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    • 1 hour, 52 minutes ago
      KCR likes your comment at
      On average, how often do you pre-bolus before eating?
      I pre-bolus before eating unless (1) my glucose is already too low or (2) at a restaurant, where I wait until the food arrives, then bolus.
    • 1 hour, 52 minutes ago
      KCR likes your comment at
      On average, how often do you pre-bolus before eating?
      I pre-bolus almost every meal. But, I have to be very careful how soon. I find that with my gastroparesis, I often go low while, and after, I'm eating. However, if I wait until I eat to bolus, especially in the morning, my blood glucose goes VERY high. A lot also depends upon what my glucose numbers are before mealtime, and what my activity levels are.
    • 5 hours, 15 minutes ago
      lis be likes your comment at
      On average, how often do you pre-bolus before eating?
      I pre-bolus before eating unless (1) my glucose is already too low or (2) at a restaurant, where I wait until the food arrives, then bolus.
    • 5 hours, 15 minutes ago
      lis be likes your comment at
      On average, how often do you pre-bolus before eating?
      I pre-bolus almost every meal. But, I have to be very careful how soon. I find that with my gastroparesis, I often go low while, and after, I'm eating. However, if I wait until I eat to bolus, especially in the morning, my blood glucose goes VERY high. A lot also depends upon what my glucose numbers are before mealtime, and what my activity levels are.
    • 14 hours, 18 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you pre-bolus before eating?
      Yeah...The Pre-bolus...if I actually did this more often, I would be in much better control. It's my T1D Achilles' Heel.
    • 15 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      On average, how often do you pre-bolus before eating?
      Yeah...The Pre-bolus...if I actually did this more often, I would be in much better control. It's my T1D Achilles' Heel.
    • 1 day, 8 hours ago
      KCR likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      Only what is reported at conferences and covered by e-zines like DiaTribe.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How often do you feel informed about new therapies being studied for T1D?
      It's sometimes difficult shift through. I get a lot of spam redirections. I'm also only really interested in autoimmune type diabetes. Right now GLP-1 interest is all the rage. I'm not a candidate for those type of drugs. Funny how these drugs which became so popular with the rich people mostly non diabetic have taken over by all the drug companies.
    • 2 days, 9 hours ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 2 days, 10 hours ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 2 days, 10 hours ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 4 days, 4 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 4 days, 4 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 4 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 4 days, 4 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 4 days, 7 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 4 days, 10 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 11 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 4 days, 12 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 4 days, 12 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 4 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 4 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 4 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 4 days, 13 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 4 days, 13 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
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    If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years?

    Home > LC Polls > If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    30 Comments

    1. Joan Fray

      I can’t remember much about menopause and diabetes problems. All I remember is having extreme panic attacks. Lasted about threes months. My doctor at the time, 1992, put me on a low dose of Prozac and I was fine. Saved my life.

      1
      4 years ago Log in to Reply
    2. connie ker

      Wow, 20% were diagnosed with diabetes during menopause……that is truly a change of life! I was 49 years old at the time of diagnosis. I told the OB/GYN I was feeling lousy. He put me on birth control and my vision got blurry, so the hormones ran sugars high. I have been on insulin for LADA ever since. I always wonder if I would have gone through menopause naturally if I could have avoided the high sugars.

      1
      4 years ago Log in to Reply
    3. Anne Mueller

      I am really not sure when menopause was for me because my doctor always told me I was perimenopausal. Then at some point I realized I hadn’t had a period in over a year. I was using an IUD that had a small amount of a hormone in it that was supposed to prevent pregnancy. I never took anything else for it. It seems strange that no one ever actually told me that I was in menopause or that it was over. Did they think I would sue them or be inconsolable? Frankly once I realized it, I was relieved.

      4 years ago Log in to Reply
    4. Mary Ann Sayers

      I didn’t have a tough time going through menopause. Yes, insulin needs rebounded constantly, but at the end of it, my bgs were much easier to predict because I wasn’t dealing with hormone upheavals on a monthly basis. I was 55 years at the time.

      4 years ago Log in to Reply
    5. cynthia jaworski

      That happened during a time when there were lots of changes in insulins and diabetic treatments. So it is impossible to tell.

