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On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
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I am very pleased with my Tandem X2 with CGM integration and using BIQ software. Sadly I just learned today that the BIQ function is gonna be discontnued. I’m gonna call Tandem to see if they will be making changes to CIQ (e.g. setting my own target, having the temp basal function etc). CIQ doesn’t allow me to have the tight and aggressive T1D mgt that I prefer (and thrive with).
I’ve created additional personal profiles to handle some of these limitations. For example, on Day 3 of my site I noticed that my insulin wasn’t working as efficiently but my endo had difficulty getting Medicare approval for more frequent site changes. I created a Day 3 profile that increased my insulin delivery (both basal and bolus) to accommodate the higher Day 3 glucose levels and keep me better in range. I also created and Exercise profile because the “exercise” activity did not reduce my insulin needs enough to prevent my going low. I did this by lowering my basal and bolus needs tailored to the time I exercised each morning. It took some trial and error but I feel in control. I’ve achieved my lowest A1c ever of 5.8 using this pump.
I wish Fiasp didn’t clog Tandem pumps and I also wish I used less insulin. Otherwise happy.
When I used be on g6 in the Summer now g7 very
MDI is so easy with modern needles and pens. I may look into the pen device that keeps track of dosage administered.
Had it my way I would go back syringes and vials. Humulin L and Humulin R.
My omnipod great at preventing lows not so effective at preventing highs always have to fake bolus
I use the Tandem X2 with CIQ. This seems to be about the best we have right now. I think the problem is we will never achieve near normal glycemic control by mechanical means. We need to be moving more aggressively towards restoring cellular function of the islets within the body. For near “normal” control we need to restore the islets and all of their 5-6 hormones that are produced. Delivery of pancreatic hormones subcutaneously is too slow. It’s time to put the pieces together and move towards more biological approaches.
They are building a new huge facility in the northeast for mass production of islet cells. I think it may be closer than we think. I hope so any way.
FIVE!! My new OmniPod 5 with Dexcom is the best thing ever!! I feel free. Its memory of my bs is right on. I’ve gone from an A1c of 10 to 6.7 in two months.
Although I LOVE by Tandem X2 with Control IQ and have achieved my tightest control in 47 years as a Type 1 (last A1c was 5.8), I selected 4 because I do not like the minimum insulin fill requirement of this pump. Tandem advises us to load 45u more than we anticipate using in 3 days time AND also, the new cartridge MUST have 50 units in it to be accepted. My total daily dosage varies from 17 to 20 units on most days unless I am having some infusion site issues. IF I choose to change my cartridge at the same time I change my infusion site, I am wasting WAY TOO MUCH insulin that is left in the old cartridge. I also do not like that I cannot see exactly how many units are actually in the cartridge at any given time until I get to the 45u mark which is into my Day 2 of use. I’ve learned to fill my cartridge with about 100u of insulin which gives me between 50 and 60 units after tube-fill in order for it to be accepted.
I’m also using the Tandem Tslimx2 pump and if I have any issues, like you described, I remove all of the leftover insulin from the set that’s not working and inject that insulin into the new cartridge.
I said “4”. My Tandem/Dexcom G6 combo works well EXCEPT I don’t understand why the x2 will only do a correction bolus once per hour. There are other devices that claim to autocorrect every 5 minutes!
Love being tubeless on OmniPod 5. Not satisfied either the algorithm or that it does not connect with iPhone or Dexcom 7.
I went back to MDI about three years ago. Use an InPen. Unfortunately the cost is getting prohibitive. Even at $35 it is still $70 a month. Then the co pay for the InPen. Don’t understand why insulin if covered under Part B when on a pump. Going to look into the Tandem Mobi. Small and can be controlled via phone app.
I was diagnosed with late life T1 last year. I am managing very well with MDI’s and pens, but still amazed at the amount of thinking and endless calculations and decision points…
I gave a score of 5, but maybe should have gone with a 4. I am very happy with my Tandem X2 pump with control IQ. My A1C’s have been between 5.4 and 5.8. I still have my share of highs and lows daily. Time time in range varies between the 80’s and 90’s percentages. My Novolog insulin works well. There is always room for improvement. And, of course, the cure would be the ultimate score of 5. But, considering where we came from 47 years ago, and now, I’m giving my pump and CGM a “5”. Now, I’m waiting to get my Dexcom G7. I just got an order of G6’s, so it’ll be another 90 days. 🙂
I put a 4 in the comment’s, always looking for continued improvement in treatment and technology. Started w beef and pork insulin and the improvements are amazing. Remember no CGM and the NPH second peak, how things have improved for all of us, much appreciated!
