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  • Activity
    • 3 hours, 25 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 7 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 4 hours, 24 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 4 hours, 24 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 4 hours, 40 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 4 hours, 41 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 4 hours, 41 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 4 hours, 43 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 6 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 6 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 6 hours, 5 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 6 hours, 6 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 6 hours, 6 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 6 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 6 hours, 7 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 6 hours, 9 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 9 hours, 5 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 9 hours, 5 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 9 hours, 5 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 9 hours, 6 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 9 hours, 52 minutes ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 10 hours, 20 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 10 hours, 21 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 10 hours, 21 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 10 hours, 22 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    If you or someone in your immediate family has T1D, has the rest of your family been screened for T1D antibodies? If no, do you think your immediate family would be willing to be screened for T1D antibodies?

    Home > LC Polls > If you or someone in your immediate family has T1D, has the rest of your family been screened for T1D antibodies? If no, do you think your immediate family would be willing to be screened for T1D antibodies?
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    If you wear a pump and/or CGM, did you do a free trial of your current device before you officially committed to using it?

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    Have you ever rationed insulin (taken less than you needed in an effort to prolong your supply)? If so, how recently have you rationed insulin?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    22 Comments

    1. GLORIA MILLER

      I have only one son and he was screened about 3 decades ago. He would definitely be interested in being screened again. As I recall the results aren’t good but for a certain number of years.

      2 years ago Log in to Reply
    2. Joan McGinnis

      My daughter who also has T1D had her daughters tested, but my other daughter not diabetic will not have her children tested

      2 years ago Log in to Reply
    3. Beth F

      I did ‘other’ – No, and THEY are not interested and feel there is no point knowing.

      2 years ago Log in to Reply
    4. Sherolyn Newell

      I developed T1D after my sons were both grown. I tested positive for antibodies when I was diagnosed. There are no other family members with T1D. My sons have not been tested.

      2 years ago Log in to Reply
    5. Ernie Richmann

      What is the purpose of the screening for a person who already has an excellent lifestyle and gets a regular checkup including screening for diabetes?

      2 years ago Log in to Reply
      1. AnitaS

        If children get screened and test positive, there (are/will be) drugs that may help delay the onset of T1D by 2-3 years. That doesn’t sound like much, but since new treatments are always coming out that make better health outcomes, and the fact that having a child get diabetes at 10 yrs old rather than 7 yrs old is a huge difference for the child as their abilities to handle the disease mentally is much greater at the older age.

        3
        2 years ago Log in to Reply
    6. Bob Durstenfeld

      Diabetes is genetic in my family. My dad was the first, then me and two out of three younger brothers, then my eldest of three sons and most recently, my eldest son’s daughter.

      1
      2 years ago Log in to Reply
    7. Jneticdiabetic

      My sister was screened as part of the TrialNet study about 5-10 years after my diagnosis. Negative thank goodness. My parents were not screened based on their age. However, my mother was diagnosed with T1D later at the age of 57. Due to her age, she was initially presumed to have T2D. When the oral meds were not bringing down her blood sugars, we convinced her primary care doctor to test her autoantibodies. Clearly positive. I’ve always wondered if we had tested if we would have detected it earlier. I can also understand the hesitation by some to be tested. Testing positive for the antibodies does not guarantee that you will get T1D, or if you do, when. It would be a bummer to dread something unnecessarily.

      2 years ago Log in to Reply
    8. Mig Vascos

      I don’t know what the exact requirements are for screening, but my family has shown no interest in doing this.

      2 years ago Log in to Reply
    9. Steve Rumble

      My daughter had gestational diabetes so might have been screened, my wife was also T1D, my son might be interested.

      2 years ago Log in to Reply
    10. Patricia Dalrymple

      Never had children and my brothers kids are grown and their children are older and show no signs of getting it. Hopefully, T1D began and will end with me.

      2 years ago Log in to Reply
    11. Yaffa Steubinger

      I have 4 grandkids and after 1 got T1, the other 3 were screened. One showed a likelihood of getting T1 and sure enough, he got it 6-9 months later. I feel bad passing that gene down but who knew??

      3
      2 years ago Log in to Reply
    12. Patricia Kilwein

      I have been screened but not other family members. Cost is the issue here.

      2 years ago Log in to Reply
    13. Chester Oby

      My daughter was screened and she had no antibodies. She is 21 and has no problems with diabetes so far.

      1
      2 years ago Log in to Reply
    14. Kristine Warmecke

      After my brother was diagnosed at 7 months old, I was watched closely until I became T1D in Jan. 1982; when our youngest brother was born he, too, was watched closely, he became T2D 10 or 15 years ago. My Mother became T2D a year or so after the youngest of us 3 was born. My Dad has been diagnosed as T2D, but denies it. smh After my T1D brother’s oldest daughter was diagnosed at 23 month’s old, her 2 younger sister’s had their cord blood tested at birth. The middle one is antibody negative but the youngest is antibody positive.

      2 years ago Log in to Reply
    15. Becky Hertz

      I know my family members would have been screened but we were all agreed out when they started the testing.

      2 years ago Log in to Reply
    16. Sue Payne

      I do not even know what this screening is …

      2 years ago Log in to Reply
    17. Greg Felton

      Kids were screened, but my sister has not. I don’t think she plans to, and I’m ok with her personal decision.

      2 years ago Log in to Reply
    18. PamK

      My children have both been screened. I don’t know if any of my siblings have been or not.

      2 years ago Log in to Reply
    19. Janis Senungetuk

      My daughter absolutely refused for herself and her three kids to be tested.

      2 years ago Log in to Reply
    20. M C

      My children are adopted so it doesn’t make sense for them to be tested. My brother and his adult children have absolutely no interest in ever being tested.

      2 years ago Log in to Reply
    21. Danielle Eastman

      N/A, we ALL had it before screening!

      2 years ago Log in to Reply

    If you or someone in your immediate family has T1D, has the rest of your family been screened for T1D antibodies? If no, do you think your immediate family would be willing to be screened for T1D antibodies? Cancel reply

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