Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 1 day, 4 hours ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I have to try my best to move my Leg's for at least 30 minutes a day. If not something around that.
    • 1 day, 5 hours ago
      Richard likes your comment at
      How often do you exercise? Share more in the comments about your exercise routine.
      I exercise daily! I ski, bicycle, walk/jog, and workout at the gym. I currently have a rotator cuff injury so I limit my trips to the gym.
    • 1 day, 6 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      During Ramadhan I keep it slightly elevated so that I don’t have to break the 12 hour fast.
    • 1 day, 6 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      when I am traveling, I will let it run a little higher because I don't know what I'll be doing at any given moment.
    • 1 day, 6 hours ago
      atr likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      The question is poorly worded. If I am doing those things I run my blood sugar higher if not I don’t. A better question might be how often do I do those things. Since I do them often I run high often on purpose. I cannot be sub 100 and do them.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 1 day, 6 hours ago
      Lawrence S. likes your comment at
      How often do you intentionally run your glucose slightly higher during certain activities (e.g., driving, public speaking, exercise)?
      Exercise affects me profoundly at an older age (and has the physics of momentum and driving at ANY age!). Answer: often/
    • 2 days, 2 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 2 days, 2 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 2 days, 2 hours ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 2 days, 2 hours ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 4 hours ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 2 days, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 2 days, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 5 hours ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 6 hours ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 2 days, 7 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 2 days, 7 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 2 days, 7 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 2 days, 7 hours ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 2 days, 7 hours ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 2 days, 7 hours ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Industry Partnerships
      • Academic Partnerships
      • Previous Work
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.

    Home > LC Polls > How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you.
    Previous

    Going through puberty is a tough time. Looking back, is there anything you wish you’d known about T1D in puberty that you would like to share with young people today who are going through this transition? Or, if you’re a caregiver, what is a question you’d like to ask the community on how to handle the challenges that come with managing T1D for young people during puberty?

    Next

    What was your most recent A1c?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    What’s Keeping Glucagon Out of Reach for Many with T1D? 

    Jewels Doskicz, 4 days ago 6 min read  
    News

    Thinking About Type 1 Diabetes Autoantibody Screening? Here’s What to Consider 

    Jewels Doskicz, 1 week ago 9 min read  
    2025 Learning Session

    T1DX-QI 2025 November Learning Session Abstracts 

    QI Team at T1D Exchange, 2 weeks ago 1 min read  
    Advocacy

    The Language of Type 1 Diabetes: Why Words Matter 

    Jewels Doskicz, 2 weeks ago 6 min read  
    News

    Understanding Time in Range, GMI, and A1C in Type 1 Diabetes 

    Jewels Doskicz, 3 weeks ago 4 min read  
    News

    Out of Insulin? Expert Tips from Diana Isaacs, PharmD 

    Jewels Doskicz, 1 month ago 9 min read  

    19 Comments

    1. Carolann Hunt

      You can explain it over and over and they still choose to not understand. It’s up there with understanding vaccines.

      6
      3 years ago Log in to Reply
    2. M C

      As it doesn’t impact them directly/personally, they don’t care to know or understand anything about the condition…. most don’t even know/remember that I have T1D. Those who do ‘know’ remain blissfully ignorant. Such is life.

      3
      3 years ago Log in to Reply
    3. Lawrence S.

      Unless they are around a T1D diabetic most of the time, they don’t get it. My relatives know that I am a diabetic. Most don’t know that there is a difference between Type 1 and Type 2. If it is not an immediate part of their lives, they just don’t think about it. I have heard numerous times when I experience a low blood sugar around them, “do you need insulin?” They want to help, but they don’t know what to do.
      Regarding my pump, they know that it pumps insulin … that’s about it.

      4
      3 years ago Log in to Reply
    4. Jane Cerullo

      Bahaha some still think you take insulin for a low. And don’t start me on difference between type 1 and 2. Always telling me what study they read that will cure me.

      5
      3 years ago Log in to Reply
    5. Barbara Bubar

      As a very long-term person with Type 1 and with the addition of both a nephew and a great nephew years later with Type 1 AND a brother-in-law with Type 2, the entire subject of diabetes has been covered in great detail for many years with all of the members in my extended family–up, down and sideways!!!.

      3 years ago Log in to Reply
    6. Ahh Life

      Cruise control / autopilot. Isn’t that what everyone has in their cars and F-22 fighter jets?

