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    • 3 hours, 39 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 3 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 3 hours, 42 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 3 hours, 43 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 3 hours, 51 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 5 hours, 43 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 5 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 5 hours, 46 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 9 hours, 47 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 11 hours, 49 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 31 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 12 hours, 34 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 12 hours, 58 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 12 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 12 hours, 59 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 13 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 13 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 13 hours, 4 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 13 hours, 5 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 7 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 13 hours, 8 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 13 hours, 20 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 13 hours, 49 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?

    Home > LC Polls > In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
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    Have you ever volunteered with a diabetes-related organization?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. dave hedeen

      Sleep interrupted 7, yet asleep within 5 minutes ea time.

      1
      4 years ago Log in to Reply
    2. Sharon Lillibridge

      I..eat..a.snack.right.before..sleep..so..that..,my..BG..stays..between..200-300…until..I..wake..up..and..take..one..unit≥.of..NOVOLOG

      4 years ago Log in to Reply
    3. Kathy Hanavan

      The disrupted sleep is one of the most challenging things with CIQ, particularly the unnecessary ones like compression lows or signal loss, much as i try to avoid them. The other unnecessary one in the middle of the night is the one that wants us to check a blood sugar because we were high 2 hrs ago, even if it is normal now – so annoying! As a senior whose sleep is getting more disrupted by age related sleep changes, more difficulty falling back asleep and needing to empty my bladder, I would love to avoid the unnecessary alarms.

      3
      4 years ago Log in to Reply
    4. Jane Cerullo

      Things are leveling out now. Just changed to MDI from Omnipod and had to play with basal. So all good last two nights.

      4 years ago Log in to Reply
    5. Sherolyn Newell

      One, it was a good week.

      4 years ago Log in to Reply
    6. Marvin Shotkin

      I hate it when my CGM wakes me because my BG is dropping, but it’s so much better than years ago when my wife had to inject glucagon, call 911, and I’d wake up with EMTS poking me.

      4
      4 years ago Log in to Reply
    7. P-O Heidling

      Almost never happens anymore. After the switch to low-carb (LCHF) 11 years ago, all those disruptions went away. I maybe have an incident of too low blood glucose level once every second year.
      Before the diet switch; maybe once every, or second, week.

      1
      4 years ago Log in to Reply
    8. Andrew Stewart

      My Dexcom G6 as it nears the end of it’s 10 day session it starts to become erratic and report LOW for 5 to 10 minutes then be back to normal again or it looses signal multiple times. This behavior is not agreeable with a good nights sleep.

      5
      4 years ago Log in to Reply
      1. Jim Cobbe

        That happens with my G6 too, I agree very irritating.

        1
        4 years ago Log in to Reply
    9. GLORIA MILLER

      My CGM does not alarm since I don’t need that feature but I do check my glucose at least once during the night. I check it any time I wake up just to be sure and I never sleep the entire night.

      1
      4 years ago Log in to Reply
    10. Mick Martin

      Although I selected 6 nights the alerts were for both highs and lows, plus requesting me to calibrate the sensor against my pump AND to change my sensor.

      4 years ago Log in to Reply
    11. Ernie Richmann

      Sometimes I am just aware and then check. Maybe an a low alarm at 78 which I ignore because it almost always just goes up. I have a tandem pump with IQ technology. I almost always wale up at about 112.

      4 years ago Log in to Reply
    12. Elizabeth Lessard

      My own fault for overeating with gastroparesis.

      4 years ago Log in to Reply
    13. Becky Hertz

      I took a guess. I don’t usually make a conscious section to “county”. More than usual this post week so I put 4.

      4 years ago Log in to Reply
    14. Nicholas Argento

      Answered 1 a week- Far less on Control IQ than in past years!

      1
      4 years ago Log in to Reply
    15. Hanneke vanProosdij

      so much better since Control IQ!

      4 years ago Log in to Reply
    16. Janis Senungetuk

      Twice this week, starting with a high alarm at 3 AM when I pulled the infusion set out with a twisted blanket. Two nights later C-IQ awoke me with a warning that I would be low in 15 minutes…didn’t happen. Since I started using the C-IQ app in my Tandem pump I’ve rarely experienced lows at night. Recently, there have been more issues with wild numbers from the G6 that trigger false alarms.

      4 years ago Log in to Reply
    17. LizB

      I often wake up on my own at least twice during the night. If I’m awake enough I will look at my pump. I’ve been experiencing highs overnight for the last week and don’t know why. So pretty much every night for the last week I have given myself corrections overnight but my sensor hadn’t gone high enough to trigger an alarm. My high is set for 160. Even though the pump didn’t wake me, it would have soon enough when my BG hit 160.

      4 years ago Log in to Reply
    18. n6jax@scinternet.net

      I always snack before sleep and may have a high in 1 or 2 hours, then most often have a low alarm around 6 AM but I wake that tine to pee any way. I set my CGM alarms at 70 and 180.. I do not use a pump.

      4 years ago Log in to Reply
    19. Wanacure

      Now I know what a “compression low” is. If I lay on my sensor/transmitter, it alerts to false low BG. I checked with my One Touch this morning after receiving a Dexcom alert, then rolled to my other side. Sure enough, the Dexcom quickly returned to normal range. The main thing disrupting my sleep is getting up to urinate at last once a night. I no longer need to eat a bedtime snack.

      4 years ago Log in to Reply
    20. Dylan Sutton

      Compression lows are the bane of CGM.

      4 years ago Log in to Reply

    In the past week, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low? Cancel reply

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