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    • 14 hours, 35 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 7 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 15 hours, 25 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 56 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 57 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 58 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 16 hours, 23 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 16 hours, 25 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 11 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 11 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 14 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 16 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    How would you go about finding a new T1D healthcare provider if you moved to a new location?

    Home > LC Polls > How would you go about finding a new T1D healthcare provider if you moved to a new location?
    Previous

    During which of the following life transitions did you find it most difficult to manage T1D? Select all that apply to you.

    Next

    Have you ever experienced elevated body temperatures as a side effect of high blood glucose levels?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    25 Comments

    1. ConnieT1D62

      For diabetes care I would seek out other T1Ds in the community and see what they have to say. And of course would have to check out who is covered by insurance particulars.

      2 years ago Log in to Reply
    2. Steven Gill

      When my last doctor moved his practise further than I preferred I use the telephone and just called. She’s the one that got me into the pump (although the last one mentioned it but I was afraid of damaging it, she stressed the 4 year warranty).

      Just moved this past summer, spoke to neighbors and just called and got this GP. Ironically he initially said he knows nothing about the pump nor handles TYPE 1 but after seeing my a1C said if I was okay he’d follow up (he’d said few of his diabetics seeing a specialists had their levels below 7’s).

      Seemed happy to got the booklets for my old pump/CGM

      2 years ago Log in to Reply
    3. Sjoymex

      Unfortunately I don’t know any other t1ds in the area so I’ve always done an internet search looking at reviews, then of course what my insurance covers.

      2 years ago Log in to Reply
    4. connie ker

      I checked all of the above because finding an endo practice is difficult, or the practice is not taking any new patients. Endocrinology is a speciality that medical students tend to avoid. It is vital and requires more education than a GP, but requires a lot of homework to find what fits best for you. I see a NP in the field of endocrinology who travels to my hometown.

      2 years ago Log in to Reply
    5. Sahran Holiday

      Provider directory often inaccurate. Use ZocDoc let’s you filter location, insurance, language. Either way, then Google.

      2
      2 years ago Log in to Reply
      1. lis be

        i agree with this, I recently found out many doctors hire an agency to “clean up” their bad reviews.

        2 years ago Log in to Reply
    6. Joan McGinnis

      I would check out the ones covered by my insurance online diligently reading every review. I would ask other TIDs in the community, maybe call ADA and ask for whom the might be. I would also ask for referral from current endo even if in a different city. You can also look at list of endos in your city online. I would try one out that looks the best to me.

      2 years ago Log in to Reply
    7. Larry Martin

      I live in the USA. It is not about patient preference, it is what insurance will cover.

      4
      2 years ago Log in to Reply
    8. TEH

      When I moved 8 years ago I didn’t have the T1D exchange, so I asked my GP then searched the practice he referred me to on the internet. There are many more capabilities that can be used now, reviews, insurance search ratings, and even google…

      2 years ago Log in to Reply
    9. Derek West

      Whenever I have moved I looked for an Endo associated with a teaching hospital figuring they would be the most up to date.

      1
      2 years ago Log in to Reply
    10. Tod Herman

      I have multiple options. First and foremost would be who was covered by my insurance. Then, if there were more than one choice, I’d try and get the opinions of other T1D folks in that area.

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I’ve been connected with a group called Healthcare map through my Endo. I’ve really connected with the nurse I’ve been assigned. They live in a city I’m considering moving to so I would ask their advice.

      2 years ago Log in to Reply
    12. lis be

      all of the above.

      1
      2 years ago Log in to Reply
    13. Christina Trudo

      I did that recently, researched the advanced training of local endocrinologists and chose one who did a fellowship at Joslin. In past times I got an endo I did not get along with and to change within the same system, I asked a sympatico nurse and my educator who they see, ended up with a gem.

      2
      2 years ago Log in to Reply
    14. GLORIA MILLER

      I have moved several times without knowing anyone in the community so I had to do my own research on doctors. I live in the US and with my insurance I can use whatever doctor I want. The first criteria for me is that the endo be female.

      2 years ago Log in to Reply
    15. TomH

      You can try an internet search, but it doesn’t mean a good fit. Perhaps In can mob with recommendations from other T1s it would be better.

      2 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      I currently have a provider but I am not entirely pleased . What would I do to find a new reliable provider? I am considering asking my insurance person since they would know the most reliable person for someone with Type 1 Diabetes.

      2 years ago Log in to Reply
    17. Jillmarie61

      All of the above would be a good answer.

      1
      2 years ago Log in to Reply
    18. Molly Jones

      All of the choices were chosen. I also like to see if what papers they have been currently involved in. I like my doctors to be involved in research or in a University hospital to know they are up to date.

      1
      2 years ago Log in to Reply
    19. Jeff Perzan

      I have always selected a doctor who is involved in academic medicine as they tend to be more up on the latest and greatest.

      2 years ago Log in to Reply
    20. LizB

      I have only ever had 2 endos and I found both by calling a local, well respected teaching hospital and choosing from their practice. I made sure that the endo I chose specialized in diabetes, and not something like reproductive medicine or another disease I don’t have.

      2 years ago Log in to Reply
    21. Nicholas Argento

      I would contact the local Dexcom and tandem representatives and find out who in their area prescribed a lot of them and had a good reputation- because if someone were not tech savvy, they would not be a good fit for me.

      2 years ago Log in to Reply
      1. PamK

        I like that idea!

        2 years ago Log in to Reply
    22. PamK

      All of the above! I moved across the country over 25 years ago and am still looking for a doctor who is a “good fit” for me. I’ve found two or three who are okay, but no one that is great. So far, none of the docs I’ve gone to have been close to the level of treatment my old doctor gave me. Alas, he was one in a million!

      2 years ago Log in to Reply
    23. NAK Marshall

      I’d been T1 since age 9 and when my daughter was diagnosed at age 24, I immediately called my endo (who I love) who is also a researcher in Denver and asked, “Who do you know in Portland, Oregon?” He knew endo’s at a large patient & research clinic there and except for getting the initial appointment which took several days of me calling and sometimes being mom and sometimes pretending to be her, it has been wonderful since! If either of us ever moved, I would research like crazy and then go interview THEM, as would she.

      2 years ago Log in to Reply

    How would you go about finding a new T1D healthcare provider if you moved to a new location? Cancel reply

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