diagnosis (5/04/2014), but my Bg at the time was 585.

      2 years ago Log in to Reply
    26. Jeff Balbirnie

      To my knowledge the test had not been invented/in common usage, quite yet. Soon after, but not then

      2 years ago Log in to Reply
    27. Anita Stokar

      Oops, I put I don’t know, but I believe the test wasn’t available when I was diagnosed.

      2 years ago Log in to Reply

    What was your A1c at the time of your T1D diagnosis? Cancel reply

    You must be logged in to post a comment.




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