In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
Home > LC Polls > In the past 7 days, how many nights was your sleep disrupted by device alerts, checking blood glucose levels, or treating a high or low?
Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
I put 4 but it’s typically less than that. I’ve had a slew of bad dexcoms, I’ve gotten 4 replacements in 3 days. Constant low alarms that were false kept me up all night and interrupted meetings all day.
Sorry to hear that! I have five replacements on the way, I made a little excel spreadsheet to keep track of them all! I made sure to use different lot numbers after the 3rd sucked but I’m now just chalking it up to bad luck & grateful for my current working one!
My sugars went nuts too afyer tge Covid vaccine…took at least a full week to normalize….but I agree, haven’t gotten it yet and don’t plan on it! Hang in there, you’re not alone
I’d rather get interrupted sleep than the alternative. I do, however, find that the Dexcom sensors do not last 10 days as claimed. The sensors seem to start having issues 3 to 5 days prior to the sensor’s expiration day. That does get annoying.
Dexcom was the game changer for me. I’ll never forget waking up in the middle of the night with several men standing around my bed, including my husband (who I called Dad!). My blood glucose was so low my husband couldn’t get it to rise as he usually could, so he had to call the ambulance. Those days are long gone with Dexcom.
Pain in my hips wakes me before the alarms. Some strange combination of scoliosis and LADA, my numbers wander out of range, too far up or down, and I am in pain. Crick, crack, click, clack.
I Totally understand as my hands have all of a sudden been Severely in pain which causes me to wake up, plus my drops around 330am…ughhh…hope you feel better!
My last HbA1c was 5.6. I do wish the disposable pens had 1/2 unit capabilities. It seems that less of them have this possibility compared to 15 years ago. OR maybe it is just the insulins that I use that do not have this capability. It would make blood sugar management easier and safer!
You could try the InPen. While I was on a pump vacation, I used the InPen for two years with Dexcom. It does shoot 1/2 units and has really good software reports. You have the one pen for a year at a time and you buy insulin cartridges for it.
Over the weekend had very high numbers close to midnight that continued into early morning even after replacing my infusion set and injecting a correction dose. Must have been my choice of a new recipe for dinner.
I said 7 but that’s not entirely fair, since aging has caused me to get up one or more times during my sleep period to use the bathroom. The good news is that this allows me to use my CGM to check sugar levels in the night and correct as needed even before any alarms go off. On the other hand, my CGM does often disturb me even above and beyond this source of waking. Fortunately, I always drop back to sleep very rapidly. I’ve taken to putting my CGM receiver in a glove to muffle it a bit to avoid disturbing my wife’s sleep, since she has much more difficulty going back to sleep.
having sudden high spikes at night and it wakes me up several times a night, but not regularly enough to change my basal. Can’t figure out why. I have my alerts set at 70 for low and 160 for high. I cant wait until my insurance will cover a tandem IQ
The Tandem t:slim X2 has been a real life changer for me. I love it. I changed because of the cost of omnipod through Medicare and really didn’t want to. But now I realize how beneficial it is along with the Dexcom. And I won’t have the cost of paying for the pods anymore
I reject being that obsessive/compulsive about testing period. That amount of anxiety is severely problematic and IMHO is diagnosable regardless of our good intent.
My DAD woke me from a deep sleep once, and then 2 other times. When she woke me from the deep sleep, I thought she needed to go outside. She let me put her leash on but wouldn’t go out only to the fridge . So I got a piece of cheese thinking she wanted a treat, still wouldn’t go out, she jumped and got a juice from counter and stood by me until I took and drank it. She got lots of praise and the cheese. lol. My G6 never alerted until I was back in bed, and it kept alarming.
I said 3, but I really don’t know cause I don’t keep track. My sleep has been more disturbed by insomnia this past week. Not sure what that’s all about.
I don’t use a CGM so I said 0. My Endo helped me adjust my basal rate so I don’t go low while sleeping like I did. Usually I will wake up hot when I am low or have very strange dreams when high, so I guess I have a built in CGM.
I get warnings every time I do a set change. (Two in seven days) As I have sated many times before, when I change a set, I always have to make changes to my Basels. As you all know, site absorption problems. I’m starting into my 55th T1D year. Still much to active to use my thighs or rear. You may be able to put a sensor under your arms, but not a “Q” set.
It becomes difficult to honestly answer such questions since I work 12+ hour night shift so I’m awake literally all night long most nights anyway and even on my nights off work I do most of my sleeping during the daylight hours.
I wake up at least twice per night because I need the bathroom or because of alarms. If I go to the bathroom, I also check, and correct if necessary, my blood glucose; if an alarm wakes me up, I also go to the bathroom. In no case this is disturbing: I fall asleep again as soon as I return to bed.
