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    • 4 hours, 33 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 33 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 30 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 46 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 56 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 45 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 48 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 29 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 30 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 32 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 37 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 39 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 39 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 40 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 23 hours, 16 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 27 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 39 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 40 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Home > LC Polls > If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
    Previous

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

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    In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive BG readings above 180 mg/dL)

    Sarah Howard

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    25 Comments

    1. Janice B

      Oops I answered the wrong question. I wear a CGM.

      1 year ago Log in to Reply
    2. gary rind

      have been wearing a Libre2 for just over a year. before the CGM, I’d test 6x per day.

      1
      1 year ago Log in to Reply
    3. GLORIA MILLER

      I have a Libre but before that I would test ten or more times a day.

      1
      1 year ago Log in to Reply
    4. Mick Martin

      Although I DO wear a CGM I still check my blood glucose level anywhere between 6 and 9 times a day. (Some of those times are used to calibrate the CGM.)

      2
      1 year ago Log in to Reply
    5. Mary Dexter

      Using a CGM, I still test at least once a day.

      1 year ago Log in to Reply
    6. Alison Neumann

      I use a CGM – but being the Medtronic brand, I am forced to check on a meter at least 3 times a day. Looking forward to switching to Dexcom!

      1
      1 year ago Log in to Reply
    7. Lawrence S.

      I wear a Dexcom G6 CGM and do not blood test. However, before I had a CGM I tested 12 times a day, on average. I had very erratic numbers.

      1
      1 year ago Log in to Reply
    8. William Bennett

      Really encouraging to see the overwhelming percentage of respondents who have a CGM. I’ve had T1 since 1983, and of all the changes in insulin, supplies, regimens, etc I’v gone through, the CGM is far and away the single most helpful tool in controlling BG. I’d give up my pump before giving up my Dexcom if it ever (god forbid) came to a choice. Not too long ago it was a struggle convincing the medical establishment that CGMs for T1s are a necessity and should be prescribed at diagnosis or as close as possible. I remember when fingersticks and at-home testers were a new thing, and I was grateful for them, but fingersticks are a snapshot that tell you nothing about where you’ve been or where you’re trending. They’re the stills, but CGM is the movie.

      3
      1 year ago Log in to Reply
      1. Sue Martin

        I was diagnosed in 1985. I am too grateful for the advances in technology. I really appreciate my CGM, and tell others to get one too. At one point my Doc told me if I wanted a pump I’d have to fingerstick 8 times a day to show the insurance company I could handle a pump. I had already been on DexCom for a while and didn’t want to regress to fingersticks. I really like the graph, bg direction, and alarms that the DexCom CGM provides

        1 year ago Log in to Reply
    9. lis be

      i said 10-11.. but only because my libre reader recently broke, so I am back to blood tests. Waiting on my new cgm has me in a state of panic, especially at night!

      1 year ago Log in to Reply
      1. Sharon Lillibridge

        so sorry Iknow how that feels

        1 year ago Log in to Reply
    10. Sherolyn Newell

      I answered for the days when I don’t have a CGM on. I usually skip a day in between to allow for refill delays. Then, if there is a delay, I don’t have to be without it for as many days in a row. I’d say I test around 7 times, more if I feel like I’m low. In the morning, before meals, before driving, before bed. I test after meals if I feel like my carb guess work was shaky.

      1 year ago Log in to Reply
    11. Jeanne McMillan-Olson

      I wear the cgm Dexcom G6 and test as needed during the 2 hour warmup. Before the cgm I used to test 7 or more times a day. My fingers were always bruised after years of fingersticks. T1 was diagnosed in 1955. Very happy now with Dexcom and looking forward to the G7.

      1
      1 year ago Log in to Reply
    12. Antsy

      When I DIDN’T have a CGM, I checked before and 2hrs after each meal, when I got up, at bedtime, before getting in the car to drive somewhere, and anytime I felt weird.

      1 year ago Log in to Reply
    13. Steve Rumble

      I’ve been using a CGM for about 4 months now. Prior to that I checked my blood glucose levels 6 – 7 times a day.

      1
      1 year ago Log in to Reply
    14. Patricia Kilwein

      I use a CGM, but I still have to do a BG 3x a day to calibrate my CGM. (medtronics). Before having a CGM I had to check BG 7-10x daily.

      1 year ago Log in to Reply
    15. LizB

      I do use a CGM but it’s Medtronic so I need to test 2-3 times a day for calibrations. On the first day I have to test more because it can take half a day to settle in. Prior to CGMs I was testing 10-15 times a day due to being hypo unaware.

      1 year ago Log in to Reply
    16. kristina blake

      I answered that I use a CGM (now a Dexcom G6 – my 4th Dexcom) but prior to CGM I was 15-20 fingersticks a day. The usual wake up, before bed, before and after meals, before strenuous exercise, and every time I was going to drive.

      1
      1 year ago Log in to Reply
    17. Bonnie Lundblom

      I use a CGM but still need to check my blood glucose values because my readings are frequently not accurate. I’m hoping that when Medicare lets me change to the Dexcom CGM 7 that this problem will be better since they say the catheter that samples the interstitial space for the CGM 7 will be shorter. Dexcom said they know that T1D’s who are thin have this happen so I’m hoping the 7 will resolve this.

      1
      1 year ago Log in to Reply
    18. Sharon Lillibridge

      But I still do blood stick test at least 8 times a day because the CGM can be very inaccurate.

      1
      1 year ago Log in to Reply
    19. Mark Schweim

      BUT I DO use a CGM and I STILL check my BG levels on average 6 to 7 times per day.

      But prior to starting with CGM monitoring, my work has always involved operating heavy equipment around other people so without the CGM, my average daily BG monitoring was closer to 18 times per day!!! Before CGM was an option, my employer required me to check my BG reading a minimum of once every 90 minutes on the job so my 12 hour shift meant I was checking my BG reading at least 8 times per work shift in addition to the 8 – 10 times I checked while away from work.

      1
      1 year ago Log in to Reply
    20. ConnieT1D62

      I use a Tandem CIQ with Dexcom G6 CGM and rarely finger stick test anymore, except if and when I need to during a 2 hour sensor change warm-up. In the old days before CGM use, I used to test 8 to 12 times day. Then with the older versions of Medtronic CGMs I tested to calibrate and as often needed because they were often inaccurate.

      1
      1 year ago Log in to Reply
    21. Chris Deutsch

      I use a CGM but answered for the last 12 days, when I am waiting for my supplier to send more sensors. I would comment on that delay, but am not sure my answer would be polite.
      I am pretty annoyed at the system which PWDs must use, I mean the system my provider has set up to satisfy Medicare rules. Perhaps, with Medicare now allowing a 90-day distribution on sensors (Yay!!), PERHAPS this customer will begin to see my order fulfilled promptly.

      1 year ago Log in to Reply
    22. Wanacure

      I use a CGM, but CGMs don’t measure sugar in the blood. Before CGM I’d do 4 – 8 times per day. I still use finger pokes to calibrate, sometimes to double check. Using the CGM convenience I can so easily check trends and take readings at least 8 to 16 times per day. Tip: much less pain using the sides of and backs of fingers then pads of fingers when poking.

      1 year ago Log in to Reply
    23. Jeff Balbirnie

      I check the maximum number of times my @&#*&@*#@* insurance allows it. Aa a Type 1 the insurance coverage for strips is literal medical incompetence.

      1 year ago Log in to Reply

    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels? Cancel reply

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