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  • Activity
    • 14 minutes ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 5 hours, 14 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 5 hours, 15 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 5 hours, 16 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 2 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 2 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 5 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 3 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 5 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 14 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 14 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 21 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
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    Living with T1D can be difficult, but many folks experience positives living with T1D too! No matter how small, is there anything you’re grateful for related to T1D this year? Select all the options you’re grateful for or share more about your experiences in the comments!

    Home > LC Polls > Living with T1D can be difficult, but many folks experience positives living with T1D too! No matter how small, is there anything you're grateful for related to T1D this year? Select all the options you're grateful for or share more about your experiences in the comments!
    Previous

    If you use an insulin pump, which of the following factors best describe when you will get a new pump (assuming your current pump still works)? Select all that apply!

    Next

    If you have used an insulin pump, have you ever stopped using a pump and switched back to multiple daily injections for more than one month at a time?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    32 Comments

    1. Molly Jones

      I have numerous chronic conditions, one of which is disabling, and become happier as I age.
      I have learned not to take anything for granted and to be grateful for many things I have that so many people around me or in other parts of the world do not. Extended family support, resources, scientific research, and social education (even if it is not perfect) in the society I live in. I would not be alive or acceptable in so many parts of the world.

      5
      10 months ago Log in to Reply
    2. Ahh Life

      We deal with human nature in the raw.

      It’s being positive about the things that life has to offer, regardless of whether the circumstance is what you imagined or wanted.

      7
      10 months ago Log in to Reply
    3. mbulzomi@optonline.net

      I have a hard time with all the Diabetes groups for the last 55 years. We can fly people to the Moon, we can allow over 5 million undocuments people into this country and spent well over 7 billion dollars of our tax dollars to support them, but nothing revolutionary in the field of Diabetes cures?? I guess big bucks’ control all. To all Happy Thanksgiving.

      2
      10 months ago Log in to Reply
      1. TEH

        It’s all about the $$$. Finding a cure would stop the cash flow to the insulin and diabetes sypply companies. Medtronic and Eli Lilly had huge sales. They need to spread some of that around. Sorry, don’t mean to be a downer today.

        10 months ago Log in to Reply
      2. Marty

        Having recently retired from a career in biomedical research, I can’t let this pass without saying how grateful I am for all of the academic researchers who devote their lives to advancing our understanding of health and disease. Most biomedical research is carried out by idealistic young scientists who work 40+ hours per week for low pay with the dream of making a significant contribution to our well being. In addition to the all of the technological advances in BG tracking and insulin delivery, the results of their hard work include deeper understanding of the ways our immune systems go awry and destroy beta cells and the development of replacement beta cells that will produce new treatments and possible cures in the future. I see much to be thankful for.

        2
        10 months ago Log in to Reply
    4. Yaffa Steubinger

      I’m also so thankful for injectable insulin. Without it, we’d all be dead. Every time I ‘shoot up,’ I am thankful that I can eat what I want thanks to insulin. I know I’ll eat stuff today on Thanksgiving that I don’t normally eat and I may eat more than normal, but I’m going to have a good time even though I might use more insulin today.

      4
      10 months ago Log in to Reply
    5. Amy Jo

      Technology and a care team that are helping me successfully manage my 3rd pregnancy with T1D.

      3
      10 months ago Log in to Reply
    6. cynthia jaworski

      WOrking forward from the premise that I have t1, I am truly grateful for insulin andmy aprents who had my back from the onset.
      On the other hand, I see only one single benefit that came about only because I am a type 1.about as a T1. I got to go to summer sleep away camp!!!!! My parents would never have sent me off for 2 weeks at the age of 10 it it had not been for that. And it was great.

      1
      10 months ago Log in to Reply
    7. Eva

      I give thanks for all those T1D warriors who came before me. They fought hard, speaking out to power for access to newer insulins, technology, diet and education. I also give thanks to those who share about how they “think” they developed diabetes. Whether it is from diet, viruses, chemicals, genetics or medicines (or a combination thereof), their stories inform and could help prevent diabetes in future generations.

      2
      10 months ago Log in to Reply
    8. Steven Gill

      I’ve tried to teach kids around me that bad happens to good people, just like good things happen to bad people. It’s what we do with it. Beyond the things I’ve checked above (technological and medical advancements; empathy; understanding my own needs; and my own “analytical ability”) I appreciate the nutrition labels not listed.here.

      2
      10 months ago Log in to Reply
    9. Nicholas Argento

      I checked off most of those. I am thankful to be alive, protected well by tremendously improved diabetes treatments, supported by loved ones present and those now in the next world, and proud to be a member of the T1D community- where we support each other. We are many, we are 1….

      7
      10 months ago Log in to Reply
    10. Marthaeg

      So thankful to be alive! As a latecomer to T1- 2 years ago at the age of 63 after a bout with Covid, my “golden years” aren’t quite what I was expecting but because of it I think I am finally learning to not sweat the small stuff and to find joy in the moment. Happy Thanksgiving!

      2
      10 months ago Log in to Reply
    11. RegMunro

      I’m very undisciplined generally, so T1D is slowly helping, but after 57 years I’m still awfully undisciplined

      1
      10 months ago Log in to Reply
      1. Sue Martin

        I can relate to this. After 38 years, I would think it would be easier. But with better technologies, it is getting better.

        10 months ago Log in to Reply
    12. Ernie Richmann

      Attitude is like a flat tire, the road ahead will be rough until you change it. Many positives out there.

