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    • 21 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 11 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 14 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 19 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Living with T1D can be difficult, but many folks experience positives living with T1D too! No matter how small, is there anything you’re grateful for related to T1D this year? Select all the options you’re grateful for or share more about your experiences in the comments!

    Home > LC Polls > Living with T1D can be difficult, but many folks experience positives living with T1D too! No matter how small, is there anything you're grateful for related to T1D this year? Select all the options you're grateful for or share more about your experiences in the comments!
    Previous

    If you use an insulin pump, which of the following factors best describe when you will get a new pump (assuming your current pump still works)? Select all that apply!

    Next

    If you have used an insulin pump, have you ever stopped using a pump and switched back to multiple daily injections for more than one month at a time?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. Molly Jones

      I have numerous chronic conditions, one of which is disabling, and become happier as I age.
      I have learned not to take anything for granted and to be grateful for many things I have that so many people around me or in other parts of the world do not. Extended family support, resources, scientific research, and social education (even if it is not perfect) in the society I live in. I would not be alive or acceptable in so many parts of the world.

      5
      3 years ago Log in to Reply
    2. Ahh Life

      We deal with human nature in the raw.

      It’s being positive about the things that life has to offer, regardless of whether the circumstance is what you imagined or wanted.

      7
      3 years ago Log in to Reply
    3. mbulzomi@optonline.net

      I have a hard time with all the Diabetes groups for the last 55 years. We can fly people to the Moon, we can allow over 5 million undocuments people into this country and spent well over 7 billion dollars of our tax dollars to support them, but nothing revolutionary in the field of Diabetes cures?? I guess big bucks’ control all. To all Happy Thanksgiving.

      2
      3 years ago Log in to Reply
      1. TEH

        It’s all about the $$$. Finding a cure would stop the cash flow to the insulin and diabetes sypply companies. Medtronic and Eli Lilly had huge sales. They need to spread some of that around. Sorry, don’t mean to be a downer today.

        3 years ago Log in to Reply
      2. Marty

        Having recently retired from a career in biomedical research, I can’t let this pass without saying how grateful I am for all of the academic researchers who devote their lives to advancing our understanding of health and disease. Most biomedical research is carried out by idealistic young scientists who work 40+ hours per week for low pay with the dream of making a significant contribution to our well being. In addition to the all of the technological advances in BG tracking and insulin delivery, the results of their hard work include deeper understanding of the ways our immune systems go awry and destroy beta cells and the development of replacement beta cells that will produce new treatments and possible cures in the future. I see much to be thankful for.

        2
        3 years ago Log in to Reply
    4. Yaffa Steubinger

      I’m also so thankful for injectable insulin. Without it, we’d all be dead. Every time I ‘shoot up,’ I am thankful that I can eat what I want thanks to insulin. I know I’ll eat stuff today on Thanksgiving that I don’t normally eat and I may eat more than normal, but I’m going to have a good time even though I might use more insulin today.

      4
      3 years ago Log in to Reply
    5. Amy Jo

      Technology and a care team that are helping me successfully manage my 3rd pregnancy with T1D.

      3
      3 years ago Log in to Reply
    6. cynthia jaworski

      WOrking forward from the premise that I have t1, I am truly grateful for insulin andmy aprents who had my back from the onset.
      On the other hand, I see only one single benefit that came about only because I am a type 1.about as a T1. I got to go to summer sleep away camp!!!!! My parents would never have sent me off for 2 weeks at the age of 10 it it had not been for that. And it was great.

      1
      3 years ago Log in to Reply
    7. Eva

      I give thanks for all those T1D warriors who came before me. They fought hard, speaking out to power for access to newer insulins, technology, diet and education. I also give thanks to those who share about how they “think” they developed diabetes. Whether it is from diet, viruses, chemicals, genetics or medicines (or a combination thereof), their stories inform and could help prevent diabetes in future generations.

      2
      3 years ago Log in to Reply
    8. Steven Gill

      I’ve tried to teach kids around me that bad happens to good people, just like good things happen to bad people. It’s what we do with it. Beyond the things I’ve checked above (technological and medical advancements; empathy; understanding my own needs; and my own “analytical ability”) I appreciate the nutrition labels not listed.here.

      2
      3 years ago Log in to Reply
    9. Nicholas Argento

      I checked off most of those. I am thankful to be alive, protected well by tremendously improved diabetes treatments, supported by loved ones present and those now in the next world, and proud to be a member of the T1D community- where we support each other. We are many, we are 1….

      7
      3 years ago Log in to Reply
    10. Marthaeg

      So thankful to be alive! As a latecomer to T1- 2 years ago at the age of 63 after a bout with Covid, my “golden years” aren’t quite what I was expecting but because of it I think I am finally learning to not sweat the small stuff and to find joy in the moment. Happy Thanksgiving!

      2
      3 years ago Log in to Reply
    11. RegMunro

      I’m very undisciplined generally, so T1D is slowly helping, but after 57 years I’m still awfully undisciplined

      1
      3 years ago Log in to Reply
      1. Sue Martin

        I can relate to this. After 38 years, I would think it would be easier. But with better technologies, it is getting better.

        3 years ago Log in to Reply
    12. Ernie Richmann

      Attitude is like a flat tire, the road ahead will be rough until you change it. Many positives out there.

