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    • 45 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 45 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      My last hospitalization was in December 2020 after a delayed refill for my insulin put me in DKA. The worst part was that because it was at the height of Covid, my husband basically could only drop me off at the ER door. The hospital was less than ten minutes from our home, and it was only one night, but I may as well have been on the other side of the world.
    • 45 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
    • 45 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 46 minutes ago
      Robin Melen likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 12 hours, 15 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Amazing!
    • 12 hours, 15 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 12 hours, 16 minutes ago
      KarenM6 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Dang, now I jinxed myself 🙃
    • 15 hours, 20 minutes ago
      Bekki Weston likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 19 hours, 17 minutes ago
      Ahh Life likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      At 65yo, a T1D for 53 years and a pump user for 25 years I experienced what I own as a user error when my pump charger cord went bad and I miscalculated a manual shot. I awoke at 3am knowing I was going low and went to the kitchen to get some juice and remember noting after that until I awoke on the kitchen floor. I could not stand up and drug myself down the hall to get my phone. I called 911 and asked what time it was. It was 9am. I had broken my right ankle, fractured my left knee and torn the meniscus. Lots of lessons learned and after a month of rehab my family and I decided I could no longer live alone. Between T1D and being a fall risk I am in a senior assisted living. It’s not a bad ending but so many things go into our care. Prepare for your future and don’t be stupid!
    • 20 hours, 25 minutes ago
      Bill Williams likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 20 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 21 hours, 47 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 56 years of T1D (34yrs of injections up to 5 / day), my buttocks have some scar tissue. The description of lipohyertrophy doesn't match with my scar tissue. I don't have hard lumps, just areas that feel firmer under the skin. I also have more problem with sunken spots (atrophy) in my 'favorite' injection spots. Dealing with it is basically trying to avoid those spots. If a site is not absorbing, I take a hot shower or do moderate exercise to increase blood flow to the area. BGs will plummet though so I have to be cautious. I also started using alternative infusion sites and also have considered a variable angle infusion set, but have not yet tried it.
    • 21 hours, 48 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I started to but then switched to my upper thighs and am able to rotate over a much greater surface area.
    • 21 hours, 48 minutes ago
      T1DGJ likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
    • 22 hours, 12 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      The only time I have been hospitalized due to T1D was in 1970 when I suffered a diabetic hyperosmolar coma, due to ketoacidosis resulting from undiagnosed T1D. I was young and just back from an assignment to Korea in the USAF. I new something was wrong with me, but did not know what and I wanted to visit my family before exploring my issues through the USAF medical services.
    • 22 hours, 12 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Last time I was in the hospital due to diabetes was within 6 months of first starting on an insulin pump. Approximately 32 years ago
    • 22 hours, 12 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      No, I have not been hospitalized in the last three years, it has been 67 years since I’ve been hospitalized for diabetes related issues.uu
    • 22 hours, 12 minutes ago
      Greg Felton likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      I’ve never been hospitalized because of T1D other than when the endo started me on insulin on 1973 to learn about injections and diet.
    • 22 hours, 22 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      In 72 years with T1D I have been hospitalized once -- 1984 when BG got so low that my internal body temperature went from 98.6 to 93. That is the coldest I have ever been in my life, colder than 30 below 0 Fahrenheit in Midwest winters, cold Alps at 9,000 feet, and cold western US Ski areas at 9,000 feet. Brain does a wonderful instinctive thing at low BG to try to keep it's functions working so that you don't die. Thanks, brain.
    • 22 hours, 23 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      So gratifying to see so many "no" responses, way to go everyone!!
    • 22 hours, 23 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      First time two years ago when I was diagnosed with T1D! Was in DKA and had no idea why I was so sick. Six days! Second time just overnight when I couldn't get my sugars down (I was still in that early learning phase). And at least one stop of a couple of hours at the ER - same reason - high sugars I couldn't figure out. Luckily I seem to have all figured out now! Whew!
    • 22 hours, 23 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 22 hours, 24 minutes ago
      Janis Senungetuk likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      Labor Day weekend 2022 I was admitted to the hospital for passing out in a hotel bathroom. My blood sugar was over 400, so they had me on an insulin drip. I hit my head when I fell so they gave me a ct scan and found 3 cysts and a huge shadow the size of a baseball in my head. After they got my sugar under control they transferred me to a larger hospital with an MRI machine. Found stage 4 brain tumor. So had to have emergency surgery that Wednesday. Let’s just say the next 4 months was extremely stressful for me & my husband. I am on the mend now & hopefully my next mri will be stable or all clear! 🤞🤞
    • 22 hours, 25 minutes ago
      jo likes your comment at
      In the past three years, have you been hospitalized due to T1D?
      After my preliminary stay at Joslin in 1954, I've never spent time in a hospital because of having diabetes. A few other times for things like tonsils and babies, but I've been very lucky, and very healthy. Very grateful!
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    If you use a CGM, on a scale of 1-5, how satisfied are you with the accuracy of your CGM?

