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    • 1 hour, 31 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Its a Tandem. The main issue I have with the phone is the inability to do an extended bolus.
    • 1 hour, 31 minutes ago
      Phyllis Biederman likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I selected “other” because my preference (smart watch, mobile phone, or pump screen) depends on circumstances. Watch for a quick and discrete view; pump if I’m preparing for a profile or activity adjustment or bolus, mobile phone if just a food bolus.
    • 2 hours ago
      Amy Schneider likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 10 hours, 22 minutes ago
      Daniel Bestvater likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 19 hours, 55 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 19 hours, 56 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 19 hours, 56 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 19 hours, 56 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 1 day, 6 hours ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 1 day, 10 hours ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 1 day, 10 hours ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 2 days, 8 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
    • 2 days, 9 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      One nice thing about a watch for readings is that, while it is normally redundant, you can be separated from your phone. For example, when you are in water.
    • 2 days, 9 hours ago
      Marty likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I use both as you can’t do everything you want in one or the other
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    In the past 5 years, have you participated in a T1D research study that tested out a potential new device, drug, process, or other intervention?

    Home > LC Polls > In the past 5 years, have you participated in a T1D research study that tested out a potential new device, drug, process, or other intervention?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    38 Comments

    1. sweet charlie

      T1D for 69 years… but rejected because 90 years OLD !!

      11
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Ahh Sweet Charlie, good for you. I’m sure you have been through a lot but congratulations for hanging in there and everything that takes!!

        2
        4 years ago Log in to Reply
      2. Lorri McLuckie

        You’re amazing!

        2
        4 years ago Log in to Reply
      3. Meerkat

        Keep up the good work! You are awesome!

        2
        4 years ago Log in to Reply
      4. Mick Martin

        Well done on reaching such a good age whilst having T1D, sweet charlie.

        I would add, however, that it’s not just people of advanced years that get turned down/rejected. I very well recall asking my consultant about a pancreas transplant and was turned down as being “too old” at the age of 23. lol. Apparently, Israel had had success with pancreas transplants in the early 1980s, and it ‘sparked’ something in me to want to ‘give it a go’. (I was selected for Islet Cell Transplantation, too, but on attending the hospital that it was being performed at was ‘deselected’ as I’d already developed diabetes-related complications and, as it was still an experimental procedure, they needed to show how effective it could prove to be.)

        4 years ago Log in to Reply
      5. Sherrie Johnson

        Sweet Charlie we are seeing technology catch up. I am Type 1 diabetic for 62 years age 75. Keep going strong 👍

        1
        4 years ago Log in to Reply
    2. Molly Jones

      Not in the last five years.
      I keep my eyes on clinical trials and hope to participate in a phase 2 next year for a new drug that sounds very hopeful.

      1
      4 years ago Log in to Reply
    3. Maggie Morgan

      Participated in a study recently that was trying out different adhesives for the Dexcom G7. Was very fun and interesting to be a part of it! I am very excited for the new and improved version of the device.

      4
      4 years ago Log in to Reply
      1. Jana Wardian

        I was in that study as well! Great problem to solve. Adhesives have to be sticky enough without triggering an allergic reaction.

        1
        4 years ago Log in to Reply
    4. Brian Vodehnal

      I tried to do an Islet injection trial but my blood is O+…they only wanted type A and B…didn’t explain why only those blood types qualify.

      1
      4 years ago Log in to Reply
    5. Tom Caesar

      I thought about a Alzheimer’s drug study but decided against participating. Figured I tortured my body enough over these past 50 years as a type 1!

      4 years ago Log in to Reply
    6. GLORIA MILLER

      I am in the Joslin Diabetes 50 Year Medalist Study and have been since the early 2000s. They have learned a lot why some of us are able to survive so long with or without complications. We have a few who have passed 75 years with diabetes. I go to Boston periodically for them to take blood and all for their research. Once I die they will take parts for more research before returning the body for cremation or burial.

      6
      4 years ago Log in to Reply
      1. Janis Senungetuk

        I’m also a participant in the Medalist study and have consented to postmortem donation. Forty years ago when I first attempted to donate my body for medical study/education at the local level, University of Wisconsin School of Medicine and Pubic Health, there was no interest. Joslin appears to be the only one with a T1 longevity study.

        1
        4 years ago Log in to Reply
    7. Andrew Aronoff

      I’ve been diabetic for over 50 years and I’ve never been involved in a research study. One reason may be that I’m an American living in France, but that doesn’t explain much, since studies occur in France, too. I wish I could have contributed and remain available if I’m compatible with a study’s criteria.

      4 years ago Log in to Reply
    8. Lawrence S.

      I attempted to sign up for a few. But, once I turned 65 years old, it seems that I am excluded from many studies.

      2
      4 years ago Log in to Reply
    9. Mark Schweim

      I have applied for many trials but have never been accepted into one.

