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    • 4 hours, 43 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      I oftentimes give myself a little insulin for when I go unplugged while changing pods, depending on what my current sensor reading is.
    • 4 hours, 43 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Always, until I began to increase the "cannula fill" amount. I found I need a good bit more than the (1.3u) to "prime the site" to have the next blood sugars be in goal. Just remember "every body is different". Darn than OmniPod does not let you change that amount, have to use "fake carbs". Something to consider.....
    • 4 hours, 44 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      At the risk of being overly simplistic, it boils down to: "Heads, you lose. Tails, You lose." ╰── ──╮
    • 4 hours, 44 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 4 hours, 44 minutes ago
      KarenM6 likes your comment at
      How well do you understand the details of your health insurance coverage?
      "Slightly," I think, maybe. Insurance companies change their policies, constantly. Prescription coverage changes every time I look at it. Medicare is a huge question mark. Honestly, Health insurance has become a big money making business, for them. I get different answers every time I call, depending upon whom I am talking with. I say it's time for socialized medicine.
    • 4 hours, 44 minutes ago
      Lee Tincher likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 8 hours, 59 minutes ago
      KSannie likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      **cannula
    • 15 hours, 17 minutes ago
      Kathleen Juzenas likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I find a using the T-Connect app I have the main features needed, CMG, bolus, battery level and remaining insulin.
    • 16 hours, 9 minutes ago
      Kathy Hanavan likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 19 hours, 11 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 19 hours, 11 minutes ago
      TEH likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Sometimes, which makes sense to me. It seems like it takes a while til the new insulin is absorbed.
    • 19 hours, 19 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      There are certain areas on my body where the insulin is more effective than others.
    • 19 hours, 21 minutes ago
      atr likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 19 hours, 33 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      Mostly pump because I want to quickly see insulin on board. Tandem on IPhone when holding my great-niece while she sleeps since getting my pump out of my pocket always wakes her ☺️. Dexcom app if not in need of insulin.
    • 19 hours, 33 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      usually the pump; sometimes my phone.
    • 19 hours, 34 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump (Tandem X2). Since I have to carry a work phone close to 247, I don't want to deal with two phones (device overload!). As I go about my day, looking at my pump meets my needs, I can decide to bolus etc - and edit the bolus. For more in depth data review and analysis, I use the TConnect.
    • 19 hours, 34 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      I read it from my pump.
    • 19 hours, 34 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      On my insulin pump
    • 19 hours, 34 minutes ago
      Lawrence S. likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump. Keep it simple.
    • 19 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      Do you realize what you have just said: "Obscurantism, gobbledegook, and pointillism used not as an art form but as a 'Gotcha!' of legal/financial determinism?"
    • 19 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      How much of this is intentionally misleading? My mail order prescription service says that can’t possibly know the cost of a medication until after it’s been shipped, which is too late to cancel or return, of course, and makes it impossible to comparison shop.
    • 19 hours, 40 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      I have an MA in writing and lit, but gobbledegook is gobbledegook. The fancy term is obscurantism.
    • 19 hours, 41 minutes ago
      Lawrence S. likes your comment at
      How well do you understand the details of your health insurance coverage?
      They change all the time. Generally not in a direction to improve my health, but to increase the money in their wallet.
    • 19 hours, 55 minutes ago
      Lawrence S. likes your comment at
      When you change your insulin pump site, do you tend to notice a spike in your blood glucose levels afterward?
      Usually the opposite. Fresh insulin sometimes sends me low.
    • 1 day, 17 hours ago
      Sarah Berry likes your comment at
      If you use a continuous glucose monitor (CGM), where do you prefer to view your CGM readings?
      My pump
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    If you or someone in your immediate family has T1D, has the rest of your family been tested for T1D antibodies? If no, do you think your immediate family would be willing to be tested for T1D antibodies?

