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    • 8 hours, 43 minutes ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 10 hours, 41 minutes ago
      Derek West likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 15 hours, 16 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 15 hours, 16 minutes ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 17 hours, 5 minutes ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 17 hours, 11 minutes ago
      atr likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I test when I have unexpected, or stubbornly high blood glucose that just won't go down. I also test when I feel sick. Testing, for me, involves putting urine on a strip, either by peeing directly or dipping the strip into urine. I may use about 2 or 3 strips in a year. When I test positive, I increase my insulin dosage to a "sick day" level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out.
    • 17 hours, 47 minutes ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 11 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 2 days, 14 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 2 days, 16 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 3 days, 8 hours ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 3 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 15 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 16 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 17 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 4 days, 17 hours ago
      Lawrence S. likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 4 days, 18 hours ago
      Gary Taylor likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 4 hours ago
      Amanda Barras likes your comment at
      Which T1D influencers do you enjoy following?
      Currently it’s the Diabetech, Justin Easter.
    • 5 days, 14 hours ago
      ChrisW likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      I don't do T1 podcasts.
    • 5 days, 14 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
      TCOYD Diabetes Nerd Your Best T1D Year Think Like a Pancreas
    • 5 days, 14 hours ago
      Kathy Hanavan likes your comment at
      Share some of your favorite T1D-related podcasts in the comments:
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    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!

    Home > LC Polls > How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!
    Previous

    If a therapy for T1D came to market in the next several years that eliminated severe hypoglycemic events and provided insulin independence for up to 5 years, which of these phrases do you think would best describe a therapy like this?

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    If you use time in range reports, what percentage of time did you spend in range during the past 7 days?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. 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    25 Comments

    1. Ahh Life

      Weekly, downloading the data every Saturday or Sunday morning. I do check the 3 week or monthly data groupings also for trends, since the weekly data can sometimes reflect equipment failure effects. ლ( ͡~ 𝆒 ͡°)ლ

      5 years ago Log in to Reply
    2. Richard Vaughn

      I keep a lot of data on charts of my own making. I get all I need from those charts. I am old fashioned. I don’t need the newer methods.

      1
      5 years ago Log in to Reply
      1. Don P

        Mornin’ Richard, I’m almost as old “skul” as you, still use written ( of which contains tons more detail than any device can provide ) along with all the new methods. For instant results, new is much easier, for better control, written is the only way.

        5 years ago Log in to Reply
    3. TomH

      We could use some articles on how to analyze CGM/pump data and how to apply it!

      3
      5 years ago Log in to Reply
    4. Andrew Stewart

      I use Glookco to track my numbers from Dexcom G6 and Tandem t:slim and I only import the t:slim data every couple of weeks but look at the CGM data at least twice a day for inspiration and motivation.

      5 years ago Log in to Reply
      1. Andrew Stewart

        Sorry, that’s Glooko 🤦‍♂️

        5 years ago Log in to Reply
    5. Annie Wall

      I don’t have to download a thing. Between Tandem and Dexcom, everything flows to the websites which my endo has access to. I frequently look at the Tandem app on my phone but if I want to look at more data, I simply go to the Tandem webpage. This has made it so easy for me to tweek ratios and not wait for a doctor visit. But the doctor visits often help me look at the bigger picture rather than doing the crazy nitpicking I’m bent on doing!

      5 years ago Log in to Reply
    6. Amanda Barras

      I make my own adjustments as necessary. But, I only view my data a few times a year.

      5 years ago Log in to Reply
    7. ConnieT1D62

      I do a glance through once or twice a month to review patterns and problem areas, and tweak as needed. At endocrine provider visits, her staff does a full data download for the past 3 months, but we really only focus on the most recent and current trends from the past 2 – 3 weeks when I see her. We look at spikes and valleys, discuss what may or may not have been going on and recognize the past data is past data and may not be of concern any longer. Unless of course it is – then we make changes.

