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    • 4 hours ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 5 hours, 57 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 13 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 12 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 14 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 21 hours, 56 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 21 hours, 56 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 21 hours, 59 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 4 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 6 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 6 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 7 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 22 hours, 42 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 22 hours, 54 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 6 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 6 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    If you use an insulin pump, how often do you keep unexpired backup long-acting insulin at home?

    Home > LC Polls > If you use an insulin pump, how often do you keep unexpired backup long-acting insulin at home?
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    41 Comments

    1. LizB

      I had refilled my Lantus prescription right before I was trained on my first pump 17 years ago. I didn’t have to open the vial because I still had some left in the previous one. I kept that unopened vial in my fridge for years. After I got my second pump I didn’t worry about having long acting on hand because I could go back on my older pump if needed. I have 2 old pumps that still work so I don’t feel the need to have long acting on hand. I have had to use an old pump twice.

      1
      11 months ago Log in to Reply
    2. Jim Andrews

      Since transitioning to pump therapy 15 years ago I have not kept long acting insulin on hand.

      11 months ago Log in to Reply
    3. Lawrence S.

      I used to have a vial of backup Lantus in my refrigerator. I never used it and it expired years ago. I have not reordered because it is expensive. I guess I should reorder another. I do have old pumps. That might be another option (although, they have been inoperative for years).

      11 months ago Log in to Reply
    4. Sherolyn Newell

      I haven’t had a prescription for long-acting insulin since I started using a pump. I never even thought about needing it until this question. My doctor never brought it up.

      11 months ago Log in to Reply
      1. ELYSSE HELLER

        I too never thought about keeping some long acting insulin on hand. But, as I use the Omnipod, if there is ever a problem, which there rarely is, I just put a new pod on.

        11 months ago Log in to Reply
    5. William Bennett

      The problem being “unexpired.” Otherwise I would have said “Always.” But I actually do have an old backup pump I could use too, so in the case of a breakdown (which I have had happen) I’d probably just use that.

      11 months ago Log in to Reply
    6. Larry Martin

      30+ years since I had long acting insulin. The worst invention EVER. It is nothing like the body produces and foreign substances cause it’s delay in action.

      11 months ago Log in to Reply
      1. Wanacure

        I thought the advantage of pumps is the steady use of GMO human (normal) insulin. Using long-acting in a pump is news to me.

        11 months ago Log in to Reply
    7. Kathleen Juzenas

      My nurse practitioner provided me with some but I only used it once when my pump broke down.

      11 months ago Log in to Reply
    8. Kathy Hanavan

      I have had a few pump failures over the years and since I had backup long acting available it was vital as one happened over a holiday weekend and I couldn’t get a new pump for several days.

      11 months ago Log in to Reply
    9. Bob Durstenfeld

      I do not keep back-up long-acting insulin at home, I do keep an insulin pen of FIASP for when I go HIGH and need a quicker ride back to normal than the 6-8 hours from Novolog.

      11 months ago Log in to Reply
    10. KCR

      This question reminded me to check the date on my backup insulins and request new ones as needed at my next appointment!

      11 months ago Log in to Reply
    11. TomH

      As a relatively new pumper (Dec, 2021), I haven’t had to face this question as yet: all my long acting is good for another couple of months. I’ll have to have the conversation with my doc at the next appt, and see if he supports maintaining a long acting supply over time as a backup mechanism to pump failure or return to MDI w/ both long- and short-acting insulins. In the meantime, I’ve got four flexpens of long-acting in the fridge….

      11 months ago Log in to Reply
    12. ELYSSE HELLER

      I only use rapid acting insulin for my pump, and always have unexpired vials of Novolog in my fridge.

      1
      11 months ago Log in to Reply
      1. TEH

        Me too.

        11 months ago Log in to Reply
    13. Germaine Sarda

      I keep a bottle of Lantus in the fridge because I use it rather than my pump for the days I kayak or go ocean swimming. I also like having it in case my pump malfunctions. The current one I have has had no issues but a couple of ones I’ve used in the past just suddenly died on me.

      11 months ago Log in to Reply
    14. Richard Wiener

      I don’t have long acting insulin

      11 months ago Log in to Reply
    15. Pauline M Reynolds

      My doctor prescribed Lantus at my pharmacy, and I can get it as soon as possible if the occasion arises.

      11 months ago Log in to Reply
    16. Melinda Lipe

      Oops, I had a pen for an overseas trip, and it’s still in my fridge at home, but probably has expired. Last trip I took, in country, I left all my insulin at home, went to Walmart for their R insulin.

      11 months ago Log in to Reply
    17. George Lovelace

      Started Pumping with Disetronic so I have Always had a backup Pump. never used long-term insulin since 1998

      11 months ago Log in to Reply
    18. Marcia Pulleyblank

      I had a problem and ran out of infusion sets. My pharmacy had changed its hours and was no longer open on weekends. For 4 days, I was injecting Novo-rapid at intervals, trying to keep my BG in range. It was not fun.

      11 months ago Log in to Reply
    19. Ahh Life

      Tresiba in refrigerator is dated August, 2021. In 26 years of pump usage, I have only had the pump paraphernalia fail so prominently that a back-up, Tresiba, had to be used.

      Likes? The new pens have needle sizes are far superior to the old ones that had all the capability of being used by veterinarians on horses.

      Dislikes? Pow. Boy, do these newer insulins pack a wallop. And they take 36 hours to do it. Beware. ( Ā“ļ½žļ½€ćƒ¾)

      2
      11 months ago Log in to Reply
    20. Janis Senungetuk

      My endo prescribed Tresiba (pen) as a backup in case of pump failure. After that first prescription expired I didn’t refill because of the cost. I have my previous Animas Vibe pump with infusion sets I could use if needed.

