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    • 4 hours, 56 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 31 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 6 hours, 32 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 6 hours, 33 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 6 hours, 33 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 15 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 9 hours, 16 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 12 hours, 6 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 12 hours, 54 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 1 minute ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 16 hours, 2 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 21 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 21 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 16 hours, 34 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 5 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 13 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 16 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 16 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 13 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!

    Home > LC Polls > How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!
    Previous

    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?

    Next

    If you use time in range reports, what percentage of time did you spend in range during the past 7 days?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Ahh Life

      Weekly, downloading the data every Saturday or Sunday morning. I do check the 3 week or monthly data groupings also for trends, since the weekly data can sometimes reflect equipment failure effects. ლ( ͡~ 𝆒 ͡°)ლ

      4 years ago Log in to Reply
    2. Richard Vaughn

      I keep a lot of data on charts of my own making. I get all I need from those charts. I am old fashioned. I don’t need the newer methods.

      1
      4 years ago Log in to Reply
      1. Don P

        Mornin’ Richard, I’m almost as old “skul” as you, still use written ( of which contains tons more detail than any device can provide ) along with all the new methods. For instant results, new is much easier, for better control, written is the only way.

        4 years ago Log in to Reply
    3. TomH

      We could use some articles on how to analyze CGM/pump data and how to apply it!

      3
      4 years ago Log in to Reply
    4. Andrew Stewart

      I use Glookco to track my numbers from Dexcom G6 and Tandem t:slim and I only import the t:slim data every couple of weeks but look at the CGM data at least twice a day for inspiration and motivation.

      4 years ago Log in to Reply
      1. Andrew Stewart

        Sorry, that’s Glooko 🤦‍♂️

        4 years ago Log in to Reply
    5. Annie Wall

      I don’t have to download a thing. Between Tandem and Dexcom, everything flows to the websites which my endo has access to. I frequently look at the Tandem app on my phone but if I want to look at more data, I simply go to the Tandem webpage. This has made it so easy for me to tweek ratios and not wait for a doctor visit. But the doctor visits often help me look at the bigger picture rather than doing the crazy nitpicking I’m bent on doing!

      4 years ago Log in to Reply
    6. Amanda Barras

      I make my own adjustments as necessary. But, I only view my data a few times a year.

      4 years ago Log in to Reply
    7. ConnieT1D62

      I do a glance through once or twice a month to review patterns and problem areas, and tweak as needed. At endocrine provider visits, her staff does a full data download for the past 3 months, but we really only focus on the most recent and current trends from the past 2 – 3 weeks when I see her. We look at spikes and valleys, discuss what may or may not have been going on and recognize the past data is past data and may not be of concern any longer. Unless of course it is – then we make changes.

      4 years ago Log in to Reply
    8. Steve Rumble

      I am participating in a study evaluating the benefits of regular virtual counseling for T1D control so I speak with a counselor every 2 weeks for a detailed review of my data. I also look at my data every few days.

      4 years ago Log in to Reply
      1. Miriam Dahan

        @Steve Rumble can I ask how you found such a study? Can you direct me to a particular website?

        4 years ago Log in to Reply
    9. kristina blake

      I upload for my use every month, although I use T-Connect so it ships off to the ENdo office as well. I do my own tweaking and my monthly data shows me that – for me- where my infusion sets are makes a difference. So while some people have profiles set to workdays vs weekends etc mine a based on infusion set placement and labeled as such (eg legs, belly etc)

      2
      4 years ago Log in to Reply
    10. Sondra Mangan

      With automated upload of Omnipod DASH and Dexcom G6 data, it is very easy to take a look at my data—every day if I wish.

      4 years ago Log in to Reply
    11. betsy valian

      for my Endo appts only.

      4 years ago Log in to Reply
    12. Mary Dexter

      Sporadically

      1
      4 years ago Log in to Reply
    13. Kathryn Keller

      I don’t download anything as we use night scout and dexcom. It all happens automatically. I more just adjust as things happen. If I notice something is happening routinely, then will make an adjustment.

      4 years ago Log in to Reply
    14. Mig Vascos

      Only review the actual reports during my tele health visits. Otherwise I check the apps on the phone daily just to have a make sure that I’m staying on my goal.
      My diabetes team has only been doing telehealth and no in person visits. It’s convenient when we are just checking reports since I do my own adjustments to the pump but I feel it’s now a bit “overboard” that my endocrinologist is trying also not to do in person appointments. I feel is a waste of my time, but still have to do it every 3 months as per Medicare requirements to get my insulin and pump supplies.

      4 years ago Log in to Reply
    15. Becky Hertz

      I said rarely, but I do look at the Clarity reports once a week.

      1
      4 years ago Log in to Reply
    16. Carol Meares

      To be honest, I don’t know if I glean much out of the data by observing weekly. One can get obsessed with numbers about diabetes, speaking about myself, but on occasion I do tweek settings to try to improve things a bit.

      2
      4 years ago Log in to Reply
    17. Sharon Lillibridge

      I DONOT”DOWNLOAD”data…I keep a journal with me at all times and record every dexcom reading, exercise, water intake, and food sometimes every hour sometimes every 5 minutes.

      1
      4 years ago Log in to Reply
    18. Mick Martin

      Fortnightly, though I do check on what my pump says directly more frequently than that.

      During in-person visits with either my endocrinologist or Diabetes Specialist Nurse we always download the data from the Medtronic website and discuss what’s happening based on the viewable results.

      4 years ago Log in to Reply
    19. Stephen Woodward

      access to the data is an obstacle that stresses the effective evaluation of daily management. There is no easy way ti view the data other than reviewing the printouts in person. I even got kicked out of my Endo’s practice in Dec of last year because I insisted on reviewing the data for the pump and the medical center he works for refused to allow access to the data due to it being outside the organization. The access process Tandem pump data is poor for the providers.

      4 years ago Log in to Reply
    20. Molly Jones

      I have been keeping a diet and activity diary along with my Dexcom and Tandem reports. This gets looked at at least monthly.
      My profiles often need changing or reversing for a short amount of time. I currently have about four of them on my pump.
      I am trying to understand why my diabetic needs for the same activity and foods can change without any obvious cause. Some inside stress I am unaware of most likely.

      4 years ago Log in to Reply
    21. Cheryl Seibert

      Weekly, every Saturday morning. I review my pump data that has been uploaded daily via tconnect app. I often look at the data reports on my Dexcom Clarity and Tandem TConnect app as well.

      4 years ago Log in to Reply
    22. Amy Wolk

      Every couple of days

      4 years ago Log in to Reply

    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply! Cancel reply

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