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    • 17 hours, 58 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 17 hours, 59 minutes ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 18 hours, 1 minute ago
      Amanda Barras likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
    • 20 hours, 5 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 20 hours, 5 minutes ago
      Anita Stokar likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 20 hours, 47 minutes ago
      Ahh Life likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
    • 21 hours, 50 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
    • 21 hours, 51 minutes ago
      Marthaeg likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
    • 23 hours, 30 minutes ago
      Gerald Oefelein likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
    • 23 hours, 31 minutes ago
      Lawrence S. likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      No thanks.
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 1 day, 19 hours ago
      Gerald Oefelein likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Without rejection drugs- very likely. With rejection drugs- not a chance.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Only if I don't need to take any immunosuppression drugs
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
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    If you are an adult with T1D, do you take any blood pressure medications?

    Home > LC Polls > If you are an adult with T1D, do you take any blood pressure medications?
    Previous

    Based on your experiences with insurance companies, do you feel that they understand the needs of people with T1D?

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    If you have a school-age child with T1D, are you satisfied with the overall T1D care your child received during this past school year? (I.e., staff knowledge, communication, accommodations provided, etc.)

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    31 Comments

    1. Joan Fray

      10 mg lovastatin daily

      4 years ago Log in to Reply
      1. Lena Selbrand

        That is a cholesterol medication. 🙂

        2
        4 years ago Log in to Reply
    2. Mary Dexter

      I can’t do anything about medical gaslighting, so I take medication to counteract how it raises my blood pressure.

      2
      4 years ago Log in to Reply
    3. Dennis Dacey

      YES, but not only to help manage BP; I currently manage with a small 10 mg dose.

      I began the reginem of Ace Inhibitor in 1996 when my BP Systolic was approaching 140, but the primary reason was to protect my kidneys after 40 years living with diabetes.

      3
      4 years ago Log in to Reply
    4. Mick Martin

      I take both Lisinopril for hypertension (high blood pressure) and Fludrocortisone for postural hypotension (low blood pressure on standing). (The Fludrocortisone is a steroid that stimulates the adrenal glands to raise blood pressure.)

      4 years ago Log in to Reply
    5. Tod Herman

      About 35 years ago my doctor prescribed Benazepril to “armor my kidneys” from the long term affects of T1D. I think it’s for hypertension, but my blood pressure has always been normal.

      2
      4 years ago Log in to Reply
    6. Annie Wall

      My endo started me on 10 mg lisinopril shortly after I began seeing him 25+ years ago. My BP had gone up slightly and he didn’t want to take any chances. My BP has been perfect ever since. Can’t say the same about my blood sugar but that’s another story!!

      4 years ago Log in to Reply
    7. Joan McGinnis

      I take 2 for BP, bystolic and edarbyclor

      4 years ago Log in to Reply
    8. Kristine Warmecke

      I take Midodrine twice a day. Too keep my BP above 125/75 and flowing through my brain graphs.

      4 years ago Log in to Reply
    9. Brian Vodehnal

      Only on an as needed basis…not a daily thing.

      4 years ago Log in to Reply
    10. Melinda Lipe

      Yes, I have been taking ever since my endo prescribed for a slight microalbumin in my urine. Now that I’m older, my cardiologist has kept my dose and med appropriate for my BP as well.

      4 years ago Log in to Reply
    11. Lauren Carey

      I have taken blood pressure medication in the past, but not currently.

      4 years ago Log in to Reply
    12. dave hedeen

      i have taken a low dose BP med for 30 years b4 BP increased requiring regular dose. My physician said a low dose was pro-active and could prevent other complications

      1
      4 years ago Log in to Reply
    13. Bob Durstenfeld

      Having survived quadruple bypass, I dutifully take my meds.

      2
      4 years ago Log in to Reply
    14. Pauline M Reynolds

      Do I ever! Lots of them. But heck, I’m 82, so there’s that.

      2
      4 years ago Log in to Reply
    15. Sherrie Johnson

      Low dose to protect kidneys 20 years

      2
      4 years ago Log in to Reply
    16. George Dear

      I take a low dose of Quinapril and it works well unless I POed at idiot drivers or people that believe the election was stolen from Trump.

      3
      4 years ago Log in to Reply
    17. KarenM6

      I do but I wish I didn’t because it makes me so tired. :/

      4 years ago Log in to Reply
    18. Grey Gray

      1st I hate doctors and pretty much use them to get scripts. Like any diabetic over 50 I am of course prescribed a blood pressure med. I lie and take the scripts but I don’t take the pills because I have perfect blood pressure… I an a mechanic and believe if it ain’t broke don’t fix it.

      2
      4 years ago Log in to Reply
    19. Sparklee

      I have been taking Lisinopril for over 25 years, although never diagnosed with HTN. It was prescribed as a preventative for kidney disease.

      2
      4 years ago Log in to Reply
    20. PamK

      I chose “other” because I had a doctor in the past who put me on a low dose blood pressure med because my blood pressure went from 90/60 to 120/60. Still not high, but she suggested I try it to see. Well, I started feeling dizzy/light headed and went to have my blood pressure checked. It was low, too low. So, I stopped taking the medication. Have not needed it since. My blood pressure remains at 110 – 120/60 – 65. Slightly higher than when I was younger, but nothing to be concerned about.

      1
      4 years ago Log in to Reply
    21. Natalie Daley

      Lisinipril — Not for blood pressure specifically but as an ACE inhibitor.

      4 years ago Log in to Reply
    22. Janis Senungetuk

      I’ve taken both an ACE inhibitor and a Beta Blocker on a daily basis for decades.

      4 years ago Log in to Reply
    23. ConnieT1D62

      No significant BP issues, but have been taking Valsartan for years as a kidney protectant. No significant kidney function issues either. Have lived with T1D in my body since Nov/Dec 1962.

      4 years ago Log in to Reply
    24. Wanacure

      10 mg lisinopril daily as preventative. Never had high bp.

      4 years ago Log in to Reply
    25. Kim Murphy

      I do but it is to protect my kidneys not because my Blood pressure is high.

      4 years ago Log in to Reply
    26. Bekki Weston

      10 mg lisinopril the past couple years; but only to counteract my white coat syndrome when I skyrocket in the Dr. office.

      4 years ago Log in to Reply
    27. Cheryl Seibert

      I DO NOT have and never have had high BP. My endo told me decades ago, he wanted me on the ‘cardiac meds’ (statin, pril, and aspirin). A study had shown an 80-85% reduction in complications if T1Ds are on cardiac meds. 55 yrs T1D and no complications.

      4 years ago Log in to Reply
    28. Bruce Johnson

      Metoprolol
      20 mg 2X per day since heart attack in 2004

      4 years ago Log in to Reply
    29. Maurine Bowser

      Lisinopril to protect kidney.

      4 years ago Log in to Reply
    30. T1D5/1971

      No high blood pressure – but I do find it highly concerning how many of the people who are responsible for taking blood pressure readings in medical facilities don’t know the first thing about doing it correctly…Legs crossed? NO! Sleeve pushed up like a tourniquet? NO!! Like so many other elements of “care”.

      4 years ago Log in to Reply

    If you are an adult with T1D, do you take any blood pressure medications? Cancel reply

    You must be logged in to post a comment.




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