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    • 13 hours, 28 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 13 hours, 30 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 13 hours, 31 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 13 hours, 31 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 13 hours, 40 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 15 hours, 32 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 15 hours, 33 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 15 hours, 35 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 19 hours, 35 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 21 hours, 37 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 22 hours, 19 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 23 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 47 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 22 hours, 47 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 22 hours, 47 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 22 hours, 48 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 22 hours, 49 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 22 hours, 52 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 53 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 56 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 22 hours, 56 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 23 hours, 9 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 23 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 23 hours, 38 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!

    Home > LC Polls > How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!
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    If you use time in range reports, what percentage of time did you spend in range during the past 7 days?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Ahh Life

      Weekly, downloading the data every Saturday or Sunday morning. I do check the 3 week or monthly data groupings also for trends, since the weekly data can sometimes reflect equipment failure effects. ლ( ͡~ 𝆒 ͡°)ლ

      4 years ago Log in to Reply
    2. Richard Vaughn

      I keep a lot of data on charts of my own making. I get all I need from those charts. I am old fashioned. I don’t need the newer methods.

      1
      4 years ago Log in to Reply
      1. Don P

        Mornin’ Richard, I’m almost as old “skul” as you, still use written ( of which contains tons more detail than any device can provide ) along with all the new methods. For instant results, new is much easier, for better control, written is the only way.

        4 years ago Log in to Reply
    3. TomH

      We could use some articles on how to analyze CGM/pump data and how to apply it!

      3
      4 years ago Log in to Reply
    4. Andrew Stewart

      I use Glookco to track my numbers from Dexcom G6 and Tandem t:slim and I only import the t:slim data every couple of weeks but look at the CGM data at least twice a day for inspiration and motivation.

      4 years ago Log in to Reply
      1. Andrew Stewart

        Sorry, that’s Glooko 🤦‍♂️

        4 years ago Log in to Reply
    5. Annie Wall

      I don’t have to download a thing. Between Tandem and Dexcom, everything flows to the websites which my endo has access to. I frequently look at the Tandem app on my phone but if I want to look at more data, I simply go to the Tandem webpage. This has made it so easy for me to tweek ratios and not wait for a doctor visit. But the doctor visits often help me look at the bigger picture rather than doing the crazy nitpicking I’m bent on doing!

      4 years ago Log in to Reply
    6. Amanda Barras

      I make my own adjustments as necessary. But, I only view my data a few times a year.

      4 years ago Log in to Reply
    7. ConnieT1D62

      I do a glance through once or twice a month to review patterns and problem areas, and tweak as needed. At endocrine provider visits, her staff does a full data download for the past 3 months, but we really only focus on the most recent and current trends from the past 2 – 3 weeks when I see her. We look at spikes and valleys, discuss what may or may not have been going on and recognize the past data is past data and may not be of concern any longer. Unless of course it is – then we make changes.

      4 years ago Log in to Reply
    8. Steve Rumble

      I am participating in a study evaluating the benefits of regular virtual counseling for T1D control so I speak with a counselor every 2 weeks for a detailed review of my data. I also look at my data every few days.

      4 years ago Log in to Reply
      1. Miriam Dahan

        @Steve Rumble can I ask how you found such a study? Can you direct me to a particular website?

        4 years ago Log in to Reply
    9. kristina blake

      I upload for my use every month, although I use T-Connect so it ships off to the ENdo office as well. I do my own tweaking and my monthly data shows me that – for me- where my infusion sets are makes a difference. So while some people have profiles set to workdays vs weekends etc mine a based on infusion set placement and labeled as such (eg legs, belly etc)

      2
      4 years ago Log in to Reply
    10. Sondra Mangan

      With automated upload of Omnipod DASH and Dexcom G6 data, it is very easy to take a look at my data—every day if I wish.

      4 years ago Log in to Reply
    11. betsy valian

      for my Endo appts only.

      4 years ago Log in to Reply
    12. Mary Dexter

      Sporadically

      1
      4 years ago Log in to Reply
    13. Kathryn Keller

      I don’t download anything as we use night scout and dexcom. It all happens automatically. I more just adjust as things happen. If I notice something is happening routinely, then will make an adjustment.

      4 years ago Log in to Reply
    14. Mig Vascos

      Only review the actual reports during my tele health visits. Otherwise I check the apps on the phone daily just to have a make sure that I’m staying on my goal.
      My diabetes team has only been doing telehealth and no in person visits. It’s convenient when we are just checking reports since I do my own adjustments to the pump but I feel it’s now a bit “overboard” that my endocrinologist is trying also not to do in person appointments. I feel is a waste of my time, but still have to do it every 3 months as per Medicare requirements to get my insulin and pump supplies.

      4 years ago Log in to Reply
    15. Becky Hertz

      I said rarely, but I do look at the Clarity reports once a week.

      1
      4 years ago Log in to Reply
    16. Carol Meares

      To be honest, I don’t know if I glean much out of the data by observing weekly. One can get obsessed with numbers about diabetes, speaking about myself, but on occasion I do tweek settings to try to improve things a bit.

      2
      4 years ago Log in to Reply
    17. Sharon Lillibridge

      I DONOT”DOWNLOAD”data…I keep a journal with me at all times and record every dexcom reading, exercise, water intake, and food sometimes every hour sometimes every 5 minutes.

      1
      4 years ago Log in to Reply
    18. Mick Martin

      Fortnightly, though I do check on what my pump says directly more frequently than that.

      During in-person visits with either my endocrinologist or Diabetes Specialist Nurse we always download the data from the Medtronic website and discuss what’s happening based on the viewable results.

      4 years ago Log in to Reply
    19. Stephen Woodward

      access to the data is an obstacle that stresses the effective evaluation of daily management. There is no easy way ti view the data other than reviewing the printouts in person. I even got kicked out of my Endo’s practice in Dec of last year because I insisted on reviewing the data for the pump and the medical center he works for refused to allow access to the data due to it being outside the organization. The access process Tandem pump data is poor for the providers.

      4 years ago Log in to Reply
    20. Molly Jones

      I have been keeping a diet and activity diary along with my Dexcom and Tandem reports. This gets looked at at least monthly.
      My profiles often need changing or reversing for a short amount of time. I currently have about four of them on my pump.
      I am trying to understand why my diabetic needs for the same activity and foods can change without any obvious cause. Some inside stress I am unaware of most likely.

      4 years ago Log in to Reply
    21. Cheryl Seibert

      Weekly, every Saturday morning. I review my pump data that has been uploaded daily via tconnect app. I often look at the data reports on my Dexcom Clarity and Tandem TConnect app as well.

      4 years ago Log in to Reply
    22. Amy Wolk

      Every couple of days

      4 years ago Log in to Reply

    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply! Cancel reply

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