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    • 3 hours, 11 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 3 hours, 17 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 3 hours, 23 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 22 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 3 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 4 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 5 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 6 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 6 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 6 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 22 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 1 hour ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 2 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 4 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    How satisfied are you with the overall customer service provided by T1D supply companies?

    Home > LC Polls > How satisfied are you with the overall customer service provided by T1D supply companies?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    37 Comments

    1. Jana Venditte

      Edgepark a difficult 3 rd party.

      3 years ago Log in to Reply
    2. Lyn McQuaid

      I am jealous of those who answered “very satisfied” or “satisfied”. Please share what T1D supply companies you use! I am currently using CCS Medical and just had to call them (yet again) yesterday because an order I had made that was supposed to ship back on Aug. 19th was still listed as having “Documentation in Process”. When I called to inquire about what documents were in process, the customer service rep said that they had been waiting for authorization from my doctor but that she could see that it had been received several days ago and that she would make sure it was “shipped out today”…sigh…it shouldn’t take continual phone calls from me to make sure that things are done. Then again, I understand that companies are short-staffed so I try to be patient but would love to know what companies you all are having success using!

      2
      3 years ago Log in to Reply
      1. Glenda Schuessler

        I am also a customer of CCSMed and have experienced the same issues as you report. In 20 plus years I have had to use different supply companies, unfortunately the issues seem the same with each. It causes me to wonder if it is a medical supply company issue, an insurance company issue or (I think less likely) a physician office issue. I prefer to call and order when I need supplies rather than accepting an every three months order of pump and CGM supplies, I think I am the exception to the usual. . . .but it seems to make no sense to me to have boxes of unused supplies which leads to outdating and discarding. I personally have a hard time accepting such waste.

        1
        3 years ago Log in to Reply
      2. MT

        I get my Libre from the local cvs because it’s cheaper than my 90 day pharmacy; yes it’s a PIA to go every month but worth the cost savings. Pen needles come from Express Scripts.

        3 years ago Log in to Reply
    3. Jane Cerullo

      I get everything at my Walmart pharmacy. The staff has been so supportive over the years. I get my insulin cartridges for InPen and also the yearly InPen. Get my Dexcom G7 also. Only thing I get from other vendor is pen needles. Diathrive is so inexpensive. 100 for $9

      3 years ago Log in to Reply
    4. Jneticdiabetic

      I give the messaging from the diabetes supplier that sends my Dexcom CGMs to be a little slow and clunky. Pump/CGM manufacturers help lines are fine. I do miss the old days in the early 2000s when I used to call Medtronic and 9 times out of 10 the person helping me would also be a T1D person wearing their pump so knew how to help without having to look it up on the computer.

      1
      3 years ago Log in to Reply
    5. Grey Gray

      Not sure… been with minimed 25+ years. Until lately the customer service was always excellent. Recently I have found a couple real dumb asses on the line and they sounded American. Now when I call I hope I get the call center in the Philippines. They are always very nice and helpful.

      3 years ago Log in to Reply
    6. Kathryn Keller

      Byram has been driving me crazy. Previous order for dexcom g6 sensors took 30 days. And now getting close to 30 days again and of course I don’t get sensors for that time period.

      1
      3 years ago Log in to Reply
      1. William Bennett

        This is an area where the system is set up to prevent you doing what’s best for you and your ability to manage this disease, namely maintaining backup supplies for outages and emergencies. So we all evolve ways of dodging the system in order to do that. BECAUSE IT’S A NECESSITY. Pretty easy for insulin, but DME is a little harder. As far as Dexcom is concerned I’ve done two things to ensure I have a few in reserve for emergencies. One is doing session “restarts.” Various tutorials how to do that online. I find the sensors often remain good for an additional 10 days or so, though the overtaping can get a little ugly. A few of those and you can sock away a couple from your order for emergencies. Also Dexcom is very generous with replacements for sensors that don’t go the full distance, or are painful at the insertion point. I think there’s a limit to how many per month, but basically if you have a problem, they’ll replace it. Adhesion failures are common in the last couple days of a session and if you ask for a replacement you can end up overlapping your next resupply order and end up with a couple in reserve that way.

        5
        3 years ago Log in to Reply
      2. Bruce and Audrey Coleman

        I feel your pain. See my comment above re Byram.