      11 months ago Log in to Reply
    21. Marty

      I haven’t in the past but due to an unreliable insulin supplier and a pump that just went out of warranty, my CDE and I decided it was a good idea to keep some Lantus pens on hand.

      11 months ago Log in to Reply
    22. Sasha Wooldridge

      I said rarely because if my dr doesn’t bring it up or insist, I don’t bother with it. I’ve had times where it’s been a hassle to get insurance to cover it and it seems wasteful, too.

      I’ve only had to use long-acting once because of a problem with my pump in about 15 years and I didn’t have any on hand at that time. It was relatively simple to get it called in before anything bad happened, although I recognize I’m lucky it happened during the day.

      11 months ago Log in to Reply
    23. Amanda Barras

      My long acting always expires before I can use it and then I throw it away 2 years past expiration when I assum it has to be completely useless by then. Usually just take regular injections of short acting every 2 hours while I await a replacement pump.

      11 months ago Log in to Reply
      1. Amanda Barras

        Also, in an extended emergency I would just go to Walmart and buy NPH to get me by. I hate the reactions I have to Lantus anyway.

        11 months ago Log in to Reply
    24. kristina blake

      I think it is probably a good idea to have lantus/levemir on hand. But my HMO plan won’t cover it – saying I don’t need it. If I did have a disaster (say, on a holiday weekend) I would probably go to WalMart for NPH – much as I hate that place.

      11 months ago Log in to Reply
      1. pru barry

        Having a backup seems like a no-brainer, but it’s also hard to justify because of the price. I used to think that the long acting insulin my dog used served its purpose as a back up for me, but his insulin is now one for veterinary use, and I’m not quite ready to use that for peace of mind :*}

        11 months ago Log in to Reply
    25. Brian Johnson

      I don’t keep long-acting insulin on hand. I have backup pumps, so would just switch if a problem arose.

      11 months ago Log in to Reply
    26. Carol Meares

      I have had expired long acting insulin that I got as a sample from my Endo over 3 years ago. My insurance company won’t let me have long acting because I am on a pump. I had to use it when my pump malfunctioned. I am now without backup. I am hoping to get a new sample on my next visit or perhaps have the doc write it up differently. I’m not sure what the problem is.

      11 months ago Log in to Reply
    27. Patpie58

      My husband uses long acting insulin, so there is always a supply in the house.

      11 months ago Log in to Reply
    28. PamK

      I know I probably should, but with insulins being so expensive I just get a script when necessary. This way, I have only had to purchase long-acting insulin three times since starting on a pump. I might have to go one night taking multiple injections of short-acting insulin, but to me the savings are worth it.

      2
      11 months ago Log in to Reply
      1. John Cleland

        I’m of the same mindset, and $$ always has a say in decisions made. Additionally, getting a health carrier to okay an rx that isn’t in line with your current treatment plan can be a tough get. Would love to have an extra insulin pump in case of emergency, but once again you run up against the insurance company wall–not to mention $$ I’d have to come up with to obtain the back-up pump. Additionally, any additional devices require mind numbing paperwork thrust on your tx dr (chart notes, Letter of Medical Necessity)…but hey this is the U.S. and we have the best of the best in healthcare amongst third world nations. No need for a logical system because there are too many in line to make a profit on a group of people–who have little to no recourse, but to pony up for necessary equipment and supplies. To paraphrase Chris Rock: “..there’s no money in a cure.”

        3
        11 months ago Log in to Reply
    29. Mig Vascos

      My Endo and NP always make sure that I have Lantus pens in case of a pump failure. So far in 10 years of pump usage that has never happened. Six months before they expire, I star passing them on to people I know use long lasting insulin in a daily basis so that they don’t go to waste.
      My prescription insurance covers them for a small copayment but the total amount goes to my Medicare part D allowance. They are not covered as my humolog under part B

      11 months ago Log in to Reply
    30. KarenM6

      I’ve had multiple pump failures… around 5 times. They _always_ (and I do mean always) happen late at night/early morning hours (2am is the usual) and at least once on a holiday weekend so that mailing of the replacement couldn’t happen for 2 days.
      Given that history, you’d _think_ I’d be smart and have backup long-acting insulin in my fridge… but, nope. I am not that smart. ;p
      I used to have cats who used long-acting insulin for humans which came in handy once.
      I hate wasting such an important medicine and most of the long-acting insulin I would house would expire before needing it. So, I don’t do it.

      11 months ago Log in to Reply
    31. Ceolmhor

      Oh, wow. I answered wrong. I read the question as “expired backup long-lasting insulin”. I said never, but now that I’ve read it correctly, I should have said “always”. Sorry.

      11 months ago Log in to Reply
    32. Randell Cole

      Never

      11 months ago Log in to Reply
    33. Robert Oliphant

      I just got a pen of Lantus for the first time.

      11 months ago Log in to Reply
    34. Marcie Dutton

      I’m allergic to Lantus so if my pump is down, I’m on Novelty shots every 2-3 hours to manage bgs.

      11 months ago Log in to Reply
    35. kj.mercer

      I believe my current backup may have just expired. I will ask for a new Rx at my next appointment, but if I needed to use what I had..,.I wouldn’t think twice about using a somewhat recently expired pen

      10 months ago Log in to Reply

    If you use an insulin pump, how often do you keep unexpired backup long-acting insulin at home? Cancel reply

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