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    • 8 hours, 45 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 8 hours, 48 minutes ago
      atr likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I had ketones thrn I am sick. If mid to large I wd call my endo or if also vomiting or dehydrated from diarrhea. I wd go to the ER
    • 10 hours, 2 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 10 hours, 3 minutes ago
      Marty likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      When I test positive, I increase my insulin dosage to a “sick day” level, which can be anywhere from 125% dosage to 400%. I usually start with small increases in dosage, and work my way up until my blood glucose levels even out. Also, increase my water intake. I would not call my Endo unless I was unable to get my blood glucose down over a lengthy period of time. That has never been the case.
    • 10 hours, 10 minutes ago
      KSannie likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 10 hours, 12 minutes ago
      Patricia Dalrymple likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 10 hours, 26 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I increase my basal and insulin ratios if I eat until I show no longer test positive. I do only test if I have been high for a longer than usual time.
    • 10 hours, 26 minutes ago
      Lawrence S. likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 10 hours, 48 minutes ago
      Judith Halterman likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      I'd most likely call my endocrinologist and ask their advice.
    • 10 hours, 51 minutes ago
      Derek West likes your comment at
      Do you have a management plan if you test positive for ketones? Please share more in the comments.
      If I were not feeling too bad, I would change my site, increase my insulin, drink more water and monitor closely
    • 1 day, 2 hours ago
      KCR likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      None of the specialists I’ve seen have suggested, recommended or prescribed methods for doing this in the lovely 40 years I’ve been T1D. My 80th birthday is the summer. It will officially be half of my life.
    • 1 day, 8 hours ago
      Marty likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      I have a blood ketone monitor. It works just like a glucometer.
    • 1 day, 10 hours ago
      Kathy Hanavan likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 1 day, 11 hours ago
      Judith Halterman likes your comment at
      Do you know how to test for ketones? Please share more in the comments.
      Perhaps only the poets who love alliteration could love the phrase, “killer ketones.” The ungodly pain experienced is your body eating and devouring itself. 🥵 Ketones are relentless killers. Do not give the bad guys a chance.
    • 2 days, 4 hours ago
      Anthony Harder likes your comment at
      Do you have ketone testing strips?
      Hi, Marty. Does your specialist have a source for that claim? It makes little sense that ketones would rise faster than BG since the metabolic pathway is much slower. If there's a source, however, I'd look further into the claim. FWIW, I've been a Type 1 for over 50 years; I can't remember the last time I tested for ketones. I possess no ketone testing strips.
    • 3 days, 7 hours ago
      Marty likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      Covers it with co pay
    • 3 days, 9 hours ago
      atr likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      It covers both. I prefer to have the the nasal version as I think it would be easier for someone else to administer.
    • 3 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I’ve been T1D for 60 years. As a child my mother didn’t like needles or injections so she just fed me when low. In college, explained use to dorm mates and classmates would’ve been a waste of time. Now married, my wife assumed the role of my mother and doesn’t like using needles on me either. I don’t have glucagon.
    • 3 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      Yes, always have one or two nasal glucagon kits (Baqsimi) at home in easy to reach locations (ie at bedside and special container in living area) and always keep one with me when I go out ( along with glucose tabs or other simple carbs for treating LBS.). I apparently required injectable glucagon several times as a child and needed injectable glucagon only twice as an adult, both more than 15 years ago . More recently I needed my husband to give me Baqsimi after eating a difficult to dose for, high fat meal. The experience was terrifying so I don’t go anywhere without it now.
    • 3 days, 10 hours ago
      Lawrence S. likes your comment at
      Do you have a non-expired glucagon prescription?
      I actually have 2 non-expired prescriptions. One for Baqsimi and one for Gvoke. I have not filled either of them because they’re $500-600 each.
    • 3 days, 10 hours ago
      Lawrence S. likes your comment at
      Does your insurance cover injectable glucagon, nasal glucagon, or both?
      My Medicare Part D essentially doesn't cover glucagon when any form is nearly $500!
    • 4 days, 1 hour ago
      Amanda Barras likes your comment at
      Do you have a non-expired glucagon prescription?
      Same here. Been as low as 19 (struggling with a vacuum cleaner bag and refused to let it win) but was still able to swallow food. I did used the “red needle” as my husband refers to it once when I went low but was scheduled for surgery and couldn’t eat or drink anything. Only once in 26 years. Fortunate.
    • 4 days, 20 hours ago
      Karen Newe likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 9 hours ago
      Natalie Daley likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
    • 5 days, 10 hours ago
      atr likes your comment at
      Share some of your favorite T1D-related books in the comments:
      Marcus Aurelius Meditations for the benefits of stoicism. Dante’s Inferno for the nine levels of diabetic hell. Kristen Lavransdatter for the benefits of suffering. And best of all, Cervantes Don Quixote for the absurdity of tilting at so many worthless windmills of frenzied diabetic activity.
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    How would you go about finding a new T1D healthcare provider if you moved to a new location?

