Subscribe Now

* You will receive the latest news and updates on your favorite celebrities!

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 4 hours, 56 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 4 hours, 57 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 4 hours, 58 minutes ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 1 day, 1 hour ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 1 day, 4 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 2 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 3 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 2 days, 3 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 4 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 5 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 2 days, 16 hours ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 2 days, 21 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 3 days, 14 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 3 days, 14 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 3 days, 21 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 3 days, 21 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • Submit a Question
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Clinics
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
      • Portal
      • Health Equity
        • Heal Advisors
      • Join Us
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partners
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Donate

    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?
    Previous

    How did you schedule your next appointment with your main T1D health care provider?

    Next

    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

    Related Stories

    Blood Sugar

    How You Can Detect & Delay Type 1 Diabetes Before Symptoms Start 

    Ginger Vieira, 1 day ago 8 min read  
    T2D

    Why Your Heart Health Matters if You Live with Diabetes 

    Ginger Vieira, 1 week ago 5 min read  
    2023 Publications

    Association Between Health Insurance Type and Adverse Outcomes for Children and Young Adults With Type 1 Diabetes and Coronavirus Disease 2019 

    T1D Exchange, 1 week ago 1 min read  
    Meet the Expert

    Meet the Expert: Pursuing Beta-Cell Transplant with Temporary Immunosuppression  

    Jewels Doskicz, 3 weeks ago 6 min read  
    2023 Publications

    Institutional Barriers to the Successful Implementation of Telemedicine for Type 1 Diabetes Care 

    T1D Exchange, 3 weeks ago 1 min read  
    Insulin & Meds

    Perceptions About Nasal Glucagon in Young Adults and Caregivers 

    Caitlin Kelly, 3 weeks ago 6 min read  

    27 Comments

    1. Kristina Chapman

      For Oct – Dec it was like $30….however we got a new policy with hubby’s new job and in January I have paid over $1500 already AND had to change every single one of his scripts 🙁

      2 years ago Log in to Reply
    2. connie ker

      I am a senior on Medicare with a great supplement and great drug program. The premiums are my monthly costs so these policies are a perk for growing old with T1D. The monthly premiums are not cheap however.

      3
      2 years ago Log in to Reply
      1. Patricia Dalrymple

        Connie, would you be willing to share what supplement you are on? I have to pick one next year and am trying to gather data from this group about which are the best. Thank you!

        1
        2 years ago Log in to Reply
      2. Sherrie Johnson

        Connie Sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra Continued success.

        1
        2 years ago Log in to Reply
    3. Bill Williams

      Since Omnipod isn’t covered under Part B, the donut hole is a killer for me.

      2 years ago Log in to Reply
    4. Patricia Dalrymple

      My insulin and test strips are free through my employer. The only cost are my pump supplies. I go to Medicare next March and am nervous about having to change once I retire.

      1
      2 years ago Log in to Reply
      1. Sherrie Johnson

        Medicare covers pump supplies and insulin as DME. Get a good supplement and they pick up the 20% that medicare doesnt cover.

        1
        2 years ago Log in to Reply
    5. Mick Martin

      $0 as I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      2 years ago Log in to Reply
    6. Tom Caesar

      Say $190 on supplies, $1,200 for insurances. Average $450 monthly, more than we spend for food!

      2 years ago Log in to Reply
    7. Jim Cobbe

      Very good Medicare Advantage HMO; $100 a quarter each for Tresiba and Fiasp, everything else no charge (includes both strips and Dexcom supplies and a box or two of syringes for under $20).

      2 years ago Log in to Reply
    8. Pauline M Reynolds

      I answered in error because I thought it was asking about the year. Sorry.

      2 years ago Log in to Reply
      1. Pauline M Reynolds

        Should have been $1 – $500

        2 years ago Log in to Reply
    9. Louise Robinson

      Of course, this doesn’t include the monthly insurance premium costs. Because it is a question dealing with the last quarter of a year, it also doesn’t include any applicaple insurance deductibles which are experienced earlier in the year.

      3
      2 years ago Log in to Reply
    10. AnitaS

      The only diabetes item I have to pay for is insulin which costs me $35 per monthly prescription. My blood test strips, pump supplies and cgm supplies are all 100% covered, so basically I paid a tad over $100

      2 years ago Log in to Reply
    11. lis be

      I answered 1-500, but this is a lot higher most of the year, especially January-March to reach deductibles. Also, I did not include the cost of seeing the full line up of doctors.