It was at least 3 nights mostly due to dexcom issues. The dexcom is great WHEN it works right, I’ve had a few lately that tell me I have a crashing low when it absolutely is not and it has nothing to do with “ compression lows”.
I am awakened by the alarm stating a lost CGM connection. I Have rolled onto my Tandem pump so that it is not receiving a signal. I rarely am awakened by low alerts. If I am, then it is usually accurate. It does seem that the Dexcom G6 does sometimes in the first 24 hours or so of a new installation the G6 will give false low alerts.
Generally 3-4 nights a week I get woke up, my alarms are set for 70-125 which is pretty tight. I’m a super light sleeper (can hear my cat go out the doggy door) and can return to sleep as easily. Plan to tighten them up again after next doc’s visit.
A few months ago, alarms at night were seldom. Now, my schedule and eating patterns have been chaotic, so I’m going low just as I go to bed…. having to remember to monitor my BG closer 30 mins prior to bedtime. I answered 5 times out of 7
Like karolinamalecki7@gmail.com, it seems like the recent formulation of Dexcom sensor filaments is way more susceptible to the compression-low phenom, and man if you’re a side-sleeper is it a PITA. Upper arms just aren’t an option for me any more unless I want to wake up multiple times in the night with breaking-glass Urgent LOW!!! alarms when my actual BG is like 90. Even belly locations, same thing, unless I place them way in next to my navel but even that’s not totally preventative. And it uses real estate I need for my infusion sets.
This is definitely a new thing, within the last 6-9 months. For years I heard the expression “compression low” and only thought was “Gee, sure glad I don’t have that problem.” Oh, it’s a problem now.
It’s difficult to remember, since I’m sleeping. I seem to remember about 3 this week. Maybe more, maybe less.
My fault as I changed my Omnipod 5 and forgot to put it in Auto mode. Ugh
I put 4 but it’s typically less than that. I’ve had a slew of bad dexcoms, I’ve gotten 4 replacements in 3 days. Constant low alarms that were false kept me up all night and interrupted meetings all day.
Me too. I’ve had the last three or four Dexcom G6 sensors go “—“. I just called for a replacement yesterday. Must be a bad batch, maybe?
Sorry to hear that! I have five replacements on the way, I made a little excel spreadsheet to keep track of them all! I made sure to use different lot numbers after the 3rd sucked but I’m now just chalking it up to bad luck & grateful for my current working one!
Do you know what the lot number was so we can check to see if we have it too? Thanks
I don’t have the lot numbers for all of mine that went – – – , but the most recent one was lot number: 5311136, expiration date 10/31/23
Lot #7310059 & #7310865
Hey. Better an interruption than not. Fix a low or a high. My disturbances are almost always due to user (me) error.
Every single night! I’m still trying to get back to normal after my 6th Covid shot. Although I’d rather get my sleep, I’m determined not to get Covid.
My sugars went nuts too afyer tge Covid vaccine…took at least a full week to normalize….but I agree, haven’t gotten it yet and don’t plan on it! Hang in there, you’re not alone
Not sure disturbed is the right word- I am glad to get the alert.
I’d rather get interrupted sleep than the alternative. I do, however, find that the Dexcom sensors do not last 10 days as claimed. The sensors seem to start having issues 3 to 5 days prior to the sensor’s expiration day. That does get annoying.
Dexcom was the game changer for me. I’ll never forget waking up in the middle of the night with several men standing around my bed, including my husband (who I called Dad!). My blood glucose was so low my husband couldn’t get it to rise as he usually could, so he had to call the ambulance. Those days are long gone with Dexcom.
Pain in my hips wakes me before the alarms. Some strange combination of scoliosis and LADA, my numbers wander out of range, too far up or down, and I am in pain. Crick, crack, click, clack.
I Totally understand as my hands have all of a sudden been Severely in pain which causes me to wake up, plus my drops around 330am…ughhh…hope you feel better!
I put 0, but last week it would have been 5 or 6. I go through periods of BG going up around midnight. Last week was one of those.
My last HbA1c was 5.6. I do wish the disposable pens had 1/2 unit capabilities. It seems that less of them have this possibility compared to 15 years ago. OR maybe it is just the insulins that I use that do not have this capability. It would make blood sugar management easier and safer!
You could try the InPen. While I was on a pump vacation, I used the InPen for two years with Dexcom. It does shoot 1/2 units and has really good software reports. You have the one pen for a year at a time and you buy insulin cartridges for it.
Zero for those reasons. Every night because my body gets so “ twitchy”. Don’t know what to do about it. It’s Not caffeine.
About 4, I think I developed arthritis so tgat may account for it as well…seeing rheumatologist on Thursday
It just happened I had a low alert once this past week. I can go many weeks, sometimes months, without a nighttime alarm.
My upper and lower settings for my 770G pump are 175 and 90 respectively. I’m awakened nightly at about 3:00 am average. Very frustrating.
