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    • 8 hours, 10 minutes ago
      Cecilia Yamamoto likes your comment at
      At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
      Why aren't there more studies on heart disease risk with only T1Ds? I have read peer reviewed medical articles that confirm that T1Ds were not studied exclusively in statin research. We were advised to be treated with statins even if our cholesterol was excellent and there were no other risk factors. I suffered from elevated A1c, weight gain, insulin resistance, extremely low cholesterol which led to vitamin D deficiency which caused respiratory problems and inability to exercise or enjoy leisure activities due to breathlessness and muscle pain. Doctors believed that any symptoms reported by patients were due to the "Nocebo effect" despite my improvement when I didn't take statins for six months when I forgot to refill my prescription! I suffered these side effects from 2002-2016 when I finally found a doctor who took me seriously. We need to be treated as individuals with T1D, not treated based on studies on the majority of T2 studies.
    • 9 hours, 17 minutes ago
      Lenora Ventura likes your comment at
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes, my dad had T1. My diagnosi made him and my mom so sad. I tried hard to make it no big deal so they wouldn’t worry.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 9 hours, 18 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
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    If you have T1D, have you also been diagnosed with Dupuytren’s contracture? (Dupuytren’s contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.)

    Home > LC Polls > If you have T1D, have you also been diagnosed with Dupuytren's contracture? (Dupuytren's contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.)
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    19 Comments

    1. ConnieT1D62

      I have neuropathy in my hands and fingers, including contracture and stiffening of the finger joints and muscle wasting at the base of my thumbs. I was once told it was carpal tunnel syndrome, but not Dupuytren’s since most of my fingers could still touch when I placed my palms together in prayer position. Now the joints in my first and middle fingers are bent and don’t quite straighten out.

      Several years ago I was also told i needed surgery to correct it all with no guarantees. I refused and went to see an occupational therapist instead and learned very effective hand flexibility and strengthening exercises that I still do today. My hands are still affected by neuropathic numbness, tingling, and stiff fingers but I have adapted and have learned to live with it.

      3
      1 year ago Log in to Reply
      1. lis be

        almost the same story for me, myofascial massage therapy and stretches have helped quite a bit over time.

        1
        1 year ago Log in to Reply
    2. Jane Cerullo

      Duputrens name of my existence. My mother had very mild case. I have had three surgeries. Not a bad surgery but when my little finger was bending again I opted for Xiaflex injection. Worked like a charm. Only problem was bleeding because not one told me to stop baby aspirin. It has been a year and finger still straight. Wish i did injection first time. I do wear my splint at night. Not sure if help but makes me feel proactive. I have never gone this long without finger starting to bend again.

      1 year ago Log in to Reply
    3. Louise Robinson

      I had surgery for Duputryn’s contracture on my left hand six years ago and should have it done on my right hand as it has become more pronounced. A brother and husband, who do NOT have diabetes, also have Duputryn’s. I’m reluctant to have the right hand done because I never fully recovered the feeling in my left hand post-surgery. I am right-handed and an avid quilter. As long as I can continue to function without any pain in the right hand, I most likely will defer any surgery…although the right hand deformity does have “witchy” aspects.

      1
      1 year ago Log in to Reply
    4. Nancy Burgess

      I’ve struggled with Dupuytren’s contracture for many years having had surgery 5 times for the condition. I have a growth now on my little & ring fingers of my left hand. Previously it’s always been on my right hand.

      1 year ago Log in to Reply
    5. Tod Herman

      I answered no, but my primary care doctor once diagnosed me with having this. But when I went to a specialist it turned out to be something else called trigger finger. Turns out I have since had that in both hands and three different fingers.

      1 year ago Log in to Reply
      1. Vivian Moon

        Trigger finger is Dupuytrens

        1
        1 year ago Log in to Reply
      2. AnitaS

        I have read where Dupuytren’s contracture is not the same thing as trigger finger. In fact they are considered very different medical conditions. I have had surgery for trigger finger myself.

        1 year ago Log in to Reply
    6. Tina Roberts

      Yes and it’s worse in the right hand.

      1 year ago Log in to Reply
    7. Bob Durstenfeld

      I had them in the past and they receded with improved control with a pump and cgm.

      1
      1 year ago Log in to Reply
    8. Joan Fray

      Yes, in several fingers. Had to have surgery on left hand b/c i couldn’t be thpe. Worked for a few years then came back. Now in foue fingers but I can still workdo anything worth doing……

      1 year ago Log in to Reply
    9. Teri Morris

      I hit my thumb on something in the past, maybe injured/dislocated it, as the last knuckle in my thumb was bent about 90 degrees for around two years. It did look quite unusual, and I was unable to straighten it. I just noticed, when reading your question, that it is pretty much back to normal.

      1 year ago Log in to Reply
    10. Jillmarie61

      Dupuytren’s Contracture (aka Palmer’s Fibromatosis) is NOT the thickening of the skin of the palm. It’s inflammation of the tendons that causes scar tissue on the sheaths covering the tendon as it rubs under the bands in the palm. While it is considered an inheritable disease common in Eastern or Northern Europeans, it also is common diabetics.

      1
      1 year ago Log in to Reply
      1. Jillmarie61

        BTW, I have it in both hands and had numerous surgeries over the years to remove the scar tissue.

        1 year ago Log in to Reply
      2. Modee

        I think you may be mistaken.

        1 year ago Log in to Reply
      3. Stang777

        According to the Mayo Clinic (for those who want to know for sure what it is)…

        Dupuytren’s contracture typically progresses slowly, over years. The condition usually begins as a thickening of the skin on the palm of your hand. As it progresses, the skin on your palm might appear puckered or dimpled. A firm lump of tissue can form on your palm. This lump might be sensitive to the touch but usually isn’t painful.

        In later stages of Dupuytren’s contracture, cords of tissue form under the skin on your palm and can extend up to your fingers. As these cords tighten, your fingers might be pulled toward your palm, sometimes severely.

        The two fingers farthest from the thumb are most commonly affected, though the middle finger also can be involved. Only rarely are the thumb and index finger affected. Dupuytren’s contracture can occur in both hands, though one hand is usually affected more severely.

        That and more info is from…
        https://www.mayoclinic.org/diseases-conditions/dupuytrens-contracture/symptoms-causes/syc-20371943

        1 year ago Log in to Reply
    11. KarenM6

      I’ve had trigger finger but not Dupuytren’s contracture.

      1 year ago Log in to Reply
    12. Modee

      I have had trigger finger in 7 different fingers. I have dupuytren’s in right ring finger which is not one of the 7 that triggered. These two conditions are completely different and don’t feel anything alike.

      1 year ago Log in to Reply
    13. Cheryl Seibert

      Yes, on both hands. It is stable and not interfering with daily tasks. Interestingly, my son, age 39, is NOT diabetic and is developing the condition as well, but he does have gout. We have no family history of the condition though.

      1 year ago Log in to Reply

    If you have T1D, have you also been diagnosed with Dupuytren's contracture? (Dupuytren's contracture is an abnormal thickening of the skin in the palm of your hand at the base of your fingers.) Cancel reply

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