    Home > LC Polls > If you use a CGM, on a scale of 1-5, how satisfied are you with the accuracy of your CGM?
    Previous

    If you had T1D as a child, at what age did you start to manage your daily insulin doses mostly on your own? If you have a child with T1D, at what age did they start to manage their insulin doses mostly on their own?

    Next

    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    39 Comments

    1. Chris Albright

      Every once in a while I get a sensor that never stabilizes over time and is not ‘trustworthy’. This is probably less than 5% of the sensors inserted.

      3
      2 months ago Log in to Reply
    2. ELYSSE HELLER

      I often have to pair attention to my symptoms of hyperglycemia rather than the sensor readings. There have been times when I just fineshed a meal and I keep getting low blood sugar alerts. I then use my blood glucose machine and the results between the sensor and the blood glucose machine are not even close. It’s very frustrating. I have calibrated a few times but that is a long time consuming process as you have to do it often and within a certain time frame. Who has time for this?!

      2 months ago Log in to Reply
    3. Jane Cerullo

      Use Dexcom G7. I checked satisfied. I think it’s pretty accurate but loses connectivity daily so not very satisfied.

      2 months ago Log in to Reply
      1. Lawrence S.

        Jane,
        I saw my Endocrinologist last week and asked her about the G7. She said that it does not connect to the pump yet. (?)

        1
        2 months ago Log in to Reply
    4. Nevin Bowman

      I supposedly use the most accurate CGM, but it is routinely far beyond 15% different from a finger stick even when calibrations are advertised as not required.

      2
      2 months ago Log in to Reply
      1. William Bennett

        Again, it’s worth noting that glucometers themselves are not all created equal. The required accuracy is like +/- 15 % of the reference value and not all of them meet even that standard:

        https://www.diabetestechnology.org/surveillance.shtml

        1
        2 months ago Log in to Reply
    5. Gary Rind

      far too many times I have to verify my Libre2 with a fingerstick, very disappointing

      2 months ago Log in to Reply
    6. Lawrence S.

      On a scale of 1-5, I said, “Very Satisfied.” 🙂
      Honestly, I don’t do finger sticks to check my CGM accuracy. About the only time I do finger sticks is the during the two hour warm up for a new sensor. I have trusted that my Dexcom G6 reading are accurate, and have been very pleased with the results. My recent A1c was 5.4. Things are going well with my Tandem X2 pump and Dexcom sensor system.

      2
      2 months ago Log in to Reply
    7. Barbara Bubar

      I’m sure this is something that is just one-of-those-things that varies from person to person. I am not thrilled with the arrows on the Dexcom, LOL…an arrow can be straight at 75 and 3 minutes later I’ll be 56. The sudden drops are frustrating. YES, much easier to live life with a CGM than without!!

      3
      2 months ago Log in to Reply
    8. beth nelson

      I learned recently that taking high-ish doses of vitamin C can make my CGM inaccurate. I had started taking 1000 mg/day about 2 months ago (pretty hit and miss), and as soon as I quit, things stabilized. GO figure! I knew that Tylenol would do it. Does anyone have another med or supplement that messes up their CGM readings?

      1
      2 months ago Log in to Reply
      1. William Bennett

        I believe the Tylenol warning has been ameliorated to “Don’t take more than the recommended amount” since the G6 but I still avoid it. I don’t want to give the thing any excuse to screw up.

        1
        2 months ago Log in to Reply
    9. Amanda Barras

      Dexcom G6 – Very satisfied!
      I know the G7 has a smaller profile but I’m in no hurry to upgrade.

      2
      2 months ago Log in to Reply
    10. William Bennett

      Been using Dexcom CGM since the G4 and it has steadily improved. It’s still not perfect, measured against fingersticks, but I’m “satisfied.” Flakiness in the first 24 hrs of a sensor is still a thing, though to some degree ameliorated by the practice of “pre-soaking” (inserting your new sensor 12-24hrs before the expiration of the previous one). This is particular concern as more people move into using CGM-connected AID systems.

      it’s also important to note that we think of our consumer BG meters as the fact-checkers for our CGMs, but depending on the model they can be pretty far off too. IIRC they are only required to be something like 80% accurate to clinical measurements, and if you ever do two fingersticks at the same time, like one on each hand, they aren’t going to match exactly either. When I’ve done this just for kicks I’ve seen them be as much as 10-15 points off from each other. Which may also reflect the fact that glucose isn’t distributed perfectly evenly throughout your metabolic system.