      1
      4 years ago Log in to Reply
    10. Carol Meares

      Sweet Charlie, perhaps they could do a study on how a T1D 90 year old can inspire T1D’s of all ages to do our best and live well. You are the carrot;)

      4
      4 years ago Log in to Reply
    11. betsy valian

      I think @ 68 I hit the ceiling for age in studies, they all seem to be for younger T1D’s? 🙂

      5
      4 years ago Log in to Reply
      1. kristina blake

        I agree. AS a 68 year old woman myself, I get screened out of most of the surveys as well.

        2
        4 years ago Log in to Reply
    12. Mick Martin

      That really depends on what YOU mean by “T1D research study”!

      I was the first person in the area that I live to ‘Trial’ the Medtronic/MiniMed 640G insulin pump, and dependent on how well it appeared to work, it determined whether more people would be allowed to use it.

      4 years ago Log in to Reply
    13. Judith Marged

      I have completed several clinical trials for T1D meds, but they were all more than 5-years ago.

      4 years ago Log in to Reply
    14. Steve Rumble

      I am currently participating in a study of an app that tracks carbs and insulin (I must enter that data) and makes recommendations based on a plan I have completed regarding amount of bolus to take at meals or when BS is too high. DreaMed Diary is the name I believe.

      4 years ago Log in to Reply
    15. Sherrie Johnson

      I am a Joslin 50yr medalist I go every three years for the study. I’ve added a new test every year I’m not sure how all this information is processed and if it does lead to new medications or treatments

      1
      4 years ago Log in to Reply
      1. Janis Senungetuk

        Me too.

        4 years ago Log in to Reply
    16. Natalie Daley

      I’m 75 and have been diabetic for 35 years — 30 on insulin after my endocrinologist realized this wasn’t Type 2. I’m two old apparently for any studies, but aren’t they curious how I got to be too old? My T1D brother, my role model, died at 67, and he was 4.5 years older than I am.

      1
      4 years ago Log in to Reply
    17. rick phillips

      I usually get to test new meters.

      4 years ago Log in to Reply
    18. George Lovelace

      T1 58 yrs, Pumping 24 Yrs. Been on Dexcom since 2009, now on G6 with Tandem CIQ and getting Best Numbers since 1963

      4 years ago Log in to Reply
    19. Anneyun

      Sweet Charlie you are inspiration to us all! Good to know long life can be had by TD1s.

      4 years ago Log in to Reply
    20. AnitaS

      I look for studies to participate in but I haven’t matched any yet, at least in the studies that are in my location. For instance, I get matched based on age , gender and such but I don’t have the medical problems that the study is intended for. Example: macular degeneration or kidney problems.

      4 years ago Log in to Reply
    21. Sondra Mangan

      I have attempted but turn 73 this week and am usually outside the range of ages for the trial.

      4 years ago Log in to Reply
    22. Tina Roberts

      I’ve tried, but for some reason I never qualified.

      4 years ago Log in to Reply
    23. Carrolyn Barloco

      I signed up for the Dexcom adhesive study but have not received any follow up.

      4 years ago Log in to Reply
    24. Phyllis Lewis

      I would be willing but they all seem to think I’m too old

      4 years ago Log in to Reply
    25. Christina Trudo

      I seem to have aged out of the upper limits for many studies. (Often that’s 64 or 65.)

      4 years ago Log in to Reply
    26. Jneticdiabetic

      Not in the past 5 years, but I previously participated in an early closed loop study and have participated in multiple blood draw studies.

      4 years ago Log in to Reply
    27. M C

      Had a bad experience at one time when I had volunteered to provide myself as a subject in a research study, and found myself being treated poorly (like, I, by being there at their request, was a burden on the staff). They treated the patients poorly, did not communicate, and made the experience miserable. After I removed myself, and explained the experience to the research head, I was asked if they could use my experience as a learning tool for the staff going forward on how to treat the volunteer patients properly and professionally – To which I agreed.) – Since then, I have not raised my hand again to assist in any research projects. Not willing to subject myself to poor treatment again, regardless of promises to the contrary.

      4 years ago Log in to Reply
    28. Wanacure

      When I was a college student, at least a couple of times a year I volunteered for research of all kinds as advertised in the classified section of the student newspaper. Sometimes there were notices on bulletin boards. Sometimes I was renumerated. One of the studies was a national study of people with diabetes complete with a control group; it had significant findings. Now I’m In the ACT study regarding dementia involving the University of Washington in Seattle and Kaiser Permanente. Every year I’m tested for memory, plus some physical measurements such as ability to rise from a sitting position to standing without using my hands. And for a week or two I keep detailed records of how much I exercise, what I eat, social activity, etc. The payoff? No funeral costs since I’m donating my brain for physical effects of dementia (often called Alzheimer’s) and the rest of my body organs to medical science. Note: I have not been diagnosed with dementia…yet. If I’m one of the group that does not develop “Alzheimer’s” that will still hopefully provide valuable info. Another payoff: this yearly check on my lifestyle motivates me to exercise, follow a healthy diet, and try to avoid social isolation.

      4 years ago Log in to Reply
    29. PamK

      I would like to, but I can never find a study in my area. Guess I just live in the wrong place!

      4 years ago Log in to Reply

    In the past 5 years, have you participated in a T1D research study that tested out a potential new device, drug, process, or other intervention? Cancel reply

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