I have the 630 Medtronic and it’s been on recall since I got it. If it quits they just replace it with a refurbished 630. It does not loop and is constantly breaking down.
If you are ok with current, recommend upping to 780 after FDA approval for new Simplera sensor
I got myself out of the Medtronic system years ago and went to Tandem. I’ve never looked back.
Like my Tandem X2 pump. I do wish it was cordless like the OmniPod. Several times a month, I rip out the insulin set because of the infusion tube on the Tandem pump. OmniPod is not affordable at this time or I would consider switching.
Have been T1D 51+ years now.
Quit the Medtronic after using it for years.
Using Tandem t:slim now which is a Great improvement but I have to bolus way too many times even with ControlIQ.
Am looking into the iLet as I won’t have to do so many calculations!
Always looking forward to More improvements though!
Adjust your basals
at the time you go high you can see a pattern slight increments make a big difference
It’s really too soon to tell, but I marked “3”. My son started on the ILet one week ago. The first few days were quite wonky, but things appear to be evening out as it “learns” him. We are having fewer lows, and it takes about half the carbs to bring BG up as with previous pump.
After years of syringes, multiple shots a day my life was revolutionized when I switched to pump and then CGM.
I like the Tandem pump with ControlIQ, it give the best overnight results I have ever had.
I look forward to switching to the G7 sensor and seeing better control.
Kinda has to be a 4, doesn’t it? I’m vastly happier with the Tandem CIQ pump I started on last April after years with Medtronic, but T1 is complex, no two metabolisms respond to it in the same way, and no system is ever going to fit everyone perfectly. The Tandem is way more flexible and customizable than I experienced the Medtronic system to be, but there are still plenty of things to annoy me. I don’t like the old-school insets, vs the Mio Advance ones Medt has had for a few years. Why can’t all the connectors be interchangeable/standardized? Because $$. So that’s part of why it’s a 4 not a 5 for me. Heck, the whole treatment of T1 is vastly better than it was 40 yrs ago when I was dx’d, but none of those improvements make up for not actually having a functioning pancreas. I like my pump, but any system is going to be at best a 4 compared with the 5 that is a functioning pancreas.
Have been running DIY Loop with Omnipod/Dexcom/Nightscout since 2019 and am very happy with both the supportive community of bright people and the results I am getting. We are not waiting……
I am on yhe Tandem tslim X2 pump and Dexcom G6 and really like it. Medicare has not yet approved the G7 with the Tandem pump. Hopefully soon. I also would like it if Medicare would pay for inhaled insulin to be used along with the pump to bring down stubborn higher blood glucoses.
Pump 5, CGM 4
Still no on the pump, doing long term insulin once a day then meal time insulin as well
On Tandem & G6, soon on G7 – 24hr Sleep Mode and loving it. T1 60 yrs in March, A1c 5.4 to 6.1 Zero Hypos
I’ve been using the Tandem Tslimx2 pump for 4 years and when I asked my endocrinologist last week what pump he recommends he said to stay with Tandem. I’ll be able to switch it in June since Medicare allows that after 5 years. I don’t have the Control IQ but would love it if they will let me set more appropriate blood sugar ranges.
Give me the ability to be able use tenths (or even quarter) of a unit by injection, and I will put the pump companies entirely out of business rapidly!
After several months on multiple injections (syringes with generic insulin from Wal-Mart) upgraded to the Medtronic 780G system. Definitely a more aggressive algorithm compared to previous generations with the same protections against hypoglycemia. While on shots my a1Cs were 5.3 and 5.2 with the general risks of lows, last a1C was 5.7 with for all practical purposes zero lows. With the new target capability to be set at 100, and separate alarms much closer to normal glucose levels are possible with a lot less effort (std deviation looks like 32?).
Each system will leap frog the other technologically, right now as the newest system this seems the premier.
I selected “5”. I have been on a pump for over 40 years and on a CGM for over 12 years, Medtronic and Dexcom. Of course, had troubles with the Medtronic “Enlite Sensor”. So far all’s well. Have to finish my G6 Sensors, then on to the G7 adventure!