      2
      3 years ago Log in to Reply
    13. Steve Rumble

      Required regular contact with health care team keeps health issues from sneaking up on me!

      3 years ago Log in to Reply
    14. stillarobyn

      The person who impersonated Eli Lilly on Twitter to draw attention to high costs of insulin.

      1
      3 years ago Log in to Reply
    15. pru barry

      I’d have to be nuts to say I am thankful for life as a T1 (68 years and counting), but as the years accrue, there is so much tied up with a life built on good diet, exercise, and certain limits. I am very grateful for the broader perspective, for appreciating those limits, and for knowing how to support my labradoodle, Charlie, when he was diagnosed more than three years ago.
      I’m not religious in the usual sense, but have a sneaking suspicion that in this incredibly complex universe, there are forces which make sense when we pay attention. If life is too easy, I tend to stop being so careful about the things that need care. So probably, yes, I am surreptitiously grateful for my “constant reminder.”
      I am also very thankful for all of you who share your wisdom, and remind me that I’m certainly not alone!
      Happy Thanksgiving!

      3
      3 years ago Log in to Reply
    16. Leigh French

      Having medical knowledge from RN experience

      3 years ago Log in to Reply
    17. George O Hamilton

      My thoughts are like many others already expressed. I have been insulin dependent for 59 years. I believe that other parts of my health condition (eating habits, weight management, exercise, heart health, etc) are much better than I would have experienced without my T1D life. I remember thinking in the 1960s that I would probably not live to see the 21st century. Instead, I am still wondering “What will I do when I grow up?”

      5
      3 years ago Log in to Reply
    18. Stephen Woodward

      Being able to give others information I’ve learned in my 52 T1D that can help them have a better T1D experience, and hearing from them that the information helped better their T1D life.

      3 years ago Log in to Reply
    19. dave hedeen

      Should hav said tech; given chance to use 780g, decreased A1C 7% to 6.7 lowest value in 50 diabetic years

      3 years ago Log in to Reply
      1. Lori Lehnen

        Had this question come a day earlier, my response may have been different. For the first time since being diagnosed a year ago, I was able to spend time with my nephews, ages 12-14. They know this is a challenging disease and because of me, they are at a genetically higher risk. To help assuage their fears, I spoke positively about all the exciting new advances and we had fun seeing how food and exercise affects blood glucose using my CGM. This really helped me see a brighter future. I am truly grateful for those who suffered before me and helped push research forward and for those who developed the technologies we have today.

        2
        3 years ago Log in to Reply
    20. Jillmarie61

      I’m thankful for my new OmniPod5 I got on Tuesday. My blood sugars are in even tighter control (85% of the time) than with the Tandem TSlim X2 (less than 70% of the time) so far.

      3 years ago Log in to Reply
    21. Ceolmhor

      I’m eating better and enjoying it more.

      1
      3 years ago Log in to Reply
    22. Lawrence S.

      Probably the best thing for me to come out of being a diabetic is my awareness of good nutrition. Before I was diabetic, I had no awareness of the different values of food, i.e.: fats, carbs, proteins. I ate anything. My diabetes brought me to a healthy, well balanced diet that I can measure.
      I’ve always exercised. But, my diabetes gives me impetus and meaning for my exercise.
      I really do appreciate having this connection with All of you on this T1D Exchange site. For many years, I felt that I was out there alone. I had no idea there were so many of us out there. I value your comments and input. Thank you.

      3
      3 years ago Log in to Reply
      1. sweet charlie

        I feel the same!!

        1
        3 years ago Log in to Reply
    23. Jneticdiabetic

      I once met a sweet older T1D gentlemen. He had just had a severe low and had scratches on his face from seizing. It’s hard to feel great about T1D in those moments, but he told me he was grateful for his T1D diagnosis because it had made him take better care of himself than he otherwise would of and overall he was healthier because if it. Lovely reminder that there’s a silver lining to every situation life throws at us.

      2
      3 years ago Log in to Reply
    24. AnitaS

      I am thankful that I am coming up on 50 years living with T-1 and I am still living without complications. I know many other T-1 people aren’t as lucky through no fault of their own.

      2
      3 years ago Log in to Reply
    25. Jeff Perzan

      Approaching 58 years with T1D. Thankful for (almost) always eating a healthy diet and for the discipline, discipline, discipling required to maintain good control.

      1
      3 years ago Log in to Reply
    26. Tom Webb

      This is my 50th year of living with diabetes and have seen and lived through the changes in treatment. I was 7 and was taking 1 shot in the morning and used urine to check my blood sugar with clinitest tablets and a color chart. I now check my blood sugar and have a dexcom g6 with a tandem pump. My ha1c is the lowest I have ever had and I am under better control.

      3 years ago Log in to Reply
    27. T1D4LongTime

      I am grateful for support of my T1D and Tandem online community members and my family. A BIG positive for my endo and his staff too. The aggressive marketing of Dexcom CGMs on TV has been a blessing too with less explanation as to what the CGM is and what is does. A greater awareness of T1D in the general public would be welcome, but it is very slow in coming as the public lumps us all as Type 2 (in my opinion).

      3 years ago Log in to Reply

    Living with T1D can be difficult, but many folks experience positives living with T1D too! No matter how small, is there anything you're grateful for related to T1D this year? Select all the options you're grateful for or share more about your experiences in the comments! Cancel reply

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