    Home > LC Polls > If you or someone in your immediate family has T1D, has the rest of your family been tested for T1D antibodies? If no, do you think your immediate family would be willing to be tested for T1D antibodies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    27 Comments

    1. Bob Durstenfeld

      Antibodies are an interesting thing. My dad was the first to be diagnosed with T1D in 1930 at 18 months of age, I was diagnosed in 1956 at 18 months of age, my eldest son was diagnosed in 1988 at 8 months of age, his daughter was diagnosed at 18 months of age in 2019. How young should you check for antibodies?

      5 years ago Log in to Reply
    2. Beth Franz

      “Other” = I sent the link to information to my family – I believe they should be tested as there’s value in knowing and preparing and possibly slowing it down but they aren’t interested. If I had the opportunity to do this for myself you bet I would have!

      5 years ago Log in to Reply
    3. AimmcG

      Non of my family members have been tested and they will not be. There is no preventing getting Type 1 if you are predisposed. It’s not like getting tested for the breast cancer gene.so, IMO it’s not worth it. I want my kids to live full lives without the burden of knowing their fate. It will cause unnecessary anticipatory anxiety.

      5 years ago Log in to Reply
    4. AimmcG

      I might add, if the treatments that are being worked on now come to fruition then I will have my kids tested. Until then we will wait.

      5 years ago Log in to Reply
    5. Jeffrey Joseph

      Since my T1D was not autoimmune (onset age 28, unknown cause), there is minimal known risk to my children as it was likely not inherited by them. Most likely known cause: latent HSV2 virus destroying beta cells, stress.

      5 years ago Log in to Reply
    6. connie ker

      In my family, both father and mother carry the T1D diagnosis. However father was a juvenile T1D and I was 49 going through menopause and came out with LADA. Adult son diagnosed at 13 years, other adult son doing OK at the age of 34. How can these antibody tests be done on the other 5 offspring who would be step children from both sides?

      5 years ago Log in to Reply
    7. David Smith

      For me, it depends. What’s the cost of being tested? If it’s positive, what could someone do to lessen the odds of developing T1D (I didn’t come down with it until I turned 40)? And finally, how could I be sure that information wouldn’t ultimately get to health insurers and result in higher health insurance premiums for those with a positive test?

      5 years ago Log in to Reply
    8. Stephanie Richardson

      For a long time I thought it was pointless, I still feel that way about “finding the cure”. But I have been tested twice and my kids have been tested several times. My dad was type 1 (diagnosed in 1963 at age 21) and my oldest son has type 1 (diagnosed 2003 at age 4). My younger sons have been tested several times through the TrialNet study. When antibodies were found in my youngest son several years ago, then the point of it all was explained to me. The belief is that if it is caught early enough, with intervention, the impact of damage to the pancreas can be reduced resulting in diabetes that is ultimately easier to control. My youngest son hasn’t developed diabetes, and I would like him to be tested again, but prior to the pandemic I was told the study had lost millions in funding, so I imagine it could no longer be available.

      5 years ago Log in to Reply
    9. Amanda Barras

      Wanted to get my son tested, but he’s terrified of blood draws and freaks out screaming and crying each time. It’s not worth the stress even though I’d like to know.

      5 years ago Log in to Reply
    10. Germaine Sarda

      Type 1 for 47 years (and 6 others in my family). I would love for my son to get tested but he puts it off. He’s 27.

      5 years ago Log in to Reply
    11. Mick Martin

      I would, personally, prefer my siblings to be tested for antibodies … as I would my own children … but there is resistance from them as they would prefer ‘not to know’. They’ve seen the effects that diabetes has had on my body, and prefer to ignore that they MAY also be carring the antibodies that COULD see them in a similar situation.

      5 years ago Log in to Reply
    12. Lenora Ventura

      Both of my children have been but my brother has refused since the option was available.

