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    • 2 hours, 43 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 2 hours, 43 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 2 hours, 43 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 11 hours, 8 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 12 hours, 57 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 12 hours, 57 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 12 hours, 57 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 18 hours, 50 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 18 hours, 50 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 22 hours, 48 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 22 hours, 49 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 22 hours, 49 minutes ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 23 hours, 3 minutes ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 23 hours, 24 minutes ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 23 hours, 30 minutes ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 23 hours, 31 minutes ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 1 hour ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 1 hour ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 1 hour ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 1 hour ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 1 hour ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 1 hour ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
    • 1 day, 1 hour ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 1 hour ago
      Gerald Oefelein likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 1 hour ago
      Gary R. likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
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    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.

    Home > LC Polls > In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more.
    Previous

    If you use an insulin pump, when do you change your infusion set after getting a “no insulin delivery” alarm?

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    Many people living with T1D also live with other autoimmune diseases. How many other autoimmune diseases do you live with? Share what they are in the comments.

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    11 Comments

    1. Molly Jones

      I would have chosen an answer of “No” if it were available but chose other.
      I searched for a list of eating disorders on the internet and found the PICA qualified.
      I had PICA, a desire for a non-food, for a short amount of time during my adolescence, fifteen years before my diagnosis of T1D. It was due to low vitamin B which was treated by injections.

      2 years ago Log in to Reply
    2. Jian

      No disorder just have little spurts at times of wanting to eat something sweet for a couple days which while it is satisfying is hard on my blood sugars. also find I get little spurts of wanting to eat salty snacks which lasts for a few days but considering 47 yrs of type 1. I think that all of us have these don’t we?

      4
      2 years ago Log in to Reply
    3. Dave Akers

      I’m actually a really good snacker! But not sure if that falls under “disordered eating”

      1
      2 years ago Log in to Reply
    4. Patricia Dalrymple

      Not a disorder I don’t think but right now I’m in the midst of seeing whether I need to eliminate tyranime from my diet. For the past 3 years I have been getting headaches on the left side of my face, neck, shoulders. I started eating nuts about that time. Boy, is avoiding THAT difficult! It eliminates many of my most beloved foods: avocados, nuts, chocolate, any and all condiments pretty much. But my headaches are lessening and go away faster. So far I’ve only gone 4 days max without one. But thankfully they are only about. 4 on the pain scale. More annoying than debilitating. Would love to hear any advice from other sufferers (this is probably some other post 🙄).

      2 years ago Log in to Reply
    5. Andrew Carpenter

      I forget to eat. Often times getting light headed before the “Oh Yea!” moment comes. I can’t smell at all and 90% of my taste is gone (TBI). After multiple surgeries and stage 3 (current) renal cancer, food doesn’t process the same. I gain lots of weight or lose lots and my diet & activity hasn’t changed. So eating for me has become an annoying requirement to live. Since I want to live I do my best to remember…
      Living alone with no friends or family within 130 miles…

      2
      2 years ago Log in to Reply
    6. Karen Brady

      For a few years when I was in college, I was omitting insulin in order to lose weight. It was really dangerous and scary.

      2 years ago Log in to Reply
    7. George Lovelace

      After 60 years and other stress in my life I think I am becoming addicted to Ice Cream, but I think I can handle it at 5 foot 6, 140-150 lbs.

      2 years ago Log in to Reply
    8. KarenM6

      Awhile ago, I purposely stopped eating breakfast because I was testing for “boots on the ground” BS increases… The doctor I had at the time seemed to ignore this phenomenon… they always thought my morning highs were food related (even after I told them I don’t eat breakfast).
      I never started eating breakfast back up and got into the habit of not eating.
      Then, I had to test my afternoon basals and was asked to not eat lunch for 3 or 4 days. After the testing was done, I just never picked the eating thing back up.
      I do eat lunch very occasionally, but it involves someone making me eat.
      I don’t like eating because it makes my blood sugar rise.
      But, I don’t think I can stop eating dinner. I don’t think I _want_ to stop eating dinner. The tremendous focus on post-prandial highs and hardly any on the 3 to 4am lows is interesting, though.

      2 years ago Log in to Reply
    9. Sherrie Johnson

      I said no, but I tend to forget to eat. I’m not hungry very often have to force myself like today. I had a yogurt now it’s 3 o’clock no lunch guess it’s a disorder at times. The only time I do have trouble with my blood sugar is when I eat Never seem to get the carb ratio right?

      1
      2 years ago Log in to Reply
    10. Amanda Barras

      Other than eating the wrong things, or too much of them sometimes. NO.

      2 years ago Log in to Reply
    11. Kim Murphy

      I usually only eat breakfast or Lunch or snack if my Blood Sugar is low. I rarely eat when I feel hungry because when I am hungry my blood sugar is higher than I want. I ear in response to low blood sugars even if I am not hungry. Is eating or not eating based on what your Blood Sugars are an eating disorder? My meals and snacks are not regular because I never know what my sugars will be during the day. By dinner time I usually eat because I can take insulin far enough in advance to keep them from rising too quickly and if they do I can get in the exercise bike and try to get them to come down.

      2 years ago Log in to Reply

    In addition to T1D, do you live with an eating disorder or disordered eating habits? Please comment if you would like to share more. Cancel reply

    You must be logged in to post a comment.




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