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    • 2 hours, 16 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 2 hours, 18 minutes ago
      kristina blake likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      To paraphrase a famous Ernest Hemingway line, it would be pretty to think so. 🧠
    • 2 hours, 57 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      the best one was when he recommended a CGM (Libre 2) for the first time. I said to him, "am I gonna scan myself like a can of peaches at the supermarket"? he got a laugh out of that one
    • 3 hours, 3 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 3 hours, 4 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 3 hours, 27 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I think I stay more up-to-date than my doc on what’s available for T1 treatment, but then I’m retired, have more time and more stake in the result than my doc does; further, he has to stay up-to-date on numerous other conditions/treatments, though an argument is true, it is his job. We still discuss settings/treatments/new offerings/changes in formulary of insurance coverage at each appointment a few times a year to go over blood work, update scripts, and check current treatments.
    • 3 hours, 28 minutes ago
      Sarah Berry likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 4 hours, 5 minutes ago
      Vicki Andersen likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 4 hours, 50 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I am usually the one who asks about new tech. Or I explain the new tech that I am using to my endo.
    • 4 hours, 50 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      My first one always pushed me towards new tech, letting me try it and then letting me decide. When I moved from Baltimore, a better place to be sick besides NYC you probably can’t find, to Florida, I asked for an Endo recommendation. He suggested USF but that’s a 45 min drive from me, on a good traffic day. So this one is convenient but he is more interested in not being inconvenienced. We got into it the last time I was there and were pretty honest with each other and he told me my insurance was the major problem. I have Medicare and a gap, like I’m not going to use that…I paid for it! Medicare is good paying for most things but you have to fight with them to get even normal prescriptions filled, here at least. So, to drone on, we’ve cleared the air and he and his staff have worked hard this past 3 months to get me what I need. I’m grateful for that. It’s not easy being a doc.
    • 4 hours, 52 minutes ago
      Lawrence S. likes your comment at
      Does your T1D provider suggest new offerings (tech, medications, etc.) they think would be beneficial during your appointments?
      I usually bring up new options and then we discuss the pros and cons.
    • 13 hours, 58 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      Both. Been on medications for many years.
    • 13 hours, 58 minutes ago
      KarenM6 likes your comment at
      Do you live with depression or anxiety?
      I have both which are well managed with medication, lots of meditation and a focus on self compassion.
    • 21 hours, 1 minute ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I don't believe I have ever used expired CGMs or pump supplies.
    • 21 hours, 1 minute ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I have not use expired products.
    • 21 hours, 2 minutes ago
      kilupx likes your comment at
      If you’ve used expired pump supplies (infusion sets, reservoirs, pods) in the past, did you have any issues with them?
      I use a pump, but I haven't used expired pump supplies.
    • 1 day, 16 hours ago
      Sandy Norman likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I put no since the only time I was admitted was at diagnosis. But would that count as a yes?
    • 2 days ago
      Gerald Oefelein likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I said “No.” Perhaps I’m the luckiest person alive since I’ve navigated the diabetic road for 74 years. Have never had DKA, although symptomatic twice. Have had numerous hypoglycemic affairs, but no hospitalizations. I am also a bit determined. They may hospitalize me for dementia or other old age conditions. But not for T1D. ✨.•*¨*.¸.•*¨*.¸¸.•*¨`*• ¨*.¸.•*¨`*. ¸.•*¨*.¸¸.•*¨`*•.✨