      5 years ago Log in to Reply
    8. Steve Rumble

      I am participating in a study evaluating the benefits of regular virtual counseling for T1D control so I speak with a counselor every 2 weeks for a detailed review of my data. I also look at my data every few days.

      5 years ago Log in to Reply
      1. Miriam Dahan

        @Steve Rumble can I ask how you found such a study? Can you direct me to a particular website?

        5 years ago Log in to Reply
    9. kristina blake

      I upload for my use every month, although I use T-Connect so it ships off to the ENdo office as well. I do my own tweaking and my monthly data shows me that – for me- where my infusion sets are makes a difference. So while some people have profiles set to workdays vs weekends etc mine a based on infusion set placement and labeled as such (eg legs, belly etc)

      2
      5 years ago Log in to Reply
    10. Sondra Mangan

      With automated upload of Omnipod DASH and Dexcom G6 data, it is very easy to take a look at my data—every day if I wish.

      5 years ago Log in to Reply
    11. betsy valian

      for my Endo appts only.

      5 years ago Log in to Reply
    12. Mary Dexter

      Sporadically

      1
      5 years ago Log in to Reply
    13. Kathryn Keller

      I don’t download anything as we use night scout and dexcom. It all happens automatically. I more just adjust as things happen. If I notice something is happening routinely, then will make an adjustment.

      5 years ago Log in to Reply
    14. Mig Vascos

      Only review the actual reports during my tele health visits. Otherwise I check the apps on the phone daily just to have a make sure that I’m staying on my goal.
      My diabetes team has only been doing telehealth and no in person visits. It’s convenient when we are just checking reports since I do my own adjustments to the pump but I feel it’s now a bit “overboard” that my endocrinologist is trying also not to do in person appointments. I feel is a waste of my time, but still have to do it every 3 months as per Medicare requirements to get my insulin and pump supplies.

      5 years ago Log in to Reply
    15. Becky Hertz

      I said rarely, but I do look at the Clarity reports once a week.

      1
      5 years ago Log in to Reply
    16. Carol Meares

      To be honest, I don’t know if I glean much out of the data by observing weekly. One can get obsessed with numbers about diabetes, speaking about myself, but on occasion I do tweek settings to try to improve things a bit.

      2
      5 years ago Log in to Reply
    17. Sharon Lillibridge

      I DONOT”DOWNLOAD”data…I keep a journal with me at all times and record every dexcom reading, exercise, water intake, and food sometimes every hour sometimes every 5 minutes.

      1
      5 years ago Log in to Reply
    18. Mick Martin

      Fortnightly, though I do check on what my pump says directly more frequently than that.

      During in-person visits with either my endocrinologist or Diabetes Specialist Nurse we always download the data from the Medtronic website and discuss what’s happening based on the viewable results.

      5 years ago Log in to Reply
    19. Stephen Woodward

      access to the data is an obstacle that stresses the effective evaluation of daily management. There is no easy way ti view the data other than reviewing the printouts in person. I even got kicked out of my Endo’s practice in Dec of last year because I insisted on reviewing the data for the pump and the medical center he works for refused to allow access to the data due to it being outside the organization. The access process Tandem pump data is poor for the providers.

      5 years ago Log in to Reply
    20. Molly Jones

      I have been keeping a diet and activity diary along with my Dexcom and Tandem reports. This gets looked at at least monthly.
      My profiles often need changing or reversing for a short amount of time. I currently have about four of them on my pump.
      I am trying to understand why my diabetic needs for the same activity and foods can change without any obvious cause. Some inside stress I am unaware of most likely.

      5 years ago Log in to Reply
    21. Cheryl Seibert

      Weekly, every Saturday morning. I review my pump data that has been uploaded daily via tconnect app. I often look at the data reports on my Dexcom Clarity and Tandem TConnect app as well.

      5 years ago Log in to Reply
    22. Amy Wolk

      Every couple of days

      5 years ago Log in to Reply

    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply! Cancel reply

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