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    • 3 hours, 30 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 3 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 27 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 5 hours, 43 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 16 hours, 54 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 20 hours, 42 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 20 hours, 45 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 27 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 27 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 29 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 21 hours, 34 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 35 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 21 hours, 36 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 21 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 13 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 24 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 22 hours, 36 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 22 hours, 37 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 23 hours, 52 minutes ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 1 hour ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?

    Home > LC Polls > When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?
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    If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

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    26 Comments

    1. Leona Hanson

      I went through a 2year honeymoon phase it ended when I had emergency surgery and then everything went crazy brittle diabetic fun every day

      2 years ago Log in to Reply
    2. Steven Gill

      I was originally diagnosed TYPE 2 (understandable, I ate and drank anything available), 3 years later after losing 105 lbs the diagnosis was changed to TYPE 1. Had the antibodies, the doc at the medical studies suggested had the test for GAD autoantibodies been done several years earlier I might have extended the “honeymoon” period even longer with only a BASAL dose. For me 3 years although the last several months the “quack” I fired kept saying I was too old to require insulin: kept changing pills and said to lose more weight (eventually 20lbs under weight).

      2 years ago Log in to Reply
    3. HMW

      I was diagnosed at age 7. I went through honeymoon phases (where I would only need 1 shot of nph once a day) off and on. I particularly remember having one at diabetes summer camp at age 9 (over a year after diagnosis) because of how active we were there and how much I could snack vs at home.

      2 years ago Log in to Reply
    4. Anthony Harder

      I was diagnosed with T1D in 1965 when I was 7 years old. My doctors quickly settled on T1D and insulin injections which I have been taking ever since.

      2 years ago Log in to Reply
    5. connie ker

      My diabetes was not diagnosed when I presented with a frozen shoulder, no energy and kept losing weight. My diabetic husband suggested he test me on his meter and it read HIGH. So a call to his endo meant insulin dosages over the telephone and an office appointment forthcoming. Even though I was 49, I could not get off of insulin and my body was frail. That was 23 years ago before the term LADA. Thankful for insulin which is turning 100 years in 2021, marketed in 2022. Happy 100th Birthday Insulin!!

      2 years ago Log in to Reply
    6. Joan Fray

      You think I remember 59 years ago? Ha ha ha, that’s hilarious!

      2 years ago Log in to Reply
    7. Lorri McLuckie

      I’m not sure that “Honeymoon Phase” was known about in 1967 when I was diagnosed. I was only 10 at the time and don’t remember that term being used or any changes to my treatment protocol being implemented to reflect that.

      2 years ago Log in to Reply
    8. Ernie Richmann

      What is a honeymoon phase?

      2 years ago Log in to Reply
    9. Annie Wall

      I had to look up honeymoon phase diabetes. Here’s what I found: “The “honeymoon period” is a phase that some people with type 1 diabetes experience shortly after being diagnosed. During this time, a person with diabetes seems to get better and may only need minimal amounts of insulin. Some people even experience normal or near-normal blood sugar levels without taking insulin.” I definitely never had a honeymoon phase when I was diagnosed T1D at age 32.

      2 years ago Log in to Reply
    10. William Bennett

      Dx’d 1983, age 28. My Dr warned me about the honeymoon phase, but I think what happened was that I retained some endogenous insulin production that never quite completely went away. I seem to still produce some, which makes DKA less likely, though it can make figuring dosage a little unpredictable.

      2 years ago Log in to Reply
    11. Steven Jerdee

      My dad told me I got really sick taking insulin. So they stopped for a week and everything was good. It lasted a week. Then I got sick again and I have been on insulin ever since. That was 1967

      2 years ago Log in to Reply
    12. George Lovelace

      57 years ago I remember times where the NPH would ‘surprise’ me with lows, I assume that was “Honeymoon” but don’t remember when that levelled off. DX was easy because my father had been a LADA Dmer since the early 40’s,, my Dx in 65

      2 years ago Log in to Reply
    13. Amanda Barras

      I was barely 4 when dx so I too young to remember.

      2 years ago Log in to Reply
    14. Sally Numrich

      I said, no idea. Who knows, it was one injection of Lente and urine testing. So really, who knows! I know there was lots of highs and lots of lows.

