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    • 2 hours, 7 minutes ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      In July, I went on the only Medicare plan in my area that covered Afrezza. For 2024, no one is covering it. Like others, hate these formulary decisions by the Insurance providers.
    • 4 hours, 58 minutes ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 5 hours, 24 minutes ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 5 hours, 25 minutes ago
      Bekki Weston likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I answered NO for 2023 but in 2024 I will have to switch from Humalog to Novolog.
    • 5 hours, 56 minutes ago
      Bill Williams likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 7 hours, 5 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      With Medicare's change to the cost of insulin, my Part D plan dropped Novolog. $35 "limit" only works if insurers have your medication on their formulary.
    • 7 hours, 18 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 7 hours, 19 minutes ago
      Kristi Warmecke likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Lispro, aspart, and glulisine are also FDA-approved for pump use (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6695255/). These are the generic versions of Humalog, Novolog and Apidra, respectively.
    • 7 hours, 35 minutes ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      This past year my doctor appts were my new social life!
    • 7 hours, 36 minutes ago
      jo likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Schush! I know it's supposed to be 4 but since my Endo follows my Dex and I hit an A1c of 5.4 with 0 Hypos I'm happy. Just lost my wife and will be moving further from my Endo and hope TeleVisits will do as I will also start visiting a Gerontologist.
    • 8 hours ago
      Ahh Life likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Four, because Medicare. I was fine going 2x/yr for decades before that. But Medicare doesn't care what your Dr thinks. Rules is rules.
    • 9 hours, 28 minutes ago
      Bruce Schnitzler likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      @George Lovelace. {{{{{Hugs}}}}} to you, sir. Are you getting support after the loss of your wife? I do hope so.
    • 10 hours, 2 minutes ago
      Mick Martin likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 10 hours, 47 minutes ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      I am required to see my Endo every three months by Medicare. Otherwise, I'd probably go 2 times per year.
    • 10 hours, 47 minutes ago
      Marty likes your comment at
      How many times in 2023 did you have an appointment with your main T1D healthcare provider?
      Medicare requires me to see my endo every 90 days if I want them to approve my insulin pump supplies....despite my very good control. Otherwise, my endo would be happy to see me twice a year. An example of Medicare being "penny-wise and pound-foolish" by paying for "medically-unnecessary" office visit costs.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 1 hour ago
      KarenM6 likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I didn't have to change but I couldn't get a new one from Caremark because it wasn't on the formulary. I used an AARP pharmacy card and got a $44 Rx for $18. Like Bob, I hate formulary!
    • 1 day, 4 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Long-acting insulin changed from basaglar to lantus for the upcoming year. Not a big deal since she moved to a pump this past year.
    • 1 day, 4 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 4 hours ago
      Mick Martin likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I have to change my insurance company now for 2024 so that i can continue to afford humalog. (or I have to switch to Lyumjev if I keep my current plan) I was startled to see that on my current plan, humalog would cost 16,000 next year (for the full year). Everyone, check your plans!
    • 1 day, 9 hours ago
      lis be likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 9 hours ago
      lis be likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      I was with Caremark now with Optimum and not a fan but was not a fan of Caremark in the beginning. Not a fan of mail order insulin! Opimum (still not sure it is spelled right) made me change from Novalog to Humalog. Both are the same, sure, but why should a RX company say what insulin I should be taking. Is that not my endocrinologist job? Would they not know what is best for me? Kind of burns me up how healthcare has gone in the past 5 to 10 years, miss the old days of knowing your pharmacist by first name and talking to them about the latest advancements in diabetic care at the conner pharmacy. Patient is no longer a factor in the equation. sorry for the rant.
    • 1 day, 10 hours ago
      TEH likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      In the past year, have you been required to change medications because of your health insurance?
      Yes, I HATE FORMULARIES and how they control what medications I take, as opposed to what my doctors prescribed.
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    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?

    Home > LC Polls > Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies?
    Previous

    If you live in the United States, how would you best describe your insurance plan type and its annual medical deductible?

    Next

    If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    19 Comments

    1. LizB

      I fortunately have not have to use these programs. My insurance over the years (a number of different ones) has always covered my insulin, pens, needles, strips, pump supplies, sensors etc at a straight co-pay. I did not have to meet a deductible for anything. The only situation I would look into using one is if I needed an insulin that was not my insurance company’s preferred brand. I have always used Humalog and that is what my current insurance prefers.

      2 years ago Log in to Reply
    2. Eve Rabbiner

      I am grateful that my Medicare Advantage plan covers all of my supplies 100%. Insulin has a cap of $35 copay per month, which is not a problem for me.