      4 years ago Log in to Reply
    6. Sherrie Johnson

      Less by 1/3. I used to have a total basal of 16 units now 10 units per day

      1
      4 years ago Log in to Reply
    7. Joan McGinnis

      I don’t know if I did or not. I don’t recall blood sugar changes that were even discussed related to menopause with me

      1
      4 years ago Log in to Reply
    8. Mary Halverson

      I was diagnosed at age 61 AFTER going through menopause.

      4 years ago Log in to Reply
    9. Sarah Berry

      I had a total hysterectomy 6 years ago, so instant menapause. I don’t remember any major differences in insulin needs.

      4 years ago Log in to Reply
    10. Sue Martin

      I had other health issues during that time, a kidney transplant, so I didn’t notice if menopause had an impact.

      4 years ago Log in to Reply
    11. Carol Meares

      Honestly, I don’t remember. I was on MDI and just gave myself insulin when needed. I did not run totals daily but just aimed at keeping in a good range.

      1
      4 years ago Log in to Reply
    12. kflying1@yahoo.com

      I can’t say, since my onset in my mid-50s was related to male menopause or just being burned out by the effects of my disease.

      4 years ago Log in to Reply
    13. Janis Senungetuk

      That was 24 years ago. Can’t be sure if I was experiencing a very bumpy glucose roller coaster specifically because of menopause or a combination with incompetent medical care. My MD at the time had little knowledge of T1 glucose management.

      4 years ago Log in to Reply
    14. Kristine Warmecke

      Mine chemically induced due t breast cancer, being normal positive.

      4 years ago Log in to Reply
    15. Karen Maffucci

      I did have significantly lower sugars during the night. However I did not use a CGM at that point. My CGM and paying better attention to my T1D has made a world of difference. I have a better handle on things. (62 years w/T1D)

      4 years ago Log in to Reply
    16. Pauline M Reynolds

      “Other” because I honestly can’t remember. I had LADA from age 46 and thyroid disease after that, so there were a mess of things going on.

      4 years ago Log in to Reply
      1. Kristi McAndrews-Litton

        exactly the same! HOT mess.

        4 years ago Log in to Reply
    17. Anneyun

      I chose “other” because I didn’t noticed any correlation. I didn’t know it was something to watch for.

      4 years ago Log in to Reply
    18. Donna Condi

      I don’t know one way or the other because I was not paying attention.

      1
      4 years ago Log in to Reply
    19. Miriam Gordon

      My basal profile has flattened out. The highest basal I used to have was double the rest of the time. If not more. Now highest is only 50% more.

      4 years ago Log in to Reply
    20. NAK Marshall

      It was before CGMs and drove me crazy testing and adjusting so often!

      1
      4 years ago Log in to Reply
    21. KarenM6

      It’s a constant roller coaster.

      4 years ago Log in to Reply
    22. Christina Trudo

      In perimenopause, I found I had a high spike about midway between periods when they were still regular. (Some reading suggested this might be a time my body was flushing eggs at a higher rate than usual during those years.)

      4 years ago Log in to Reply
    23. KSannie

      I just stopped having variations in insulin requirements during the various parts of the cycle. My insulin has remained more constant after menopause, and has really remained constant my whole life except when I was pregnant.

      4 years ago Log in to Reply
    24. James Phelps

      N/A

      4 years ago Log in to Reply
    25. Sue Herflicker

      I was diagnosed after menopause!

      4 years ago Log in to Reply
    26. Sue Compo

      I was diagnosed after menopause. (Age 62)

      4 years ago Log in to Reply
    27. Mick Martin

      N/A. I’m male.

      4 years ago Log in to Reply
    28. LizB

      Currently in perimenopause. Starting in late 2019 I had a sudden increase in my insulin needs overall. That then went down in 2021. I had my period in April 2021 and then nothing for 11 months but just got it again this month, March 2022 so the 1 year timer has reset. I found I needed a little more insulin while I had it this month but not a significant amount..

      4 years ago Log in to Reply
    29. Andrea J. Schedel

      I had a full hysterectomy at 43 and got to skip Menopause. I did not notice any changes in BG’s or increased insulin post surgery.

      4 years ago Log in to Reply

    If you have gone through menopause while living with T1D, how much did your insulin needs change throughout those years? Cancel reply

    You must be logged in to post a comment.




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