Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 13 hours, 58 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 20 hours, 59 minutes ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 21 hours ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 21 hours, 10 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 21 hours, 10 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 21 hours, 18 minutes ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 21 hours, 31 minutes ago
      Gary R. likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 22 hours, 7 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 22 hours, 7 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 22 hours, 7 minutes ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Novo has an uninsured discount for their unbranded “insulin degludec.” I pay $35 for 3 boxes of pens (90day supply). That breaks down to less than $12 per month.
    • 1 day, 1 hour ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 4 hours ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 14 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 16 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 16 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 16 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 18 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 18 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 18 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 19 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 20 hours ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 1 day, 22 hours ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 2 days, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    If you use an insulin pump, when do you change your infusion set after getting a “no insulin delivery” alarm?

    Home > LC Polls > If you use an insulin pump, when do you change your infusion set after getting a “no insulin delivery” alarm?
    Previous

    If fasting during a holiday is part of your religion, do you participate? Please explain in the comments.

    Next

    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 5 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 7 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 2 weeks ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 4 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 1 month ago 11 min read  

    27 Comments

    1. Kathy Morison

      T1d exchange you need to fix your website! The email that comes asks a question but when you get to the site it’s asking a totally different question. Plus I haven’t received one of these questions in a week or so.

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        Me too. I’m not getting emails with T1D Question of the Day anymore. It’s been several weeks.

        2 years ago Log in to Reply
      2. Shelly Smith

        My inbox has been empty of these questions for a while, now, too.

        2 years ago Log in to Reply
      3. Trina Blake

        Me to, it’s been a couple months since I got the questions in my email inbox. I looked forward to them. Now I goggle T1D exchange, get to the Unvio (?) home page for T1D exchange, have to click on site and I get a message (I think it’s404) and then get directed to the home page to get to the questions. In think the troubles started with the switch to Unvio – whatever that is.

        2 years ago Log in to Reply
      4. Anita Stokar

        I don’t know if it is my computer or if the problem I am having is with this website, but the whole question can’t be seen on my screen nor can everyone’s comments. This problem only happens with the questions from the T1D Exchange.

        2 years ago Log in to Reply
    2. Steve Rumble

      Two days since I started using Omnipod 5, so I have not yet encountered this problem! However, if it does occur I will likely contact my care team.

      2 years ago Log in to Reply
    3. Lawrence S.

      First, I consider where my infusion site is located, and how long it’s been in. What is happening at the time of the alarm? Am I just putting in an new cartridge? Am I putting in a new cartridge of insulin? Am I exercising? I check all parts, including the infusion set. If I find nothing, I clear the alarm, and allow the pump to work. If it continues to alarm, I change the infusion site. If it continues, I change the tubing. If it continues, I change the entire insulin and infusion set.

      2 years ago Log in to Reply
    4. Glenda Schuessler

      I haven’t experienced this alarm since beginning to use the Tandem x2 pump several years ago. Before that with the Accu-Chek pump I received them perhaps once a year or less over 20 + years of use.

      2 years ago Log in to Reply
    5. Brian Johnson

      I’ve been pumping for about 10 years (Omnipod Dash and previously Medtronic Paradigm) and have never had a “no insulin delivery alarm”.

      2 years ago Log in to Reply
    6. Clare Tuson

      The Omnipod no delivery alarm is a screeching sound that can only be stopped by deactivating the pod. There is no choice but to start a new pod.

      1
      2 years ago Log in to Reply
      1. Sue Martin

        I second this. The question doesn’t take into account the way Omnipod alarms.

        2 years ago Log in to Reply
    7. Gary Taylor

      Over the last 10 years or so (I’ve been on a pump for 17 years) I’ve never gotten a “no insulin delivery” alarm. My first alarm is when the pump thinks there are 5 units left in the reservoir. Then another at 2.5 units. The final alarm is at 0 units. However, I know from experience that there are 10 to 15 units left in the tank. Last night around 2:30, I got the “empty” alarm. I changed the set when I got up at 6:30. 95% of the time I change the set sometime after the “Empty” alarm.

      2 years ago Log in to Reply
    8. Meerkat

      This has never happened to me. I would probably just change the set.

      2 years ago Log in to Reply
    9. Jodi Greenfield

      I don’t have an infusion set with my pump – I use the OmniPod

      2 years ago Log in to Reply
      1. Anita Stokar

        I would think that the “infusion set” with your omnipod is the part that goes into your skin?

        2 years ago Log in to Reply
    10. Kristi Warmecke

      There are multiple answers for this question. First I clear the alarm and wait, hopefully this fixes it. If it alarms again, I’ll detach it and see if any insulin is flowing from the cannula , if there’s not I know what the issue is and get new tubing and cartilage , if that doesn’t fix it it’s time for a new site.

      1
      2 years ago Log in to Reply
    11. mojoseje

      I clear the error, then I disconnect the set from the site, deliver 0.5 units to make sure the tube is clear, reattach and it always works. It’s only happened a couple of times in 23 years.

      2
      2 years ago Log in to Reply
      1. KarenM6

        That’s a great idea to deliver half a unit to see what’s happening! I just had one of those, “why didn’t I think of that?!” moments! LOL 🙂

        2 years ago Log in to Reply
    12. Becky Hertz

      I don’t get (or haven’t seen in a long time) a “no insulin delivery” alarm. Since switching to TruSteel infusion set I’ve also not gotten an occlusion alarm. If I were to get one, I’d go through troubleshooting steps. Check to make sure insulin is going thru tubing, if moving site I check to make sure insulin is being delivered before sticking it in.

      1
      2 years ago Log in to Reply
    13. Sherrie Johnson

      Just got the alarm last week the problem was my set came loose. I’ve been on the pump for 34 years. I think this is only happened to me a couple of times

      2 years ago Log in to Reply
    14. Amanda Barras

      I change the set right away if its empty. I attempt one restart with an occlusion but if I get the same alarm again immediately following or if my BS is rising then I change.

      2 years ago Log in to Reply
    15. Trina Blake

      Back to the question of the day, ever since switching to TruSteel I haven’t gotten a no delivery alarm – not once and it’s been years (I used Connect-Detach before -the TruSteel under a different name)

      2 years ago Log in to Reply
    16. Karen Brady

      Tried to select both “wait” and “watch CGM.” I usually decide on a timeframe i.e. “I’ll wait two hours.” Exception was while pregnant, then I’d switch it out right away or give it a shorter time period.

      2 years ago Log in to Reply
    17. Chris Albright

      Can’t recall ever getting a no insulin delivery alarm (been lucky I guess)

      2 years ago Log in to Reply
    18. Anita Stokar

      I don’t get those types of alarms since switching to metal infusion sets

      2 years ago Log in to Reply
    19. PamK

      I do both, clear the error and watch my CGM. If my blood glucose is high, I will try to give a bolus, and then watch to see what happens.

      2 years ago Log in to Reply
    20. T1D4LongTime

      I take steps to determine why the error may have occurred. A bent cannula is only one reason. Sometimes, the cannula is just in a bad spot or there is minor bleeding with clotting around the cannula. A hot shower or exercise will increase blood flow correcting the problem. Tubing can also be twisted/bent where it joins the infusion set. Straightening it out and taping it down may clear the error as well. If it is only 24 hours before time for a new set, I will use extended/square boluses over 15 mins to deliver the insulin. Sometimes that is successful in getting the 3 days out of a site. If all else fails or I see blood around the site or in the tubing, then I change it.

      2 years ago Log in to Reply

    If you use an insulin pump, when do you change your infusion set after getting a “no insulin delivery” alarm? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]