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    • 13 hours, 32 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 13 hours, 33 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 13 hours, 33 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 19 hours, 20 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 19 hours, 20 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 20 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 31 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 20 hours, 40 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 20 hours, 59 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 21 hours, 2 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 21 hours, 14 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 18 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 19 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 19 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 20 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 20 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      I was going to comment that there's always a trade off. Am I trading insulin replacement with some other daily treatment? If so, what's the difference? Is the new daily grind more harmful than the old?
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
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    In addition to T1D, how many other autoimmune diseases do you have?

    Home > LC Polls > In addition to T1D, how many other autoimmune diseases do you have?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. LizB

      I also have Hashimoto’s.

      3 years ago Log in to Reply
      1. Jneticdiabetic

        Me too.

        3 years ago Log in to Reply
    2. Karen DeVeaux

      Celiac

      1
      3 years ago Log in to Reply
    3. Kathleen Juzenas

      One: rheumatoid arthritis

      3 years ago Log in to Reply
    4. Lawrence S.

      I have so many autoimmune diseases, I don’t even know if I know them all. Hypothyroid, pemphagoid, asthma, Celiac disease. The list goes on. I’m not sure anymore which ones are autoimmune diseases.

      3 years ago Log in to Reply
    5. Jane Cerullo

      Graves’ disease with TED
      Probable lupus. Rashes on skin appear to be lupus. Decided not to be tested.

      3 years ago Log in to Reply
    6. Karington Johnston

      I also have epilepsy, which is chronic, but not autoimmune

      1
      3 years ago Log in to Reply
      1. Wanacure

        😎 Karington, you ain’t alone. But “epilepsy” is stigmatized . Did you know about eugenics and epilepsy? Yeah, epileptics were STERILIZED & institutionalized by US doctors before AND after Nazis were doing it. So now (to obscure their past?) doctors call it “seizure disorder”.)

        3 years ago Log in to Reply
    7. Carl Robertson

      Addison’s disease

      3 years ago Log in to Reply
    8. Carol Meares

      I put one but it is not really a disease. It is a syndrome. Sjogrens. Dupytrens a disease? I have that, too

      3 years ago Log in to Reply
    9. Janice Bohn

      Thyroid.

      3 years ago Log in to Reply
    10. pru barry

      Graves. In the scheme of things it’s a non-entity. Once my thyroid was diagnosed as over producing, and removed, my once daily thiamine tablet is taken with no more concern than a daily vitamin. When learning about this, I was a little horrified and insulted to have another autoimmune disease, but my 69 year run with diabetes continues, and I keep grinning back at the grim reaper. We both are given to chortling!

      1
      3 years ago Log in to Reply
    11. Lynn Smith

      Celiac & Hashimoto’s hypothyroidism.

      1
      3 years ago Log in to Reply
    12. Bob Durstenfeld

      I have monogenic T1D, rather than autoimmune T1D.
      I still have T1D complications.

      3 years ago Log in to Reply
      1. Wanacure

        Bob, please see my response in my reply to Ginger. Others with rare diseases caused by one defective gene have already been cured at Fred Hutchinson in Seattle. I learned of this successful delicate costly research at a forum years ago. The presenter at that time mistakenly believed ALL diabetes was mult-genetic in cause. Today we know MOST, but NOT ALL. (Costs were covered by government research grants.)

        3 years ago Log in to Reply
    13. Anneyun

      I said 1, Rheumatoid Arthritis. Oh, but I have also had Dupytrens syndrome.

      3 years ago Log in to Reply
    14. jo

      I also have Celiac disease, frontal fibrosing alopecia and autoimmune leukopenia.

      3 years ago Log in to Reply
    15. Diana L.

      I have Diabetes 3c. Type 3c Diabetes (or Pancreatogenic Diabetes) can develop due to an illness or condition that affects or damages the pancreas. It can also occur if you have had surgery on your pancreas or if it is removed. I have 18% of my mancreas left.
      I had a distal pancreatectomy to remove a neuroendocrine tumor from my pancreas.

      3 years ago Log in to Reply
    16. Molly Jones

      Autoimmune conditions run in my mother’s family.
      I have hypothyroidism as does everyone else in the family. I also have epilepsy due to GAD antibodies that most likely caused my diabetes. Microscropic colitis, and Raynaud syndrome.

      3 years ago Log in to Reply
      1. Wanacure

        Molly, you might check my reply to Karington.
        Btw if you’re concerned about saving & improving Medicare: https://www.psara.org/.

        3 years ago Log in to Reply
    17. beth nelson

      I’ll bet a lot of people don’t know they have autoimmune diseases, based on the percentage of “no” answers. Also, once we are diagnosed with one, it’s not always (not usually?) explained that it is an autoimmune disease.

      4
      3 years ago Log in to Reply
    18. Shannon Barnaby

      Celiac disease and hypothyroidism

      1
      3 years ago Log in to Reply
    19. Carrolyn Barloco

      Vitiligo and Poly myalgia rheumatica (PMR)

      3 years ago Log in to Reply
    20. Jen Farley

      Rheumatoid Arthritis and Hypothyroid, at times all of it is exhausting.

      3 years ago Log in to Reply
    21. KIMBERELY SMITH

      Lot

      3 years ago Log in to Reply
    22. JanP

      Dysautonomia, asthma, Dupuytrens, ganglion cysts on my feet..there’s probably more

      3 years ago Log in to Reply
    23. Jan Masty

      Rheumatoid arthritis, vitiligo, hyothyroidism,, lichen sclerosis, lichen planus. The last two have only been an annoying but temporary issue years ago.

      3 years ago Log in to Reply
    24. Ginger Vieira

      T1D
      Celiac
      Fibromyalgia (+ chronic fatigue)
      POTS
      Hypothyroid

      3 years ago Log in to Reply
      1. Wanacure

        Ginger, in an earlier answer to this Q, Bob said he”s got monogenic diabetes. Have you ever heard of that? At https://www.healthline.com I learned there are 2 types of monogenic diabetes. 4% of all Americans w/ diabetes have it. 1 in 20,000 to maybe 1 in 500,000 infants have it. There are tests for it. My Q to you & Bob & esp genetic researchers into CRISPR, wouldn’t Bob be a great candidate for a REAL LASTING CURE? JUST ONE GENE! How many people with diabetes have been tested for this type which has a potential cure?

        3 years ago Log in to Reply
    25. mbulzomi@optonline.net

      I answered “0” nothing to discuss.

      3 years ago Log in to Reply
    26. Wanacure

      If celiac disease and allergies to a certain tree pollen count, then I have a total of three. Low carb gluten free diet handles celiac. Ten mg loratadine /day for a few days as needed handles tree pollen nasal congestion & sneezing.

      3 years ago Log in to Reply

    In addition to T1D, how many other autoimmune diseases do you have? Cancel reply

    You must be logged in to post a comment.




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