If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

Activity
- 3 hours, 34 minutes ago
  
  Laurie B likes your comment at
  If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
  Since I started this journey long long ago when there were no pumps, CGMs, I have always kept long acting insulin and test strips on hand so I can use those when needed. Sometimes I have to go old school because of medical tests, so my feeling is to always be prepared.
- 6 hours, 14 minutes ago
  
  lis be likes your comment at
  If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
  I say somewhat, because I don't have a basal insulin. But pharmacy isn't far, and prescription is on file.
- 11 hours, 53 minutes ago
  
  Lawrence S. likes your comment at
  If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
  Since I started this journey long long ago when there were no pumps, CGMs, I have always kept long acting insulin and test strips on hand so I can use those when needed. Sometimes I have to go old school because of medical tests, so my feeling is to always be prepared.
- 12 hours, 41 minutes ago
  
  atr likes your comment at
  If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
  I answered not at all perpared! I have novolog and syringes on hand but no lantus. However, I use Omnipod 5 pods, which come in boxes of 5 pods, so I always have some on hand. They must be replace every 3 days anyway so if one fails I simply replace it. That has happened twice and when I contacted Insulet they provided a replacement pod both times.
- 13 hours, 3 minutes ago
  
  Kathy Hanavan likes your comment at
  If your insulin pump stopped working, how prepared do you feel to manage injections, including having supplies on hand and understanding dosing?
  Was on injections for yrs before a pump so no problem for me
- 2 days, 9 hours ago
  
  KarenM6 likes your comment at
  How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
  The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
- 2 days, 9 hours ago
  
  KarenM6 likes your comment at
  How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
  Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
- 2 days, 10 hours ago
  
  Richard likes your comment at
  How often do you exercise? Share more in the comments about your exercise routine.
  I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
- 2 days, 10 hours ago
  
  Richard likes your comment at
  How often do you exercise? Share more in the comments about your exercise routine.
  I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
- 2 days, 12 hours ago
  
  atr likes your comment at
  How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
  During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
- 2 days, 12 hours ago
  
  atr likes your comment at
  How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
  when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
- 2 days, 12 hours ago
  
  atr likes your comment at
  How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
  The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
- 2 days, 12 hours ago
  
  Lawrence S. likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
- 2 days, 12 hours ago
  
  Lawrence S. likes your comment at
  How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
  Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
- 3 days, 8 hours ago
  
  KarenM6 likes your comment at
  How confident are you about having consistent access to the diabetes supplies and medication you need?
  Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
- 3 days, 8 hours ago
  
  KarenM6 likes your comment at
  How confident are you about having consistent access to the diabetes supplies and medication you need?
  Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
- 3 days, 8 hours ago
  
  KarenM6 likes your comment at
  How confident are you about having consistent access to the diabetes supplies and medication you need?
  I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
- 3 days, 8 hours ago
  
  kristina blake likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  After doing this weighing and measurements you get pretty good at estimating
- 3 days, 9 hours ago
  
  Patricia Dalrymple likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
- 3 days, 11 hours ago
  
  Kathy Hanavan likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
- 3 days, 11 hours ago
  
  Kathy Hanavan likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
- 3 days, 11 hours ago
  
  Kathy Hanavan likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  After doing this weighing and measurements you get pretty good at estimating
- 3 days, 11 hours ago
  
  Kathy Hanavan likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
- 3 days, 11 hours ago
  
  Lawrence S. likes your comment at
  How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
  I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
- 3 days, 12 hours ago
  
  Amanda Barras likes your comment at
  How confident are you about having consistent access to the diabetes supplies and medication you need?
  Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
Clear All

If you wear a CGM and share your data with people (ex. Dexcom Follow or Medtronic’s Carelink Connect), with whom have you shared your CGM info? Select all that apply.

When you were diagnosed with diabetes, did you go through a “Honeymoon” phase? If so, for how long did it last?

Sarah Howard

Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

21 Comments

Bob Durstenfeld

How about my doctors?

5 years ago Log in to Reply
Gene Maggard

My Endo is my only share. In the past, before CGM, I used to take my meter with me to appointments where they would download them and try and fill in all the blanks. Now he calls up my Dexcom Clarity web account and we look at the various reports, and discuss the results and trends. It’s made it easy to maximize the time during each visit.

5 years ago Log in to Reply
Ernie Richmann

I allow my doctor to look at my clarity reports.

