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    • 10 hours, 55 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      People keep sending me articles with headlines that suggest stem cell transplants “cure” diabetes. However, as mentioned above, a lifetime on immunosuppressive drugs carries its own risks that are probably worse than the risks of well-controlled diabetes. They’ll figure out a way to hide these engineered beta cells from our immune systems someday. I might be willing to call it a “cure” when that happens, although I’ll probably to too old to benefit by then.
    • 10 hours, 56 minutes ago
      TEH likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I am aware that cell therapies are being researched. This may be a panacea in the future. But, for me, red flags are waving. There are many possible dangers with these experiments. I only have this one life. There are no do-overs if something goes wrong, or if there are side effects. So, I tread carefully. Even with all the health issue that I have, I enjoy the one life that I have.
    • 12 hours, 38 minutes ago
      Janis Senungetuk likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 47 minutes ago
      Amanda Barras likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 13 hours, 56 minutes ago
      René Wagner likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I decided not to have kids when I was young enough to do so. I was too worried I may pass it to them, or their children.
    • 14 hours, 43 minutes ago
      Marty likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 40 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 16 hours, 41 minutes ago
      Lawrence S. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      I follow diabetic research rather meticulously. Most advancements are top-notch. But please take note of the risks and warnings. My spouse, on an entirely different issue (lower lumbar pain) injected umbilical stem cells one ago and has had intense headaches ever since.
    • 17 hours, 20 minutes ago
      KCR likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 17 hours, 55 minutes ago
      mojoseje likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 18 hours, 10 minutes ago
      Gary R. likes your comment at
      Are you familiar with cell therapies that are being developed to treat T1D?
      Taking immunosuppressive drugs creates a whole other risk factor.
    • 1 day, 11 hours ago
      Amanda Barras likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      I had two healthy pregnancies. The only issues were low blood sugars and my babies being born early other than that they are 38 and 35 years old, healthy children.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use them all. I use an app when I’m eating out. I use labels when at home. If not on the app I estimate.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I generally do a very rough guess of carbs and correct if needed by adding more insulin for an also rough guess for effect of fat and protein later. My alert is set at 130 to remind me so I don’t get too high. I watch arrows a lot. I have had individual sensors lately that are not accurate. This can throw me off, where the sensor reading will be going up fast at say 180 and I will test my blood and it is 130. Sometimes I will have already corrected for the 180. This can cause a very rough day having to feed the insulin. I am hoping sensors will continue to get more accurate. So much depends on it especially with the algorithm. I usually don’t wait for my algorithm to correct because it will let my bg get too high. I know I’m supposed to let the algorithm do its thing but my goals are more strict. I am on G7 and Omnipod 5. I would like to be able to set my target at 100.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I should have clicked the fourth option. I use the labels if available. If not, I estimate.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      We knew the risk was 50%. My wife miscarried 4x. We ended up with three great sons, only 1 has T1D. His eldest daughter (of 2) also has T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      If you or your spouse live with T1D and are thinking about having a baby, how concerned are you about them carrying T1D autoantibodies?
      47 years ago i had my pregnancies and didnt hear about her carrying T1D antibodies but i did have concerns about my child having diabetes. When she was about 12 there was a study to see her chance of developing diabetes ,this blood test was negative. 2 of my grandchildren have been tested and were negative . At the time of my pregnancies i had diabetes for 10 years
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      oh and this one...... when I see a new doctor they say... "let's get some blood work to see if you have diabetes" and I ask them... did you even read my intake forms that say I have had T1 D for over 40 years? ughhhhhh
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I use the nutrition labels as a starting point. For home made foods or for restaurant meals, my wife who was a nutritionist, helps come up with a carb estimate. Then there are times that I just have to take a wild ass guess. I have collected a list of over a hundred common foods that I eat and I keep that keep that list in a notes app on my phone right next to my T-slim app. I often check the nutrition labels for things on my list to see if the recommended carb levels for that item have changed. Then I adjust my list as needed. I also check my BG response to listed carbs I eat. I have adjusted some items over time. So, I would call this approach a hybrid. As Daniel Bestvater notes above, we are only controlling one item out of 6. Your mileage may vary.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      Not really trigger words as much as not understanding or even aware of the difference between Type 1 and Type 2.
    • 2 days, 5 hours ago
      Watertail likes your comment at
      When people talk about diabetes, are there trigger words that bother you? Please share what they are in the comments.
      And it's especially frustrating when HCP's ask about "checking your sugars? Be a professional dammit, ask about my "blood glucose"
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      I count carbs, acc. To Mabel if I have, look up nutrition for items, and estimate if needed. Used to always cook myself till this yr, now in apt where food is provided, so now looking up a lot to estimate. Going pretty well
    • 2 days, 5 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      Years ago I used to calculate out carbs with a scale & book. Then I realized it didn’t seem to make a huge difference. I had many discussions with an endocrinologist friend about this topic and we both found that highly accurate carb counting didn’t seem to make much difference. As long as you are in the ballpark. I think we need to realize the pancreas produces at least 6 BG regulator hormones and we are only injecting one, insulin. So we need to do our best but not stress over it. This is at least why 2 identical meals can result in two different BG levels.
    • 2 days, 6 hours ago
      Janis Senungetuk likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      It depends on the situation. At home I calculate carbohydrate with my scale. At restaurants it depends on if they have nutritional information available. If they don't have it, I estimate. The same with eating with other people's houses even while using my scale.
    • 2 days, 8 hours ago
      AmyM likes your comment at
      When you bolus for a meal, do you usually estimate carbs, use an app, or the nutrition label? Please share your habits in the comments.
      If I have a label I use it. Mostly I guesstimate then use the info the next time I eat the same meal. I am a big eater with no weight problem. When I go out, usually 2-3 times per week, I have to put in 90 grams of carbs, then add if not enough because I will go low before I go high. The other times, when eating at home, I eat less. Exercise is key. I just got back from 3 trips in 6 weeks. To Sicily, Boothbay Harbor, Maine, and to visit family in Baltimore. Only in Baltimore did I have issues with BG, because I wasn’t walking as much, although I did walk 1.5 miles most days. A1C when got home was 6.3. Time in range about 75%, down from usual 85%. I’ll take that. Not traveling for another year probably and will get back on track.
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    If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend?

