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    • 8 hours, 35 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 26 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 10 hours, 21 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 4 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 11 hours, 24 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 11 hours, 55 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 12 hours ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 12 hours, 54 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 12 hours, 56 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 13 hours, 25 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 13 hours, 33 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 13 hours, 38 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 1 day ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 5 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 22 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 5 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 6 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 6 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 6 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 8 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 9 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    How would you go about finding a new T1D healthcare provider if you moved to a new location?

    Home > LC Polls > How would you go about finding a new T1D healthcare provider if you moved to a new location?
    Previous

    During which of the following life transitions did you find it most difficult to manage T1D? Select all that apply to you.

    Next

    Have you ever experienced elevated body temperatures as a side effect of high blood glucose levels?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    25 Comments

    1. ConnieT1D62

      For diabetes care I would seek out other T1Ds in the community and see what they have to say. And of course would have to check out who is covered by insurance particulars.

      2 years ago Log in to Reply
    2. Steven Gill

      When my last doctor moved his practise further than I preferred I use the telephone and just called. She’s the one that got me into the pump (although the last one mentioned it but I was afraid of damaging it, she stressed the 4 year warranty).

      Just moved this past summer, spoke to neighbors and just called and got this GP. Ironically he initially said he knows nothing about the pump nor handles TYPE 1 but after seeing my a1C said if I was okay he’d follow up (he’d said few of his diabetics seeing a specialists had their levels below 7’s).

      Seemed happy to got the booklets for my old pump/CGM

      2 years ago Log in to Reply
    3. Sjoymex

      Unfortunately I don’t know any other t1ds in the area so I’ve always done an internet search looking at reviews, then of course what my insurance covers.

      2 years ago Log in to Reply
    4. connie ker

      I checked all of the above because finding an endo practice is difficult, or the practice is not taking any new patients. Endocrinology is a speciality that medical students tend to avoid. It is vital and requires more education than a GP, but requires a lot of homework to find what fits best for you. I see a NP in the field of endocrinology who travels to my hometown.

      2 years ago Log in to Reply
    5. Sahran Holiday

      Provider directory often inaccurate. Use ZocDoc let’s you filter location, insurance, language. Either way, then Google.

      2
      2 years ago Log in to Reply
      1. lis be

        i agree with this, I recently found out many doctors hire an agency to “clean up” their bad reviews.

        2 years ago Log in to Reply
    6. Joan McGinnis

      I would check out the ones covered by my insurance online diligently reading every review. I would ask other TIDs in the community, maybe call ADA and ask for whom the might be. I would also ask for referral from current endo even if in a different city. You can also look at list of endos in your city online. I would try one out that looks the best to me.

      2 years ago Log in to Reply
    7. Larry Martin

      I live in the USA. It is not about patient preference, it is what insurance will cover.

      4
      2 years ago Log in to Reply
    8. TEH

      When I moved 8 years ago I didn’t have the T1D exchange, so I asked my GP then searched the practice he referred me to on the internet. There are many more capabilities that can be used now, reviews, insurance search ratings, and even google…

      2 years ago Log in to Reply
    9. Derek West

      Whenever I have moved I looked for an Endo associated with a teaching hospital figuring they would be the most up to date.

      1
      2 years ago Log in to Reply
    10. Tod Herman

      I have multiple options. First and foremost would be who was covered by my insurance. Then, if there were more than one choice, I’d try and get the opinions of other T1D folks in that area.

      1
      2 years ago Log in to Reply
    11. Sue Martin

      I’ve been connected with a group called Healthcare map through my Endo. I’ve really connected with the nurse I’ve been assigned. They live in a city I’m considering moving to so I would ask their advice.

      2 years ago Log in to Reply
    12. lis be

      all of the above.

      1
      2 years ago Log in to Reply
    13. Christina Trudo

      I did that recently, researched the advanced training of local endocrinologists and chose one who did a fellowship at Joslin. In past times I got an endo I did not get along with and to change within the same system, I asked a sympatico nurse and my educator who they see, ended up with a gem.

      2
      2 years ago Log in to Reply
    14. GLORIA MILLER

      I have moved several times without knowing anyone in the community so I had to do my own research on doctors. I live in the US and with my insurance I can use whatever doctor I want. The first criteria for me is that the endo be female.

      2 years ago Log in to Reply
    15. TomH

      You can try an internet search, but it doesn’t mean a good fit. Perhaps In can mob with recommendations from other T1s it would be better.

      2 years ago Log in to Reply
    16. Marie Cardinell-Daldry

      I currently have a provider but I am not entirely pleased . What would I do to find a new reliable provider? I am considering asking my insurance person since they would know the most reliable person for someone with Type 1 Diabetes.

      2 years ago Log in to Reply
    17. Jillmarie61

      All of the above would be a good answer.

      1
      2 years ago Log in to Reply
    18. Molly Jones

      All of the choices were chosen. I also like to see if what papers they have been currently involved in. I like my doctors to be involved in research or in a University hospital to know they are up to date.

      1
      2 years ago Log in to Reply
    19. Jeff Perzan

      I have always selected a doctor who is involved in academic medicine as they tend to be more up on the latest and greatest.

      2 years ago Log in to Reply
    20. LizB

      I have only ever had 2 endos and I found both by calling a local, well respected teaching hospital and choosing from their practice. I made sure that the endo I chose specialized in diabetes, and not something like reproductive medicine or another disease I don’t have.

      2 years ago Log in to Reply
    21. Nicholas Argento

      I would contact the local Dexcom and tandem representatives and find out who in their area prescribed a lot of them and had a good reputation- because if someone were not tech savvy, they would not be a good fit for me.

      2 years ago Log in to Reply
      1. PamK

        I like that idea!

        2 years ago Log in to Reply
    22. PamK

      All of the above! I moved across the country over 25 years ago and am still looking for a doctor who is a “good fit” for me. I’ve found two or three who are okay, but no one that is great. So far, none of the docs I’ve gone to have been close to the level of treatment my old doctor gave me. Alas, he was one in a million!

      2 years ago Log in to Reply
    23. NAK Marshall

      I’d been T1 since age 9 and when my daughter was diagnosed at age 24, I immediately called my endo (who I love) who is also a researcher in Denver and asked, “Who do you know in Portland, Oregon?” He knew endo’s at a large patient & research clinic there and except for getting the initial appointment which took several days of me calling and sometimes being mom and sometimes pretending to be her, it has been wonderful since! If either of us ever moved, I would research like crazy and then go interview THEM, as would she.

      2 years ago Log in to Reply

    How would you go about finding a new T1D healthcare provider if you moved to a new location? Cancel reply

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