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    • 1 hour, 23 minutes ago
      lis be likes your comment at
      How willing would you be to take immunosuppressants if you were considering an islet cell transplant?
      Nope, T1D is a manageable thing with today's technology. I'll keep the devil I know.
    • 1 hour, 55 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      It seems to get harder every year. They seem to be looking for younger and newly diagnosed people.
    • 1 hour, 55 minutes ago
      dako likes your comment at
      How easy is it for you to find research opportunities that feel relevant to you?
      Agreed, and there are plenty of issues aging with T1D.
    • 7 hours, 16 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      All depends on if anti rejection and immunosuppressive medications are needed. If so I would not be interested.
    • 7 hours, 16 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
    • 7 hours, 16 minutes ago
      eherban1 likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      as long as it doesn't require immunosuppression, I'm interested
    • 15 hours, 42 minutes ago
      Karen Newe likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 17 hours, 30 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these. I'm not interested and have not even heard of some of them. The fewer gadgets the better.
    • 17 hours, 30 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      How about “None of the above”?
    • 17 hours, 30 minutes ago
      KarenM6 likes your comment at
      Which of the following do you use or wear at least 25% of the time (e.g., 2+ days per week)? Select all that apply:
      None of these
    • 23 hours, 23 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I agree with Molly. I’m moderately concerned because if I were extremely or very concerned, I just wouldn’t participate. I’m concerned for others who are brave enough to risk their own health for the sake of research and helping others.
    • 23 hours, 24 minutes ago
      John Barbuto likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 3 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 3 hours ago
      lis be likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 3 hours ago
      Natalie Daley likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 3 hours ago
      ChrisW likes your comment at
      Have you heard about tegoprupart, an immunosuppressant alternative with fewer side effects than traditional immunosuppressants, now being used for islet cell transplantation?
      Well the first person in this trial has been insulin-free for over 1-1/2 years and has been feeling fine. All 12 participants in this trial so far are off of insulin. The trial is now going to include people with t-1 diabetes and some kidney damage as this immunosuppressant (tegoprubart) has shown no toxic effects to islet cells or to kidneys. I will keep watching as the trial progresses. This question only asked if we had heard about it. I didn't see the question as an advertisement.
    • 1 day, 4 hours ago
      ChrisW likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 4 hours ago
      Brian Vodehnal likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Concern is relative to outcome. Getting a five year reprieve on the daily management of T1D might be worth it.
    • 1 day, 5 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Pinioned to youth, my comment may be difficult for some of you to understand. But at my age and experience level, long-term effects consists of what is going to happen in the next thirty to forty-five minutes. Sigh! 🎀 ྀིྀི
    • 1 day, 5 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Moderately as this is for others. I don't imagine being offered this myself.
    • 1 day, 5 hours ago
      Bonnie kenney likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 5 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Our collective lack of concern about the long term ought to put us at the top of the transplant list.
    • 1 day, 5 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      Long term effects are not a worry to me after 50 years of T1D…..not sure that I have a long runway ahead of me. If it helps advance a better life for young people with T1D sign me up.
    • 1 day, 5 hours ago
      atr likes your comment at
      How concerned are you about the risks of islet cell transplantation such as unknown long-term effects or immune system response?
      I just love your comments. 😃
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    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!

    Home > LC Polls > How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!
    Previous

    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?

    Next

    If you use time in range reports, what percentage of time did you spend in range during the past 7 days?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Ahh Life

      Weekly, downloading the data every Saturday or Sunday morning. I do check the 3 week or monthly data groupings also for trends, since the weekly data can sometimes reflect equipment failure effects. ლ( ͡~ 𝆒 ͡°)ლ

      5 years ago Log in to Reply
    2. Richard Vaughn

      I keep a lot of data on charts of my own making. I get all I need from those charts. I am old fashioned. I don’t need the newer methods.

      1
      5 years ago Log in to Reply
      1. Don P

        Mornin’ Richard, I’m almost as old “skul” as you, still use written ( of which contains tons more detail than any device can provide ) along with all the new methods. For instant results, new is much easier, for better control, written is the only way.

        5 years ago Log in to Reply
    3. TomH

      We could use some articles on how to analyze CGM/pump data and how to apply it!

      3
      5 years ago Log in to Reply
    4. Andrew Stewart

      I use Glookco to track my numbers from Dexcom G6 and Tandem t:slim and I only import the t:slim data every couple of weeks but look at the CGM data at least twice a day for inspiration and motivation.

      5 years ago Log in to Reply
      1. Andrew Stewart

        Sorry, that’s Glooko 🤦‍♂️

        5 years ago Log in to Reply
    5. Annie Wall

      I don’t have to download a thing. Between Tandem and Dexcom, everything flows to the websites which my endo has access to. I frequently look at the Tandem app on my phone but if I want to look at more data, I simply go to the Tandem webpage. This has made it so easy for me to tweek ratios and not wait for a doctor visit. But the doctor visits often help me look at the bigger picture rather than doing the crazy nitpicking I’m bent on doing!

