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    • 59 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 hour ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 hour, 1 minute ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 hour, 43 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 3 hours, 6 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 5 hours, 3 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 20 hours, 26 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 20 hours, 28 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 20 hours, 29 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 20 hours, 30 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 20 hours, 38 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 30 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 22 hours, 31 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 22 hours, 33 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 4 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 6 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    On a scale of 1-5, how satisfied are you with your current T1D healthcare provider? (5 = the most satisfied, 1 = the least satisfied)

    Home > LC Polls > On a scale of 1-5, how satisfied are you with your current T1D healthcare provider? (5 = the most satisfied, 1 = the least satisfied)
    Previous

    If you (or your child with T1D) celebrate Halloween, how do you balance blood sugar levels, physical activity, and candy during the festivities?

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    Do you have any flavors of glucose tabs that you prefer? Select all that apply!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Lynn Smith

      It makes me mad that she charges me $25 to fill out a quick and easy pre-authorization form. But other than that, she’s fine.

      2 years ago Log in to Reply
    2. Chris Albright

      Beyond updating scripts as needed, I don’t get a whole of value from Endo. After 30 years of being a T1, I really don’t need much support from them so it works out.

      2
      2 years ago Log in to Reply
      1. Lyn McQuaid

        I was going to comment the exact same thing. After 30+ years, I know more about my management than my endo does and, besides, his real love is thyroid, not T1D. When he retires, I will see if another endo is any different as he is still he only one I’ve ever had.

        2 years ago Log in to Reply
    3. Lawrence S.

      My T1D provider is assigned to me by the hospital that I go to. She does a good job, and I have no reason to complain. But, I never get to see a doctor of Endocrinology. She spends more than enough time with me, reviews my lab results, and discusses current T1D issues.

      2 years ago Log in to Reply
    4. Anita Stokar

      I like mine. She spends a good amount of time with me when I have an appointment. She suggests but doesn’t demand me switching my diabetes regimen if she feels she has a better way of handling my diabetes (new pump, new insulin etc) and she looks for clinical trials I may be interested in.

      2 years ago Log in to Reply
    5. Lisa Sierra

      Dr. Lamont Weide is one of the smartest most caring providers ever. Happy Retirement Dr!!!

      2 years ago Log in to Reply
    6. Kate Kuhn

      I have been with my Endo for 37 years. She is a good doctor, but the practice she participates in is not managed well. Wait times to leave a message are usually 1 hour; phone calls are not returned; prescription renewals fail; if you have other endocrine issues that are not in your doctor’s speciality, you cannot see another doctor in the practice. Dealing with this practice is very frustrating!

      2 years ago Log in to Reply
    7. KIMBERELY SMITH

      Not at

      2 years ago Log in to Reply
    8. Jane Cerullo

      I gave my Endo a 4. I am always the one who brings up new products and treatments. He is more the status quo

      2 years ago Log in to Reply
    9. Kristen Clifford

      Another question that’s already been asked at least once! I’m pretty sure there were at least two other times before this one

      2 years ago Log in to Reply
    10. MT

      Mine is more like a scribe for the grim reaper…..asking me the same formatted questions for the last 20 years and my answers are the same. After 50 yrs of T1d, I’m pretty self-sufficient except for needing rx refills. I pay a lot of $$$ for this Dr who doesn’t really help with any day to day insulin adjustments and just repeats what the Medtronic sales reps tell him.

      1
      2 years ago Log in to Reply
    11. Ruth Schwartz

      Health Care Providers Are Limited due to The Care Protocols of The HEALTHCARE SITES, similar to LIMITED FOCUS of this Website, Nutritional Health Information and Big PHARMA Protocols

      1
      2 years ago Log in to Reply
    12. Jen Farley

      My Endocrinologist is great. His office is tough to work with, but nothing is perfect anymore. He works with my Rheumatologist when I bring up stuff noted by the blood work done by one doctor compared to another and sometimes had to ask why I was getting double the blood work on the same tests. He now checks the other doctors’ tests to verify the test has not already been run.
      He has helped me lose weight (60 lbs) and I am now feeling my low blood sugar reactions which has been about a decade or more since I had. Most of my past endocrinologist where on a goal to get me to a normal A1C.
      None of the past endocrinologists understood small changes make big changes in blood sugar readings. I had one doctor ask me if I was lying. I looked at her and said –never is death a quest of mine, so why would I lie? So, in my opinion, this guy listens and is the best I have had in decades (been with him after a recommendation since 2017).
      -Sorry seems like a long post.

