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    • 3 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 4 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 46 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 9 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 6 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 29 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 32 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 32 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 33 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 41 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 34 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 34 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 37 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

    Home > LC Polls > If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.
    Previous

    When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?

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    In which room(s) of your home do you keep your diabetes supplies? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Bob Durstenfeld

      How about my doctors?

      5 years ago Log in to Reply
    2. Gene Maggard

      My Endo is my only share. In the past, before CGM, I used to take my meter with me to appointments where they would download them and try and fill in all the blanks. Now he calls up my Dexcom Clarity web account and we look at the various reports, and discuss the results and trends. It’s made it easy to maximize the time during each visit.

      5 years ago Log in to Reply
    3. Ernie Richmann

      I allow my doctor to look at my clarity reports.

      5 years ago Log in to Reply
    4. Jeffrey Joseph

      Other: occasionally an insurance provider requires 2 weeks CGM/meter testing data.

      5 years ago Log in to Reply
    5. Derek West

      I share with my endo through my Carelink account.

      5 years ago Log in to Reply
    6. Maureen Helinski

      I share with 3 adult children. My son who gave me the apple watch called one Thanksgiving FROM MEXICO, as I was in Baltimore at dinner and said, “No more pumpkin pie, Mom.” He saw my BG was going up toward 300.

      5 years ago Log in to Reply
    7. David Smith

      I share my Dexcom 6 data with my endocrinologist through Dexcom’s Clarity app.

      5 years ago Log in to Reply
    8. Henry Renn

      I share with my Endo to monitor & adjust settings on pump.

      5 years ago Log in to Reply
    9. Nicholas Argento

      This question was not clear in distinguishing personal Share- so others get the information in real time are therefore can actively monitor and/or intervene- and sharing with a clinic, which is for retrospective review and not actively monitored. That is a critical difference. Share with clinics is great for visits or when things have been off and you need adjustments. Share with a support person means they see what is going on right now if desired, and can get alerts to be a back up.

      5 years ago Log in to Reply
    10. Amanda Barras

      I wear a CGM and CAN NOT share my content. Medtronic is way behind on this being an active feature fir smartphones beyond Nightscout.

      5 years ago Log in to Reply
    11. kristina blake

      Like Dr Nick said, I don’t share with anyone other than my endo clinic and that isn’t in real-time

      5 years ago Log in to Reply
    12. Mick Martin

      The “research or medical team” that I share the data from my Medtronic pump is my diabetes support team … doctor/endocrinologist/diabetes specialist nurse/certified diabetes educator … but this, of course, is NOT ‘live’. I either have to give them the password to my Medtronic Carelink account, or send them copies of the data that I download to my computer.

      5 years ago Log in to Reply
    13. Catherine Van Hove

      I share when I have an appointment or need to get someone’s opinion. No one else has daily/hourly access.

      5 years ago Log in to Reply
    14. George Lovelace

      With Endo for the 3 month MC Appts and share the Clarity AGP in FB to show the power of CGM (bragging)

      5 years ago Log in to Reply
    15. Ann Auerbach

      I use Share with my husband ONLY when he is traveling and I am alone. If he is over seas, one of my adult children are my back up. Otherwise, I like to manage everything independently

      5 years ago Log in to Reply
    16. Pat Reynolds

      I download from tslim to Diasend for my team once a year. But I use Dexcom follow to share with myself (Happy Bob app). I use Clarity and Happy Bob rather than Dexcom’s own app on my phone.

      5 years ago Log in to Reply
    17. Lisa Laissle

      My daughter has Sugarmate and Happy Bob sharing with me and will likely with her twin sister when they are no longer on such covid house arrest and are on their respective campuses. Even though we are generally in same building, the apps remove/reduce the conversations, which is great. INpen remote data and linked would be even more helpful The dexcom false alarms disrupt all of our sleep entirely too much. This is really informing her process of deciding whether to request no (in room ) roommate (as opposed to suite). While she thinks she really wants a RM, she doesn’t want the dexcom disrupting more than needed. The “share tech” is less of a con than the low tech audible alert. That and a down the hall restroom, are rising to the surface as key accommodation elements. We print for the office lists or send reports or download when there.

      5 years ago Log in to Reply
    18. Sally Numrich

      I don’t share with anyone except when I am in a clinical study or if I send reports to my medical team. I just do everything myself & with alarms & a pump that turns off, no one worries about me being alone anymore.

      5 years ago Log in to Reply
    19. Jneticdiabetic

      When I wore a Dexcom CGM I shared real time with my husband for a bit. Mostly for low blood sugar back up duty when one of us was traveling. Started jokingly calling him “Inspector Glucose” though when my CGM alarms started getting followed by texts from him asking if I was doing anything about it. I love him for watching out for me, but I already think about my diabetes 24/7 and the alarms plus texts provided to be too many reminders. I diabetic gal’s gotta get some work done! With my Medtronic 670G, I can’t share. I do rely on him overnight when I tend to sleep through my CGM alarms. God bless him for that! My mom is also a T1D and we sometimes share our Carelink reports to troubleshoot or for friendly time in range competitions. Also share my Carelink reports with my diabetes care teams ahead of appts.

      5 years ago Log in to Reply
    20. Molly Jones

      I share my dexcom app with my husband and neurologist, and my dexcom account with my Endo and with my neurologist.

      5 years ago Log in to Reply
    21. Julian Reeves

      I share my results with my endocrinologist.

      5 years ago Log in to Reply

    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply. Cancel reply

    You must be logged in to post a comment.




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