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    • 5 hours, 30 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 17 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 19 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 22 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 1 hour ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 1 hour ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 1 hour ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 17 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 19 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 19 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 21 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 23 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 3 days ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!

    Home > LC Polls > How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply!
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    If you use time in range reports, what percentage of time did you spend in range during the past 7 days?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    25 Comments

    1. Ahh Life

      Weekly, downloading the data every Saturday or Sunday morning. I do check the 3 week or monthly data groupings also for trends, since the weekly data can sometimes reflect equipment failure effects. ლ( ͡~ 𝆒 ͡°)ლ

      4 years ago Log in to Reply
    2. Richard Vaughn

      I keep a lot of data on charts of my own making. I get all I need from those charts. I am old fashioned. I don’t need the newer methods.

      1
      4 years ago Log in to Reply
      1. Don P

        Mornin’ Richard, I’m almost as old “skul” as you, still use written ( of which contains tons more detail than any device can provide ) along with all the new methods. For instant results, new is much easier, for better control, written is the only way.

        4 years ago Log in to Reply
    3. TomH

      We could use some articles on how to analyze CGM/pump data and how to apply it!

      3
      4 years ago Log in to Reply
    4. Andrew Stewart

      I use Glookco to track my numbers from Dexcom G6 and Tandem t:slim and I only import the t:slim data every couple of weeks but look at the CGM data at least twice a day for inspiration and motivation.

      4 years ago Log in to Reply
      1. Andrew Stewart

        Sorry, that’s Glooko 🤦‍♂️

        4 years ago Log in to Reply
    5. Annie Wall

      I don’t have to download a thing. Between Tandem and Dexcom, everything flows to the websites which my endo has access to. I frequently look at the Tandem app on my phone but if I want to look at more data, I simply go to the Tandem webpage. This has made it so easy for me to tweek ratios and not wait for a doctor visit. But the doctor visits often help me look at the bigger picture rather than doing the crazy nitpicking I’m bent on doing!

      4 years ago Log in to Reply
    6. Amanda Barras

      I make my own adjustments as necessary. But, I only view my data a few times a year.

      4 years ago Log in to Reply
    7. ConnieT1D62

      I do a glance through once or twice a month to review patterns and problem areas, and tweak as needed. At endocrine provider visits, her staff does a full data download for the past 3 months, but we really only focus on the most recent and current trends from the past 2 – 3 weeks when I see her. We look at spikes and valleys, discuss what may or may not have been going on and recognize the past data is past data and may not be of concern any longer. Unless of course it is – then we make changes.

      4 years ago Log in to Reply
    8. Steve Rumble

      I am participating in a study evaluating the benefits of regular virtual counseling for T1D control so I speak with a counselor every 2 weeks for a detailed review of my data. I also look at my data every few days.

      4 years ago Log in to Reply
      1. Miriam Dahan

        @Steve Rumble can I ask how you found such a study? Can you direct me to a particular website?

        4 years ago Log in to Reply
    9. kristina blake

      I upload for my use every month, although I use T-Connect so it ships off to the ENdo office as well. I do my own tweaking and my monthly data shows me that – for me- where my infusion sets are makes a difference. So while some people have profiles set to workdays vs weekends etc mine a based on infusion set placement and labeled as such (eg legs, belly etc)

      2
      4 years ago Log in to Reply
    10. Sondra Mangan

      With automated upload of Omnipod DASH and Dexcom G6 data, it is very easy to take a look at my data—every day if I wish.

      4 years ago Log in to Reply
    11. betsy valian

      for my Endo appts only.

      4 years ago Log in to Reply
    12. Mary Dexter

      Sporadically

      1
      4 years ago Log in to Reply
    13. Kathryn Keller

      I don’t download anything as we use night scout and dexcom. It all happens automatically. I more just adjust as things happen. If I notice something is happening routinely, then will make an adjustment.

      4 years ago Log in to Reply
    14. Mig Vascos

      Only review the actual reports during my tele health visits. Otherwise I check the apps on the phone daily just to have a make sure that I’m staying on my goal.
      My diabetes team has only been doing telehealth and no in person visits. It’s convenient when we are just checking reports since I do my own adjustments to the pump but I feel it’s now a bit “overboard” that my endocrinologist is trying also not to do in person appointments. I feel is a waste of my time, but still have to do it every 3 months as per Medicare requirements to get my insulin and pump supplies.

      4 years ago Log in to Reply
    15. Becky Hertz

      I said rarely, but I do look at the Clarity reports once a week.

      1
      4 years ago Log in to Reply
    16. Carol Meares

      To be honest, I don’t know if I glean much out of the data by observing weekly. One can get obsessed with numbers about diabetes, speaking about myself, but on occasion I do tweek settings to try to improve things a bit.

      2
      4 years ago Log in to Reply
    17. Sharon Lillibridge

      I DONOT”DOWNLOAD”data…I keep a journal with me at all times and record every dexcom reading, exercise, water intake, and food sometimes every hour sometimes every 5 minutes.

      1
      4 years ago Log in to Reply
    18. Mick Martin

      Fortnightly, though I do check on what my pump says directly more frequently than that.

      During in-person visits with either my endocrinologist or Diabetes Specialist Nurse we always download the data from the Medtronic website and discuss what’s happening based on the viewable results.

      4 years ago Log in to Reply
    19. Stephen Woodward

      access to the data is an obstacle that stresses the effective evaluation of daily management. There is no easy way ti view the data other than reviewing the printouts in person. I even got kicked out of my Endo’s practice in Dec of last year because I insisted on reviewing the data for the pump and the medical center he works for refused to allow access to the data due to it being outside the organization. The access process Tandem pump data is poor for the providers.

      4 years ago Log in to Reply
    20. Molly Jones

      I have been keeping a diet and activity diary along with my Dexcom and Tandem reports. This gets looked at at least monthly.
      My profiles often need changing or reversing for a short amount of time. I currently have about four of them on my pump.
      I am trying to understand why my diabetic needs for the same activity and foods can change without any obvious cause. Some inside stress I am unaware of most likely.

      4 years ago Log in to Reply
    21. Cheryl Seibert

      Weekly, every Saturday morning. I review my pump data that has been uploaded daily via tconnect app. I often look at the data reports on my Dexcom Clarity and Tandem TConnect app as well.

      4 years ago Log in to Reply
    22. Amy Wolk

      Every couple of days

      4 years ago Log in to Reply

    How often do you download and analyze your own diabetes data (from pumps, sensors, pens, or glucose meters)? Select all that apply! Cancel reply

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