    • 2 days ago
      Carl Robertson likes your comment at
      Do you “soak” or insert a new continuous glucose monitor (CGM) sensor before the old one expires?
      Yeah, somewhere between 1/2 to 12 hours ahead of time I insert a new G7 on the opposite arm. Only risk is -- and it's a big one -- I occasionally forget which is the new one and which is the old one. Sigh. ¯\_(ツ)_/¯?
    • 2 days, 4 hours ago
      TEH likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      Before CGMs, I had a severe insulin reaction. In a blackout I walked about half a mile and passed out, falling flat on my face. Woke up on an operating table where doctors were working on stopping the bleeding in my mouth and trying to save my front teeth. Was hospitalized for four days.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Do you live with depression or anxiety?
      Depression is the condition I have lived with the longest and affects me the most. I am grateful that it seems to be improving as I age, even with additions of other medical conditions. I have anxiety unexpectedly for no reason when I have focal seizures that affect my amygdala. Otherwise, I seem to lack that emotion almost completely. I would love it if they could have sensors for neurochemistry.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      Back in the 80's, I had influenza, uncontrolled blood sugar, and was probably severely dehydrated that put me in the hospital. Maybe I had DKA, but that wasn't much talked about in those days. I think I was there for one to two days.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      Twice, once in 1980 and another in 2024. I was dx'd Type 1 in 1976 while in my mid-20's. In 1980, I had been on a ski vacation, caught a bad cold and didn't know that I needed more insulin in times of illness. I wound up in ICU for 3 days because of DKA. I've learned a lot about properly managing my diabetes in the intervening years and have been able to keep my A1c's in the low 6's. At year-end, last year, I had 3 consecutive insulin pump infusion site failures in the space of 18 hours (Dec 29-30) which landed me in the ER with very high glucose levels that would not come down. I was diagnosed with early DKA and spent 2 days in ICU and another 2 days in the hospital before release. The first two infusion sites hadn't penetrated. I gave myself an insulin injection which reduced my glucose levels before inserting the third site. Once my glucose levels had reached 120 mg/dl, I then ate breakfast and bolused but my levels kept climbing and I felt nauseous and overall "crappy". My husband took me to the ER. It turns out my 3rd site resulted in a bent cannula. I had been using the Tandem Autosoft30 infusion sets. Since that hospitalization I've gone back to the Autosoft XC infusion sets and haven't had any more such issues. It was not the way I'd envisioned welcoming in 2025...but I'm happy that I was able to welcome it in!
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      My glucose went so high because the pump wasn’t delivering insulin without me being aware that my acidity level was off and I had to spend a week at the hospital.
    • 2 days, 4 hours ago
      Lawrence S. likes your comment at
      Have you ever been hospitalized for a type 1 diabetes-related issue? Please share more in the comments.
      I was staying at a friends house on Fire Island. As with many beach homes, the bedroom was all in white. But when I woke, the windowsill, the wall, and the bed were all covered in my blood. It was still dripping from my head. Back then, there was no CGM, no alarm. My glucometer read 24 and I scarfed down the M&M's in my bag, followed by a glass of juice. I was fine, but the worried wife of my friend called an ambulance. The paramedic was great...he said, "stop with the sugar" and had me eat a cheese sandwich. Then sent me in a water ambulance, just to get me head checked out.
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    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?
    Previous