      5 years ago Log in to Reply
    6. Amanda Barras

      I make my own adjustments as necessary. But, I only view my data a few times a year.

      5 years ago Log in to Reply
    7. ConnieT1D62

      I do a glance through once or twice a month to review patterns and problem areas, and tweak as needed. At endocrine provider visits, her staff does a full data download for the past 3 months, but we really only focus on the most recent and current trends from the past 2 – 3 weeks when I see her. We look at spikes and valleys, discuss what may or may not have been going on and recognize the past data is past data and may not be of concern any longer. Unless of course it is – then we make changes.

      5 years ago Log in to Reply
    8. Steve Rumble

      I am participating in a study evaluating the benefits of regular virtual counseling for T1D control so I speak with a counselor every 2 weeks for a detailed review of my data. I also look at my data every few days.

      5 years ago Log in to Reply
      1. Miriam Dahan

        @Steve Rumble can I ask how you found such a study? Can you direct me to a particular website?

        5 years ago Log in to Reply
    9. kristina blake

      I upload for my use every month, although I use T-Connect so it ships off to the ENdo office as well. I do my own tweaking and my monthly data shows me that – for me- where my infusion sets are makes a difference. So while some people have profiles set to workdays vs weekends etc mine a based on infusion set placement and labeled as such (eg legs, belly etc)

      2
      5 years ago Log in to Reply
    10. Sondra Mangan

      With automated upload of Omnipod DASH and Dexcom G6 data, it is very easy to take a look at my data—every day if I wish.

      5 years ago Log in to Reply
    11. betsy valian

      for my Endo appts only.

      5 years ago Log in to Reply
    12. Mary Dexter

      Sporadically

      1
      5 years ago Log in to Reply
    13. Kathryn Keller

      I don’t download anything as we use night scout and dexcom. It all happens automatically. I more just adjust as things happen. If I notice something is happening routinely, then will make an adjustment.

      5 years ago Log in to Reply
    14. Mig Vascos

      Only review the actual reports during my tele health visits. Otherwise I check the apps on the phone daily just to have a make sure that I’m staying on my goal.
      My diabetes team has only been doing telehealth and no in person visits. It’s convenient when we are just checking reports since I do my own adjustments to the pump but I feel it’s now a bit “overboard” that my endocrinologist is trying also not to do in person appointments. I feel is a waste of my time, but still have to do it every 3 months as per Medicare requirements to get my insulin and pump supplies.

      5 years ago Log in to Reply
    15. Becky Hertz

      I said rarely, but I do look at the Clarity reports once a week.

      1
      5 years ago Log in to Reply
    16. Carol Meares

      To be honest, I don’t know if I glean much out of the data by observing weekly. One can get obsessed with numbers about diabetes, speaking about myself, but on occasion I do tweek settings to try to improve things a bit.

      2
      5 years ago Log in to Reply
    17. Sharon Lillibridge

      I DONOT”DOWNLOAD”data…I keep a journal with me at all times and record every dexcom reading, exercise, water intake, and food sometimes every hour sometimes every 5 minutes.

      1
      5 years ago Log in to Reply
    18. Mick Martin

      Fortnightly, though I do check on what my pump says directly more frequently than that.

      During in-person visits with either my endocrinologist or Diabetes Specialist Nurse we always download the data from the Medtronic website and discuss what’s happening based on the viewable results.

      5 years ago Log in to Reply
    19. Stephen Woodward

      access to the data is an obstacle that stresses the effective evaluation of daily management. There is no easy way ti view the data other than reviewing the printouts in person. I even got kicked out of my Endo’s practice in Dec of last year because I insisted on reviewing the data for the pump and the medical center he works for refused to allow access to the data due to it being outside the organization. The access process Tandem pump data is poor for the providers.

      5 years ago Log in to Reply
    20. Molly Jones

      I have been keeping a diet and activity diary along with my Dexcom and Tandem reports. This gets looked at at least monthly.
      My profiles often need changing or reversing for a short amount of time. I currently have about four of them on my pump.
      I am trying to understand why my diabetic needs for the same activity and foods can change without any obvious cause. Some inside stress I am unaware of most likely.

      5 years ago Log in to Reply
    21. Cheryl Seibert

      Weekly, every Saturday morning. I review my pump data that has been uploaded daily via tconnect app. I often look at the data reports on my Dexcom Clarity and Tandem TConnect app as well.

      5 years ago Log in to Reply
    22. Amy Wolk

      Every couple of days

      5 years ago Log in to Reply

    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply! Cancel reply

    You must be logged in to post a comment.




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