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    • 49 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 51 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 52 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 53 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 hour, 1 minute ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 2 hours, 53 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 2 hours, 54 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 2 hours, 56 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 6 hours, 56 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 8 hours, 59 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 9 hours, 41 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 9 hours, 44 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 10 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 10 hours, 9 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 10 hours, 9 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 10 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 10 hours, 10 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 10 hours, 13 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 10 hours, 15 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 10 hours, 17 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 10 hours, 18 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 10 hours, 30 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 10 hours, 43 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 10 hours, 59 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 55 minutes ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    In addition to T1D, how many other autoimmune diseases do you have?

    Home > LC Polls > In addition to T1D, how many other autoimmune diseases do you have?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. LizB

      I also have Hashimoto’s.

      2 years ago Log in to Reply
      1. Jneticdiabetic

        Me too.

        2 years ago Log in to Reply
    2. Karen DeVeaux

      Celiac

      1
      2 years ago Log in to Reply
    3. Kathleen Juzenas

      One: rheumatoid arthritis

      2 years ago Log in to Reply
    4. Lawrence S.

      I have so many autoimmune diseases, I don’t even know if I know them all. Hypothyroid, pemphagoid, asthma, Celiac disease. The list goes on. I’m not sure anymore which ones are autoimmune diseases.

      2 years ago Log in to Reply
    5. Jane Cerullo

      Graves’ disease with TED
      Probable lupus. Rashes on skin appear to be lupus. Decided not to be tested.

      2 years ago Log in to Reply
    6. Karington Johnston

      I also have epilepsy, which is chronic, but not autoimmune

      1
      2 years ago Log in to Reply
      1. Wanacure

        😎 Karington, you ain’t alone. But “epilepsy” is stigmatized . Did you know about eugenics and epilepsy? Yeah, epileptics were STERILIZED & institutionalized by US doctors before AND after Nazis were doing it. So now (to obscure their past?) doctors call it “seizure disorder”.)

        2 years ago Log in to Reply
    7. Carl Robertson

      Addison’s disease

      2 years ago Log in to Reply
    8. Carol Meares

      I put one but it is not really a disease. It is a syndrome. Sjogrens. Dupytrens a disease? I have that, too

      2 years ago Log in to Reply
    9. Janice Bohn

      Thyroid.

      2 years ago Log in to Reply
    10. pru barry

      Graves. In the scheme of things it’s a non-entity. Once my thyroid was diagnosed as over producing, and removed, my once daily thiamine tablet is taken with no more concern than a daily vitamin. When learning about this, I was a little horrified and insulted to have another autoimmune disease, but my 69 year run with diabetes continues, and I keep grinning back at the grim reaper. We both are given to chortling!

      1
      2 years ago Log in to Reply
    11. Lynn Smith

      Celiac & Hashimoto’s hypothyroidism.

      1
      2 years ago Log in to Reply
    12. Bob Durstenfeld

      I have monogenic T1D, rather than autoimmune T1D.
      I still have T1D complications.

      2 years ago Log in to Reply
      1. Wanacure

        Bob, please see my response in my reply to Ginger. Others with rare diseases caused by one defective gene have already been cured at Fred Hutchinson in Seattle. I learned of this successful delicate costly research at a forum years ago. The presenter at that time mistakenly believed ALL diabetes was mult-genetic in cause. Today we know MOST, but NOT ALL. (Costs were covered by government research grants.)

        2 years ago Log in to Reply
    13. Anneyun

      I said 1, Rheumatoid Arthritis. Oh, but I have also had Dupytrens syndrome.

      2 years ago Log in to Reply
    14. jo

      I also have Celiac disease, frontal fibrosing alopecia and autoimmune leukopenia.

      2 years ago Log in to Reply
    15. Diana L.

      I have Diabetes 3c. Type 3c Diabetes (or Pancreatogenic Diabetes) can develop due to an illness or condition that affects or damages the pancreas. It can also occur if you have had surgery on your pancreas or if it is removed. I have 18% of my mancreas left.
      I had a distal pancreatectomy to remove a neuroendocrine tumor from my pancreas.

      2 years ago Log in to Reply
    16. Molly Jones

      Autoimmune conditions run in my mother’s family.
      I have hypothyroidism as does everyone else in the family. I also have epilepsy due to GAD antibodies that most likely caused my diabetes. Microscropic colitis, and Raynaud syndrome.

      2 years ago Log in to Reply
      1. Wanacure

        Molly, you might check my reply to Karington.
        Btw if you’re concerned about saving & improving Medicare: https://www.psara.org/.

        2 years ago Log in to Reply
    17. beth nelson

      I’ll bet a lot of people don’t know they have autoimmune diseases, based on the percentage of “no” answers. Also, once we are diagnosed with one, it’s not always (not usually?) explained that it is an autoimmune disease.

      4
      2 years ago Log in to Reply
    18. Shannon Barnaby

      Celiac disease and hypothyroidism

      1
      2 years ago Log in to Reply
    19. Carrolyn Barloco

      Vitiligo and Poly myalgia rheumatica (PMR)

      2 years ago Log in to Reply
    20. Jen Farley

      Rheumatoid Arthritis and Hypothyroid, at times all of it is exhausting.

      2 years ago Log in to Reply
    21. KIMBERELY SMITH

      Lot

      2 years ago Log in to Reply
    22. JanP

      Dysautonomia, asthma, Dupuytrens, ganglion cysts on my feet..there’s probably more

      2 years ago Log in to Reply
    23. Jan Masty

      Rheumatoid arthritis, vitiligo, hyothyroidism,, lichen sclerosis, lichen planus. The last two have only been an annoying but temporary issue years ago.

      2 years ago Log in to Reply
    24. Ginger Vieira

      T1D
      Celiac
      Fibromyalgia (+ chronic fatigue)
      POTS
      Hypothyroid

      2 years ago Log in to Reply
      1. Wanacure

        Ginger, in an earlier answer to this Q, Bob said he”s got monogenic diabetes. Have you ever heard of that? At https://www.healthline.com I learned there are 2 types of monogenic diabetes. 4% of all Americans w/ diabetes have it. 1 in 20,000 to maybe 1 in 500,000 infants have it. There are tests for it. My Q to you & Bob & esp genetic researchers into CRISPR, wouldn’t Bob be a great candidate for a REAL LASTING CURE? JUST ONE GENE! How many people with diabetes have been tested for this type which has a potential cure?

        2 years ago Log in to Reply
    25. mbulzomi@optonline.net

      I answered “0” nothing to discuss.

      2 years ago Log in to Reply
    26. Wanacure

      If celiac disease and allergies to a certain tree pollen count, then I have a total of three. Low carb gluten free diet handles celiac. Ten mg loratadine /day for a few days as needed handles tree pollen nasal congestion & sneezing.

      2 years ago Log in to Reply

    In addition to T1D, how many other autoimmune diseases do you have? Cancel reply

    You must be logged in to post a comment.




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