Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 6 hours, 25 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 6 hours, 25 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 6 hours, 35 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 6 hours, 36 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 6 hours, 43 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 6 hours, 57 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 7 hours, 32 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 7 hours, 32 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 7 hours, 32 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 10 hours, 41 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 29 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 1 hour ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 1 hour ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 1 hour ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 3 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 3 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 3 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 4 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 5 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 7 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 23 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    In the past year, have you been required to change medications because of your health insurance?

    Home > LC Polls > In the past year, have you been required to change medications because of your health insurance?
    Previous

    How many times in 2023 did you have an appointment with your main T1D healthcare provider?

    Next

    How often do you pre-bolus at least 5 minutes before eating?

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 1 month ago 11 min read  

    38 Comments

    1. Amber Lathrop

      Novolog to Humalog

      2 years ago Log in to Reply
    2. Donna Condi

      Yes my drug insurance company would only pay for Novalog brand insulin. I had been using insulin aspart previously.

      2 years ago Log in to Reply
    3. Kristi Warmecke

      My insurance want’s me to switch to Humalog (which I’m allergic to) from Novolog (which I’m not allergic to).

      1
      2 years ago Log in to Reply
    4. AimmcG

      My insulin brand is no longer covered. I have gone back and forth between Humalog and Novalog over the years due to insurance changes. Now my current insurance company wants me to change to Lispro.

      1
      2 years ago Log in to Reply
      1. Katrina Mundinger

        A while ago I had to switch from Humalog to Novalog but this year when my husband’s insurance changed, I had to switch to Lispro. Not a big deal, but I had to have my pharmacy call around to find a location that had enough vials for my Rx right before a trip out of town!

        2 years ago Log in to Reply
    5. Anthony Harder

      No, but I have had to fiercely fight to keep them more than once.

      2 years ago Log in to Reply
    6. Kathy Hanavan

      Not in 2023, but in 2024, I need to switch from Humalog to generic lispro. I have Toujeo for back up insulin and they will no longer cover that so I need to change Basaglar instead and they are not equivalent! Thankfully, I don’t need to use long acting often.

      2 years ago Log in to Reply
    7. Dave Akers

      Insurance changed preferred brand of basal insulin from Tresiba to Toujeo.

      2 years ago Log in to Reply
    8. Bob Durstenfeld

      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.

      5
      2 years ago Log in to Reply
    9. Julie Rayden

      I had to go from a brand name to a generic drug when I moved out of state. Goi g on Medicare did not help. Its not as effective that’s for sure but cost for the name brand is prohibitive!

      1
      2 years ago Log in to Reply
    10. Janice B

      Yes but not my insulin. A medication for Rosacea. The previous medication worked really well but the one I have to change to, I know from past experience, does not work as well.

      2 years ago Log in to Reply
    11. RACHEL BLEVINS

      Beginning January 2024, Medicare is not covering Novolog or Humalog. Which are the only drugs FDA approved for insulin pumps.

      2 years ago Log in to Reply
      1. Marty

        Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.

        1
        2 years ago Log in to Reply
    12. Lawrence S.

      My health insurance has not affected my diabetes medications. However, my insurance no longer will cover my Symbicort inhaler (for asthma). I will have to go to the doctor to get a different inhaler.

      2 years ago Log in to Reply
    13. Sarah Austin

      Not this year but starting in 2024 I will have to change from Humalog to lispro

      2 years ago Log in to Reply
      1. Mick Martin

        @Sarah Austin. Humalog IS one of the brands sold as Lispro, ma’am. There are, of course, other brands. I also use Insulin Lispro, but that’s Apidra brand (Insulin glulisine).

        Insulin lispro is a fast-acting insulin that starts to work about 15 minutes after injection, peaks in about 1 hour, and keeps working for 2 to 4 hours.

        Admelog, HumaLOG and Lyumjev are other types of insulin lispro. It’s a manufactured form of human insulin where the amino acids lysine and proline have been switched at the end of the B chain of the insulin molecule.

