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    • 23 minutes ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 3 hours, 11 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 13 hours, 54 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 15 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 15 hours, 21 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 17 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 17 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 17 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 18 hours, 17 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 40 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 21 hours, 37 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 13 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 15 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 19 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 21 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 21 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
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    How satisfied are you with the overall customer service provided by T1D supply companies?

    Home > LC Polls > How satisfied are you with the overall customer service provided by T1D supply companies?
    Previous

    Do you refrigerate your insulin after opening the vial/pen?

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    37 Comments

    1. Jana Venditte

      Edgepark a difficult 3 rd party.

      2 years ago Log in to Reply
    2. Lyn McQuaid

      I am jealous of those who answered “very satisfied” or “satisfied”. Please share what T1D supply companies you use! I am currently using CCS Medical and just had to call them (yet again) yesterday because an order I had made that was supposed to ship back on Aug. 19th was still listed as having “Documentation in Process”. When I called to inquire about what documents were in process, the customer service rep said that they had been waiting for authorization from my doctor but that she could see that it had been received several days ago and that she would make sure it was “shipped out today”…sigh…it shouldn’t take continual phone calls from me to make sure that things are done. Then again, I understand that companies are short-staffed so I try to be patient but would love to know what companies you all are having success using!

      2
      2 years ago Log in to Reply
      1. Glenda Schuessler

        I am also a customer of CCSMed and have experienced the same issues as you report. In 20 plus years I have had to use different supply companies, unfortunately the issues seem the same with each. It causes me to wonder if it is a medical supply company issue, an insurance company issue or (I think less likely) a physician office issue. I prefer to call and order when I need supplies rather than accepting an every three months order of pump and CGM supplies, I think I am the exception to the usual. . . .but it seems to make no sense to me to have boxes of unused supplies which leads to outdating and discarding. I personally have a hard time accepting such waste.

        1
        2 years ago Log in to Reply
      2. MT

        I get my Libre from the local cvs because it’s cheaper than my 90 day pharmacy; yes it’s a PIA to go every month but worth the cost savings. Pen needles come from Express Scripts.

        2 years ago Log in to Reply
    3. Jane Cerullo

      I get everything at my Walmart pharmacy. The staff has been so supportive over the years. I get my insulin cartridges for InPen and also the yearly InPen. Get my Dexcom G7 also. Only thing I get from other vendor is pen needles. Diathrive is so inexpensive. 100 for $9

      2 years ago Log in to Reply
    4. Jneticdiabetic

      I give the messaging from the diabetes supplier that sends my Dexcom CGMs to be a little slow and clunky. Pump/CGM manufacturers help lines are fine. I do miss the old days in the early 2000s when I used to call Medtronic and 9 times out of 10 the person helping me would also be a T1D person wearing their pump so knew how to help without having to look it up on the computer.

      1
      2 years ago Log in to Reply
    5. Grey Gray

      Not sure… been with minimed 25+ years. Until lately the customer service was always excellent. Recently I have found a couple real dumb asses on the line and they sounded American. Now when I call I hope I get the call center in the Philippines. They are always very nice and helpful.

      2 years ago Log in to Reply
    6. Kathryn Keller

      Byram has been driving me crazy. Previous order for dexcom g6 sensors took 30 days. And now getting close to 30 days again and of course I don’t get sensors for that time period.

      1
      2 years ago Log in to Reply
      1. William Bennett

        This is an area where the system is set up to prevent you doing what’s best for you and your ability to manage this disease, namely maintaining backup supplies for outages and emergencies. So we all evolve ways of dodging the system in order to do that. BECAUSE IT’S A NECESSITY. Pretty easy for insulin, but DME is a little harder. As far as Dexcom is concerned I’ve done two things to ensure I have a few in reserve for emergencies. One is doing session “restarts.” Various tutorials how to do that online. I find the sensors often remain good for an additional 10 days or so, though the overtaping can get a little ugly. A few of those and you can sock away a couple from your order for emergencies. Also Dexcom is very generous with replacements for sensors that don’t go the full distance, or are painful at the insertion point. I think there’s a limit to how many per month, but basically if you have a problem, they’ll replace it. Adhesion failures are common in the last couple days of a session and if you ask for a replacement you can end up overlapping your next resupply order and end up with a couple in reserve that way.

        5
        2 years ago Log in to Reply
      2. Bruce and Audrey Coleman

        I feel your pain. See my comment above re Byram.

