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    • 5 hours, 13 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 5 hours, 13 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 6 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 6 hours, 29 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 6 hours, 30 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 6 hours, 31 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 6 hours, 32 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 6 hours, 32 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 6 hours, 33 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 8 hours, 34 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 12 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 9 hours, 12 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 9 hours, 55 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 18 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 10 hours, 41 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 10 hours, 41 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 42 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 10 hours, 57 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 11 hours, 58 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 11 hours, 58 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 2 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 8 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of blood glucose levels, managing complications of T1D, etc.)?

    Home > LC Polls > In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of blood glucose levels, managing complications of T1D, etc.)?
    Previous

    When you most recently changed insulin pumps, which of these options describes the brand of your previous pump and the brand of your current pump?

    Next

    If you take insulin using multiple daily injections, do you use any visual cues to easily tell the difference between your long-acting and short-acting insulin vials/pens? (For example, wrapping a hair tie or rubber band around one type of insulin, or adding colorful tape)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Jen Farley

      Doctors appointments only, both me and my doctor keep banker hours.

      3 years ago Log in to Reply
    2. Grey Gray

      If I took time off every time I had a low episode I would probably never work. Most of my lows happen at work. Hmmm… maybe I shouldn’t work.

      3
      3 years ago Log in to Reply
    3. Jane Cerullo

      Sometimes go low at work. Am an R N and sometimes get very busy but always keep something with me to bring up lows. Once was working and pump malfunctioned. I forget why. But had my highest BS ever. 319 Had headache and felt awful. Worse than being low

      1
      3 years ago Log in to Reply
      1. Janis Senungetuk

        Jane, I understand the enormous pressure HC staff are under with the increased work demands made by employers. It’s very sad that the Healthcare industry does little or nothing to acknowledge/apply ADA standards.

        1
        3 years ago Log in to Reply
    4. Janice Bohn

      I always make up any time missed at work for appointments or blood work.

      1
      3 years ago Log in to Reply
      1. Sue Martin

        Same here. It’s nice to have that flexibility.

        3 years ago Log in to Reply
    5. Joan Benedetto

      My son missed three hours of school for an Endo appointment (same practice, brand new Endo). We are doing our best to avoid this in the future.

      3 years ago Log in to Reply
    6. Lawrence S.

      I’m retired. I do a lot of yard work, and work around the house. I lose work time almost every day, waiting for my blood glucose to get high enough to resume work. I conservatively figure an hour a week. So that’s about 12 hours. I answered “9-16 hours.”

      3 years ago Log in to Reply
    7. Sherolyn Newell

      Just about 1/2 an hour for a lab appointment and about the same for the doctor. The office is very close by work.

      3 years ago Log in to Reply
    8. Edward Geary

      Currently retired, however, in my last three years of work, medical appointments, dental appointments, nutrition, physical therapy, behavioral therapy and diagnostic testing added up. Fortunately, I had an enlightened employer and was an HR professional so it went smoothly. I did have to advocate on behalf of diabetics who routinely skipped critical health appointments or were forced to use vacation time. FMLA, particularly the intermittent leave provisions for chronic conditions is poorly understood and/or enforced by the Labor Department.

      1
      3 years ago Log in to Reply
    9. Janis Senungetuk

      1 – 4 hrs for Paratransit rides to/from labs and 1 appointment.

      3 years ago Log in to Reply
    10. AnitaS

      Since I worked night shift, I didn’t have to miss work for doctor appointments. During work, I would occasionally have to stop working for a 1/2 hour till my blood sugar rose as I had an extremely physically active job. I am retired now though.

      1
      3 years ago Log in to Reply
    11. mbulzomi@optonline.net

      I selected zero. I’m retired, I just volunteer.

      3 years ago Log in to Reply
    12. Jeanne McMillan-Olson

      I’m retired but do not miss any appointments due to T1d . When I worked at a hospital for 30 years as a Registered Dietitian, I did not miss work due to T1d and had 750 hours of sick leave on my last day of work in 2011. I have had it for 68 years this July.

      3 years ago Log in to Reply
    13. Steven Gill

      Over the past 8-9 years all my doc appts were scheduled a round days off (combined with eye, dental, driver’s licence…) so while took time off not just for diabetic care. All my doc appointments were scheduled early, have gone to work afterwards. Now retired, 3-4 days a week at the HumaneSociety (working 2 days this week), I’m the idiot that never calls off sick (could work alone if needed): sold back 7 days of my 2 week vacation when I retired this year. High blood sugar? low blood sugar? Still have to feed the AttackPit, walk the SaberToothKitten, still have to pay bills even if not 100%. So…. never lost time due to diabetes.

      1
      3 years ago Log in to Reply
    14. Steve Rumble

      I’m long retired and have no regular daily commitments.

      3 years ago Log in to Reply
    15. T1D4LongTime

      I am now retired, but I’ve seldom missed any work due to T1D. My endo appointments were always 7am so I’m out in time to get to work. The only exception when I was a teenager in the early 70s. Unmanaged T1D for 7 years due to my pediatrician’s lack of knowledge caused me to be in the hospital for total of 6-8 weeks one spring. (Too many years ago, to count now! LOL!). I didn’t miss work due to T1D during my adult years.

      3 years ago Log in to Reply

    In the past 3 months, how many hours of work or school do you estimate you missed because of T1D (e.g., going to T1D-related appointments, feeling sick because of blood glucose levels, managing complications of T1D, etc.)? Cancel reply

    You must be logged in to post a comment.




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