    Home > LC Polls > How would you go about finding a new T1D healthcare provider if you moved to a new location?
    Previous

    During which of the following life transitions did you find it most difficult to manage T1D? Select all that apply to you.

    Next

    Have you ever experienced elevated body temperatures as a side effect of high blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    " At T1D Exchange, we’re proud to announce our Medical and Research Advisory Team — an accomplished group of leaders in endocrinology, research, and quality improvement. Together, they are redefining what’s possible in type 1 diabetes (T1D) care through rigorous data analysis, innovative research approaches, and real-world implementation. Their collective expertise is central to our mission of improving outcomes for all people living with T1D.  “We’re excited to be working with our advisors given their deep expertise across a broad range of areas in T1D,” said Dave Walton, CEO of T1D Exchange. “Their involvement magnifies our reach, knowledge, and impact. These advisors are shaping the future of diabetes care — driving innovation across research, clinical practice, and quality improvement.”    Meet the Medical & Research Advisory Team  The T1D Exchange Medical and Research Advisory Team brings together four leading endocrinologists, each offering a unique perspective and shared commitment to advancing T1D care:    Jenise Wong, MD, PhD Pediatric endocrinologist at UCSF Benioff Children’s Hospital and Professor of Pediatrics in the Division of Endocrinology at the University of California, San Francisco Focus areas: Diabetes technology adoption and usability; health equity and access to care and technology; community-based and peer-support interventions; culturally responsive care          Jennifer Sherr, MD, PhD Pediatric endocrinologist at Yale Medicine and Professor of Pediatrics in the Division of Endocrinology at Yale School of Medicine in New Haven, Connecticut Focus areas: Clinical trials in diabetes technology (CGM and AID systems), disease-modifying treatments and immunotherapies, and emerging technologies and medications, including continuous ketone monitoring and nasal glucagon     Viral Shah, MD Adult endocrinologist at Indiana University Health and Professor of Medicine in the Division of Endocrinology and Metabolism at Indiana University School of Medicine in Indianapolis, Indiana Focus areas: Diabetes technology and adjunctive therapy trials; translational and data-driven research; T1D complications and bone health         Nestoras Mathioudakis, MD, MHS Adult endocrinologist at Johns Hopkins Medicine and Associate Professor of Medicine at Johns Hopkins University School of Medicine in Baltimore, Maryland Focus areas: AI-driven clinical support tools; EMR-based data analytics for clinical decision making; data-driven quality improvement; health equity in T1D care        This accomplished team’s expertise spans adult and pediatric endocrinology, research, and quality improvement affiliated with leading institutions nationwide. Collectively, they have authored over 500 diabetes publications and secured research funding from organizations such as the National Institutes of Health, Helmsley Charitable Trust, the American Diabetes Association, and Breakthrough T1D — while remaining actively engaged in both clinical care and research.  “These individuals represent an impressive body of work while remaining deeply involved in the day-to-day realities of diabetes care,” said Walton. Their expertise covers the full spectrum of T1D care — from AI and predictive analytics to complication prevention, automated insulin delivery, continuous glucose and ketone monitoring, GLP-1 treatments, health equity, mental health, autoantibody screening, and disease prevention.    Turning insight into impact  The team’s work goes beyond research, focusing on translating insights into real-world practice. By leveraging data to scale best practices, the goal is to drive meaningful, measurable change across clinics and communities.  “Our advisors will help to extend our impact — whether through QI strategy, research innovation, funding opportunities, or new data-driven solutions,” said Walton. “We want to take what’s working at individual centers and spread that as broadly as possible.”   He added, “As a Collaborative, we’re also focused on advanced population health strategies such as exploring predictive data models to identify risks earlier and intervene before complications even begin to happen.”    The power of the T1D Exchange Quality Improvement Collaborative  Central to this work is the T1D Exchange Quality Improvement Collaborative (T1DX-QI) — a nationwide network of clinics working together to improve care through shared data, benchmarking, and evidence-based practices.  “I’m thrilled to serve as a Medical Advisor for T1D Exchange, because I’ve seen firsthand the impact this network can have on patient care,” said Dr. Nestoras Mathioudakis. “T1D Exchange is the premier organization for quality improvement in type 1 diabetes, with unparalleled assets like a large EHR database and robust patient registry.”  He added that he is excited to apply his expertise in EHR research and big data analytics to generate real-world evidence across diagnosis, management, and outcomes.  Dr. Viral Shah echoed that perspective, reflecting on T1DX-QI's evolution: “I have been involved with T1D Exchange since its early days and have had the privilege of witnessing how it has transformed the quality of diabetes care across the United States. I’m delighted to return as a Medical Advisor.”  He emphasized the importance of accelerating impact. “I look forward to working closely with the team to accelerate the evidence generation and to help translate these insights to improve patient care.”   Dr. Jenise Wong highlighted the visible impact of T1DX-QI on the delivery of care. "I’m truly honored and grateful to be working with T1D Exchange as a Medical Advisor. T1DX-QI is a remarkable resource for centers that are using continuous process improvement to improve the quality of care for people living with diabetes.”  “Diabetes centers working with T1DX –QI have done amazing work using QI methodology to make care accessible and equitable for all people with diabetes,” she said. “It’s inspiring to be a part of a collaborative in which centers have been creative and thoughtful with initiatives to address individual and systemic challenges to care, improving clinical outcomes as well as the patient experience."  Looking ahead, Dr. Sherr highlighted the opportunity to build on the existing strong foundation. “I’m very excited to be working as a Medical Advisor for T1D Exchange,” she said. “It’s a privilege to help shape what comes next for a group that’s already doing such impactful work.”  “Sharing what’s happening in clinical practice, benchmarking across centers, and understanding outcomes is how we figure out what’s working, what’s not, and where we go next,” she said.      The future of T1D care   With this team’s vision and expertise, T1D Exchange is positioned to accelerate progress in T1D care — bridging research and real-world practice to drive meaningful, measurable impact.  Together, we look forward to advancing innovation and improving outcomes for everyone affected by type 1 diabetes.   "

