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    • 3 hours, 27 minutes ago
      mojoseje likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      After 35 years of insulin dependence, and going through MDI, then pump stand alone, the AID, I now get 2 days out of 200 units, or 4 units per hr average. I estimate that to be 4.
    • 3 hours, 27 minutes ago
      mojoseje likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 3 hours, 32 minutes ago
      Brian Vodehnal likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 3 hours, 41 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      After 35 years of insulin dependence, and going through MDI, then pump stand alone, the AID, I now get 2 days out of 200 units, or 4 units per hr average. I estimate that to be 4.
    • 3 hours, 41 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I put 3, seems to be a moving target for me after ~50 years of T1D. If I sit still my body needs much more insulin, if I just walk around the block the opposite is the case. Even with control-IQ I need multiple basal-bolus patterns. I use anywhere between 12 to 40 units of humalog daily with the same number of carbohydrates. All depends on activity.
    • 3 hours, 41 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 3 hours, 43 minutes ago
      atr likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I put 3, seems to be a moving target for me after ~50 years of T1D. If I sit still my body needs much more insulin, if I just walk around the block the opposite is the case. Even with control-IQ I need multiple basal-bolus patterns. I use anywhere between 12 to 40 units of humalog daily with the same number of carbohydrates. All depends on activity.
    • 3 hours, 44 minutes ago
      atr likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 4 hours, 13 minutes ago
      Daniel Bestvater likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 4 hours, 52 minutes ago
      TEH likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 14 hours, 26 minutes ago
      Laurie B likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 18 hours, 52 minutes ago
      Kristi Warmecke likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day, 1 hour ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day, 1 hour ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 2 hours ago
      Ahh Life likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day, 2 hours ago
      Steve Rumble likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 3 hours ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 3 hours ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Read up on Eladon and Tegoprubart. You might be shocked at the lack of side effects. Although I’m interested to hear how long term goes in the next few years.
    • 1 day, 3 hours ago
      John Barbuto likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 4 hours ago
      KCR likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 4 hours ago
      Kathy Hanavan likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 4 hours ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 4 hours ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 1 day, 5 hours ago
      TEH likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 22 hours ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
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    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?
    Previous

    If you live in the United States, how would you best describe your insurance plan type and its annual medical deductible?

    Next

    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    19 Comments

    1. LizB

      I fortunately have not have to use these programs. My insurance over the years (a number of different ones) has always covered my insulin, pens, needles, strips, pump supplies, sensors etc at a straight co-pay. I did not have to meet a deductible for anything. The only situation I would look into using one is if I needed an insulin that was not my insurance company’s preferred brand. I have always used Humalog and that is what my current insurance prefers.

      4 years ago Log in to Reply
    2. Eve Rabbiner

      I am grateful that my Medicare Advantage plan covers all of my supplies 100%. Insulin has a cap of $35 copay per month, which is not a problem for me.

      4 years ago Log in to Reply
    3. Mick Martin

      Although I selected “No, I’m not familiar with Patient Assistance Programs.” that’s not strictly true. I am aware of Patient Assistance Programs but I have no cause to use them.

      I live in the United Kingdom of Great Britain and Northern Ireland where I don’t have to pay for my medical supplies. This is taken care of through our NHS (National Health Service), which is resourced via direct taxation from all working people.

      Diabetes patients that receive treatment … either by oral medications or insulin do not have to pay any out of pocket expenses. i.e. medications, test strips, glucose testing paraphernalia, etc. is all paid for via our NHS.

      1
      4 years ago Log in to Reply
    4. William Bennett

      No, but I have kind of acted as one when a recently dx’d T1 friend hit the “donut hole” and was having to choose between insulin and paying her bills. I was able to give her a couple of vials from my Zombie Apocalypse supply stash, and also taught her about the necessity of hoarding insulin and how to go about it. Because the US healthcare system, y’know, sucks.

      4
      4 years ago Log in to Reply
    5. Tom Caesar

      I guess I’m lucky not to have needed assistance, but it’s getting more expensive all the time affording the things needed to treat my diabetes. $365 for a bottle of humalog, wish they were kidding me!

      1
      4 years ago Log in to Reply
    6. Jacqueline Sanders

      In the UK we all use the NHS (National health service) which we all contribute to through the tax system.

      4 years ago Log in to Reply
    7. Kristine Warmecke

      I answered no, but my endocrinologist & I have been trying to get me on the Novo Nordisk program, for a year now.

      4 years ago Log in to Reply
    8. Amanda Barras

      Back in 2011 I was forced to apply for the patient assistance program due to my employer not offering insurance but yet making too much money working p/t to qualify for government medical assistance. It was a lifesaver until my husband secured a job with benefits.

      4 years ago Log in to Reply
    9. Janis Senungetuk

      In the 1980’s I briefly used a Patient Assistance Program from Lily to reduce the cost of Humalog.

      4 years ago Log in to Reply
    10. Sarah Berry

      My pharmacy has been applying a coupon for the insulin the past 2-3 orders. I have been getting a 3 month supply of Humalog for $35 instead of $75. That is 6 vials for me.

      4 years ago Log in to Reply
    11. Mark Schweim

      When I lost my job in 2012, I tried getting on one of these, but back then there weren’t many such options available and the two I found both said that even though I lost my job in early April and was unable to find employment or income since the job loss, my income from January to April was already too much income to allow me to qualify for any patient assistance for any of my supplies!

      4 years ago Log in to Reply
    12. Patricia Kilwein

      My insurance has been paying all but $25 per vile or pen. Now that I’m on a pump and cgm my insurance allows a 3 month supply.

      4 years ago Log in to Reply
    13. Kim Murphy

      I would love to know about patient assistance programs especially any that covered Dexcom or Omnipod because my insurance coverage for these is not available.

      1
      4 years ago Log in to Reply
    14. djames313

      Qualified accidentally because insurance company would only cover a bolus insulin that my body rejects.

      4 years ago Log in to Reply
    15. George Lovelace

      In 2008 I started using Apidra and got onto their PAP until I started buying online from Canada which was an even bigger discount.

      1
      4 years ago Log in to Reply
    16. Steven Gill

      Used the Medtronic system 4 years ago but inheriting an old dog I had to choose her meds or supplies for the CGM. She survived 4 more years. Last year they offered the newest system with a warranty, I opted for the pump but declined the CGM. After a few phone calls and forms the total monthly out of pocket costs are less than the supplies for the pump alone. Was told with my income I’d have qualified back than.

      Now to see about a phone for the app.

      4 years ago Log in to Reply
    17. Bekki Weston

      I use the program with Afrezza, and get a 1-month supply for only $15.

      4 years ago Log in to Reply
    18. Lisa

      I have used a patient assistant program for prescriptions other than diabetes supplies.

      4 years ago Log in to Reply
    19. Stang777

      I have not used the patient assistant programs because I do not qualify for them, however I do use the savings cards (used like coupons or rebates) that the pharmaceutical companies offer which cover a lot of my copay costs for insulin. There is a difference between those two things, so I answered the question with “No, I am aware of these programs but I haven’t used them.”

      4 years ago Log in to Reply

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

    You must be logged in to post a comment.




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