      5 years ago Log in to Reply
    13. Scott Doerner

      I am the only one with T1, in entire family, and no children in family

      5 years ago Log in to Reply
    14. Megan W

      I choose “other” because I didn’t know that this existed. It is interesting, but as I’m the T1D, I don’t know how my parents or sibling would feel about it. I will mention it to them after I do some research.

      5 years ago Log in to Reply
    15. rick phillips

      I have asked that the grandchildren be tested. The parents will not do it. It frightrns me

      5 years ago Log in to Reply
    16. Donald Cragun

      I am an only child. My parents are no longer with us. I have not had any children. So, there is no immediate family to be tested.

      5 years ago Log in to Reply
    17. Thomas Hatton

      I selected other because my younger daughter is a no, while my older daughter with a son is yes. My brother and sisters are not interested either.

      5 years ago Log in to Reply
    18. Sally Numrich

      I have T1D and my husband and I both agreed it was a good idea and part of an ongoing clinical trial to test both our children. One came back with 2 antibodies and one with none. Both children are now adults and are very aware of symptoms and signs. We did watch our daughter very closely for a long time and I worried everyday. But now, I feel like diabetes is not as life threatening as it was when I was a child. I thank God everyday for my wonderful, supportive parents. They didn’t have any of this technology back in the day and they allowed me to live a normal childhood.

      5 years ago Log in to Reply
    19. Mary Ann Sayers

      I’ve tried to introduce the subject to my daughters, but neither of them are interested!!! Any ideas on how to convince them?

      5 years ago Log in to Reply
    20. Mary Ann Sayers

      PS: correct English: neither one IS interested.

      5 years ago Log in to Reply
    21. Kristine Warmecke

      After my brother’s dx. at 7 months old in 1972, I was just watched closely. When our other brother came along in 1978, he was watched closely, too. There were no testing back then. In Jan. 1982 I was dx. with T1D & in the 2000’s our youngest brother was dx. with T2D. When my oldest niece was dx at 23 months old with T1D, my SIL was pregnant with my middle niece. At her and my youngest niece’s birth, cord blood was taken for research. Middle niece has no antibodies and wasn’t in the study; my youngest niece is antibody positive and is in the study for the rest of her life or until she turns T1D.

      5 years ago Log in to Reply
    22. Tod Herman

      Apparently I live under a rock. I have never had anyone ever pose the question or idea to me. Both my folks are still around and I only have one sister, and I have had T1D for over 41 years. I am the only one in my immediate family and none of my grandparents or cousins (on both sides) have ever had T1D. Go figure.

      5 years ago Log in to Reply
    23. Alyne Branson

      My children were tested as part of a study until they were 18. Not been tested since.

      5 years ago Log in to Reply
    24. ConnieT1D62

      No, several immediate family members with T1 diabetes were never tested for T1D antibodies and have died from other causes unrelated to T1D. I am past childbearing years. Except for my 96 year old mother (who does not have T1D in her genetic make-up) my immediate blood line family is deceased except for a few second and third cousins. I have no idea if they are interested or willing to be tested for T1D. Neither my deceased brother nor I have any offspring.

      5 years ago Log in to Reply
    25. Becky Hertz

      My sister would have been tested for antibodies, but she was “too old” to meet the criteria.

      5 years ago Log in to Reply
    26. HMW

      My parents and my sister were tested when we took part in a study in the early 90s (a few years after my diagnosis). No one else in my family has type 1 diabetes, but there are other autoimmune diseases in the family. My (healthy) son has not been tested and I do not wish to test him.

      5 years ago Log in to Reply
    27. Andrea Rueff

      Some of my family has been tested for Diabetes. Only one sister has been tested but they are the one that actually sees a doctor regularly. Other than that the rest of my family hardly see a regular doctor.

      5 years ago Log in to Reply

    If you or someone in your immediate family has T1D, has the rest of your family been tested for T1D antibodies? If no, do you think your immediate family would be willing to be tested for T1D antibodies? Cancel reply

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