      Having a specific number for a thing creates an impression of pinpoint accuracy that isn’t a fair reflection of reality. This is why actual scientific results have error bars.

      5
      2 months ago Log in to Reply
      1. Donal Conway

        I am using Dexcom 7 for the last 6 months or so, I am fairly satisfied but sometimes I find readings a bit too different compared to some finger prick I do at least once a day mainly before I go to bed so if its more than 1.5 mmols of a difference on my Dexcom 7, I realign the Cgm reads.

        1
        2 months ago Log in to Reply
    11. Marty

      I’ve been very lucky to have accurate, consistent results from my Dexcom G6 sensors throughout their 10-day lifetime. I say “accurate” because fingerstick results from separate fingers usually vary more than the difference between CGM results and fingerstick results and because my CGM results line up very well with lab results. Such a gift in terms of peace of mind!

      3
      2 months ago Log in to Reply
      1. sweetcharlie

        oppisite with me..

        2 months ago Log in to Reply
    12. Sherolyn Newell

      I am on my second G7. The first one worked great. The 30-minute warm-up time is wonderful. This second one had to be calibrated, by a lot. Its first reading was around 50, but meter gave me back around 150. That was yesterday, it was reading comparably to the meter this morning.

      2 months ago Log in to Reply
    13. George Rich

      The Control IQ algorithm requires the pump receiving accurate data from the Dexcom G6. Well, the G6 sensor is ,more often than not , significantly inaccurate during the first 12-24 hours when the readings are compared to a BG meter (Contour Next).

      1
      2 months ago Log in to Reply
      1. Lori Lehnen

        CGM inaccuracies during the first 12 hours are one reason I haven’t switched to a pump. There’s been 2-3 times during the first 12 hours of a sensor when I feel I’m going low and a finger prick confirms it, but my sensor says I’m at 200. I always think how dangerous it would be to have an AI controlled pump under that circumstance. It only has to happen once for it to be a disaster. I would be interested in hearing how pump users avoid this.

        1
        2 months ago Log in to Reply
      2. Marty

        I agree that CGM inaccuracies could mess up insulin deliveries from a linked pump. Luckily the link can easily be turned off temporarily so the pump uses preset basal and bolus settings if you have concerns about that.

        2 months ago Log in to Reply
    14. Sue Martin

      I’d just like to remark that the scale that is given is not a 1-5 scale, there are 7 options. so is that a 1-7 scale?

      2 months ago Log in to Reply
    15. TEH

      After changing from Minimed G3 to Dexcom 6 in February, I am shocked how bad the Minimed sensor was. The minimed sensor was off by 10 to 15 after my morning coffee. During the day it was high or low by 6 to 8 regularly. The minimed control loop couldn’t keep up with all that error. Its like driving a ox cart with rope verses power rack and pinion steering.
      The T:slim keeps up and has large error correction bolises with high sensor readings and brings the level back down.

      2
      2 months ago Log in to Reply
    16. Thomas Brady

      Failure rate on new Dexcom sensor is 25% on internet comments. Mine hit that number easily. Yeah, Dexcom replaces them but what a pain! I am waiting for the G7 but my endo told me that Tandem does not yet have the software done to have the G7 communicate with the pump. This would be a step BACKWARDS for me. I guess I’ll just have to wait. I would have thought that Dexcom and Tandem would have been talking in advance of the US rollout of the G7 so it could proceed without a software delay – I guess not.

      2 months ago Log in to Reply
      1. Becky Hertz

        Can’t study if FDA hasn’t approved it yet.

        2 months ago Log in to Reply
    17. Janis Senungetuk

      With the exception of the first 12 hours after sensor insertion I’m satisfied with the Dex G6 accuracy. The trend arrows tell me more than the numbers.