        3 years ago Log in to Reply
    7. Sherolyn Newell

      I think I misunderstood the question. I get my Omnipods and Dexcom G7 sensors from CVS pharmacy. They do a good job. What I was thinking when I answered was customer service from Omnipod and Dexcom. I have always been very satisfied with the customer service at Omnipod. I started out hating the customer service at Dexcom, but it has improved greatly since I started with them. I would say satisfied on Dexcom

      3 years ago Log in to Reply
      1. Molly Jones

        I misunderstood also. I am grateful my insurance allows direct orders from the pharmacy and Tandem.

        3 years ago Log in to Reply
    8. KIMBERELY SMITH

      Very much

      3 years ago Log in to Reply
    9. William Bennett

      “T1D supply companies” and “overall” covers too much ground for a single answer. I use two separate DME suppliers, three if you count insulin as DME (which Medicare does); four if you count Dexcom and Tandem themselves. I’ve had more hassles with some than with others. By and large the manufacturers themselves are the most responsive. At the opposite end, getting my insulin under DME from Walgreens was a monumental PITA, not least because Medicare seems designed to be as unhelpful as possible, including knowing their OWN rules and directives about this stuff. So “overall” I guess I’m marginally satisfied but that doesn’t reflect the dread I feel having to contact some of these entities when there are problems.

      2
      3 years ago Log in to Reply
    10. Shelly Smith

      I answered “very satisfied” although it is not that there is never any glitches. For the most part, tho, I am well taken care of. I use Byram for my pump supplies and USmed takes care of my Dexcom needs. (I also am a Medicare participant.)

      1
      3 years ago Log in to Reply
    11. dave hedeen

      Satisfied with all supply items, except sensors limited to 30 qty. all other Medicare supplies are 90 days. Often Medicare requires I reuse CGM sensors or stop receiving BG values

      3 years ago Log in to Reply
    12. Bruce and Audrey Coleman

      The two companies I deal with have been doing OK until recently when I ran out of pump supplies due to some game one of them was playing. They accepted the order and then two weeks later I got an email saying the order was cancelled. Several phone calls later they stated they did not have insurance info. This has never been a problem in the past so I ask them to follow up on that . Then they changed and said that Joslin did not send chart notes and a prescription. Of course I then called Joslin and they stated they did not receive the request. Who to believe? So Joslin sends the required info and still no supplies. Calls to Byram Healthcare and they tell me that that they have the chart notes but the prescription, which was sent at the same time, was “blurry”. I again call Joslin and ask them to resend the prescription. I am down to my last Omnipod and I ask Byram to send my order overnight being that they had dropped the ball for over one month. That did not happen of course and my Omnipods finally arrived 4 days later.

      1
      3 years ago Log in to Reply
      1. Bernard Farrell

        Try Reliable Diabetes, service has been excellent for me

        3 years ago Log in to Reply
    13. Sue Martin

      I get my supplies through my hospital medical pharmacy. They do a great job.

      3 years ago Log in to Reply
    14. Lawrence S.

      I said “neither satisfied or dissatisfied.” Sometimes it’s fine, I get my orders. Other times, not so. Recently, I got a message from Edgepark, stating, “There is a problem with the credit card provided for order payment.” I don’t use a credit card with them. My insurance picks up 100%. So, I’m on the phone with them to fix a “non problem” that they created.

      But my biggest issue is that I can only get 32 inch tubing for my cannulas. I keep asking for 43 inch tubing, but they don’t carry it anymore. However, 43 inch tubing comes with other types of cannulas.

      4
      3 years ago Log in to Reply
      1. Kristine Warmecke

        I had the same problem with them, even when it shows a 43 in for the site I use in their catalog. They would just randomly pick what they sent me, as most times it wasn’t even the correct brand for my pump sensor.

        1
        3 years ago Log in to Reply
    15. Marty

      My last shipment of pump supplies was delayed for a month with my supplier and endo’s office each blaming each other for the delay. Who knows where the fault lies? I was required (by someone) to prove I still have T1D with a C-peptide test, which required me to wait for a lab appt and processing. Turned out that I still have T1D and still need the supplies-surprise! Each iteration of the process involved multiple phone transfers and hold times with my supplier because they have too few customer service agents and no capacity for online interactions. Is it any wonder that we try to hoard excess supplies?

      6
      3 years ago Log in to Reply
      1. Lawrence S.

        I’ve been in that cycle numerous times in the past. What a waste of time.

        3 years ago Log in to Reply
    16. ChrisW

      The in network options for durable medical equipment suppliers are the third number one threat to my health.