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    25 Comments

    1. ConnieT1D62

      For diabetes care I would seek out other T1Ds in the community and see what they have to say. And of course would have to check out who is covered by insurance particulars.

      5 years ago Log in to Reply
    2. Steven Gill

      When my last doctor moved his practise further than I preferred I use the telephone and just called. She’s the one that got me into the pump (although the last one mentioned it but I was afraid of damaging it, she stressed the 4 year warranty).

      Just moved this past summer, spoke to neighbors and just called and got this GP. Ironically he initially said he knows nothing about the pump nor handles TYPE 1 but after seeing my a1C said if I was okay he’d follow up (he’d said few of his diabetics seeing a specialists had their levels below 7’s).

      Seemed happy to got the booklets for my old pump/CGM

      5 years ago Log in to Reply
    3. Sjoymex

      Unfortunately I don’t know any other t1ds in the area so I’ve always done an internet search looking at reviews, then of course what my insurance covers.

      5 years ago Log in to Reply
    4. connie ker

      I checked all of the above because finding an endo practice is difficult, or the practice is not taking any new patients. Endocrinology is a speciality that medical students tend to avoid. It is vital and requires more education than a GP, but requires a lot of homework to find what fits best for you. I see a NP in the field of endocrinology who travels to my hometown.

      5 years ago Log in to Reply
    5. Sahran Holiday

      Provider directory often inaccurate. Use ZocDoc let’s you filter location, insurance, language. Either way, then Google.

      2
      5 years ago Log in to Reply
      1. lis be

        i agree with this, I recently found out many doctors hire an agency to “clean up” their bad reviews.