      2 years ago Log in to Reply
    13. Annie Wall

      I am extremely happy with my diabetes care. I had been with my former Endo who was also my primary for 28 years. He is the one who got me in the pump so I will forever be grateful to him. He retired and I started with a new endo last April. I didn’t get much guidance from him then but he felt that I had exceptional control. I saw him again this week and this time he spent more time helping me tweak my ratios on my Tandem CIQ. I am flabbergasted! Already I’m having far fewer alerts and my graph is a much smoother line. I feel like I am a very fortunate person. When I was first diagnosed in 1980, there were no endocrinologists so I had a bit of waiting before I got the support I need.

      2 years ago Log in to Reply
    14. Sue Martin

      I had a great Endo for years, between two different hospital systems in my area (we both changed). She retired and assigned me a younger doctor whom she thought I’d get along with. I haven’t really connected with this new doctor even though it’s been several years. I think it would be odd to try to see someone else in her practice. So, I just go along. At least I can do video visits and don’t have to drive for an hour, wait in the room for her, and then an hour drive home.

      2 years ago Log in to Reply
    15. Bob Durstenfeld

      I tried switching to closer doctors several time, but have returned to the same Endo for 30 years as several looks at whole peeson, not just a diabetes manager.

      2 years ago Log in to Reply
    16. TEH

      I have had 4 Endo teams over the last 30 years, not counting the GP who thought I was T2. The current Endo and PA make the best team I have had. My Endo knows the physiology and emerging changes to treatment regements and my PA knows how to get the best out of my Pump. This has resulted in my best A1C numbers. The only problem is I expect my Endo to retire in the next few years.

      2 years ago Log in to Reply
    17. Steven Gill

      I think if you GRT a real efficient endocrinologist (not just handling the physical concerns but also proper trainer, even if just prescribing a trainer or educator) you’re fortunate. Of the 5 I’ve seen only the 2nd seemed efficient, the doctor I see prescribes what I need, handles the other physical aspects of my health. So I’m extremely satisfied.

      2 years ago Log in to Reply
    18. Janis Senungetuk

      Up until the COVID pandemic I would have rated my endo a definite 5. This year she seems really burned out by the huge increase in patients and the very limited amount of time she’s allowed for each appointment. I realize that my 4 rate is more a reflection on the demands/limits imposed by her employer and not on the level of care she provides.

      1
      2 years ago Log in to Reply
    19. Tracy Jean

      My Diabetes Nurse Practitioner is AWESOME!

      2 years ago Log in to Reply
    20. Antsy

      My current (my 4th) END seems great, but I’ve only had 1 visit. The one before him was truly awful. My first two were outstanding, but both left their practices. Perhaps they spoiled me, but that third END was condescending, expensive and snapped at me when I asked questions. Very glad my new doc seems like a good one.

      2 years ago Log in to Reply
    21. Albert Olmstead

      Most if not all are overpriced and over glorified script writers. I think when you call them dr your just being polite

      1
      2 years ago Log in to Reply
    22. Jillkdubois

      I only need them to write my prescriptions, I don’t think any of the endo’s I’ve had really spend time to help me out.

      2 years ago Log in to Reply
    23. David Hedeen

      Wish everyone could be a fortunate as I hav been. T1 for 50 years with 3 endos. Ea were profer of Medicine any I could ask any question with respective responses!

      2 years ago Log in to Reply
    24. Carol Meares

      I am mostly (perhaps not always) satisfied with my Endo. He does his very best and plans on working past retirement. He loves his job. I hear horror stories with some endos and am grateful for the experience and knowledge of my Endo.

      1
      2 years ago Log in to Reply
    25. Jeff Balbirnie

      ROFLMAO…. let’s see, been hospitalized twice (non D) in the recent past, they NEVER called/followed up in any manner. Made two (2) appointments to get seen, THEY cancelled both with zero warning, nor explanation(s) of any kind… my primary, and her replacement LEFT the practice entirely…. only know because they eventually sent a “proforma” letter of the second escape. Have heard nothing from them who my new physician might be?! (I’m thinking they will either be a cardboard cutout of a doctor or chuckles the talking clown/monkey….) Zero faith in the primary… not ever. Must see whoever insurance designates or no insulin scripts, nor D supplies of any kind….

      2 years ago Log in to Reply
    26. PamK

      This would have been a 4 except at my last visit he decided I needed more insulin at dinner time due to evening highs. What he failed to notice was that these were rebound highs from pre-dinner lows!

      2 years ago Log in to Reply

    On a scale of 1-5, how satisfied are you with your current T1D healthcare provider? (5 = the most satisfied, 1 = the least satisfied) Cancel reply

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