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    • 13 hours, 18 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 50 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 14 hours, 8 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 39 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 14 hours, 40 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 14 hours, 41 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 15 hours, 6 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 15 hours, 8 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 7 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 12 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 13 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 13 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 6 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?
    Previous

    If you live in the United States, how would you best describe your insurance plan type and its annual medical deductible?

    Next

    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    19 Comments

    1. LizB

      I fortunately have not have to use these programs. My insurance over the years (a number of different ones) has always covered my insulin, pens, needles, strips, pump supplies, sensors etc at a straight co-pay. I did not have to meet a deductible for anything. The only situation I would look into using one is if I needed an insulin that was not my insurance company’s preferred brand. I have always used Humalog and that is what my current insurance prefers.

      1 year ago Log in to Reply
    2. Eve Rabbiner

      I am grateful that my Medicare Advantage plan covers all of my supplies 100%. Insulin has a cap of $35 copay per month, which is not a problem for me.

      1 year ago Log in to Reply
    3. Mick Martin

      Although I selected “No, I’m not familiar with Patient Assistance Programs.” that’s not strictly true. I am aware of Patient Assistance Programs but I have no cause to use them.

      I live in the United Kingdom of Great Britain and Northern Ireland where I don’t have to pay for my medical supplies. This is taken care of through our NHS (National Health Service), which is resourced via direct taxation from all working people.

      Diabetes patients that receive treatment … either by oral medications or insulin do not have to pay any out of pocket expenses. i.e. medications, test strips, glucose testing paraphernalia, etc. is all paid for via our NHS.

      1
      1 year ago Log in to Reply
    4. William Bennett

      No, but I have kind of acted as one when a recently dx’d T1 friend hit the “donut hole” and was having to choose between insulin and paying her bills. I was able to give her a couple of vials from my Zombie Apocalypse supply stash, and also taught her about the necessity of hoarding insulin and how to go about it. Because the US healthcare system, y’know, sucks.

      4
      1 year ago Log in to Reply
    5. Tom Caesar

      I guess I’m lucky not to have needed assistance, but it’s getting more expensive all the time affording the things needed to treat my diabetes. $365 for a bottle of humalog, wish they were kidding me!

      1
      1 year ago Log in to Reply
    6. Jacqueline Sanders

      In the UK we all use the NHS (National health service) which we all contribute to through the tax system.

      1 year ago Log in to Reply
    7. Kristine Warmecke

      I answered no, but my endocrinologist & I have been trying to get me on the Novo Nordisk program, for a year now.

      1 year ago Log in to Reply
    8. Amanda Barras

      Back in 2011 I was forced to apply for the patient assistance program due to my employer not offering insurance but yet making too much money working p/t to qualify for government medical assistance. It was a lifesaver until my husband secured a job with benefits.

      1 year ago Log in to Reply
    9. Janis Senungetuk

      In the 1980’s I briefly used a Patient Assistance Program from Lily to reduce the cost of Humalog.

      1 year ago Log in to Reply
    10. Sarah Berry

      My pharmacy has been applying a coupon for the insulin the past 2-3 orders. I have been getting a 3 month supply of Humalog for $35 instead of $75. That is 6 vials for me.

      1 year ago Log in to Reply
    11. Mark Schweim

      When I lost my job in 2012, I tried getting on one of these, but back then there weren’t many such options available and the two I found both said that even though I lost my job in early April and was unable to find employment or income since the job loss, my income from January to April was already too much income to allow me to qualify for any patient assistance for any of my supplies!

      1 year ago Log in to Reply
    12. Patricia Kilwein

      My insurance has been paying all but $25 per vile or pen. Now that I’m on a pump and cgm my insurance allows a 3 month supply.

      1 year ago Log in to Reply
    13. Kim Murphy

      I would love to know about patient assistance programs especially any that covered Dexcom or Omnipod because my insurance coverage for these is not available.

      1
      1 year ago Log in to Reply
    14. djames313

      Qualified accidentally because insurance company would only cover a bolus insulin that my body rejects.

      1 year ago Log in to Reply
    15. George Lovelace

      In 2008 I started using Apidra and got onto their PAP until I started buying online from Canada which was an even bigger discount.

      1
      1 year ago Log in to Reply
    16. Steven Gill

      Used the Medtronic system 4 years ago but inheriting an old dog I had to choose her meds or supplies for the CGM. She survived 4 more years. Last year they offered the newest system with a warranty, I opted for the pump but declined the CGM. After a few phone calls and forms the total monthly out of pocket costs are less than the supplies for the pump alone. Was told with my income I’d have qualified back than.

      Now to see about a phone for the app.

      1 year ago Log in to Reply
    17. Bekki Weston

      I use the program with Afrezza, and get a 1-month supply for only $15.

      1 year ago Log in to Reply
    18. Lisa

      I have used a patient assistant program for prescriptions other than diabetes supplies.

      1 year ago Log in to Reply
    19. Stang777

      I have not used the patient assistant programs because I do not qualify for them, however I do use the savings cards (used like coupons or rebates) that the pharmaceutical companies offer which cover a lot of my copay costs for insulin. There is a difference between those two things, so I answered the question with “No, I am aware of these programs but I haven’t used them.”

      1 year ago Log in to Reply

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

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