      2 years ago Log in to Reply
    15. Nicholas Argento

      Like others, I don’t know, but it is not that I could not remember, more that in 1968, you really could not tell because there were no A1c’s, or fingersticks. Evidence from the Diabetes Control and Complications Trial, which was the first prospective randomized large scale trial to prove that tight control improved the chance of avoiding complications, also showed that those newly diagnosed who were well controlled (average A1c 7-7.2) had detectable insulin secretion for twice as long as those who were in standard control (A1c around 9 on average). So high blood sugar hurts remaining beta cells, and tight control helps from day 1 after diagnosis…

      2 years ago Log in to Reply
    16. kristina blake

      My D symptoms came on fast and furious. I may have been my “honeymoon” period prior to Dx and thus not been aware of it. I was a professional ballet dancer in the years leading up to my Dx and that hard physical labor (it is hard labor – we just make it look easy and ethereal). I was Dx’d with T2 cuz I was 30 years old (no risk factors especially the one re: my family tree – no D of any kind back several generations. Family had lots of medical folks – so the records were meticulous). When I first went to see a doctor I had gone from my “working weight” of 110 lbs (I am 5’6′) to 102. By the time was correctly Dx’d – in DKA I was 95 lbs.

      2 years ago Log in to Reply
    17. Abraham Remson

      I guess as they said I controlled too fast and went blind for a couple of weeks. Let me tell you, it was a a lot of fun . I could see some shadow like figures during the day but at night I was totally blind the honeymoon was over real fast if in fact it actually happened

      2 years ago Log in to Reply
    18. Ken Raiche

      Unfortunately I’m not to sure how long mine lasted. That said becoming a diabetic was never ever a big issue for me due to my older having had it for 7 years prior to my sudden onset. Admittedly things seemed to be much easier way back when due to the lack of instruments for testing, single dosing etc. Now days we’ve got all these different tools that are available like CGM’s, pumps, or MDI, Inhaled etc…. Admittedly these things are great, yet at times can be a tad bit hectic and a constant reminder of our disease which for me can encourage depressive state.

      2 years ago Log in to Reply
    19. Carol Meares

      I don’t remember anything significant about honeymoon. Because I was an adult I was not put on insulin for quite some time. I was on metformin for T2. When they accepted metformin wouldn’t help, they put me on insulin about 6-12 months after dx. I was still scrawny but was never extreme to where I ended up in the hospital. I think there are some differences between LADA and Juvenile T1D. Both autoimmune but different in its presentation in my perspective. My young 1St cousins once removed with T1D ended up in the hospital with very quick presentation, my sister and I with LADA had more stretched out presentation in the beginning. I didn’t know of the word “honeymoon” at the time.

      2 years ago Log in to Reply
    20. ConnieT1D62

      I have no idea. I was diagnosed in December 1962 at the age of 8. They weren’t tracking residual beta cell function back in those days, so even if I was in a honeymoon phase it wasn’t on the radar, so no one paid attention to it. I do remember that I had a lot of severe insulin reactions up until age 10 or 11 – often resulting in middle of the night/overnight seizures. Perhaps I was going through a honeymoon phase then?

      2 years ago Log in to Reply
    21. KarenM6

      I did, but I was about 5 when it happened. I remember the doctors telling my Mom to continue to give me a small amount (~1 unit) of insulin so that I didn’t become allergic to it if she stopped giving any insulin.

      2 years ago Log in to Reply
    22. Donna Condi

      I was. 42 when diagnosed T2 and put on pills. Four years later and 60 pounds lighter I asked to go on insulin because I couldn’t keep my bs numbers down with the pills, exercise and eating like a bird.

      2 years ago Log in to Reply
    23. Cub Scout

      I didn’t go through a honeymoon phase til my last pump, 670G & CGM. A1c improved 2 points. Improved control, less worry, and more freedom eating.

      2 years ago Log in to Reply
    24. Anita Galliher

      I was diagnosed at age 14 in 1963. I was in shock and hated every minute of it. Peeing in a cup or on a stick was worthless. My A1C was 12 for a while, and only took one injection a day until I was in my 40s. Finally when I was about 50 I went on the Omnipod and turned things around. I still hate it and struggle every day, but I keep trying. And that’s all I can do until a cure is found.

      2 years ago Log in to Reply
    25. kilupx

      I had a high a1c in a routine blood test when I was 66. Internist told me I had type 2. Metformin made me sick and I told doctor I would follow a strict low carb diet. Then I found an endocrinologist on my own and he immediately diagnosed me with LADA. Probably because of ingesting fewer than 80 grams of carbs a day, I was able to prolong honeymoon phase to 1 1/2 years. Then I started on a couple of units of long-acting insulin a night and didn’t add Humalog until a year after that. Five and a half years from diagnosis, I still take what I’m told are smaller than normal doses of insulin—4 units of Tresiba daily and a total of 7 units of Humalog a day.

      2 years ago Log in to Reply
    26. Cheryl Seibert

      I was diagnosed just over 54 years ago, so don’t recall any ‘honeymoon’ phase. At age 6, I came home just before Christmas and went back to being a kid. I don’t recall any anger, adjustment period or anything like that. Just seems like it was “ok you have to take shots and don’t eat many cookies”. At age 6, I had more bad memories of and trouble adjusting to having tonsillitis every winter. I guess diabetes diagnosis didn’t impact me much at that age.

      2 years ago Log in to Reply

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