    How did you schedule your next appointment with your main T1D health care provider?

    Next

    If you have a health insurance plan that includes the ability to use a Flexible Spending Account, do you currently have an FSA?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    27 Comments

    1. Kristina Chapman

      For Oct – Dec it was like $30….however we got a new policy with hubby’s new job and in January I have paid over $1500 already AND had to change every single one of his scripts 🙁

      3 years ago Log in to Reply
    2. connie ker

      I am a senior on Medicare with a great supplement and great drug program. The premiums are my monthly costs so these policies are a perk for growing old with T1D. The monthly premiums are not cheap however.

      3
      3 years ago Log in to Reply
      1. Patricia Dalrymple

        Connie, would you be willing to share what supplement you are on? I have to pick one next year and am trying to gather data from this group about which are the best. Thank you!

        1
        3 years ago Log in to Reply
      2. Sherrie Johnson

        Connie Sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra sounds like you have a good plan mine is good to not cheap anthem Blue Cross plan F covers everything no deductible no claims no bills no co-pay it’s worth it to me to pay the extra Continued success.

        1
        3 years ago Log in to Reply
    3. Bill Williams

      Since Omnipod isn’t covered under Part B, the donut hole is a killer for me.

      3 years ago Log in to Reply
    4. Patricia Dalrymple

      My insulin and test strips are free through my employer. The only cost are my pump supplies. I go to Medicare next March and am nervous about having to change once I retire.

      1
      3 years ago Log in to Reply
      1. Sherrie Johnson

        Medicare covers pump supplies and insulin as DME. Get a good supplement and they pick up the 20% that medicare doesnt cover.

        1
        3 years ago Log in to Reply
    5. Mick Martin

      $0 as I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      3 years ago Log in to Reply
    6. Tom Caesar

      Say $190 on supplies, $1,200 for insurances. Average $450 monthly, more than we spend for food!

      3 years ago Log in to Reply
    7. Jim Cobbe

      Very good Medicare Advantage HMO; $100 a quarter each for Tresiba and Fiasp, everything else no charge (includes both strips and Dexcom supplies and a box or two of syringes for under $20).

      3 years ago Log in to Reply
    8. Pauline M Reynolds

      I answered in error because I thought it was asking about the year. Sorry.

      3 years ago Log in to Reply
      1. Pauline M Reynolds

        Should have been $1 – $500

        3 years ago Log in to Reply
    9. Louise Robinson

      Of course, this doesn’t include the monthly insurance premium costs. Because it is a question dealing with the last quarter of a year, it also doesn’t include any applicaple insurance deductibles which are experienced earlier in the year.

      3
      3 years ago Log in to Reply
    10. AnitaS

      The only diabetes item I have to pay for is insulin which costs me $35 per monthly prescription. My blood test strips, pump supplies and cgm supplies are all 100% covered, so basically I paid a tad over $100

      3 years ago Log in to Reply
    11. lis be

      I answered 1-500, but this is a lot higher most of the year, especially January-March to reach deductibles. Also, I did not include the cost of seeing the full line up of doctors.

      3 years ago Log in to Reply
    12. Randy Mees

      I said 1$-500$ but it was that cheap only because I had already gone thru the donut hole and was covered by the catastrophic part of my insurance.

      3 years ago Log in to Reply
    13. Amanda Barras

      ZERO. But, website was still loading when I hit submit and it clicked N/A and then submit so my response was not recorded correctly…

      3 years ago Log in to Reply
    14. Vicki Breckenridge

      I would have said I paid zero dollars, but Byram delayed my shipment by 3.5 weeks so I had to go to Costco and spend $300 for sensors.😡

      3 years ago Log in to Reply
    15. Andrew Stewart

      My end of the year stock up (3 month supply) of Dexcom G6 sensors and 2 transmitters, Tandem t:slim cartridges and infusion sets and 4 vials of Novolog set me back $253. What a deal, I’m not looking forward to Medicare.

      3 years ago Log in to Reply
    16. LizB

      I get 90 days at a time for everything.
      Insulin – $35
      Test Strips – $75
      Infusion sets – $30
      Sensors – $30
      Total: $170

      I don’t get reservoirs every cycle because I use one for a week or more (whenever it’s empty) so I don’t need them as often. I sometimes skip refills of test strips as well.

      3 years ago Log in to Reply
      1. Anna Kiff

        You have private/company insurance? That’s awesome depending on what you pay.

        3 years ago Log in to Reply
    17. Sherolyn Newell

      $0, but I paid $3500 in deductible at the first part of the year.

      3 years ago Log in to Reply
    18. Molly Jones

      My dependent Premera plan requires no money to be spent on diabetes supplies all year long. I cannot find a similar plan when looking at Premera without my husband’s employer.

      3 years ago Log in to Reply
    19. Randell Cole

      No comment

      3 years ago Log in to Reply
    20. Randell Cole

      35.00 Dollars

      3 years ago Log in to Reply
    21. Randell Cole

      35 Dollars

      3 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I use Medicare part “B” for all Insulin Pump and CGMS supplies. Nothing out of pocket, because on my Federal Blue Cross Blue Shield Secondary Insurance covers all rest.

      3 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021? Cancel reply

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