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    • 4 hours, 6 minutes ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 5 hours, 56 minutes ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 8 hours, 39 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 8 hours, 40 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 8 hours, 40 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 11 hours, 18 minutes ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 11 hours, 49 minutes ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 13 hours, 24 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 13 hours, 25 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 13 hours, 29 minutes ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 13 hours, 34 minutes ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 14 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 5 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 1 day, 5 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 5 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 5 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 5 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 5 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 5 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 11 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 1 day, 11 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 1 day, 11 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 1 day, 11 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 1 day, 11 hours ago
      TomH likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is a little bit like asking, "How many grains of sand does it take to make an entire beach." I dunno. No idea. But it's a bunch. Maybe even zero on most days. Then the wonderful American medical system says, "You haven't got enough to worry about. Let us complicate your life a thousandfold to keep you on your toes.." Thanks, guys. 🍒
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?
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    How did you schedule your next appointment with your main T1D health care provider?

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    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Kristina Chapman

      For Oct – Dec it was like $30….however we got a new policy with hubby’s new job and in January I have paid over $1500 already AND had to change every single one of his scripts 🙁

      4 years ago Log in to Reply
    2. connie ker

      I am a senior on Medicare with a great supplement and great drug program. The premiums are my monthly costs so these policies are a perk for growing old with T1D. The monthly premiums are not cheap however.

      3
      4 years ago Log in to Reply
      1. Patricia Dalrymple

        Connie, would you be willing to share what supplement you are on? I have to pick one next year and am trying to gather data from this group about which are the best. Thank you!

        1
        4 years ago Log in to Reply
      2. Sherrie Johnson

        Connie Sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra Continued success.

        1
        4 years ago Log in to Reply
    3. Bill Williams

      Since Omnipod isn’t covered under Part B, the donut hole is a killer for me.

      4 years ago Log in to Reply
    4. Patricia Dalrymple

      My insulin and test strips are free through my employer. The only cost are my pump supplies. I go to Medicare next March and am nervous about having to change once I retire.

      1
      4 years ago Log in to Reply
      1. Sherrie Johnson

        Medicare covers pump supplies and insulin as DME. Get a good supplement and they pick up the 20% that medicare doesnt cover.

        1
        4 years ago Log in to Reply
    5. Mick Martin

      $0 as I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      4 years ago Log in to Reply
    6. Tom Caesar

      Say $190 on supplies, $1,200 for insurances. Average $450 monthly, more than we spend for food!

      4 years ago Log in to Reply
    7. Jim Cobbe

      Very good Medicare Advantage HMO; $100 a quarter each for Tresiba and Fiasp, everything else no charge (includes both strips and Dexcom supplies and a box or two of syringes for under $20).

      4 years ago Log in to Reply
    8. Pauline M Reynolds

      I answered in error because I thought it was asking about the year. Sorry.

      4 years ago Log in to Reply
      1. Pauline M Reynolds

        Should have been $1 – $500

        4 years ago Log in to Reply
    9. Louise Robinson

      Of course, this doesn’t include the monthly insurance premium costs. Because it is a question dealing with the last quarter of a year, it also doesn’t include any applicaple insurance deductibles which are experienced earlier in the year.

      3
      4 years ago Log in to Reply
    10. AnitaS

      The only diabetes item I have to pay for is insulin which costs me $35 per monthly prescription. My blood test strips, pump supplies and cgm supplies are all 100% covered, so basically I paid a tad over $100

      4 years ago Log in to Reply
    11. lis be

      I answered 1-500, but this is a lot higher most of the year, especially January-March to reach deductibles. Also, I did not include the cost of seeing the full line up of doctors.

      4 years ago Log in to Reply
    12. Randy Mees

      I said 1$-500$ but it was that cheap only because I had already gone thru the donut hole and was covered by the catastrophic part of my insurance.

      4 years ago Log in to Reply
    13. Amanda Barras

      ZERO. But, website was still loading when I hit submit and it clicked N/A and then submit so my response was not recorded correctly…

      4 years ago Log in to Reply
    14. Vicki Breckenridge

      I would have said I paid zero dollars, but Byram delayed my shipment by 3.5 weeks so I had to go to Costco and spend $300 for sensors.😡

      4 years ago Log in to Reply
    15. Andrew Stewart

      My end of the year stock up (3 month supply) of Dexcom G6 sensors and 2 transmitters, Tandem t:slim cartridges and infusion sets and 4 vials of Novolog set me back $253. What a deal, I’m not looking forward to Medicare.

      4 years ago Log in to Reply
    16. LizB

      I get 90 days at a time for everything.
      Insulin – $35
      Test Strips – $75
      Infusion sets – $30
      Sensors – $30
      Total: $170

      I don’t get reservoirs every cycle because I use one for a week or more (whenever it’s empty) so I don’t need them as often. I sometimes skip refills of test strips as well.

      4 years ago Log in to Reply
      1. Anna Kiff

        You have private/company insurance? That’s awesome depending on what you pay.

        4 years ago Log in to Reply
    17. Sherolyn Newell

      $0, but I paid $3500 in deductible at the first part of the year.

      4 years ago Log in to Reply
    18. Molly Jones

      My dependent Premera plan requires no money to be spent on diabetes supplies all year long. I cannot find a similar plan when looking at Premera without my husband’s employer.

      4 years ago Log in to Reply
    19. Randell Cole

      No comment

      4 years ago Log in to Reply
    20. Randell Cole

      35.00 Dollars

      4 years ago Log in to Reply
    21. Randell Cole

      35 Dollars

      4 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I use Medicare part “B” for all Insulin Pump and CGMS supplies. Nothing out of pocket, because on my Federal Blue Cross Blue Shield Secondary Insurance covers all rest.

      4 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021? Cancel reply

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