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    • 10 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 11 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 54 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 2 hours, 17 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 4 hours, 14 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 19 hours, 37 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 19 hours, 39 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 19 hours, 40 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 19 hours, 41 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 19 hours, 49 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 41 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 21 hours, 42 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 21 hours, 44 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 3 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 5 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
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    How would you go about finding a new T1D healthcare provider if you moved to a new location?

    Home > LC Polls > How would you go about finding a new T1D healthcare provider if you moved to a new location?
    Previous

    During which of the following life transitions did you find it most difficult to manage T1D? Select all that apply to you.

    Next

    Have you ever experienced elevated body temperatures as a side effect of high blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. ConnieT1D62

      For diabetes care I would seek out other T1Ds in the community and see what they have to say. And of course would have to check out who is covered by insurance particulars.

      4 years ago Log in to Reply
    2. Steven Gill

      When my last doctor moved his practise further than I preferred I use the telephone and just called. She’s the one that got me into the pump (although the last one mentioned it but I was afraid of damaging it, she stressed the 4 year warranty).

      Just moved this past summer, spoke to neighbors and just called and got this GP. Ironically he initially said he knows nothing about the pump nor handles TYPE 1 but after seeing my a1C said if I was okay he’d follow up (he’d said few of his diabetics seeing a specialists had their levels below 7’s).

      Seemed happy to got the booklets for my old pump/CGM

      4 years ago Log in to Reply
    3. Sjoymex

      Unfortunately I don’t know any other t1ds in the area so I’ve always done an internet search looking at reviews, then of course what my insurance covers.

      4 years ago Log in to Reply
    4. connie ker

      I checked all of the above because finding an endo practice is difficult, or the practice is not taking any new patients. Endocrinology is a speciality that medical students tend to avoid. It is vital and requires more education than a GP, but requires a lot of homework to find what fits best for you. I see a NP in the field of endocrinology who travels to my hometown.

      4 years ago Log in to Reply
    5. Sahran Holiday

      Provider directory often inaccurate. Use ZocDoc let’s you filter location, insurance, language. Either way, then Google.

      2
      4 years ago Log in to Reply
      1. lis be

        i agree with this, I recently found out many doctors hire an agency to “clean up” their bad reviews.

        4 years ago Log in to Reply
    6. Joan McGinnis

      I would check out the ones covered by my insurance online diligently reading every review. I would ask other TIDs in the community, maybe call ADA and ask for whom the might be. I would also ask for referral from current endo even if in a different city. You can also look at list of endos in your city online. I would try one out that looks the best to me.

      4 years ago Log in to Reply
    7. Larry Martin

      I live in the USA. It is not about patient preference, it is what insurance will cover.

      4
      4 years ago Log in to Reply
    8. TEH

      When I moved 8 years ago I didn’t have the T1D exchange, so I asked my GP then searched the practice he referred me to on the internet. There are many more capabilities that can be used now, reviews, insurance search ratings, and even google…

      4 years ago Log in to Reply
    9. Derek West

      Whenever I have moved I looked for an Endo associated with a teaching hospital figuring they would be the most up to date.

      1
      4 years ago Log in to Reply
    10. Tod Herman

      I have multiple options. First and foremost would be who was covered by my insurance. Then, if there were more than one choice, I’d try and get the opinions of other T1D folks in that area.

      1
      4 years ago Log in to Reply
    11. Sue Martin

      I’ve been connected with a group called Healthcare map through my Endo. I’ve really connected with the nurse I’ve been assigned. They live in a city I’m considering moving to so I would ask their advice.

      4 years ago Log in to Reply
    12. lis be

      all of the above.

      1
      4 years ago Log in to Reply
    13. Christina Trudo

      I did that recently, researched the advanced training of local endocrinologists and chose one who did a fellowship at Joslin. In past times I got an endo I did not get along with and to change within the same system, I asked a sympatico nurse and my educator who they see, ended up with a gem.

      2
      4 years ago Log in to Reply
    14. GLORIA MILLER

      I have moved several times without knowing anyone in the community so I had to do my own research on doctors. I live in the US and with my insurance I can use whatever doctor I want. The first criteria for me is that the endo be female.

      4 years ago Log in to Reply
    15. TomH

      You can try an internet search, but it doesn’t mean a good fit. Perhaps In can mob with recommendations from other T1s it would be better.

      4 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      I currently have a provider but I am not entirely pleased . What would I do to find a new reliable provider? I am considering asking my insurance person since they would know the most reliable person for someone with Type 1 Diabetes.

      4 years ago Log in to Reply
    17. Jillmarie61

      All of the above would be a good answer.

      1
      4 years ago Log in to Reply
    18. Molly Jones

      All of the choices were chosen. I also like to see if what papers they have been currently involved in. I like my doctors to be involved in research or in a University hospital to know they are up to date.

      1
      4 years ago Log in to Reply
    19. Jeff Perzan

      I have always selected a doctor who is involved in academic medicine as they tend to be more up on the latest and greatest.

      4 years ago Log in to Reply
    20. LizB

      I have only ever had 2 endos and I found both by calling a local, well respected teaching hospital and choosing from their practice. I made sure that the endo I chose specialized in diabetes, and not something like reproductive medicine or another disease I don’t have.

      4 years ago Log in to Reply
    21. Nicholas Argento

      I would contact the local Dexcom and tandem representatives and find out who in their area prescribed a lot of them and had a good reputation- because if someone were not tech savvy, they would not be a good fit for me.

      4 years ago Log in to Reply
      1. PamK

        I like that idea!

        4 years ago Log in to Reply
    22. PamK

      All of the above! I moved across the country over 25 years ago and am still looking for a doctor who is a “good fit” for me. I’ve found two or three who are okay, but no one that is great. So far, none of the docs I’ve gone to have been close to the level of treatment my old doctor gave me. Alas, he was one in a million!

      4 years ago Log in to Reply
    23. NAK Marshall

      I’d been T1 since age 9 and when my daughter was diagnosed at age 24, I immediately called my endo (who I love) who is also a researcher in Denver and asked, “Who do you know in Portland, Oregon?” He knew endo’s at a large patient & research clinic there and except for getting the initial appointment which took several days of me calling and sometimes being mom and sometimes pretending to be her, it has been wonderful since! If either of us ever moved, I would research like crazy and then go interview THEM, as would she.

      4 years ago Log in to Reply

    How would you go about finding a new T1D healthcare provider if you moved to a new location? Cancel reply

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