    Home > LC Polls > If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend?
    Previous

    On average, how many units of insulin do you typically use in a day?

    Next

    For people who have experience with both an insulin pump and CGM: If you could only choose to use one of these devices, which one would you use? Share why in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Bill Williams

      I enrolled in college in 1969. Nobody running a college infirmary in those days knew much of anything about treating a”juvenile” diabetes.

      3
      4 years ago Log in to Reply
    2. Amy Schneider

      The college I ended up at was chosen because they had no idea how many T1Ds attended, as opposed to the one I was supposed to attend which required T1Ds to go to their infirmary 2x/day to get my shot. I’d been giving my own shots since I was 6. This all occurred in 1973.

      4 years ago Log in to Reply
    3. Melinda Lipe

      I went to nursing school in 1974 – there were no services for people with T1D at that time. I was the only one. I know our school nurse got me to the ER for severe hypoglycemia after an alcohol consumption event the night before. The normal insulins in use were NPH and Regular.

      1
      4 years ago Log in to Reply
      1. Kristine Warmecke

        I was one of 6 T1D’s when I began in 1988.

        4 years ago Log in to Reply
    4. Mary Dexter

      I was 48 when I was diagnosed LADA, decades after college.
      Whether one attended college should not be lumped in with when one was diagnosed.

      4 years ago Log in to Reply
    5. Kristine Warmecke

      No, I attended nursing school located at hospital. Dorm was at the hospital, also.

      4 years ago Log in to Reply
    6. Amanda Barras

      Honestly, in the 3 years I went I never used their healthcare facilities. Honestly, not sure I even knew where it was located on campus. I brought my stuff with me and tested and took insulin for meals with me. It’s better and so much easier to deal with stuff on the fly.