        2 years ago Log in to Reply
    7. Sherolyn Newell

      I think I misunderstood the question. I get my Omnipods and Dexcom G7 sensors from CVS pharmacy. They do a good job. What I was thinking when I answered was customer service from Omnipod and Dexcom. I have always been very satisfied with the customer service at Omnipod. I started out hating the customer service at Dexcom, but it has improved greatly since I started with them. I would say satisfied on Dexcom

      2 years ago Log in to Reply
      1. Molly Jones

        I misunderstood also. I am grateful my insurance allows direct orders from the pharmacy and Tandem.

        2 years ago Log in to Reply
    8. KIMBERELY SMITH

      Very much

      2 years ago Log in to Reply
    9. William Bennett

      “T1D supply companies” and “overall” covers too much ground for a single answer. I use two separate DME suppliers, three if you count insulin as DME (which Medicare does); four if you count Dexcom and Tandem themselves. I’ve had more hassles with some than with others. By and large the manufacturers themselves are the most responsive. At the opposite end, getting my insulin under DME from Walgreens was a monumental PITA, not least because Medicare seems designed to be as unhelpful as possible, including knowing their OWN rules and directives about this stuff. So “overall” I guess I’m marginally satisfied but that doesn’t reflect the dread I feel having to contact some of these entities when there are problems.

      2
      2 years ago Log in to Reply
    10. Shelly Smith

      I answered “very satisfied” although it is not that there is never any glitches. For the most part, tho, I am well taken care of. I use Byram for my pump supplies and USmed takes care of my Dexcom needs. (I also am a Medicare participant.)

      1
      2 years ago Log in to Reply
    11. dave hedeen

      Satisfied with all supply items, except sensors limited to 30 qty. all other Medicare supplies are 90 days. Often Medicare requires I reuse CGM sensors or stop receiving BG values

      2 years ago Log in to Reply
    12. Bruce and Audrey Coleman

      The two companies I deal with have been doing OK until recently when I ran out of pump supplies due to some game one of them was playing. They accepted the order and then two weeks later I got an email saying the order was cancelled. Several phone calls later they stated they did not have insurance info. This has never been a problem in the past so I ask them to follow up on that . Then they changed and said that Joslin did not send chart notes and a prescription. Of course I then called Joslin and they stated they did not receive the request. Who to believe? So Joslin sends the required info and still no supplies. Calls to Byram Healthcare and they tell me that that they have the chart notes but the prescription, which was sent at the same time, was “blurry”. I again call Joslin and ask them to resend the prescription. I am down to my last Omnipod and I ask Byram to send my order overnight being that they had dropped the ball for over one month. That did not happen of course and my Omnipods finally arrived 4 days later.

      1
      2 years ago Log in to Reply
      1. Bernard Farrell

        Try Reliable Diabetes, service has been excellent for me

        2 years ago Log in to Reply
    13. Sue Martin

      I get my supplies through my hospital medical pharmacy. They do a great job.

      2 years ago Log in to Reply
    14. Lawrence S.

      I said “neither satisfied or dissatisfied.” Sometimes it’s fine, I get my orders. Other times, not so. Recently, I got a message from Edgepark, stating, “There is a problem with the credit card provided for order payment.” I don’t use a credit card with them. My insurance picks up 100%. So, I’m on the phone with them to fix a “non problem” that they created.

      But my biggest issue is that I can only get 32 inch tubing for my cannulas. I keep asking for 43 inch tubing, but they don’t carry it anymore. However, 43 inch tubing comes with other types of cannulas.

      4
      2 years ago Log in to Reply
      1. Kristine Warmecke

        I had the same problem with them, even when it shows a 43 in for the site I use in their catalog. They would just randomly pick what they sent me, as most times it wasn’t even the correct brand for my pump sensor.

        1
        2 years ago Log in to Reply
    15. Marty

      My last shipment of pump supplies was delayed for a month with my supplier and endo’s office each blaming each other for the delay. Who knows where the fault lies? I was required (by someone) to prove I still have T1D with a C-peptide test, which required me to wait for a lab appt and processing. Turned out that I still have T1D and still need the supplies-surprise! Each iteration of the process involved multiple phone transfers and hold times with my supplier because they have too few customer service agents and no capacity for online interactions. Is it any wonder that we try to hoard excess supplies?

      6
      2 years ago Log in to Reply
      1. Lawrence S.

        I’ve been in that cycle numerous times in the past. What a waste of time.

        2 years ago Log in to Reply
    16. ChrisW

      The in network options for durable medical equipment suppliers are the third number one threat to my health.

