Sarah Howard
Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange.
Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.
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31 Comments
In addition to T1D, how many other autoimmune diseases do you have? Cancel reply
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I also have Hashimoto’s.
Me too.
Celiac
One: rheumatoid arthritis
I have so many autoimmune diseases, I don’t even know if I know them all. Hypothyroid, pemphagoid, asthma, Celiac disease. The list goes on. I’m not sure anymore which ones are autoimmune diseases.
Graves’ disease with TED
Probable lupus. Rashes on skin appear to be lupus. Decided not to be tested.
I also have epilepsy, which is chronic, but not autoimmune
😎 Karington, you ain’t alone. But “epilepsy” is stigmatized . Did you know about eugenics and epilepsy? Yeah, epileptics were STERILIZED & institutionalized by US doctors before AND after Nazis were doing it. So now (to obscure their past?) doctors call it “seizure disorder”.)
Addison’s disease
I put one but it is not really a disease. It is a syndrome. Sjogrens. Dupytrens a disease? I have that, too
Thyroid.
Graves. In the scheme of things it’s a non-entity. Once my thyroid was diagnosed as over producing, and removed, my once daily thiamine tablet is taken with no more concern than a daily vitamin. When learning about this, I was a little horrified and insulted to have another autoimmune disease, but my 69 year run with diabetes continues, and I keep grinning back at the grim reaper. We both are given to chortling!
Celiac & Hashimoto’s hypothyroidism.
I have monogenic T1D, rather than autoimmune T1D.
I still have T1D complications.
Bob, please see my response in my reply to Ginger. Others with rare diseases caused by one defective gene have already been cured at Fred Hutchinson in Seattle. I learned of this successful delicate costly research at a forum years ago. The presenter at that time mistakenly believed ALL diabetes was mult-genetic in cause. Today we know MOST, but NOT ALL. (Costs were covered by government research grants.)
I said 1, Rheumatoid Arthritis. Oh, but I have also had Dupytrens syndrome.
I also have Celiac disease, frontal fibrosing alopecia and autoimmune leukopenia.
I have Diabetes 3c. Type 3c Diabetes (or Pancreatogenic Diabetes) can develop due to an illness or condition that affects or damages the pancreas. It can also occur if you have had surgery on your pancreas or if it is removed. I have 18% of my mancreas left.
I had a distal pancreatectomy to remove a neuroendocrine tumor from my pancreas.
Autoimmune conditions run in my mother’s family.
I have hypothyroidism as does everyone else in the family. I also have epilepsy due to GAD antibodies that most likely caused my diabetes. Microscropic colitis, and Raynaud syndrome.
Molly, you might check my reply to Karington.
Btw if you’re concerned about saving & improving Medicare: https://www.psara.org/.
I’ll bet a lot of people don’t know they have autoimmune diseases, based on the percentage of “no” answers. Also, once we are diagnosed with one, it’s not always (not usually?) explained that it is an autoimmune disease.
Celiac disease and hypothyroidism
Vitiligo and Poly myalgia rheumatica (PMR)
Rheumatoid Arthritis and Hypothyroid, at times all of it is exhausting.
Lot
Dysautonomia, asthma, Dupuytrens, ganglion cysts on my feet..there’s probably more
Rheumatoid arthritis, vitiligo, hyothyroidism,, lichen sclerosis, lichen planus. The last two have only been an annoying but temporary issue years ago.
T1D
Celiac
Fibromyalgia (+ chronic fatigue)
POTS
Hypothyroid
Ginger, in an earlier answer to this Q, Bob said he”s got monogenic diabetes. Have you ever heard of that? At https://www.healthline.com I learned there are 2 types of monogenic diabetes. 4% of all Americans w/ diabetes have it. 1 in 20,000 to maybe 1 in 500,000 infants have it. There are tests for it. My Q to you & Bob & esp genetic researchers into CRISPR, wouldn’t Bob be a great candidate for a REAL LASTING CURE? JUST ONE GENE! How many people with diabetes have been tested for this type which has a potential cure?
I answered “0” nothing to discuss.
If celiac disease and allergies to a certain tree pollen count, then I have a total of three. Low carb gluten free diet handles celiac. Ten mg loratadine /day for a few days as needed handles tree pollen nasal congestion & sneezing.