      4 years ago Log in to Reply
    7. LizB

      I was diagnosed at age 19 while already in school. My mother called the school while I was in the hospital to find out what they offered and the answer was basically nothing.

      4 years ago Log in to Reply
    8. Bob Durstenfeld

      I had T1D before college, I did not consider the student health facilities prior to admission, but the quality of care at UCLA was great.

      4 years ago Log in to Reply
    9. PamK

      I chose the college I went to based on the academic program I wanted, not the healthcare facilities. I did talk to the college about getting bedtime snacks and was directed to the cafeteria staff. I had to have a note from my endo stating what I needed and they provided food for me to snack on.
      I never went to the heathcare facilities for anything other than a fever or infection. I found an endo near the campus who I saw for my regular checkups when I couldn’t get home.

      4 years ago Log in to Reply
    10. Becky Hertz

      Went to college in 1978, I don’t think there were any T1D services offered at either university I went to.

      4 years ago Log in to Reply
    11. Janis Senungetuk

      No. In 1964 there was still urine testing and beef/pork insulin. I chose the school because of the quality of education offered.

      3
      4 years ago Log in to Reply
    12. Andrew Carpenter

      The Tech School and the College I went to had no services for diabetes care. I went to whatever schools that were close to my apartment. Back then it was solely up to me and my PCP to keep up with my diabetes healthcare.

      4 years ago Log in to Reply
    13. Mick Martin

      As far as I’m aware, the uni I attended had no facilities to support attendees that had diabetes. I’m not sure that they even had a nurse on the premises. Having said that, on one occasion when I was not well, I was given the opportunity to lie down on a couch in the Staff Room. On another occasion, when I’d lost consciousness, I ‘came round’ in the back of an ambulance that was transporting me to hospital.

      4 years ago Log in to Reply
    14. Gary Taylor

      I was a freshman in college when diagnosed. We had a nurses office that was open a couple of hours a day. I walked a few blocks to the local hospital to see a physician. It was OK but this was the mid 70’s with urine strips and NPH pork/beef insulin. I survived.

      4 years ago Log in to Reply
    15. Anthony Harder

      I was diagnosed with T1D in the mid-’60’s. I went to college in 1976. There was no such thing as services for people with T1D. I figured it out on my own, by myself.

      1
      4 years ago Log in to Reply
    16. Leon Ullrich

      In 1948, no school had such facilities for students with diabetes.

      1
      4 years ago Log in to Reply
    17. BOB FISK

      I went to both undergrad and grad school in the 70s, but at different institutions. Neither one had a health service that had any idea how to deal with a Type 1 diabetic. Grad school was at a university that had a large training hospital and I was finally able to talk my way into getting a referral to an endocrinologist. Even then, this was before home glucose monitoring, and control was pretty crude, consisting of multiple injections and HA1c testing.

      4 years ago Log in to Reply
    18. Abigail Elias

      The University I attended had almost no health care for any students; the only (part time) doctor was rumored to diagnose everything as either mono or ovarian cysts (including one woman’s pregnancy) and gave me a drug for bronchitis that caused me to hallucinate. I don’t think there was even a nurse in the clinic. I did not know any of this before I attended, but I also don’t recall medical care being readily available at any of the schools I applied to, so I had lined up an endocrinologist off campus on whom I relied both for my diabetes and for more general primary care if/as needed.

      4 years ago Log in to Reply
    19. Jan Masty

      No one but my friends ever even knew I had diabetes. My college experience was way before there were any special considerations given. I assume any of us long timers had the same non experience with that.

      1
      4 years ago Log in to Reply
    20. ConnieT1D62

      No. In 1971 I chose to go to a university with a great theatre and dance department after high school because that’s what I wanted to study back then. My choice of college had nothing to do with diabetes.

      4 years ago Log in to Reply
    21. William Schaffer

      When you are limited in the numbers os grad schools you can attend, it’s not a factor. Became T1 between undergrad and grad.

      4 years ago Log in to Reply

    If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend? Cancel reply

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