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    • 1 hour, 49 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 13 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 15 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 21 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 22 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 19 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend?

    Home > LC Polls > If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend?
    Previous

    On average, how many units of insulin do you typically use in a day?

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    For people who have experience with both an insulin pump and CGM: If you could only choose to use one of these devices, which one would you use? Share why in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Bill Williams

      I enrolled in college in 1969. Nobody running a college infirmary in those days knew much of anything about treating a”juvenile” diabetes.

      3
      4 years ago Log in to Reply
    2. Amy Schneider

      The college I ended up at was chosen because they had no idea how many T1Ds attended, as opposed to the one I was supposed to attend which required T1Ds to go to their infirmary 2x/day to get my shot. I’d been giving my own shots since I was 6. This all occurred in 1973.

      4 years ago Log in to Reply
    3. Melinda Lipe

      I went to nursing school in 1974 – there were no services for people with T1D at that time. I was the only one. I know our school nurse got me to the ER for severe hypoglycemia after an alcohol consumption event the night before. The normal insulins in use were NPH and Regular.

      1
      4 years ago Log in to Reply
      1. Kristine Warmecke

        I was one of 6 T1D’s when I began in 1988.

        4 years ago Log in to Reply
    4. Mary Dexter

      I was 48 when I was diagnosed LADA, decades after college.
      Whether one attended college should not be lumped in with when one was diagnosed.

      4 years ago Log in to Reply
    5. Kristine Warmecke

      No, I attended nursing school located at hospital. Dorm was at the hospital, also.

      4 years ago Log in to Reply
    6. Amanda Barras

      Honestly, in the 3 years I went I never used their healthcare facilities. Honestly, not sure I even knew where it was located on campus. I brought my stuff with me and tested and took insulin for meals with me. It’s better and so much easier to deal with stuff on the fly.

      4 years ago Log in to Reply
    7. LizB

      I was diagnosed at age 19 while already in school. My mother called the school while I was in the hospital to find out what they offered and the answer was basically nothing.

      4 years ago Log in to Reply
    8. Bob Durstenfeld

      I had T1D before college, I did not consider the student health facilities prior to admission, but the quality of care at UCLA was great.

      4 years ago Log in to Reply
    9. PamK

      I chose the college I went to based on the academic program I wanted, not the healthcare facilities. I did talk to the college about getting bedtime snacks and was directed to the cafeteria staff. I had to have a note from my endo stating what I needed and they provided food for me to snack on.
      I never went to the heathcare facilities for anything other than a fever or infection. I found an endo near the campus who I saw for my regular checkups when I couldn’t get home.

      4 years ago Log in to Reply
    10. Becky Hertz

      Went to college in 1978, I don’t think there were any T1D services offered at either university I went to.

      4 years ago Log in to Reply
    11. Janis Senungetuk

      No. In 1964 there was still urine testing and beef/pork insulin. I chose the school because of the quality of education offered.

      3
      4 years ago Log in to Reply
    12. Andrew Carpenter

      The Tech School and the College I went to had no services for diabetes care. I went to whatever schools that were close to my apartment. Back then it was solely up to me and my PCP to keep up with my diabetes healthcare.

      4 years ago Log in to Reply
    13. Mick Martin

      As far as I’m aware, the uni I attended had no facilities to support attendees that had diabetes. I’m not sure that they even had a nurse on the premises. Having said that, on one occasion when I was not well, I was given the opportunity to lie down on a couch in the Staff Room. On another occasion, when I’d lost consciousness, I ‘came round’ in the back of an ambulance that was transporting me to hospital.

      4 years ago Log in to Reply
    14. Gary Taylor

      I was a freshman in college when diagnosed. We had a nurses office that was open a couple of hours a day. I walked a few blocks to the local hospital to see a physician. It was OK but this was the mid 70’s with urine strips and NPH pork/beef insulin. I survived.

      4 years ago Log in to Reply
    15. Anthony Harder

      I was diagnosed with T1D in the mid-’60’s. I went to college in 1976. There was no such thing as services for people with T1D. I figured it out on my own, by myself.

      1
      4 years ago Log in to Reply
    16. Leon Ullrich

      In 1948, no school had such facilities for students with diabetes.

      1
      4 years ago Log in to Reply
    17. BOB FISK

      I went to both undergrad and grad school in the 70s, but at different institutions. Neither one had a health service that had any idea how to deal with a Type 1 diabetic. Grad school was at a university that had a large training hospital and I was finally able to talk my way into getting a referral to an endocrinologist. Even then, this was before home glucose monitoring, and control was pretty crude, consisting of multiple injections and HA1c testing.

      4 years ago Log in to Reply
    18. Abigail Elias

      The University I attended had almost no health care for any students; the only (part time) doctor was rumored to diagnose everything as either mono or ovarian cysts (including one woman’s pregnancy) and gave me a drug for bronchitis that caused me to hallucinate. I don’t think there was even a nurse in the clinic. I did not know any of this before I attended, but I also don’t recall medical care being readily available at any of the schools I applied to, so I had lined up an endocrinologist off campus on whom I relied both for my diabetes and for more general primary care if/as needed.

      4 years ago Log in to Reply
    19. Jan Masty

      No one but my friends ever even knew I had diabetes. My college experience was way before there were any special considerations given. I assume any of us long timers had the same non experience with that.

      1
      4 years ago Log in to Reply
    20. ConnieT1D62

      No. In 1971 I chose to go to a university with a great theatre and dance department after high school because that’s what I wanted to study back then. My choice of college had nothing to do with diabetes.

      4 years ago Log in to Reply
    21. William Schaffer

      When you are limited in the numbers os grad schools you can attend, it’s not a factor. Became T1 between undergrad and grad.

      4 years ago Log in to Reply

    If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend? Cancel reply

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