      2 years ago Log in to Reply
    3. Mick Martin

      Although I selected “No, I’m not familiar with Patient Assistance Programs.” that’s not strictly true. I am aware of Patient Assistance Programs but I have no cause to use them.

      I live in the United Kingdom of Great Britain and Northern Ireland where I don’t have to pay for my medical supplies. This is taken care of through our NHS (National Health Service), which is resourced via direct taxation from all working people.

      Diabetes patients that receive treatment … either by oral medications or insulin do not have to pay any out of pocket expenses. i.e. medications, test strips, glucose testing paraphernalia, etc. is all paid for via our NHS.

      1
      2 years ago Log in to Reply
    4. William Bennett

      No, but I have kind of acted as one when a recently dx’d T1 friend hit the “donut hole” and was having to choose between insulin and paying her bills. I was able to give her a couple of vials from my Zombie Apocalypse supply stash, and also taught her about the necessity of hoarding insulin and how to go about it. Because the US healthcare system, y’know, sucks.

      4
      2 years ago Log in to Reply
    5. Tom Caesar

      I guess I’m lucky not to have needed assistance, but it’s getting more expensive all the time affording the things needed to treat my diabetes. $365 for a bottle of humalog, wish they were kidding me!

      1
      2 years ago Log in to Reply
    6. Jacqueline Sanders

      In the UK we all use the NHS (National health service) which we all contribute to through the tax system.

      2 years ago Log in to Reply
    7. Kristine Warmecke

      I answered no, but my endocrinologist & I have been trying to get me on the Novo Nordisk program, for a year now.

      2 years ago Log in to Reply
    8. Amanda Barras

      Back in 2011 I was forced to apply for the patient assistance program due to my employer not offering insurance but yet making too much money working p/t to qualify for government medical assistance. It was a lifesaver until my husband secured a job with benefits.

      2 years ago Log in to Reply
    9. Janis Senungetuk

      In the 1980’s I briefly used a Patient Assistance Program from Lily to reduce the cost of Humalog.

      2 years ago Log in to Reply
    10. Sarah Berry

      My pharmacy has been applying a coupon for the insulin the past 2-3 orders. I have been getting a 3 month supply of Humalog for $35 instead of $75. That is 6 vials for me.

      2 years ago Log in to Reply
    11. Mark Schweim

      When I lost my job in 2012, I tried getting on one of these, but back then there weren’t many such options available and the two I found both said that even though I lost my job in early April and was unable to find employment or income since the job loss, my income from January to April was already too much income to allow me to qualify for any patient assistance for any of my supplies!

      2 years ago Log in to Reply
    12. Patricia Kilwein

      My insurance has been paying all but $25 per vile or pen. Now that I’m on a pump and cgm my insurance allows a 3 month supply.

      2 years ago Log in to Reply
    13. Kim Murphy

      I would love to know about patient assistance programs especially any that covered Dexcom or Omnipod because my insurance coverage for these is not available.

      1
      2 years ago Log in to Reply
    14. djames313

      Qualified accidentally because insurance company would only cover a bolus insulin that my body rejects.

      2 years ago Log in to Reply
    15. George Lovelace

      In 2008 I started using Apidra and got onto their PAP until I started buying online from Canada which was an even bigger discount.

      1
      2 years ago Log in to Reply
    16. Steven Gill

      Used the Medtronic system 4 years ago but inheriting an old dog I had to choose her meds or supplies for the CGM. She survived 4 more years. Last year they offered the newest system with a warranty, I opted for the pump but declined the CGM. After a few phone calls and forms the total monthly out of pocket costs are less than the supplies for the pump alone. Was told with my income I’d have qualified back than.

      Now to see about a phone for the app.

      2 years ago Log in to Reply
    17. Bekki Weston

      I use the program with Afrezza, and get a 1-month supply for only $15.

      2 years ago Log in to Reply
    18. Lisa

      I have used a patient assistant program for prescriptions other than diabetes supplies.

      2 years ago Log in to Reply
    19. Stang777

      I have not used the patient assistant programs because I do not qualify for them, however I do use the savings cards (used like coupons or rebates) that the pharmaceutical companies offer which cover a lot of my copay costs for insulin. There is a difference between those two things, so I answered the question with “No, I am aware of these programs but I haven’t used them.”

      2 years ago Log in to Reply

    Have you ever participated in a Patient Assistance Program to reduce the cost of your insulin or other diabetes supplies? Cancel reply

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