5 years ago Log in to Reply
Jeffrey Joseph

Other: occasionally an insurance provider requires 2 weeks CGM/meter testing data.

5 years ago Log in to Reply
Derek West

I share with my endo through my Carelink account.

5 years ago Log in to Reply
Maureen Helinski

I share with 3 adult children. My son who gave me the apple watch called one Thanksgiving FROM MEXICO, as I was in Baltimore at dinner and said, “No more pumpkin pie, Mom.” He saw my BG was going up toward 300.

5 years ago Log in to Reply
David Smith

I share my Dexcom 6 data with my endocrinologist through Dexcom’s Clarity app.

5 years ago Log in to Reply
Henry Renn

I share with my Endo to monitor & adjust settings on pump.

5 years ago Log in to Reply
Nicholas Argento

This question was not clear in distinguishing personal Share- so others get the information in real time are therefore can actively monitor and/or intervene- and sharing with a clinic, which is for retrospective review and not actively monitored. That is a critical difference. Share with clinics is great for visits or when things have been off and you need adjustments. Share with a support person means they see what is going on right now if desired, and can get alerts to be a back up.

5 years ago Log in to Reply
Amanda Barras

I wear a CGM and CAN NOT share my content. Medtronic is way behind on this being an active feature fir smartphones beyond Nightscout.

5 years ago Log in to Reply
kristina blake

Like Dr Nick said, I don’t share with anyone other than my endo clinic and that isn’t in real-time

5 years ago Log in to Reply
Mick Martin

The “research or medical team” that I share the data from my Medtronic pump is my diabetes support team … doctor/endocrinologist/diabetes specialist nurse/certified diabetes educator … but this, of course, is NOT ‘live’. I either have to give them the password to my Medtronic Carelink account, or send them copies of the data that I download to my computer.

5 years ago Log in to Reply
Catherine Van Hove

I share when I have an appointment or need to get someone’s opinion. No one else has daily/hourly access.

5 years ago Log in to Reply
George Lovelace

With Endo for the 3 month MC Appts and share the Clarity AGP in FB to show the power of CGM (bragging)

5 years ago Log in to Reply
Ann Auerbach

I use Share with my husband ONLY when he is traveling and I am alone. If he is over seas, one of my adult children are my back up. Otherwise, I like to manage everything independently

5 years ago Log in to Reply
Pat Reynolds

I download from tslim to Diasend for my team once a year. But I use Dexcom follow to share with myself (Happy Bob app). I use Clarity and Happy Bob rather than Dexcom’s own app on my phone.

5 years ago Log in to Reply
Lisa Laissle

My daughter has Sugarmate and Happy Bob sharing with me and will likely with her twin sister when they are no longer on such covid house arrest and are on their respective campuses. Even though we are generally in same building, the apps remove/reduce the conversations, which is great. INpen remote data and linked would be even more helpful The dexcom false alarms disrupt all of our sleep entirely too much. This is really informing her process of deciding whether to request no (in room ) roommate (as opposed to suite). While she thinks she really wants a RM, she doesn’t want the dexcom disrupting more than needed. The “share tech” is less of a con than the low tech audible alert. That and a down the hall restroom, are rising to the surface as key accommodation elements. We print for the office lists or send reports or download when there.

5 years ago Log in to Reply
Sally Numrich

I don’t share with anyone except when I am in a clinical study or if I send reports to my medical team. I just do everything myself & with alarms & a pump that turns off, no one worries about me being alone anymore.

5 years ago Log in to Reply
Jneticdiabetic

When I wore a Dexcom CGM I shared real time with my husband for a bit. Mostly for low blood sugar back up duty when one of us was traveling. Started jokingly calling him “Inspector Glucose” though when my CGM alarms started getting followed by texts from him asking if I was doing anything about it. I love him for watching out for me, but I already think about my diabetes 24/7 and the alarms plus texts provided to be too many reminders. I diabetic gal’s gotta get some work done! With my Medtronic 670G, I can’t share. I do rely on him overnight when I tend to sleep through my CGM alarms. God bless him for that! My mom is also a T1D and we sometimes share our Carelink reports to troubleshoot or for friendly time in range competitions. Also share my Carelink reports with my diabetes care teams ahead of appts.

5 years ago Log in to Reply
Molly Jones

I share my dexcom app with my husband and neurologist, and my dexcom account with my Endo and with my neurologist.

5 years ago Log in to Reply
Julian Reeves

I share my results with my endocrinologist.

5 years ago Log in to Reply