        5 years ago Log in to Reply
    6. Joan McGinnis

      I would check out the ones covered by my insurance online diligently reading every review. I would ask other TIDs in the community, maybe call ADA and ask for whom the might be. I would also ask for referral from current endo even if in a different city. You can also look at list of endos in your city online. I would try one out that looks the best to me.

      5 years ago Log in to Reply
    7. Larry Martin

      I live in the USA. It is not about patient preference, it is what insurance will cover.

      4
      5 years ago Log in to Reply
    8. TEH

      When I moved 8 years ago I didn’t have the T1D exchange, so I asked my GP then searched the practice he referred me to on the internet. There are many more capabilities that can be used now, reviews, insurance search ratings, and even google…

      5 years ago Log in to Reply
    9. Derek West

      Whenever I have moved I looked for an Endo associated with a teaching hospital figuring they would be the most up to date.

      1
      5 years ago Log in to Reply
    10. Tod Herman

      I have multiple options. First and foremost would be who was covered by my insurance. Then, if there were more than one choice, I’d try and get the opinions of other T1D folks in that area.

      1
      5 years ago Log in to Reply
    11. Sue Martin

      I’ve been connected with a group called Healthcare map through my Endo. I’ve really connected with the nurse I’ve been assigned. They live in a city I’m considering moving to so I would ask their advice.

      5 years ago Log in to Reply
    12. lis be

      all of the above.

      1
      5 years ago Log in to Reply
    13. Christina Trudo

      I did that recently, researched the advanced training of local endocrinologists and chose one who did a fellowship at Joslin. In past times I got an endo I did not get along with and to change within the same system, I asked a sympatico nurse and my educator who they see, ended up with a gem.

      2
      5 years ago Log in to Reply
    14. GLORIA MILLER

      I have moved several times without knowing anyone in the community so I had to do my own research on doctors. I live in the US and with my insurance I can use whatever doctor I want. The first criteria for me is that the endo be female.

      5 years ago Log in to Reply
    15. TomH

      You can try an internet search, but it doesn’t mean a good fit. Perhaps In can mob with recommendations from other T1s it would be better.

      5 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      I currently have a provider but I am not entirely pleased . What would I do to find a new reliable provider? I am considering asking my insurance person since they would know the most reliable person for someone with Type 1 Diabetes.

      5 years ago Log in to Reply
    17. Jillmarie61

      All of the above would be a good answer.

      1
      5 years ago Log in to Reply
    18. Molly Jones

      All of the choices were chosen. I also like to see if what papers they have been currently involved in. I like my doctors to be involved in research or in a University hospital to know they are up to date.

      1
      5 years ago Log in to Reply
    19. Jeff Perzan

      I have always selected a doctor who is involved in academic medicine as they tend to be more up on the latest and greatest.

      5 years ago Log in to Reply
    20. LizB

      I have only ever had 2 endos and I found both by calling a local, well respected teaching hospital and choosing from their practice. I made sure that the endo I chose specialized in diabetes, and not something like reproductive medicine or another disease I don’t have.

      5 years ago Log in to Reply
    21. Nicholas Argento

      I would contact the local Dexcom and tandem representatives and find out who in their area prescribed a lot of them and had a good reputation- because if someone were not tech savvy, they would not be a good fit for me.

      5 years ago Log in to Reply
      1. PamK

        I like that idea!

        5 years ago Log in to Reply
    22. PamK

      All of the above! I moved across the country over 25 years ago and am still looking for a doctor who is a “good fit” for me. I’ve found two or three who are okay, but no one that is great. So far, none of the docs I’ve gone to have been close to the level of treatment my old doctor gave me. Alas, he was one in a million!

      5 years ago Log in to Reply
    23. NAK Marshall

      I’d been T1 since age 9 and when my daughter was diagnosed at age 24, I immediately called my endo (who I love) who is also a researcher in Denver and asked, “Who do you know in Portland, Oregon?” He knew endo’s at a large patient & research clinic there and except for getting the initial appointment which took several days of me calling and sometimes being mom and sometimes pretending to be her, it has been wonderful since! If either of us ever moved, I would research like crazy and then go interview THEM, as would she.

      5 years ago Log in to Reply

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