      3
      3 years ago Log in to Reply
    17. Bernard Farrell

      I have type 1, I hate that some companies ask whether I still have it.
      I’ve yet to hear of any spontaneous cures!

      4
      3 years ago Log in to Reply
      1. Trina Blake

        Or…we’re too old to “still” have it! I think some supply companies must have their employees trained by insurance claims dept employees.

        1
        3 years ago Log in to Reply
    18. Janis Senungetuk

      I’ve been dealing with Edwards for my pump, CGM and glucose strips since 2016. They’re the ONLY supplier my primary and Medicare, my secondary agree on. Up until the pandemic I was a very satisfied customer. Since March, 2020 the complete chaos that has engulfed the company has created constant stress and total dissatisfaction with all aspects of my relationship with them.

      1
      3 years ago Log in to Reply
    19. Karen Mielish-Clausell

      Some companies are great. Others are questionable like Byram healthcare who I was with for years. All of a sudden Adam blew the drop us don’t even send a letter they don’t notify us until they say I’m sorry you’re not contracted with us anymore and that is frustrating. Coming from a type one who needs pump supplies and CGM supplies

      3 years ago Log in to Reply
    20. Amanda Barras

      A Little Satisfied:
      If we are talking Edgepark
      They are the worst company I’ve ever encountered. Horribly slow and incompetent. Customer service reps do not know what they are doin hand will blatantly lie to you to get you off the phone.
      Byram is decent, they just have issues properly billing my secondary insurance and mislabel my primary insurance often on claim forms.

      2
      3 years ago Log in to Reply
    21. Kristine Warmecke

      Since I no longer have to deal with EdgePark and their inability to send the correct insulin pump and sensor supplies; I’ve been extremely satisfied. Cannot recommend ADS – Advanced Diabetes Supplies – enough.

      3 years ago Log in to Reply
    22. Becky Hertz

      I’ve used Byram for years and haven’t had any issues. They must like my insurance. A friend of mine also uses Byram and has had nothing but hassles (different insurance).

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        I used Byram Health Supplies years ago, and could not get a correct order from them. They almost always sent the wrong number of supplies, and the wrong supplies. I complained constantly, and went up the chain of command. They still could not get it right. I finally dropped Byram and went to Edgepark. Edgepark is much better, but still has problems. They are the only two DME companies my secondary health insurance deals with. So, I’m stuck.

        3 years ago Log in to Reply
    23. lis be

      would be a super easy world if there was just one DME to need supplies from

      3 years ago Log in to Reply
    24. T1D4LongTime

      The supply companies I deal with (CVS Caremark mail order and EdgePark) have provided good customer service. Some of their policies on refills are too restrictive and do not serve T1Ds well. However, some of these restrictions are due to US’s healthcare systems. Customer service, especially with Edgepark, has been excellent. There are mistakes, but all companies have issues.

      3 years ago Log in to Reply
    25. Ruth Chapman

      Insulet who supply omnipod are excellent – difficult to find fault. Abbot who supply Libre2 are very good, but more limited opening hrs and slower delivery – so not quite as brilliant as Insulet who are open 24hrs and had a new pdm delivered to me within 4hrs.

      3 years ago Log in to Reply
    26. PamK

      I’m not clear on who you mean by T1D supply companies. Do you mean the manufacturer or the pharmacy/mail order supplier?

      The T1D supply manufacturers, IE: pump/CGM/glucose meter manufacturers, have been pretty good to me. Recently, one company’s call center changed and I don’t like the new one as well as the previous. They’re not as knowledgeable.

      The pharmacies I use (both local and mail order) have been good so far – – I got new insurance in March of this year.

      3 years ago Log in to Reply
    27. Wanacure

      I’m on Kaiser Permanente Medicare Advantage Plan. Never a problem with the KP pharmacy mail service for insulin refills, syringes, lancets, or getting One Touch meters or strips. KP must have good relations with Byram which provides my Dexcom 6 supplies. Byram sends me emails reminding me when time to reorder. All i have to do is confirm promptly and stuff arrives on time. Same with all KP pharmacy refills. KP medical is non profit but all KP insurance plans, including various Medicare plans, are FOR PROFIT. Like all FOR PROFIT medical insurance companies they over charge Medicare and hope to privatize it. Then they’ll really be free to charge us more. See https://socialsecurityworks.org.

      3 years ago Log in to Reply

    How satisfied are you with the overall customer service provided by T1D supply companies? Cancel reply

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