      3
      2 months ago Log in to Reply
    18. Trina Blake

      I’ve been dexcom-ing since the old Dexcom 7 days! Currently usiong the G6 on my TandemX2 pump, using BIQ (CIQ target is too high for me – my target is 80 bg). Anyway, I only fingerstick during the warmup times. Prior to CGM I was a 15-20x a day fingerstick person (I checked the usual times as well as before and after strenous physical activity and every time I was going to drive. – when I was working, I was among first respnders and too many car accidents caused by impaired drivers). Anyway, I was having major bg crashes way too often. This was when there was an obligatory fingerstick when altered to impending lows/highs.
      My CGM would alert to a pending low, I did the fingerstick and the meter said anything from 150 – 250! So of course I did a correction bolus. The last thing I needed. The CGM was right. I had the good fortune to be invited to an Endo CME and one of the topics was the issue of accuracy in home glucose monitors. Turns out the meter covered by my health plan (the one that I was using 15+ times a day) read higher than actual on people who have chronic anemia. So I grabbed the hard copies of the reports, learned about the issue with my covered meter. Did my own study, purchased the highest rated meter, and using the same blood sample compared the highest rated meter, the covered meter, and the CGM. Learned that the CGM and highest rated meter were within a few points of each other. Stopped using the covered meter, and now dose from my Dexcom G6. Haven’t had a major crash in years.

      3
      2 months ago Log in to Reply
      1. ConnieT1D62

        Great self-directed research!

        1
        2 months ago Log in to Reply
    19. Becky Hertz

      Dexcom g6 is great for trends for me, although I usually do a finger stick after warm up as well as double check lows (often not reading as low as I am and not within 20%). Overall, better than fingerpicks all day long.

      3
      2 months ago Log in to Reply
    20. Joan Fray

      A lot better than the alternative. Started with chemistry set in 1962. Love all the progress!

      4
      2 months ago Log in to Reply
      1. Ahh Life

        Since I took started boiling test tubes at age 4, I have always loved chemistry. Except until I took my first organic course and switched majors. Oh, well.

        2 months ago Log in to Reply
    21. Chrisanda

      I checked “very satisfied” with my Dexcom G-6. However, the “compression lows,” which happen at night, are a pain. And I usually do a fingerstick when it reads low, since many times it’s not an accurate low, and I’ve overcompensated in the past.

      2 months ago Log in to Reply
    22. ConnieT1D62

      Very happy and satisfied with Dexcom G6 and Tandem CIQ. Have lived with T1D in my body for over 60 years and am grateful for the AI advances in beta cell function technologies that make life with TID more manageable and so much easier to live as we grow older and wiser. Love it that Tandem system is designed to be upgraded and integrated with Dexcom as more precise AI changes come down the pike.

      1
      2 months ago Log in to Reply
    23. mbulzomi@optonline.net

      When I have calibrated my Dex, all was within 5 mg/dl.

      2 months ago Log in to Reply
    24. Jen Farley

      Dexcom is the best unless I get blood in sensor.

      2 months ago Log in to Reply
    25. Francisco Varea

      Hey, switch to Dexcom recently and it’s fantastic

      2 months ago Log in to Reply
    26. fletchina

      I could be imagining it, but since my supplies are no longer coming from Dexcom, I’ve had more sensor errors and time where there is no reading and I get a message to wait x hours and do. Or remove the sensor.

      2 months ago Log in to Reply
    27. Steven Gill

      Used the GUARDIAN (Medtronic) and appreciated it, now utilizing the Libre3. The Guardian always read a little lower than finger sticks, Libre a little higher. Reading the FDA standards, realizing anything made by people is bound for imperfections I’m happy. I clicked “5,” The CGMs gives graphs, trends, statistics, and alarms. To me the alarms are more important than perfection.

      2 months ago Log in to Reply
    28. ChrisW

      The FDA spec for device type QBJ, the Dexcom G6 and G7, for accuracy says, among other things, “) For all iCGM measurements from 70-180 mg/dL, the percentage of iCGM
      measurements within +/-40% of the corresponding blood glucose value must be
      calculated, and the lower one-sided 95% confidence bound must exceed 99%”

      I’d rather see the FDA holding them to +/- 15% and the confidence bound include upper and lower limits and exceed 99%.

      2 months ago Log in to Reply
    29. Jim Cobbe

      Dumb scale; what does satisfied mean? that it is within 3 standard deviations of the result from a home or lab meter? And how are you expected to even know what the expected SD is for a lab result? One sixth of the ‘normal range’ shown on the report? And how are you supposed to compare the two results anyway when it gets below the presumed ‘normal’ where the actual range is not distributed as usual but stops at zero? At least to me, it is not clear what the question means so I answered ‘neither’ (mid point), although you could also argue for ‘very satisfied’ because I continue to use and rely on the CGM and the eyeball distribution of deviations from my home meter appear to be pretty random and fall within reasonable deviations. Whatever that means.

      1 month ago Log in to Reply

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