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    • 1 hour, 34 minutes ago
      Kristi Warmecke likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 8 hours, 8 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 8 hours, 9 minutes ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 9 hours, 6 minutes ago
      Ahh Life likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 9 hours, 40 minutes ago
      Steve Rumble likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 9 hours, 48 minutes ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 9 hours, 49 minutes ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Read up on Eladon and Tegoprubart. You might be shocked at the lack of side effects. Although I’m interested to hear how long term goes in the next few years.
    • 10 hours, 5 minutes ago
      John Barbuto likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 11 hours, 5 minutes ago
      KCR likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 11 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 11 hours, 39 minutes ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 11 hours, 39 minutes ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 11 hours, 44 minutes ago
      TEH likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 5 hours ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 day, 6 hours ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 6 hours ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 1 day, 6 hours ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 1 day, 8 hours ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 1 day, 9 hours ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
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    If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years?

    Home > LC Polls > If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Joan Fray

      I can’t remember much about menopause and diabetes problems. All I remember is having extreme panic attacks. Lasted about threes months. My doctor at the time, 1992, put me on a low dose of Prozac and I was fine. Saved my life.

      1
      4 years ago Log in to Reply
    2. connie ker

      Wow, 20% were diagnosed with diabetes during menopause……that is truly a change of life! I was 49 years old at the time of diagnosis. I told the OB/GYN I was feeling lousy. He put me on birth control and my vision got blurry, so the hormones ran sugars high. I have been on insulin for LADA ever since. I always wonder if I would have gone through menopause naturally if I could have avoided the high sugars.

      1
      4 years ago Log in to Reply
    3. Anne Mueller

      I am really not sure when menopause was for me because my doctor always told me I was perimenopausal. Then at some point I realized I hadn’t had a period in over a year. I was using an IUD that had a small amount of a hormone in it that was supposed to prevent pregnancy. I never took anything else for it. It seems strange that no one ever actually told me that I was in menopause or that it was over. Did they think I would sue them or be inconsolable? Frankly once I realized it, I was relieved.

      4 years ago Log in to Reply
    4. Mary Ann Sayers

      I didn’t have a tough time going through menopause. Yes, insulin needs rebounded constantly, but at the end of it, my bgs were much easier to predict because I wasn’t dealing with hormone upheavals on a monthly basis. I was 55 years at the time.

      4 years ago Log in to Reply
    5. cynthia jaworski

      That happened during a time when there were lots of changes in insulins and diabetic treatments. So it is impossible to tell.

      4 years ago Log in to Reply
    6. Sherrie Johnson

      Less by 1/3. I used to have a total basal of 16 units now 10 units per day

      1
      4 years ago Log in to Reply
    7. Joan McGinnis

      I don’t know if I did or not. I don’t recall blood sugar changes that were even discussed related to menopause with me

      1
      4 years ago Log in to Reply
    8. Mary Halverson

      I was diagnosed at age 61 AFTER going through menopause.

      4 years ago Log in to Reply
    9. Sarah Berry

      I had a total hysterectomy 6 years ago, so instant menapause. I don’t remember any major differences in insulin needs.

      4 years ago Log in to Reply
    10. Sue Martin

      I had other health issues during that time, a kidney transplant, so I didn’t notice if menopause had an impact.

      4 years ago Log in to Reply
    11. Carol Meares

      Honestly, I don’t remember. I was on MDI and just gave myself insulin when needed. I did not run totals daily but just aimed at keeping in a good range.

      1
      4 years ago Log in to Reply
    12. kflying1@yahoo.com

      I can’t say, since my onset in my mid-50s was related to male menopause or just being burned out by the effects of my disease.

      4 years ago Log in to Reply
    13. Janis Senungetuk

      That was 24 years ago. Can’t be sure if I was experiencing a very bumpy glucose roller coaster specifically because of menopause or a combination with incompetent medical care. My MD at the time had little knowledge of T1 glucose management.

      4 years ago Log in to Reply
    14. Kristine Warmecke

      Mine chemically induced due t breast cancer, being normal positive.

      4 years ago Log in to Reply
    15. Karen Maffucci

      I did have significantly lower sugars during the night. However I did not use a CGM at that point. My CGM and paying better attention to my T1D has made a world of difference. I have a better handle on things. (62 years w/T1D)

      4 years ago Log in to Reply
    16. Pauline M Reynolds

      “Other” because I honestly can’t remember. I had LADA from age 46 and thyroid disease after that, so there were a mess of things going on.

      4 years ago Log in to Reply
      1. Kristi McAndrews-Litton

        exactly the same! HOT mess.

        4 years ago Log in to Reply
    17. Anneyun

      I chose “other” because I didn’t noticed any correlation. I didn’t know it was something to watch for.

      4 years ago Log in to Reply
    18. Donna Condi

      I don’t know one way or the other because I was not paying attention.

      1
      4 years ago Log in to Reply
    19. Miriam Gordon

      My basal profile has flattened out. The highest basal I used to have was double the rest of the time. If not more. Now highest is only 50% more.

      4 years ago Log in to Reply
    20. NAK Marshall

      It was before CGMs and drove me crazy testing and adjusting so often!

      1
      4 years ago Log in to Reply
    21. KarenM6

      It’s a constant roller coaster.

      4 years ago Log in to Reply
    22. Christina Trudo

      In perimenopause, I found I had a high spike about midway between periods when they were still regular. (Some reading suggested this might be a time my body was flushing eggs at a higher rate than usual during those years.)

      4 years ago Log in to Reply
    23. KSannie

      I just stopped having variations in insulin requirements during the various parts of the cycle. My insulin has remained more constant after menopause, and has really remained constant my whole life except when I was pregnant.

      4 years ago Log in to Reply
    24. James Phelps

      N/A

      4 years ago Log in to Reply
    25. Sue Herflicker

      I was diagnosed after menopause!

      4 years ago Log in to Reply
    26. Sue Compo

      I was diagnosed after menopause. (Age 62)

      4 years ago Log in to Reply
    27. Mick Martin

      N/A. I’m male.

      4 years ago Log in to Reply
    28. LizB

      Currently in perimenopause. Starting in late 2019 I had a sudden increase in my insulin needs overall. That then went down in 2021. I had my period in April 2021 and then nothing for 11 months but just got it again this month, March 2022 so the 1 year timer has reset. I found I needed a little more insulin while I had it this month but not a significant amount..

      4 years ago Log in to Reply
    29. Andrea J. Schedel

      I had a full hysterectomy at 43 and got to skip Menopause. I did not notice any changes in BG’s or increased insulin post surgery.

      4 years ago Log in to Reply

    If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years? Cancel reply

    You must be logged in to post a comment.




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