      That is the assumption made about tSlim X2 control IQ God-perfect algorithms. Friends, relatives, and even my wife assume now that life is perfect. Oh, well. ┏( ͡❛ ͜ʖ ͡❛)┛

      1
      3 years ago Log in to Reply
      1. Elissa Macher

        Same with me.

        3 years ago Log in to Reply
      2. Wanacure

        One of the critical computer models that was supposed to predict hurricane Ian is baffling meteorologists according to one of the TV news broadcast station I’m watching on 7 Oct 2022.

        3 years ago Log in to Reply
    7. Ernie Richmann

      To be fair I have limited knowledge of the various conditions, medications, and treatments of others in my extended family or of my friends and acquaintances. For those who are interested, I am happy to offer information about types of diabetes, the role of insulin, healthy life style choices, and more.

      3
      3 years ago Log in to Reply
    8. Elissa Macher

      Most of my relatives think that a pump IS an artificial pancreas that never needs to be touched.

      3 years ago Log in to Reply
      1. Karen Newe

        This is one reason why I do not like that term.

        3 years ago Log in to Reply
    9. Janice Bohn

      Sad but most of my extended family do not understand anything about T1D

      3 years ago Log in to Reply
    10. Liz Avery

      Even my siblings (56 year T1D) think I fake it when I experience a low and need to eat. That is the jealous mindset of “Liz always gets her way”. Grow up.

      1
      3 years ago Log in to Reply
    11. AnitaS

      I have T-1, but even my type 2 diabetic relatives are unaware of some of the differences between types 1 & 2. And some of the relatives who understand diabetes fairly well still don’t realize I can go for hours without eating because the pump helps, but they still think I have to be on a strict eating schedule. Like some other person noted, I don’t know all about others’ diseases, so why do I expect them to know all about my disease? Heck, just the other day when my cgm beeped, my mom offered me a hard boiled egg. My father would have known I needed something like juice.

      2
      3 years ago Log in to Reply
    12. Mary Dexter

      Some think they know about my diabetes, but the knowledge makes them uncomfortable, so they avoid me. They don’t visit and rarely call me. I can forgive them. The doctors on whom I must rely I am less forgiving. I should not have to keep correcting their changing my diagnosis back to T2, nor should I endure their pompous explanation of the two types (T1 is little kids, etc.) I shouldn’t have to repeatedly fight for continued access to insulin and CGM. Switching doctors would do me no good. All the doctors in this town are in lockstep and I am labeled the problem.

      1
      3 years ago Log in to Reply
      1. Karen Newe

        So sorry you are struggling with your doctors.

        1
        3 years ago Log in to Reply
    13. Molly Jones

      As I have three members of extended family in the medical field, a few of them understand it quite well. The others are ignorant as I am of many conditions myself.
      Since only half a percent of the population has this type 1 of this condition, I can understand the ignorance.

      1
      3 years ago Log in to Reply
    14. Cheryl Seibert

      I have a small extended family. One grandmother was Type 2 so she knew about diabetes. While my extended family has a lot of Type 2, they really no nothing about my T1D devices, what insulin does or anything else about my T1D.

      1
      3 years ago Log in to Reply
    15. Wanacure

      I have many distant relatives on both sides of family but we are not in touch. Years after my brother and I were diagnosed I learned it was on my mother’s side as well as my father’s side. I think this helped my father feel less guilty. I think at least some of the extended family members felt diabetes was shameful, an indication of “genetic inferiority.” My own mother had been a strong believer in eugenics…till her own sons developed diabetes.
      You would not believe how many “educated” Americans and Europeans including doctors and even Supreme Court Justice Felix Frankfurter endorsed eugenic practices like sterilizing people classified as “idiots,” “morons,” “homosexuals,” “insane,” epileptics, “criminals,” the colonized indigenous people of color, “cripples,” “half-breeds,” etc. Thousands were sterilized in the US well into the 1960’s. Ever seen the movie, “The Bad Seed?” Have you seen the PBS documentaries? Read any of the well-documented books? In “liberal” Seattle I met a “mixed-race” couple who could not buy or rent outside of the redlined zone. The world’s largest “democracy” still has a caste system based on the supposed superiority of lighter skin color. Today, look at the rise in popularity of “anti-immigrant” politicians in many “white” “so-called Christian” countries. How will YOU vote next month?

      3 years ago Log in to Reply

    How much do you think your relatives outside of your immediate family know about T1D? Select all of the statements that you think are true for you. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]