      2 years ago Log in to Reply
    12. Randy Mees

      I said 1$-500$ but it was that cheap only because I had already gone thru the donut hole and was covered by the catastrophic part of my insurance.

      2 years ago Log in to Reply
    13. Amanda Barras

      ZERO. But, website was still loading when I hit submit and it clicked N/A and then submit so my response was not recorded correctly…

      2 years ago Log in to Reply
    14. Vicki Breckenridge

      I would have said I paid zero dollars, but Byram delayed my shipment by 3.5 weeks so I had to go to Costco and spend $300 for sensors.😡

      2 years ago Log in to Reply
    15. Andrew Stewart

      My end of the year stock up (3 month supply) of Dexcom G6 sensors and 2 transmitters, Tandem t:slim cartridges and infusion sets and 4 vials of Novolog set me back $253. What a deal, I’m not looking forward to Medicare.

      2 years ago Log in to Reply
    16. LizB

      I get 90 days at a time for everything.
      Insulin – $35
      Test Strips – $75
      Infusion sets – $30
      Sensors – $30
      Total: $170

      I don’t get reservoirs every cycle because I use one for a week or more (whenever it’s empty) so I don’t need them as often. I sometimes skip refills of test strips as well.

      2 years ago Log in to Reply
      1. Anna Kiff

        You have private/company insurance? That’s awesome depending on what you pay.

        2 years ago Log in to Reply
    17. Sherolyn Newell

      $0, but I paid $3500 in deductible at the first part of the year.

      2 years ago Log in to Reply
    18. Molly Jones

      My dependent Premera plan requires no money to be spent on diabetes supplies all year long. I cannot find a similar plan when looking at Premera without my husband’s employer.

      2 years ago Log in to Reply
    19. Randell Cole

      No comment

      2 years ago Log in to Reply
    20. Randell Cole

      35.00 Dollars

      2 years ago Log in to Reply
    21. Randell Cole

      35 Dollars

      2 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I use Medicare part “B” for all Insulin Pump and CGMS supplies. Nothing out of pocket, because on my Federal Blue Cross Blue Shield Secondary Insurance covers all rest.

      2 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021? Cancel reply

    You must be logged in to post a comment.

    This site uses Akismet to reduce spam. Learn how your comment data is processed.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2023 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    2019 Publications

    0 Stories Related

    2020 ADA

    12 Stories Related

    2020 ADCES

    0 Stories Related

    2020 ATTD

    0 Stories Related

    2020 EASD

    0 Stories Related

    2020 ISPAD

    7 Stories Related

    2020 Publications

    0 Stories Related

    2021 ADA

    11 Stories Related

    2021 ADCES

    0 Stories Related

    2021 ATTD

    4 Stories Related

    2021 ISPAD

    8 Stories Related

    2021 Publications

    21 Stories Related

    2022 ADA

    11 Stories Related

    2022 ADCES

    4 Stories Related

    2022 ATTD

    10 Stories Related

    2022 ISPAD

    0 Stories Related

    2023 ADA

    12 Stories Related

    2023 ADCES

    2 Stories Related

    2023 ATTD

    7 Stories Related

    2023 Publications

    16 Stories Related

    ADA

    17 Stories Related

    ADCES

    2 Stories Related

    Advocacy

    23 Stories Related

    ATTD

    17 Stories Related

    Blood Sugar

    2 Stories Related

    Conditions

    8 Stories Related

    COVID-19

    6 Stories Related

    EASD

    0 Stories Related

    General Publications

    30 Stories Related

    Get Involved

    11 Stories Related

    Insulin & Meds

    17 Stories Related

    ISPAD

    1 Stories Related

    Journal of Diabetes

    21 Stories Related

    Lifestyle

    15 Stories Related

    Lifestyles

    1 Stories Related

    Meet the Expert

    28 Stories Related

    Mental Health

    12 Stories Related

    News

    35 Stories Related

    Our team

    23 Stories Related

    Partner Content

    7 Stories Related

    Press Release

    7 Stories Related

    Question of the Day

    28 Stories Related

    Research

    73 Stories Related

    Stories

    18 Stories Related

    T2D

    3 Stories Related

    Technology

    26 Stories Related

    Uncategorized

    2 Stories Related

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    • Clear All
    • Sort By

    • Select Category