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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 11 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 20 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
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      Sarah Berry likes your comment at
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    In the past 12 months, have you experienced a hypoglycemic episode that resulted in a loss of consciousness?

    Home > LC Polls > In the past 12 months, have you experienced a hypoglycemic episode that resulted in a loss of consciousness?
    Previous

    If you use an insulin pump, when a pump site does not last the full amount of time it is supposed to last, do you contact customer service for replacement supplies?

    Next

    During your most recent appointment with your T1D health care provider, how long would you estimate you spent waiting to be seen by a provider? This includes time spent waiting in the waiting room, in the examination room, or elsewhere during the appointment.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Molly Jones

      Nope.
      The lowest I’ve EVER been documented going is 28, almost twenty years ago. I became aggressive in not wanting to accept the necessary sugar.
      I’ve never been lower or lost consciousness and am grateful for Control-IQ.

      2
      3 years ago Log in to Reply
    2. Jane Cerullo

      I have hypoglycemic awareness so can feel a low coming on. Also pay a lot of attention to my Dexcom numbers. Alarm would wake me up at night.

      2
      3 years ago Log in to Reply
    3. Joan Fray

      Ditto! Sixty years, never so low as to lose consciousness. Lowest documented was 23. Before alarms, etc……

      1
      3 years ago Log in to Reply
    4. kenneth brooks

      CGM eliminated this risk

      2
      3 years ago Log in to Reply
    5. Sherolyn Newell

      Before Dexcom, I had a finger stick in the thirties. I was lying down and didn’t feel it until I got up. Since Dexcom, in the thirties once, I was half asleep and I heard the low alarms, but I didn’t register what they were for a while. Luckily and knock on wood, I have never lost consciousness.

      2
      3 years ago Log in to Reply
    6. Patricia Kilwein

      It’s why I have an insulin pump and sensor.

      3 years ago Log in to Reply
    7. Ernie Richmann

      No but I was so out of it that I did not notice an iv in my arm that the paramedics inserted.

      3 years ago Log in to Reply
    8. Lawrence S.

      The CGM does not completely prevent low blood glucoses. I answered “unsure.” I’m not sure how you define “loss of consiousness.” I have had several low BG’s where my wife had to help me. I don’t remember parts of the episodes. I’ve recently had a few episodes where I have not gotten my meal prepared fast enough to prevent the low. I’ve also had what I think was an infection, which caused my BG’s to go very high, then very low. In any case, I use a Tandem X2 Control IQ, with Dexcom G6. The pump and the CGM work fine. But, there are instances where extreme lows can still happen. Don’t allow yourself to become complacent.

      3 years ago Log in to Reply
    9. William Bennett

      Dx’d in 1983 and have never lost consciousness. If I go super low I do get that “flashbulb” effect thing where your eyesight goes out in the center of your vision. Scary enough. Happens maybe twice in a year.

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        Yes, I sometimes get that when my blood sugar is reaching the 40’s, or there about.

        3 years ago Log in to Reply
      2. cynthia jaworski

        me, too. Only starting happening in the last 5 years or so.

        3 years ago Log in to Reply
    10. cynthia jaworski

      Over 60 years, I have twice been woken up from sleep while thrashing. Was I unconscious? I am not sure. I was aware of my feelings at the time and of the messy business of being fed juice.

      2
      3 years ago Log in to Reply
    11. Steve Rumble

      For the past two years I have been using CGM which significantly reduced the number of extreme lows. While lows around 40 were not eliminated, I was made aware of them in time to take remedial action!

      1
      3 years ago Log in to Reply
    12. Kevin McCue

      Where’s the never button

      3 years ago Log in to Reply
    13. Janis Senungetuk

      No, Control IQ and Dexcom have helped prevent extreme lows. I did reach 43 yesterday before noticing and drinking juice, but that’s very rare now. I’m completely hypo and hyper unaware, wasn’t until vision issues became very apparent that I took time to test bg. Dexcom has been giving wonky numbers for past coupe of days, so I wasn’t paying attention to the low alarm.

      1
      3 years ago Log in to Reply
      1. Janis Senungetuk

        couple of days

        3 years ago Log in to Reply
    14. Ms Cris

      In my 6 years, not yet! But I’m always prepared.

      3 years ago Log in to Reply
    15. Juha Kankaanpaa

      I have been lucky. In 33 years with T1, I have never had a hypo where I lost consciousness.

      3 years ago Log in to Reply
    16. KarenM6

      Not in the last 12 months.
      I’ve only lost consciousness (while first having been awake) twice, but that was a very long time ago (36 and more years).
      I did have seizures during sleep five times. On the last one, my husband was not able to wake me up and so called paramedics. But, that was 25 or so years ago.
      I have gone extremely low in more recent years because of being hypo unaware, but I haven’t lost consciousness. I credit that to the CGM.

      1
      3 years ago Log in to Reply
    17. Jan Masty

      I had some surgery last January and was sent to a rehab/nursing home to recoup strength. The medical personnel had absolutely no experience with a type 1 diabetic and even refused to test my glucose (I was much too weak yet to take care of my own needs) when I asked. It led to a very severe reaction and I ended up back in the hospital. I have since written letters to both that place and the next place urging them to get some training. I was able to care for my own diabetic needs at the next place thank goodness because they also had no idea how to care for me. Scary!!

      2
      3 years ago Log in to Reply
      1. M C

        Terrifying! Glad you’ve been proactive to try to ensure you won’t face this situation again.

        3 years ago Log in to Reply
    18. M C

      I’ve come close a time or two – but was able to plant myself down and wait (impatiently) for the sugar to kick in!!! Knock on wood – I’ve never passed out in over 45 years with T1D … but pretty darn close, more than a few times.

      3 years ago Log in to Reply
    19. Andrea Hultman

      No. I have never lost consciousness in my life. Hopefully, I won’t ever experience that because of hypoglycemia!

      3 years ago Log in to Reply

    In the past 12 months, have you experienced a hypoglycemic episode that resulted in a loss of consciousness? Cancel reply

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