      3
      2 years ago Log in to Reply
    17. Bernard Farrell

      I have type 1, I hate that some companies ask whether I still have it.
      I’ve yet to hear of any spontaneous cures!

      4
      2 years ago Log in to Reply
      1. Trina Blake

        Or…we’re too old to “still” have it! I think some supply companies must have their employees trained by insurance claims dept employees.

        1
        2 years ago Log in to Reply
    18. Janis Senungetuk

      I’ve been dealing with Edwards for my pump, CGM and glucose strips since 2016. They’re the ONLY supplier my primary and Medicare, my secondary agree on. Up until the pandemic I was a very satisfied customer. Since March, 2020 the complete chaos that has engulfed the company has created constant stress and total dissatisfaction with all aspects of my relationship with them.

      1
      2 years ago Log in to Reply
    19. Karen Mielish-Clausell

      Some companies are great. Others are questionable like Byram healthcare who I was with for years. All of a sudden Adam blew the drop us don’t even send a letter they don’t notify us until they say I’m sorry you’re not contracted with us anymore and that is frustrating. Coming from a type one who needs pump supplies and CGM supplies

      2 years ago Log in to Reply
    20. Amanda Barras

      A Little Satisfied:
      If we are talking Edgepark
      They are the worst company I’ve ever encountered. Horribly slow and incompetent. Customer service reps do not know what they are doin hand will blatantly lie to you to get you off the phone.
      Byram is decent, they just have issues properly billing my secondary insurance and mislabel my primary insurance often on claim forms.

      2
      2 years ago Log in to Reply
    21. Kristine Warmecke

      Since I no longer have to deal with EdgePark and their inability to send the correct insulin pump and sensor supplies; I’ve been extremely satisfied. Cannot recommend ADS – Advanced Diabetes Supplies – enough.

      2 years ago Log in to Reply
    22. Becky Hertz

      I’ve used Byram for years and haven’t had any issues. They must like my insurance. A friend of mine also uses Byram and has had nothing but hassles (different insurance).

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        I used Byram Health Supplies years ago, and could not get a correct order from them. They almost always sent the wrong number of supplies, and the wrong supplies. I complained constantly, and went up the chain of command. They still could not get it right. I finally dropped Byram and went to Edgepark. Edgepark is much better, but still has problems. They are the only two DME companies my secondary health insurance deals with. So, I’m stuck.

        2 years ago Log in to Reply
    23. lis be

      would be a super easy world if there was just one DME to need supplies from

      2 years ago Log in to Reply
    24. T1D4LongTime

      The supply companies I deal with (CVS Caremark mail order and EdgePark) have provided good customer service. Some of their policies on refills are too restrictive and do not serve T1Ds well. However, some of these restrictions are due to US’s healthcare systems. Customer service, especially with Edgepark, has been excellent. There are mistakes, but all companies have issues.

      2 years ago Log in to Reply
    25. Ruth Chapman

      Insulet who supply omnipod are excellent – difficult to find fault. Abbot who supply Libre2 are very good, but more limited opening hrs and slower delivery – so not quite as brilliant as Insulet who are open 24hrs and had a new pdm delivered to me within 4hrs.

      2 years ago Log in to Reply
    26. PamK

      I’m not clear on who you mean by T1D supply companies. Do you mean the manufacturer or the pharmacy/mail order supplier?

      The T1D supply manufacturers, IE: pump/CGM/glucose meter manufacturers, have been pretty good to me. Recently, one company’s call center changed and I don’t like the new one as well as the previous. They’re not as knowledgeable.

      The pharmacies I use (both local and mail order) have been good so far – – I got new insurance in March of this year.

      2 years ago Log in to Reply
    27. Wanacure

      I’m on Kaiser Permanente Medicare Advantage Plan. Never a problem with the KP pharmacy mail service for insulin refills, syringes, lancets, or getting One Touch meters or strips. KP must have good relations with Byram which provides my Dexcom 6 supplies. Byram sends me emails reminding me when time to reorder. All i have to do is confirm promptly and stuff arrives on time. Same with all KP pharmacy refills. KP medical is non profit but all KP insurance plans, including various Medicare plans, are FOR PROFIT. Like all FOR PROFIT medical insurance companies they over charge Medicare and hope to privatize it. Then they’ll really be free to charge us more. See https://socialsecurityworks.org.

      2 years ago Log in to Reply

    How satisfied are you with the overall customer service provided by T1D supply companies? Cancel reply

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