If you have a school-age child with T1D, are you satisfied with the overall T1D care your child received during this past school year? (I.e., staff knowledge, communication, accommodations provided, etc.)

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- 16 hours, 6 minutes ago
  
  Amanda Barras likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
- 16 hours, 6 minutes ago
  
  Amanda Barras likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
- 16 hours, 9 minutes ago
  
  Amanda Barras likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  I was shocked that so many people haven't heard about it. It is all over social media. It looks promising to me. Of course the trial participants need to be followed for awhile as no drug gets approved by the FDA in short time, but so far all of the first 12 trial participants are insulin free and the 1st participant has been insulin free for over 1-1/2 years with no complications that I've heard of.
- 18 hours, 13 minutes ago
  
  Anita Stokar likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
- 18 hours, 13 minutes ago
  
  Anita Stokar likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
- 18 hours, 55 minutes ago
  
  Ahh Life likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  This question is an advertisement. In my opinion it is a misleading advertisement. Tegoprupart is an immunosuppressant. A trial investigating using the drug with islet cell recipients has barely gotten started. 90-ish percent of all phase 3 drug trials fail. Drug development is hard. I wish them luck at the same time I wish they weren't misleading people about the investigational use of their drug.
- 19 hours, 58 minutes ago
  
  Marthaeg likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  I'd sign up today!!!!! Have to admit that listening to her describe her "freedom" with "no longer having" T1D makes me jealous!
- 19 hours, 58 minutes ago
  
  Marthaeg likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  I follow Katie Beth Hand and Crushingt1 lots of great info on the Eledon trial. I would definitely sign up for the trial if I was eligible.
- 21 hours, 38 minutes ago
  
  Gerald Oefelein likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  AI Overview Tegoprubart, an anti-CD40L antibody, is generally safe and well-tolerated, with a cleaner safety profile than traditional calcineurin inhibitors (like tacrolimus) in early trials, specifically showing lower risks of kidney toxicity and diabetes. Common side effects reported include fatigue, headaches, muscle spasms, and potential infections. National Institutes of Health (.gov) National Institutes of Health (.gov) +4 Common Side Effects and Adverse Events In clinical trials, the most frequent treatment-emergent adverse events (TEAEs) observed included: National Institutes of Health (.gov) National Institutes of Health (.gov) +2 Fatigue (approx. 25.9%) Falls (approx. 22.2%) Headaches (approx. 20.4%) Muscle spasms (approx. 11.1%) Upper respiratory tract infections Sleepiness Key Safety Advantages Over Standard Care (Tacrolimus) Tegoprubart aims to avoid the, often, severe, long-term side effects of standard anti-rejection meds like tacrolimus
- 21 hours, 39 minutes ago
  
  Lawrence S. likes your comment at
  Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
  No thanks.
- 1 day, 17 hours ago
  
  Gerald Oefelein likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Without rejection drugs- very likely. With rejection drugs- not a chance.
- 1 day, 17 hours ago
  
  Gerald Oefelein likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Only if I don't need to take any immunosuppression drugs
- 1 day, 17 hours ago
  
  Gerald Oefelein likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
- 1 day, 17 hours ago
  
  Gerald Oefelein likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
- 1 day, 17 hours ago
  
  Gerald Oefelein likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
- 1 day, 17 hours ago
  
  Gerald Oefelein likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  as long as it doesn't require immunosuppression, I'm interested
- 1 day, 17 hours ago
  
  Gerald Oefelein likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  If it requires immunosuppressive medication I have no interest. I'll continue to manage with insulin.
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Without rejection drugs- very likely. With rejection drugs- not a chance.
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely, especially if stem-cell generated islet cells are transplanted without the need for immunosuppressants. If tegoprubart is needed and is found safe after the trials are complete, then likely.
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Only if I don't need to take any immunosuppression drugs
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  It would depend on the cost and coverage by insurance as well as the requirement for immunity suppressants.
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  Very likely. Although the simplicity of spifflicating is often overrated. 🤓☝️
- 1 day, 17 hours ago
  
  Lawrence S. likes your comment at
  If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
  as long as it doesn't require immunosuppression, I'm interested
Clear All

If you have a school-age child with T1D, are you satisfied with the overall T1D care your child received during this past school year? (I.e., staff knowledge, communication, accommodations provided, etc.)

If you are an adult with T1D, do you take any blood pressure medications?

Sarah Howard

Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

1 Comment

Lyndsey Escobar

My son’s school was amazing (k-8). Far exceeded expectations. Once he got to high school he was on his own.

1

4 years ago Log in to Reply

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Trending News

If you have a school-age child with T1D, are you satisfied with the overall T1D care your child received during this past school year? (I.e., staff knowledge, communication, accommodations provided, etc.)

If you are an adult with T1D, do you take any blood pressure medications?

For people diagnosed with T1D before 2000: If you have used a CGM, in what year did you start using a CGM?

Sarah Howard

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1 Comment

If you have a school-age child with T1D, are you satisfied with the overall T1D care your child received during this past school year? (I.e., staff knowledge, communication, accommodations provided, etc.) Cancel reply

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