        2 years ago Log in to Reply
    14. Lindsey Whitnell

      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.

      1
      2 years ago Log in to Reply
    15. Jen Farley

      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.

      4
      2 years ago Log in to Reply
      1. Mick Martin

        @Jen Farley. Some MIGHT consider it a rant, ma’am, but being from the ‘other side of the pond’ I’ve ‘lost’ internet friends due to the American Health System when they’ve been in a position where they can’t afford insulin at all.

        1
        2 years ago Log in to Reply
    16. Katherine Kettig

      I quickly contacted my provider and requested an exception and did received one. It has happened 2 times to me. They wanted me to change to a less expensive medication.

      2 years ago Log in to Reply
    17. Annie Wall

      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.

      1
      2 years ago Log in to Reply
    18. TEH

      I didn’t have to change but I couldn’t get a new one from Caremark because it wasn’t on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!

      1
      2 years ago Log in to Reply
    19. lis be

      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan)
      I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!

      1
      2 years ago Log in to Reply
      1. Mick Martin

        @lis be. Wise words for my American cousins, ma’am.

        2 years ago Log in to Reply
    20. T1diabetic

      For 2024 I have to change insurance as my old plan won’t cover Novolog.
      I have to use Novolog with my Tandem pump, so I changed insurance plans.

      2 years ago Log in to Reply
    21. Mick Martin

      I selected “Other” as the response “N/A” appears to be for those that do not have a personal T1D connection.

      I AM Type 1, but I live in the UK (United Kingdom of Great Britain and Northern Ireland) where my medications are all paid for by our NHS (National Health Service), which is funded via taxation of all working people that earn more than a given amount.

      2 years ago Log in to Reply
    22. KarenM6

      This year, I was not allowed to start a new med (Afrezza) because it was not on the formulary.
      I lose words when coming up on something like this and can only roll my eyes and shake my head.

      2 years ago Log in to Reply
      1. Bekki Weston

        In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.

        1
        2 years ago Log in to Reply
    23. qachemist

      With Medicare’s change to the cost of insulin, my Part D plan dropped Novolog. $35 “limit” only works if insurers have your medication on their formulary.

      1
      2 years ago Log in to Reply
      1. Kristi Warmecke

        correct, if it’s not on the formulary, expect to pay almost full price.

        2 years ago Log in to Reply
    24. Bruce Johnson

      Yes, several times. Antibiotics umeds changed.

      2 years ago Log in to Reply
    25. Bret Itskowitch

      Yes, I used to take lantus as my basal isulin. My health insurance would not cover it and my endocrinologist changed me to basaglar.

      2 years ago Log in to Reply
    26. Melinda Lipe

      Medicare doesn’t want me to take Plavix daily, so they spoke with my cardiologist to change it to every other day.

      2 years ago Log in to Reply
    27. KIMBERELY SMITH

      Yes

      2 years ago Log in to Reply
    28. Megan S

      Was forced to change one early this year and already have a notice that I will be forced to change another after Jan 1st

      2 years ago Log in to Reply
    29. Joindy23

      Literally every year when I used to be covered by employer-sponsored health insurance, the plan’s PHARMACY BENEFITS MANAGER (NOT the health insurer) would stop covering at least one of my needed prescriptions-either for one of the two types of insulin I use, or my CGM. That’s because the PBMs make a fortune in rebates for limiting patient choices. The PBMs business model should be disallowed.

      2 years ago Log in to Reply
    30. tmeagher

      Had to change from Humalog to the generic version due to insurance requirement.

      2 years ago Log in to Reply
    31. Anita Stokar

      Even though my insurance quit covering one of my medications, my doctor would have switched me anyway as she said there are some potential side effects to the medication I was previously taking.

      2 years ago Log in to Reply

    In the past year, have you been required to change medications because of your health insurance? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]