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    • 18 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      There are several conversations about this across social media. Many people chime in and vote for a new, more accurate name for type 1.. some of the popular alternatives- Pancreatic Autoimmune Disease, Beta Cell Destruction Disease, Autoimmune Diabetes, Autoimmune Insulin Failure, Autoimmune Absolute Insulin Deficiency (AAID)
    • 18 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 19 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      The most common comment: but you aren’t heavy. That’s when we get into the differences. A relative tried to tell me that insulin makes you lose weight. But when we last discussed this, one of you said it best: if it isn’t in their circle of experience, why would they know or care?
    • 20 minutes ago
      kristina blake likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 2 hours, 32 minutes ago
      Kristi Warmecke likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 5 hours, 5 minutes ago
      Lee Tincher likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      If I could get a CGM that is consistent and predictable I'd be very happy with the Twiist or the Tandem. The weak point with pumps used to be infusion sites, but now that we are relying on poor performing technology to support potentially great algorithms itis quite frustrating.
    • 6 hours, 59 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 8 hours, 23 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 9 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 9 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 9 hours, 41 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 21 hours, 31 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 21 hours, 31 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 22 hours, 45 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 1 day, 2 hours ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 5 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 1 day, 5 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 5 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day, 5 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day, 5 hours ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day, 6 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 6 hours ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 6 hours ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 9 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
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    If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend?

    Home > LC Polls > If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend?
    Previous

    On average, how many units of insulin do you typically use in a day?

    Next

    For people who have experience with both an insulin pump and CGM: If you could only choose to use one of these devices, which one would you use? Share why in the comments!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Bill Williams

      I enrolled in college in 1969. Nobody running a college infirmary in those days knew much of anything about treating a”juvenile” diabetes.

      3
      4 years ago Log in to Reply
    2. Amy Schneider

      The college I ended up at was chosen because they had no idea how many T1Ds attended, as opposed to the one I was supposed to attend which required T1Ds to go to their infirmary 2x/day to get my shot. I’d been giving my own shots since I was 6. This all occurred in 1973.

      4 years ago Log in to Reply
    3. Melinda Lipe

      I went to nursing school in 1974 – there were no services for people with T1D at that time. I was the only one. I know our school nurse got me to the ER for severe hypoglycemia after an alcohol consumption event the night before. The normal insulins in use were NPH and Regular.

      1
      4 years ago Log in to Reply
      1. Kristine Warmecke

        I was one of 6 T1D’s when I began in 1988.

        4 years ago Log in to Reply
    4. Mary Dexter

      I was 48 when I was diagnosed LADA, decades after college.
      Whether one attended college should not be lumped in with when one was diagnosed.

      4 years ago Log in to Reply
    5. Kristine Warmecke

      No, I attended nursing school located at hospital. Dorm was at the hospital, also.

      4 years ago Log in to Reply
    6. Amanda Barras

      Honestly, in the 3 years I went I never used their healthcare facilities. Honestly, not sure I even knew where it was located on campus. I brought my stuff with me and tested and took insulin for meals with me. It’s better and so much easier to deal with stuff on the fly.

      4 years ago Log in to Reply
    7. LizB

      I was diagnosed at age 19 while already in school. My mother called the school while I was in the hospital to find out what they offered and the answer was basically nothing.

      4 years ago Log in to Reply
    8. Bob Durstenfeld

      I had T1D before college, I did not consider the student health facilities prior to admission, but the quality of care at UCLA was great.

      4 years ago Log in to Reply
    9. PamK

      I chose the college I went to based on the academic program I wanted, not the healthcare facilities. I did talk to the college about getting bedtime snacks and was directed to the cafeteria staff. I had to have a note from my endo stating what I needed and they provided food for me to snack on.
      I never went to the heathcare facilities for anything other than a fever or infection. I found an endo near the campus who I saw for my regular checkups when I couldn’t get home.

      4 years ago Log in to Reply
    10. Becky Hertz

      Went to college in 1978, I don’t think there were any T1D services offered at either university I went to.

      4 years ago Log in to Reply
    11. Janis Senungetuk

      No. In 1964 there was still urine testing and beef/pork insulin. I chose the school because of the quality of education offered.

      3
      4 years ago Log in to Reply
    12. Andrew Carpenter

      The Tech School and the College I went to had no services for diabetes care. I went to whatever schools that were close to my apartment. Back then it was solely up to me and my PCP to keep up with my diabetes healthcare.

      4 years ago Log in to Reply
    13. Mick Martin

      As far as I’m aware, the uni I attended had no facilities to support attendees that had diabetes. I’m not sure that they even had a nurse on the premises. Having said that, on one occasion when I was not well, I was given the opportunity to lie down on a couch in the Staff Room. On another occasion, when I’d lost consciousness, I ‘came round’ in the back of an ambulance that was transporting me to hospital.

      4 years ago Log in to Reply
    14. Gary Taylor

      I was a freshman in college when diagnosed. We had a nurses office that was open a couple of hours a day. I walked a few blocks to the local hospital to see a physician. It was OK but this was the mid 70’s with urine strips and NPH pork/beef insulin. I survived.

      4 years ago Log in to Reply
    15. Anthony Harder

      I was diagnosed with T1D in the mid-’60’s. I went to college in 1976. There was no such thing as services for people with T1D. I figured it out on my own, by myself.

      1
      4 years ago Log in to Reply
    16. Leon Ullrich

      In 1948, no school had such facilities for students with diabetes.

      1
      4 years ago Log in to Reply
    17. BOB FISK

      I went to both undergrad and grad school in the 70s, but at different institutions. Neither one had a health service that had any idea how to deal with a Type 1 diabetic. Grad school was at a university that had a large training hospital and I was finally able to talk my way into getting a referral to an endocrinologist. Even then, this was before home glucose monitoring, and control was pretty crude, consisting of multiple injections and HA1c testing.

      4 years ago Log in to Reply
    18. Abigail Elias

      The University I attended had almost no health care for any students; the only (part time) doctor was rumored to diagnose everything as either mono or ovarian cysts (including one woman’s pregnancy) and gave me a drug for bronchitis that caused me to hallucinate. I don’t think there was even a nurse in the clinic. I did not know any of this before I attended, but I also don’t recall medical care being readily available at any of the schools I applied to, so I had lined up an endocrinologist off campus on whom I relied both for my diabetes and for more general primary care if/as needed.

      4 years ago Log in to Reply
    19. Jan Masty

      No one but my friends ever even knew I had diabetes. My college experience was way before there were any special considerations given. I assume any of us long timers had the same non experience with that.

      1
      4 years ago Log in to Reply
    20. ConnieT1D62

      No. In 1971 I chose to go to a university with a great theatre and dance department after high school because that’s what I wanted to study back then. My choice of college had nothing to do with diabetes.

      4 years ago Log in to Reply
    21. William Schaffer

      When you are limited in the numbers os grad schools you can attend, it’s not a factor. Became T1 between undergrad and grad.

      4 years ago Log in to Reply

    If you had T1D before attending college, did the quality of a university’s healthcare facilities and their services for people with T1D factor into your decision of which school to attend? Cancel reply

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