Over the weekend had very high numbers close to midnight that continued into early morning even after replacing my infusion set and injecting a correction dose. Must have been my choice of a new recipe for dinner.
I said 7 but that’s not entirely fair, since aging has caused me to get up one or more times during my sleep period to use the bathroom. The good news is that this allows me to use my CGM to check sugar levels in the night and correct as needed even before any alarms go off. On the other hand, my CGM does often disturb me even above and beyond this source of waking. Fortunately, I always drop back to sleep very rapidly. I’ve taken to putting my CGM receiver in a glove to muffle it a bit to avoid disturbing my wife’s sleep, since she has much more difficulty going back to sleep.
having sudden high spikes at night and it wakes me up several times a night, but not regularly enough to change my basal. Can’t figure out why. I have my alerts set at 70 for low and 160 for high. I cant wait until my insurance will cover a tandem IQ
The Tandem t:slim X2 has been a real life changer for me. I love it. I changed because of the cost of omnipod through Medicare and really didn’t want to. But now I realize how beneficial it is along with the Dexcom. And I won’t have the cost of paying for the pods anymore
I reject being that obsessive/compulsive about testing period. That amount of anxiety is severely problematic and IMHO is diagnosable regardless of our good intent.
Night time is for sleeping not testing!
My DAD woke me from a deep sleep once, and then 2 other times. When she woke me from the deep sleep, I thought she needed to go outside. She let me put her leash on but wouldn’t go out only to the fridge . So I got a piece of cheese thinking she wanted a treat, still wouldn’t go out, she jumped and got a juice from counter and stood by me until I took and drank it. She got lots of praise and the cheese. lol. My G6 never alerted until I was back in bed, and it kept alarming.
I assume you mean your DOG but that is awesome. Is your dog especially trained to do that?
@Patrica Dalrymple I mean DAD (Diabetic Alert Dog or service dog) Yes she is specially trained.
I said 3, but I really don’t know cause I don’t keep track. My sleep has been more disturbed by insomnia this past week. Not sure what that’s all about.
My pet peeve is when the alarm wakes me up to tell me that I had a high reading two hours ago!
I don’t use a CGM so I said 0. My Endo helped me adjust my basal rate so I don’t go low while sleeping like I did. Usually I will wake up hot when I am low or have very strange dreams when high, so I guess I have a built in CGM.
I get warnings every time I do a set change. (Two in seven days) As I have sated many times before, when I change a set, I always have to make changes to my Basels. As you all know, site absorption problems. I’m starting into my 55th T1D year. Still much to active to use my thighs or rear. You may be able to put a sensor under your arms, but not a “Q” set.
It becomes difficult to honestly answer such questions since I work 12+ hour night shift so I’m awake literally all night long most nights anyway and even on my nights off work I do most of my sleeping during the daylight hours.
I wake up at least twice per night because I need the bathroom or because of alarms. If I go to the bathroom, I also check, and correct if necessary, my blood glucose; if an alarm wakes me up, I also go to the bathroom. In no case this is disturbing: I fall asleep again as soon as I return to bed.
It was at least 3 nights mostly due to dexcom issues. The dexcom is great WHEN it works right, I’ve had a few lately that tell me I have a crashing low when it absolutely is not and it has nothing to do with “ compression lows”.
I am awakened by the alarm stating a lost CGM connection. I Have rolled onto my Tandem pump so that it is not receiving a signal. I rarely am awakened by low alerts. If I am, then it is usually accurate. It does seem that the Dexcom G6 does sometimes in the first 24 hours or so of a new installation the G6 will give false low alerts.
Generally 3-4 nights a week I get woke up, my alarms are set for 70-125 which is pretty tight. I’m a super light sleeper (can hear my cat go out the doggy door) and can return to sleep as easily. Plan to tighten them up again after next doc’s visit.
A few months ago, alarms at night were seldom. Now, my schedule and eating patterns have been chaotic, so I’m going low just as I go to bed…. having to remember to monitor my BG closer 30 mins prior to bedtime. I answered 5 times out of 7
COMPRESSION LOWS!!! AGGGH!
Like karolinamalecki7@gmail.com, it seems like the recent formulation of Dexcom sensor filaments is way more susceptible to the compression-low phenom, and man if you’re a side-sleeper is it a PITA. Upper arms just aren’t an option for me any more unless I want to wake up multiple times in the night with breaking-glass Urgent LOW!!! alarms when my actual BG is like 90. Even belly locations, same thing, unless I place them way in next to my navel but even that’s not totally preventative. And it uses real estate I need for my infusion sets.
This is definitely a new thing, within the last 6-9 months. For years I heard the expression “compression low” and only thought was “Gee, sure glad I don’t have that problem.” Oh, it’s a problem now.