      2
      10 months ago Log in to Reply
    13. Steve Rumble

      Required regular contact with health care team keeps health issues from sneaking up on me!

      10 months ago Log in to Reply
    14. stillarobyn

      The person who impersonated Eli Lilly on Twitter to draw attention to high costs of insulin.

      1
      10 months ago Log in to Reply
    15. pru barry

      I’d have to be nuts to say I am thankful for life as a T1 (68 years and counting), but as the years accrue, there is so much tied up with a life built on good diet, exercise, and certain limits. I am very grateful for the broader perspective, for appreciating those limits, and for knowing how to support my labradoodle, Charlie, when he was diagnosed more than three years ago.
      I’m not religious in the usual sense, but have a sneaking suspicion that in this incredibly complex universe, there are forces which make sense when we pay attention. If life is too easy, I tend to stop being so careful about the things that need care. So probably, yes, I am surreptitiously grateful for my “constant reminder.”
      I am also very thankful for all of you who share your wisdom, and remind me that I’m certainly not alone!
      Happy Thanksgiving!

      3
      10 months ago Log in to Reply
    16. Leigh French

      Having medical knowledge from RN experience

      10 months ago Log in to Reply
    17. George O Hamilton

      My thoughts are like many others already expressed. I have been insulin dependent for 59 years. I believe that other parts of my health condition (eating habits, weight management, exercise, heart health, etc) are much better than I would have experienced without my T1D life. I remember thinking in the 1960s that I would probably not live to see the 21st century. Instead, I am still wondering “What will I do when I grow up?”

      5
      10 months ago Log in to Reply
    18. Stephen Woodward

      Being able to give others information I’ve learned in my 52 T1D that can help them have a better T1D experience, and hearing from them that the information helped better their T1D life.

      10 months ago Log in to Reply
    19. dave hedeen

      Should hav said tech; given chance to use 780g, decreased A1C 7% to 6.7 lowest value in 50 diabetic years

      10 months ago Log in to Reply
      1. Lori Lehnen

        Had this question come a day earlier, my response may have been different. For the first time since being diagnosed a year ago, I was able to spend time with my nephews, ages 12-14. They know this is a challenging disease and because of me, they are at a genetically higher risk. To help assuage their fears, I spoke positively about all the exciting new advances and we had fun seeing how food and exercise affects blood glucose using my CGM. This really helped me see a brighter future. I am truly grateful for those who suffered before me and helped push research forward and for those who developed the technologies we have today.

        2
        10 months ago Log in to Reply
    20. Jillmarie61

      I’m thankful for my new OmniPod5 I got on Tuesday. My blood sugars are in even tighter control (85% of the time) than with the Tandem TSlim X2 (less than 70% of the time) so far.

      10 months ago Log in to Reply
    21. Ceolmhor

      I’m eating better and enjoying it more.

      1
      10 months ago Log in to Reply
    22. Lawrence S.

      Probably the best thing for me to come out of being a diabetic is my awareness of good nutrition. Before I was diabetic, I had no awareness of the different values of food, i.e.: fats, carbs, proteins. I ate anything. My diabetes brought me to a healthy, well balanced diet that I can measure.
      I’ve always exercised. But, my diabetes gives me impetus and meaning for my exercise.
      I really do appreciate having this connection with All of you on this T1D Exchange site. For many years, I felt that I was out there alone. I had no idea there were so many of us out there. I value your comments and input. Thank you.

      3
      10 months ago Log in to Reply
      1. sweet charlie

        I feel the same!!

        1
        10 months ago Log in to Reply
    23. Jneticdiabetic

      I once met a sweet older T1D gentlemen. He had just had a severe low and had scratches on his face from seizing. It’s hard to feel great about T1D in those moments, but he told me he was grateful for his T1D diagnosis because it had made him take better care of himself than he otherwise would of and overall he was healthier because if it. Lovely reminder that there’s a silver lining to every situation life throws at us.

      2
      10 months ago Log in to Reply
    24. AnitaS

      I am thankful that I am coming up on 50 years living with T-1 and I am still living without complications. I know many other T-1 people aren’t as lucky through no fault of their own.

      2
      10 months ago Log in to Reply
    25. Jeff Perzan

      Approaching 58 years with T1D. Thankful for (almost) always eating a healthy diet and for the discipline, discipline, discipling required to maintain good control.

      1
      10 months ago Log in to Reply
    26. Tom Webb

      This is my 50th year of living with diabetes and have seen and lived through the changes in treatment. I was 7 and was taking 1 shot in the morning and used urine to check my blood sugar with clinitest tablets and a color chart. I now check my blood sugar and have a dexcom g6 with a tandem pump. My ha1c is the lowest I have ever had and I am under better control.

      10 months ago Log in to Reply
    27. T1D4LongTime

      I am grateful for support of my T1D and Tandem online community members and my family. A BIG positive for my endo and his staff too. The aggressive marketing of Dexcom CGMs on TV has been a blessing too with less explanation as to what the CGM is and what is does. A greater awareness of T1D in the general public would be welcome, but it is very slow in coming as the public lumps us all as Type 2 (in my opinion).

      10 months ago Log in to Reply

    Living with T1D can be difficult, but many folks experience positives living with T1D too! No matter how small, is there anything you're grateful for related to T1D this year? Select all the options you're grateful for or share more about your experiences in the comments! Cancel reply

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